Neurodiversity, Quality of Life, and Autistic Adults: Shifting Research and Professional Focuses onto Real-Life Challenges
Open accessAbstract
This article examines challenges to the quality of life experienced by autistic adults. The author, who is an autistic researcher, first shares how a neurodiversity perspective offers an important alternative to the deficit model of autism. Whereas the deficit model portrays autistic people as ill, broken, and in need of fixing, the neurodiversity perspective portrays it as a form of human diversity with associated strengths and difficulties. The article’s discussion then shifts to presenting Schalock’s (2000) quality of life framework as a neurodiversity-compatible lens through which domains of quality of life can be viewed. The article analyzes in detail these core domains in relation to the lives of autistic adults. The author suggests that a collaborative approach between professionals/researchers and autistic adults is needed to develop meaningful solutions to these challenges, and he presents possibilities for collaboration. KeywordsAutism, Neurodiversity, Quality of life, Autistic Adults
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Many Autistic individuals possess challenges in areas such as self-determination, social inclusion, well-being (material, emotional, and physical), personal development, interpersonal relationships, and rights.
“Robertson (2009) asserts that many Autistic individuals possess challenges in areas such as self-determination, social inclusion, well-being (material, emotional, and physical), personal development, interpersonal relationships, and rights.”
From Neurodiversity and Autism Intervention: Reconciling Perspectives Through a Naturalistic Developmental Behavioral Intervention Framework (2022) · cites this paper as Robertson (2009)
A 'deficit model' of autism has largely dominated the scientific discourse surrounding autistic phenomenology.
“A 'deficit model' of autism has largely dominated the scientific discourse surrounding autistic phenomenology [76].”
From Autistic Cognition: Charting Routes to Anxiety (2021) · cites this paper as [76]
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Keating, C. T., Hickman, L., Geelhand, P., Takahashi, T., Leung, J., Monk, R., Schuster, B. A., Rybicki, A. J., Girolamo, T. M., Clin, É., et al. (2024) · PLoS ONE · doi:10.1371/journal.pone.0299824 · Cited by 34 · see citing works
#ActuallyAutistic Twitter as a Site for Epistemic Resistance and Crip Futurity
Guberman, J. (2022) · ACM Transactions on Computer-Human Interaction · doi:10.1145/3569891 · Cited by 30 · see citing works
Shogren, K. A., Mosconi, M. W., Raley, S. K., Dean, E. E., Edwards, B., Wallisch, A. M., Boyd, B. A., & Kiblen, J. C. (2021) · Autism in Adulthood · doi:10.1089/aut.2021.0010 · Cited by 34 · see citing works
Reconceptualizing Autism: An Alternative Paradigm for Social Work Practice
Haney, J. L. (2017) · Journal of Progressive Human Services · doi:10.1080/10428232.2017.1394689 · Cited by 29 · see citing works
Lami, F., Egberts, K. J., Ure, A. M., Conroy, R., & Williams, K. J. (2017) · Developmental Medicine & Child Neurology · doi:10.1111/dmcn.13631 · Cited by 29 · see citing works
Turnbull, A. G., Garfinkel, S. N., Ho, N. S. P., Critchley, H., Bernhardt, B. C., Jefferies, E., & Smallwood, J. (2020) · Cortex · doi:10.1016/j.cortex.2020.02.019 · Cited by 26 · see citing works
“Best Things”: Parents Describe Their Children with Autism Spectrum Disorder Over Time
Cost, K. T., Zaidman‐Zait, A., Mirenda, P., Duku, E., Zwaigenbaum, L., Smith, I. M., Ungar, W. J., Kerns, C. M., Bennett, T., Szatmári, P., et al. (2021) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-021-04890-4 · Cited by 29 · see citing works
Body social models of disability: Examining enactive and ecological approaches
Jurgens, A. (2023) · Frontiers in Psychology · doi:10.3389/fpsyg.2023.1128772 · Cited by 23 · see citing works
Hamed, H. M. (2013) · American Journal of Tourism Management · Cited by 26 · see citing works
O’Connor, M., Jones, S. C., Gordon, C. S., & Joosten, A. (2022) · Autism in Adulthood · doi:10.1089/aut.2022.0053 · Cited by 20 · see citing works
Chen, Y., & Patten, K. K. (2021) · American Journal of Occupational Therapy · doi:10.5014/ajot.2020.040618 · Cited by 25 · see citing works
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Jia, R., Steelman, Z. R., & Jia, H. H. (2022) · MIS Quarterly · doi:10.25300/misq/2022/16362 · Cited by 24 · see citing works
The Neurodiversity Attitudes Questionnaire: Development and Initial Validation
Schuck, R. K., Choi, S., Baiden, K. M. P., Dwyer, P. S. R., & Uljarević, M. (2024) · Autism · doi:10.1177/13623613241245756 · Cited by 22 · see citing works
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There and Back Again: Neuro-Diverse Employees, Liminality and Negative Capability
Nash, L. (2022) · Work Employment and Society · doi:10.1177/09500170221117420 · Cited by 22 · see citing works
Erbil, C., Özbilgin, M. F., & Gündoğdu, N. (2025) · Human Resource Management Journal · doi:10.1111/1748-8583.12573 · Cited by 21 · see citing works
Diversity in Autistic Play: Autistic Adults' Experiences
Pritchard-Rowe, E., de Lemos, C., Howard, K., & Gibson, J. L. (2023) · Autism in Adulthood · doi:10.1089/aut.2023.0008 · Cited by 21 · see citing works
Big Data Analytics and AI in Mental HealthcarePreprint
Rosenfeld, A., Benrimoh, D., Armstrong, C., Mirchi, N., Langlois-Therrien, T., Rollins, C. P. E., Tanguay-Sela, M., Mehltretter, J., Fratila, R., Israel, S., et al. (2019) · arXiv.org · doi:10.48550/arxiv.1903.12071 · Cited by 19 · see citing works
- Authors
- Robertson, S. M.
- Corresponding author
- Robertson, Scott Michael
- Venue
- Disability Studies Quarterly
- Publisher
- The Ohio State University Libraries
- Published
- 2009-12-14
- Volume
- 30
- Issue
- 1
- ISSN
- 1041-5718 (ISSN-L)
- 2159-8371
- OpenAlex
- W2103314478
- Cited by
- 305
- References
- 0
- Citations by year
- 2026: 20 · 2025: 27 · 2024: 38 · 2023: 28 · 2022: 20 · 2021: 37 · 2020: 27 · 2019: 24 · 2018: 30 · 2017: 10 · 2016: 13 · 2015: 6 · 2014: 9 · 2013: 6 · 2012: 4
- FWCI
- 6.12
- Type
- journal article
- Language
- en
- Open access
- diamond
- doi.org
- Licence
- cc-by-nc-nd
- Locations
- Disability Studies Quarterly (publishedVersion, cc-by-nc-nd)
- Topics
- Social Sciences › Safety Research › Disability Rights and Representation
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Social Sciences › Safety Research › Disability Education and Employment
- Keywords
- neurodiversity, quality of life, autistic adults, deficit model of autism, autistic self-advocacy
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