The DOI matches its Crossref record; 23 of the 24 references it cites were found in a registry or an index.
How is a sense of well-being and belonging constructed in the accounts of autistic adults?
Open accessAbstract
This small-scale exploratory study sought to develop an understanding of the meaning of well-being and social belonging as represented within the narratives of adults on the autism spectrum. Employing an interpretivist approach facilitated the investigation of potential contributory factors to these lived experiences in order to inform further research regarding both this topic, and service provision for adults on the autism spectrum. The project involved a thematic analysis of issues of the magazine Asperger United (AU). Four broad main themes were identified: meeting personal needs, living with the consequences of an ‘othered’ identity, connection and recognition, and relationships and advocacy. Autistic adults reported many barriers to feeling that they belonged in a number of social spaces and the detrimental effect this had on their wellbeing. Fundamental to positive narratives of wellbeing, were feelings of connection and recognition from others and positive accepting relationships, with autistic-led spaces, particularly the Autscape conference, being frequently cited as of central significance in increasing feelings of wellbeing and belonging. This study has demonstrated a need for less focus on remediation and more on limiting the social isolation of autistic people.
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“Repetitive behaviors and focused interests are important to the internal regulation and well-being of many Autistic individuals (Kapp et al., 2019; Manor-Binyamini & Schreiber-Divon, 2019; Milton & Sims, 2016; see also Grove et al., 2018).”
From Neurodiversity and Autism Intervention: Reconciling Perspectives Through a Naturalistic Developmental Behavioral Intervention Framework (2022) · cites this paper as Milton & Sims, 2016
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“For instance, Milton and Sims found that a key reason autistic people attributed to hindering their wellbeing was barriers to belonging, rather than simply their being autistic (Milton & Sims, 2016).”
From Neurodiversity, epistemic injustice, and the good human life (2022) · cites this paper as Milton & Sims, 2016
In the citing paper
“The term masking was used in 1969 to mean concealing disgust (Ekman & Friesen, 1969) and has since come to be used within the autistic community to mean hiding one’s symptoms (Milton & Sims, 2016; Willey & Attwood, 2015).”
From The experiences of adults with ADHD in interpersonal relationships and online communities: A qualitative study (2023) · cites this paper as Milton & Sims, 2016
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“having the opportunity to engage with others who are like-minded and to develop one’s sense of belonging is thought to be important to the well-being of autistic adults (Milton and Sims 2016).”
From Experiences of autism acceptance and mental health in autistic adults (2018) · cites this paper as Milton and Sims 2016
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Metadata
- Authors
- Milton, D., & Sims, T.
- Affiliations
- London South Bank University (GB)
- Corresponding author
- Milton, Damian
- Venue
- Disability & Society
- Publisher
- Informa UK Limited
- Published
- 2016-04-20
- Volume
- 31
- Issue
- 4
- Pages
- 520-534
- ISSN
- 0267-4645 (ISSN-L)
- 0968-7599
- 1360-0508
- OpenAlex
- W2415653571
- Cited by
- 225
- References
- 24
- Citations by year
- 2026: 29 · 2025: 44 · 2024: 37 · 2023: 29 · 2022: 25 · 2021: 24 · 2020: 15 · 2019: 10 · 2018: 9 · 2017: 2 · 2016: 1
- FWCI
- 4.68
- Type
- journal article
- Language
- en
- Open access
- green
- kar.kent.ac.uk
- Locations
- Disability & Society (publishedVersion)
- Kent Academic Repository (University of Kent) (acceptedVersion)
- Kent Academic Repository (University of Kent) (submittedVersion)
- University of Brighton Repository (University of Brighton) (submittedVersion, other-oa)
- Topics
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Social Sciences › Sociology and Political Science › Disability Rights and Representation
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Keywords
- autistic adults, well-being, social belonging, lived experience, othering, social isolation, advocacy, relationships, recognition
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
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