Qualitative Studies of Stroke: A Systematic Review
Abstract
Background and purpose Qualitative studies are increasingly used to investigate social processes and phenomena influencing health behaviors and service provision. We aimed to identify the scope of published qualitative studies of stroke, consider their relevance to development and delivery of services for people with stroke, and make recommendations for future work. Methods Literature review of published articles was identified by systematically searching online literature databases using keywords from the start of each database until 2002. Articles were reviewed by 2 authors, using a standardized matrix for data extraction. The 2003 European Stroke Initiative recommendations for stroke management were used to categorize the literature for consideration of its contribution to stroke research. Results We included 95 articles. Their empirical contribution includes an emphasis on recording the "human" experience of stroke; identification of needs as perceived by patients and their families, differences in priorities between patients and professionals, and barriers to best-quality care. We identified 12 papers that were specifically undertaken to develop or evaluate interventions. Conclusions Qualitative studies have addressed a wide range of issues related to the impact of stroke on individuals and caregivers, and to the organization and delivery of services. Significant problems remain in ensuring the delivery of best-quality stroke care, which such studies have the potential t…
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The lived experiences of people undergoing interventions have been shown to offer unique insights into the value of those interventions.
“despite the lived experiences of people undergoing interventions having been shown to offer unique insights into their value (McKevitt, Redfern, Mold, & Wolfe, 2004).”
From “Giving yourself some breathing room…”: an exploration of group meditation for people with aphasia (2021) · cites this paper as McKevitt, Redfern, Mold, & Wolfe, 2004
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- Authors
- McKevitt, C., Redfern, J., Mold, F., & Wolfe, C.
- Affiliations
- King's College London (GB)
- Venue
- Stroke
- Published
- 2004-06
- Volume
- 35
- Issue
- 6
- Pages
- 1499-1505
- ISSN
- 0039-2499 (ISSN-L)
- 1524-4628
- OpenAlex
- W2151715257
- Cited by
- 247
- References
- 118
- Citations by year
- 2026: 7 · 2025: 6 · 2024: 8 · 2023: 3 · 2022: 10 · 2021: 10 · 2020: 13 · 2019: 7 · 2018: 9 · 2017: 10 · 2016: 11 · 2015: 13 · 2014: 19 · 2013: 19 · 2012: 17
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Stroke (publishedVersion)
- PubMed (publishedVersion)
- Research Portal (King's College London) (submittedVersion)
- Topics
- Social Sciences › Education › Qualitative Research Methods and Applications
- Health Sciences › Medicine › Epidemiology › Acute Ischemic Stroke Management
- Health Sciences › Medicine › Rehabilitation › Stroke Rehabilitation and Recovery
- Keywords
- qualitative research, patient experience, stroke care delivery, barriers to quality care, patient and family needs, caregiver impact, health care organization, stroke intervention, research recommendations
- MeSH terms
- Stroke Rehabilitation, Acute Disease, Delivery of Health Care, Humans, Caregivers, Stroke, Qualitative Research
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