The DOI matches its Crossref record; 28 of the 28 references it cites were found in a registry or an index.
Public Expectations for Return of Results from Large-Cohort Genetic Research
Open accessAbstract
The National Institutes of Health and other federal health agencies are considering establishing a national biobank to study the roles of genes and environment in human health. A preliminary public engagement study was conducted to assess public attitudes and concerns about the proposed biobank, including the expectations for return of individual research results. A total of 141 adults of different ages, incomes, genders, ethnicities, and races participated in 16 focus groups in six locations across the country. Focus group participants voiced a strong desire to be able to access individual research results. Recognizing the wide range of possible research results from a large cohort study, they repeatedly and spontaneously suggested that cohort study participants be given ongoing choices as to which results they received.
Overview
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Integrity signals
Registry
Cites
Statistics
Verification
Claims the paper makes
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Self-check
Percentages, sums and reported differences re-computed from the paper’s own numbers.
The self-check needs the paper’s full text.
Citations
Cites
THE STRONG HEART STUDY A STUDY OF CARDIOVASCULAR DISEASE IN AMERICAN INDIANS: DESIGN AND METHODS
LEE, E. T., WELTY, T. K., FABSITZ, R., COWAN, L. D., LE, N.-A., OOPIK, A. J., CUCCHIARA, A. J., SAVAGE, P. J., & HOWARD, B. V. (1990) · American Journal of Epidemiology · doi:10.1093/oxfordjournals.aje.a115757 · Cited by 613
Letting the Genome out of the Bottle — Will We Get Our Wish?
Hunter, D. J., Khoury, M. J., & Drazen, J. M. (2008) · New England Journal of Medicine · doi:10.1056/nejmp0708162 · Cited by 357
The emergence of an ethical duty to disclose genetic research results: international perspectives
Knoppers, B. M., Joly, Y., Simard, J., & Durocher, F. (2006) · European Journal of Human Genetics · doi:10.1038/sj.ejhg.5201690 · Cited by 283
Disclosing Individual Genetic Results to Research Participants
Ravitsky, V., & Wilfond, B. S. (2006) · The American Journal of Bioethics · doi:10.1080/15265160600934772 · Cited by 283
Informed Consent for Population-Based Research Involving Genetics
Beskow, L. M. (2001) · JAMA · doi:10.1001/jama.286.18.2315 · Cited by 272
Disclosing Individual Results of Clinical Research: Implications of Respect for Participants
Shalowitz, D. I., & Miller, F. G. (2005) · JAMA · doi:10.1001/jama.294.6.737 · Cited by 265
The Uneasy Ethical and Legal Underpinnings of Large-Scale Genomic Biobanks
Greely, H. T. (2007) · Annual Review of Genomics and Human Genetics · doi:10.1146/annurev.genom.7.080505.115721 · Cited by 244
Reporting genetic results in research studies: Summary and recommendations of an NHLBI working group
Bookman, E. B., Langehorne, A. A., Eckfeldt, J. H., Glass, K. C., Jarvik, G. P., Klag, M., Koski, G., Motulsky, A., Wilfond, B., Manolio, T. A., et al. (2006) · American Journal of Medical Genetics Part A · doi:10.1002/ajmg.a.31195 · Cited by 212
Hoeyer, K., Olofsson, B.-O., Mjörndal, T., & Lynöe, N. (2004) · Scandinavian Journal of Public Health · doi:10.1080/14034940310019506 · Cited by 203
McCarty, C. A., Wilke, R. A., Giampietro, P. F., Wesbrook, S. D., & Caldwell, M. D. (2005) · Personalized Medicine · doi:10.1517/17410541.2.1.49 · Cited by 200
Cited by
Molecular genetic testing and the future of clinical genomics
Katsanis, S. H., & Katsanis, N. (2013) · Nature Reviews Genetics · doi:10.1038/nrg3493 · Cited by 425
Using electronic health records to drive discovery in disease genomics
Kohane, I. S. (2011) · Nature Reviews Genetics · doi:10.1038/nrg2999 · Cited by 325
Public Opinion about the Importance of Privacy in Biobank Research
Kaufman, D. J., Murphy-Bollinger, J., Scott, J., & Hudson, K. L. (2009) · The American Journal of Human Genetics · doi:10.1016/j.ajhg.2009.10.002 · Cited by 279
Self-citationNisbet, M. C., & Fahy, D. (2013) · BMC Medical Ethics · doi:10.1186/1472-6939-14-10 · Cited by 35
Sabatello, M., Zhang, Y., Chen, Y., & Appelbaum, P. S. (2020) · Public Health Genomics · doi:10.1159/000506599 · Cited by 25
Metadata
- Authors
- Murphy, J., Scott, J., Kaufman, D., Geller, G., LeRoy, L., & Hudson, K.
- Venue
- The American Journal of Bioethics
- Publisher
- Informa UK Limited
- Published
- 2008-12-05
- Volume
- 8
- Issue
- 11
- Pages
- 36-43
- ISSN
- 1526-5161 (ISSN-L)
- 1536-0075
- OpenAlex
- W1975765667
- Cited by
- 278
- References
- 28
- FWCI
- 14.26
- Type
- journal article
- Language
- en
- Open access
- green
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review
How to cite
Cite CoChat for the checks on this page, and the paper for its own findings.
- This page
- CoChat. (2026). Citation check: Public Expectations for Return of Results from Large-Cohort Genetic Research. https://app.cochat.ai/papers/10.1080/15265160802513093
- The paper
- Murphy, J., Scott, J., Kaufman, D., Geller, G., LeRoy, L., & Hudson, K. (2008). Public Expectations for Return of Results from Large-Cohort Genetic Research. The American Journal of Bioethics. https://doi.org/10.1080/15265160802513093
Data sources
Bibliographic data: Semantic Scholar, OpenAlex, Crossref.
Contains information from the Semantic Scholar Academic Graph Datasets, made available under the ODC Attribution License (ODC-BY 1.0).
Semantic Scholar’s data is described in: Kinney, R., et al. (2023). The Semantic Scholar Open Data Platform. arXiv:2301.10140.
