Dietary strategies and food practices of pediatric patients, and their parents, living with inflammatory bowel disease: A qualitative interview study
Open accessAbstract
Purpose: A growing body of scientific evidence supports the role of food and diet in the pathogenesis and management of inflammatory bowel diseases (IBD). However, little is known about the role of food and diet from the perspectives of pediatric patients and their parents. This study aimed to explore how children and adolescents with IBD and their parents coped with the illness through food and diet in their daily lives.Methods: We conducted semi-structured interviews with 28 children and adolescents with IBD, 26 parents and one grandparent.Results: Two major themes, dietary strategies and family food practices, were identified through thematic analysis. There were three types of dietary strategies: food avoidance and moderation; following a specific diet; and healthy eating. For family food practices, two subthemes were identified: impact on grocery shopping, meal planning, and cooking; and maintaining routine and normality.Conclusions: Our findings have important implications for the clinical care of pediatric IBD. Notably, IBD not only influenced the food practices of the pediatric patients, but also their parents and other family members. Healthcare professionals should consider the family unit when giving nutritional advice or developing nutritional guidelines. Personalized nutritional counselling and ongoing nutritional assessment are also warranted.
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Families emphasized healthy eating in addition to avoidance or moderation of trigger foods, especially due to the difficulty of remaining adherent to exclusion diets.
“However, this study also found that families emphasized healthy eating in addition to avoidance or moderation of trigger foods, especially due to the difficulty of remaining adherent to exclusion diets (e.g., specific carbohydrate diet) [26].”
From Online Acceptance and Commitment Therapy and Nutrition Workshop for Parents of Children with Inflammatory Bowel Disease: Feasibility, Acceptability, and Initial Effectiveness. (2021) · cites this paper as [26]
The Discussion says many participants emphasized healthy eating while also avoiding or moderating trigger foods. The Results (Dietary strategies) report difficulty abstaining from trigger foods and difficulty adhering to the specific carbohydrate diet. They do not say that difficulty adhering to exclusion diets was why families emphasized healthy eating. (LLM, conf=0.87)
Experimental — accuracy not yet measuredA qualitative study of children with IBD and their families found that most used the identification of specific foods that influence symptoms or trigger flare-ups as a means of coping with IBD.
“A qualitative study of children with IBD and their families found that most used the identification of specific foods that influence symptoms or trigger flare-ups as a means of coping with IBD [26].”
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Cites
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“However, further research is needed to investigate the use of the SCD with larger and more diverse samples, to assess its safety and efficacy, and to understand the mechanisms underlying its effects (Cohen et al., 2014; Obih et al., 2016; Suskind et al., 2014).”
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“…in qualitative interview studies, adult patients talked about the importance of food and identification of trigger foods for their condition, as well as challenges in restricting the consumption of those foods (Fletcher & Schneider, 2006; Palant et al., 2015; Schneider, Jamieson, & Fletcher, 2009).”
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Background
Flagged first, then by citations
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Dietary Behaviors and Beliefs in Patients with Inflammatory Bowel Disease
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Food choices and beliefs in adults with inflammatory bowel disease in Sweden
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- Authors
- Chuong, K. H., Haw, J., Stintzi, A., Mack, D. R., & O’Doherty, K. C.
- Affiliations
- University of Guelph (CA)
- University of Ottawa (CA)
- Corresponding author
- O’Doherty, Kieran C.
- Venue
- International Journal of Qualitative Studies on Health and Well-Being
- Publisher
- Informa UK Limited
- Published
- 2019-01
- Volume
- 14
- Issue
- 1
- Pages
- 1648945-1648945
- ISSN
- 1748-2623 (ISSN-L)
- 1748-2631
- PMC
- PMC6713182
- OpenAlex
- W2964467697
- Cited by
- 21
- References
- 37
- Citations by year
- 2026: 5 · 2025: 3 · 2024: 2 · 2023: 3 · 2022: 3 · 2021: 3 · 2020: 2
- FWCI
- 1.21
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Licence
- Locations
- International Journal of Qualitative Studies on Health and Well-Being (publishedVersion, cc-by)
- PubMed Central (publishedVersion, cc-by)
- PubMed (publishedVersion)
- DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
- Funders
- funding from Crohn’s and Colitis Canada and the Canadian Institutes of Health Research (ECD-144627)
- Topics
- Life Sciences › Biochemistry, Genetics and Molecular Biology › Genetics › Inflammatory Bowel Disease
- Health Sciences › Nursing › Nutrition and Dietetics › Nutrition, Health and Food Behavior
- Health Sciences › Medicine › Psychiatry and Mental health › Child Nutrition and Feeding Issues
- Keywords
- inflammatory bowel disease, pediatric patients, nutritional strategies, household food practices, food avoidance, meal planning, grocery shopping, cooking, coping with illness, parents, adolescents, nutrition counseling, personalized nutrition
- MeSH terms
- Diet, Healthy, Adolescent, Child, Feeding Behavior, Female, Humans, Interviews as Topic, Male, Inflammatory Bowel Diseases, Qualitative Research
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