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Caring for the informal cancer caregiver.
Open accessAbstract
PURPOSE OF REVIEW: Informal cancer caregivers play a vital role in the physical, functional, and emotional well being of cancer patients. However, the majority of informal caregivers are not prepared for their caregiving role. We reviewed and synthesized the recent literature (last 18 months) and focused on research in the following understudied areas: technology-driven interventions for informal caregivers; informal caregivers of older adults with cancer; interrelationship between informal caregiver and dyadic outcomes; and research priorities and guidelines to improve informal caregiver support. RECENT FINDINGS: Studies focused on technology-driven informal caregiver interventions, with evidence of good feasibility and acceptability with benefits for burden and quality of life (QOL). Studies also focused on QOL for caregivers of older adults with cancer. Finally, research priorities and clinical guidelines were established through Delphi survey studies. SUMMARY: Despite the substantial evidence on informal cancer caregiving, more research is needed to further characterize caregivers at high risk for burden, explicate interrelationships between caregiver/patient outcomes, and test innovative and scalable interventions. Studies are also needed to understand the specific needs of informal caregivers in cancer surgery, an understudied treatment population.
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“The impact of caregiver stress is well documented; it not only impacts the emotional and physical well-being of the caregiver herself but may impact the caregiver’s ability to help the care recipient and can influence the interpersonal relationship between the caregiver and the care recipient (Sun et al., 2019).”
From Utilizing a Manualized Therapy to Provide Parallel Treatment to Older Adults With Cancer and Their Caregivers: A Case Study (2022) · cites this paper as Sun et al., 2019
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“Common feelings among caregivers include anxiety, distress, and depression9,10, as well as changes in roles at home, school, or work11.”
From Anxiety, depression, and quality of life of caregivers of palliative care patients with cancer (2025) · cites this paper as [11]
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“…caregiver stress is well documented; it not only impacts the emotional and physical well-being of the caregiver herself but may impact the caregiver’s ability to help the care recipient and can influence the interpersonal relationship between the caregiver and the care recipient (Sun et al., 2019).”
BackgroundAnxiety, depression, and quality of life of caregivers of palliative care patients with cancer
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“Common feelings among caregivers include anxiety, distress, and depression 9,10 , as well as changes in roles at home, school, or work 11 .”
Wang, M., He, Y., Song, J., Li, H., Geng, N., Li, C., Jiao, Z., Gao, Y., & Wang, Y. (2026) · Frontiers in Psychiatry · doi:10.3389/fpsyt.2026.1726605 · Cited by 1
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Metadata
- Authors
- Sun, V., Raz, D. J., & Kim, J. Y.
- Affiliations
- City Of Hope National Medical Center (US)
- Corresponding author
- Sun, Virginia
- Venue
- Current Opinion in Supportive & Palliative Care
- Published
- 2019-09
- Volume
- 13
- Issue
- 3
- Pages
- 238-242
- ISSN
- 1751-4258 (ISSN-L)
- 1751-4266
- PMC
- PMC6669089
- OpenAlex
- W2951645017
- Cited by
- 125
- References
- 20
- Citations by year
- 2026: 16 · 2025: 28 · 2024: 28 · 2023: 16 · 2022: 21 · 2021: 11 · 2020: 1 · 2019: 4
- FWCI
- 17.17
- Type
- journal article
- Language
- en
- Open access
- green
- www.ncbi.nlm.nih.gov
- Locations
- Current Opinion in Supportive and Palliative Care (publishedVersion)
- PubMed (publishedVersion)
- PubMed Central (acceptedVersion)
- Funders
- National Cancer Institute (R01CA217841)
- Topics
- Health Sciences › Nursing › Research and Theory › Nursing care and research
- Health Sciences › Medicine › Oncology › Cancer survivorship and care
- Social Sciences › Sociology and Political Science › Intergenerational Family Dynamics and Caregiving
- Keywords
- caregiver burden, caregiver quality of life, elderly cancer patients, caregiver support, cancer surgery, caregiver needs, research priorities
- MeSH terms
- Aging, Family, Humans, Mental Health, Neoplasms, Quality of Life, Stress, Psychological, Caregivers
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