Patient's expression of hope and illness narratives in three neurological conditions: a meta-ethnography
Open accessAbstract
Hope has been identified as a key attribute required for neurological rehabilitation. Expressions of hope form the basis for patient narratives within this context. The purpose of this study was to use patient's experience of hope as a way of understanding narrative types. This study looks at three different neurological conditions: spinal cord injury, stroke and multiple sclerosis. Using a meta-ethnographical method, eight narrative macrostructures were identified by three groups of hope: (1) hope as a dichotomy, (2) hope as a paradox and (3) transcendence. The discussion provides further details of these groups and establishes how therapeutic emplotment may influence and guide narratives within neurological rehabilitation.
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The expression of hope in individuals with chronic neurological conditions is directly associated with the adoption of hope or coping strategies which enable access to generalized hopes.
“The expression of hope (Soundy et al., 2013) in individuals with chronic neurological conditions is directly associated with the adoption of hope or coping strategies which enable access to generalized hopes.”
From Patients experiences of maintaining mental well-being and hope within motor neuron disease: a thematic synthesis (2015) · cites this paper as Soundy et al., 2013
The self-initiated response includes some form of transcendence, such as positive cognitive reappraisal, benefit finding, or post-traumatic growth.
“(b) Some form of transcendence (Soundy et al., 2013), for instance, positive cognitive reappraisal or benefit finding of one's situation (Nowlan et al., 2014), or post traumatic growth (Tedeschi and Calhoun, 2004).”
From Patients experiences of maintaining mental well-being and hope within motor neuron disease: a thematic synthesis (2015) · cites this paper as Soundy et al., 2013
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“This likely occurs by sharing illness narrative master plots that include acceptance or enable an individual to look differently at their situation [22].”
BackgroundInfluentialAnestis, E., Eccles, F. J. R., Fletcher, I. J., Triliva, S., & Simpson, J. (2021) · Disability and Rehabilitation · doi:10.1080/09638288.2021.2002436 · Cited by 13 · see citing works
Promoting Patient-Centered Care in Chronic Disease
Grilo, A. M., Santos, M., Gomes, A. I., & Rita, J. S. (2017) · InTech eBooks · doi:10.5772/67380 · Cited by 11 · see citing works
“Hope has been identified as a key attribute required for patient adaption to illness and disability [46].”
BackgroundSoundy, A. (2018) · World Journal of Psychiatry · doi:10.5498/wjp.v8.i3.79 · Cited by 10 · see citing works
The Hope and Adaptation Scale (HAS): Establishing Face and Content Validity
Soundy, A., Rosenbaum, S., Elder, T. J., Kyte, D. G., Stubbs, B., Hemmings, L., Roskell, C., Collett, J., & Dawes, H. (2016) · Open Journal of Therapy and Rehabilitation · doi:10.4236/ojtr.2016.42007 · Cited by 9 · see citing works
“For adaptation, a spectrum of responses ranges from rejection or denial to embracement [2]-[5].”
BackgroundInfluentialHiggs, R., & Soundy, A. (2020) · Behavioral Sciences · doi:10.3390/bs10020046 · Cited by 8 · see citing works
Nejst, C. H., & Glintborg, C. (2024) · Frontiers in Rehabilitation Sciences · doi:10.3389/fresc.2024.1376895 · Cited by 7 · see citing works
Psychosoziale Versorgung bei Patienten mit Amyotropher Lateralsklerose: Ein narrativer Review
Esser, P., Metelmann, M., Hartung, T. J., Claßen, J., Mehnert, A., & Koranyi, S. (2019) · PPmP - Psychotherapie · Psychosomatik · Medizinische Psychologie · doi:10.1055/a-0806-7862 · Cited by 6 · see citing works
Alawafi, R., Rosewilliam, S., & Soundy, A. (2022) · International Journal of Therapy and Rehabilitation · doi:10.12968/ijtr.2021.0131 · Cited by 3 · see citing works
Kwissa‐Gajewska, Z., Kroemeke, A., & Heszen-Niejodek, I. (2015) · Health Psychology Report · doi:10.5114/hpr.2015.51189 · Cited by 2 · see citing works
Soundy, A., & Elder, T. J. (2017) · Elsevier eBooks · doi:10.1016/b978-0-12-805298-3.00012-8 · Cited by 2 · see citing works
Conaill, S. M., McGrath, A., & Fortune, D. G. (2024) · Neuropsychological Rehabilitation · doi:10.1080/09602011.2024.2413898 · Cited by 1 · see citing works
“This builds on research conducted by Soundy et al. (2013) in relation to increased feelings of despair in instances where particpants felt disillusioned with the pace of their improvement, and there is some evidence that wondering about how things might have been and having an idealised view of the…”
Alawafi, R., Rosewilliam, S., & Soundy, A. (2023) · BMC Medical Education · doi:10.1186/s12909-023-04301-5 · Cited by 1 · see citing works
Tasker, D. (2017) · SensePublishers eBooks · doi:10.1007/978-94-6300-995-9_4
Anestis, E., Eccles, F. J. R., Fletcher, I. J., & Simpson, J. (2021) · Figshare · doi:10.6084/m9.figshare.13633122
Alawafi, R., Rosewilliam, S., & Soundy, A. (2023) · Figshare · doi:10.6084/m9.figshare.22774277
- Authors
- Soundy, A., Smith, B., Dawes, H., Pall, H., Gimbrere, K., & Ramsay, J.
- Affiliations
- University of Birmingham (GB)
- Loughborough University (GB)
- Oxford Brookes University (GB)
- University Hospitals Birmingham NHS Foundation Trust (GB)
- Corresponding author
- Soundy, Andrew
- Venue
- Health Psychology Review
- Publisher
- Informa UK Limited
- Published
- 2011-04-08
- Volume
- 7
- Issue
- 2
- Pages
- 177-201
- ISSN
- 1743-7199 (ISSN-L)
- 1743-7202
- OpenAlex
- W2019544536
- Cited by
- 42
- References
- 62
- Citations by year
- 2024: 2 · 2023: 2 · 2022: 3 · 2021: 4 · 2020: 2 · 2019: 5 · 2018: 3 · 2017: 6 · 2016: 3 · 2015: 3 · 2014: 6 · 2013: 1 · 2012: 2
- FWCI
- 3.93
- Type
- journal article
- Language
- en
- Open access
- Licence
- Locations
- Health Psychology Review (publishedVersion)
- Durham Research Online (Durham University) (submittedVersion, cc-by)
- University of Birmingham Research Portal (University of Birmingham) (submittedVersion)
- Topics
- Social Sciences › Psychology › Applied Psychology › Optimism, Hope, and Well-being
- Health Sciences › Medicine › Psychiatry and Mental health › Empathy and Medical Education
- Health Sciences › Medicine › Oncology › Cancer survivorship and care
- Keywords
- hope, illness narratives, patient experience, neurorehabilitation, spinal cord injury, stroke, multiple sclerosis, narrative macrostructure, transcendence, paradox
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