The Bereaved Caregiver: A Prospective Study of Changes in Well-Being
Abstract
This study analyzes short-term bereavement adaptation among caregivers to spouses or parents with a progressive dementia, assessing changes in depression, mastery, overload, and guilt to examine the impact of bereavement on caregivers, and the characteristics of caregiver experience that affect bereavement adaptation. The bereavement group, as compared with active caregivers, dropped substantially in overload and increased in mastery and guilt. Depression showed a curvilinear trend, declining from the time of death and then rising to preloss levels by the end of the year. Caregiver stressors, baseline adaptation, relationship difficulties, and psychological preparation were all related to changes in well-being.
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Other longitudinal studies have found that caregivers show some improvement in psychological functioning after bereavement, albeit without returning to normative levels.
“Other longitudinal studies have found that caregivers show some improvement in psychological functioning after bereavement, albeit without returning to normative levels (7, 45, 46).”
From Chronic stress and age-related increases in the proinflammatory cytokine IL-6. (2003) · cites this paper as [46]
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“In line therefore with the stress reduction and relief theory (Bass and Bowman, 1990; Schulz et al., 1997), transitioning from bereavement to life after care provided relief for most carers, as opposed to posing them at risk of decreased well-being (Mullan, 1992; Schulz et al., 2003).”
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“…on seven items from the Expressive Support Scale, Pearlin, Mullan, Semple, & Skaff, 1990, with 4 Likert-type response options, a D 0.9305), guilt (Mullan, 1992, five items with 4 Likert-type response options, a D 0.8216), unmet socio-emotional need (Gaugler et al., 2004, six items with yes/…”
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“…often evaluate caregivers’ health further from the end of caregiving (e.g. 12 months in Bodnar & Kiecolt-Glaser, 1994 and 10 years in Corey & McCurry, 2018) than those supporting the stress-relief or recovery hypothesis (e.g. 6 months or more in Mullan, 1992 and 12 months in Haley et al., 2008).”
Puolisohoitajan henkilökohtainen kasvu
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- Authors
- Mullan, J. T.
- Affiliations
- University of California, San Francisco (US)
- Corresponding author
- Mullan, J. T.
- Venue
- The Gerontologist
- Publisher
- Oxford University Press (OUP)
- Published
- 1992-10-01
- Volume
- 32
- Issue
- 5
- Pages
- 673-683
- ISSN
- 0016-9013 (ISSN-L)
- 1758-5341
- OpenAlex
- W2048409799
- Cited by
- 95
- References
- 0
- Citations by year
- 2025: 2 · 2022: 1 · 2021: 1 · 2020: 1 · 2019: 1 · 2017: 2 · 2016: 1 · 2015: 2 · 2014: 1 · 2013: 5 · 2012: 6
- FWCI
- 3.13
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- The Gerontologist (publishedVersion)
- PubMed (publishedVersion)
- Funders
- National Institute of Mental Health (MH-42122)
- Topics
- Social Sciences › Psychology › Clinical Psychology › Grief, Bereavement, and Mental Health
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
- Social Sciences › Anthropology › Death, Funerary Practices, and Mourning
- Keywords
- bereaved caregivers, caregiver well-being, depression, caregiver stress, guilt, mastery, caregiver role overload, dementia caregiving, relationship problems, psychological preparation
- MeSH terms
- Aged, Alzheimer Disease, Bereavement, Depression, Family, Female, Humans, Male, Middle Aged, Prospective Studies, Caregivers
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