The DOI matches its Crossref record; 20 of the 20 references it cites were found in a registry or an index.
Caring for the informal cancer caregiver.
Open accessAbstract
PURPOSE OF REVIEW: Informal cancer caregivers play a vital role in the physical, functional, and emotional well being of cancer patients. However, the majority of informal caregivers are not prepared for their caregiving role. We reviewed and synthesized the recent literature (last 18 months) and focused on research in the following understudied areas: technology-driven interventions for informal caregivers; informal caregivers of older adults with cancer; interrelationship between informal caregiver and dyadic outcomes; and research priorities and guidelines to improve informal caregiver support. RECENT FINDINGS: Studies focused on technology-driven informal caregiver interventions, with evidence of good feasibility and acceptability with benefits for burden and quality of life (QOL). Studies also focused on QOL for caregivers of older adults with cancer. Finally, research priorities and clinical guidelines were established through Delphi survey studies. SUMMARY: Despite the substantial evidence on informal cancer caregiving, more research is needed to further characterize caregivers at high risk for burden, explicate interrelationships between caregiver/patient outcomes, and test innovative and scalable interventions. Studies are also needed to understand the specific needs of informal caregivers in cancer surgery, an understudied treatment population.
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“The impact of caregiver stress is well documented; it not only impacts the emotional and physical well-being of the caregiver herself but may impact the caregiver’s ability to help the care recipient and can influence the interpersonal relationship between the caregiver and the care recipient (Sun et al., 2019).”
From Utilizing a Manualized Therapy to Provide Parallel Treatment to Older Adults With Cancer and Their Caregivers: A Case Study (2022) · cites this paper as Sun et al., 2019
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“Common feelings among caregivers include anxiety, distress, and depression9,10, as well as changes in roles at home, school, or work11.”
From Anxiety, depression, and quality of life of caregivers of palliative care patients with cancer (2025) · cites this paper as [11]
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Cites
Interventions with Family Caregivers of Cancer Patients: Meta-Analysis of Randomized Trials
Northouse, L. L., Katapodi, M. C., Song, L., Zhang, L., & Mood, D. W. (2010) · CA: A Cancer Journal for Clinicians · doi:10.3322/caac.20081 · Cited by 857
Caring for caregivers and patients: Research and clinical priorities for informal cancer caregiving
Kent, E. E., Rowland, J. H., Northouse, L., Litzelman, K., Chou, W. S., Shelburne, N., Timura, C., O'Mara, A., & Huss, K. (2016) · Cancer · doi:10.1002/cncr.29939 · Cited by 564
Physical, Psychosocial, Relationship, and Economic Burden of Caring for People With Cancer: A Review
Girgis, A., Lambert, S., Johnson, C., Waller, A., & Currow, D. (2013) · Journal of Oncology Practice · doi:10.1200/jop.2012.000690 · Cited by 462
A review of family caregiving intervention trials in oncology
Ferrell, B., & Wittenberg, E. (2017) · CA: A Cancer Journal for Clinicians · doi:10.3322/caac.21396 · Cited by 256
Litzelman, K., Kent, E. E., Mollica, M., & Rowland, J. H. (2016) · Journal of Clinical Oncology · doi:10.1200/jco.2016.67.3434 · Cited by 140
Tan, J.-Y., Molassiotis, A., Lloyd-Williams, M., & Yorke, J. (2018) · European Journal of Cancer Care · doi:10.1111/ecc.12691 · Cited by 127
Heynsbergh, N., Heckel, L., Botti, M., & Livingston, P. M. (2018) · BMC Cancer · doi:10.1186/s12885-018-4160-9 · Cited by 109
Informal Caregivers of Cancer Patients: Review of Interventions, Care Activities, and Outcomes
Frambes, D., Given, B., Lehto, R., Sikorskii, A., & Wyatt, G. (2018) · Western Journal of Nursing Research · doi:10.1177/0193945917699364 · Cited by 94
Shin, J. Y., Kang, T. I., Noll, R. B., & Choi, S. W. (2018) · American Society of Clinical Oncology Educational Book · doi:10.1200/edbk_201397 · Cited by 68
Association between dyadic interventions and outcomes in cancer patients: a meta-analysis
Hu, Y., Liu, T., & Li, F. (2019) · Supportive Care in Cancer · doi:10.1007/s00520-018-4556-8 · Cited by 67
Cited by
Sorted by citations
Understanding and supporting informal cancer caregivers
Molassiotis, A., & Wang, M. (2022) · Current Treatment Options in Oncology · doi:10.1007/s11864-022-00955-3 · Cited by 138
Online interventions geared toward increasing resilience and reducing distress in family caregivers
Shin, J. Y., & Choi, S. W. (2019) · Current Opinion in Supportive and Palliative Care · doi:10.1097/spc.0000000000000481 · Cited by 60
Seçinti, E., Fischer, I. C., Brennan, E. A., Christon, L., & Balliet, W. E. (2022) · Clinical Psychology Review · doi:10.1016/j.cpr.2022.102237 · Cited by 50
Li, C., Tang, N., Yang, L., Zeng, Q., Yu, T., Pu, X., Wang, J., & Zhang, H. (2023) · Frontiers in Psychology · doi:10.3389/fpsyg.2022.1020517 · Cited by 42
Working, Low Income, and Cancer Caregiving: Financial and Mental Health Impacts
Bradley, C. J., Kitchen, S., & Owsley, K. M. (2023) · Journal of Clinical Oncology · doi:10.1200/jco.22.02537 · Cited by 34
Metadata
- Authors
- Sun, V., Raz, D. J., & Kim, J. Y.
- Affiliations
- City Of Hope National Medical Center (US)
- Corresponding author
- Sun, Virginia
- Venue
- Current Opinion in Supportive & Palliative Care
- Published
- 2019-09
- Volume
- 13
- Issue
- 3
- Pages
- 238-242
- ISSN
- 1751-4258 (ISSN-L)
- 1751-4266
- PMC
- PMC6669089
- OpenAlex
- W2951645017
- Cited by
- 125
- References
- 20
- Citations by year
- 2026: 16 · 2025: 28 · 2024: 28 · 2023: 16 · 2022: 21 · 2021: 11 · 2020: 1 · 2019: 4
- FWCI
- 17.17
- Type
- journal article
- Language
- en
- Open access
- green
- www.ncbi.nlm.nih.gov
- Locations
- Current Opinion in Supportive and Palliative Care (publishedVersion)
- PubMed (publishedVersion)
- PubMed Central (acceptedVersion)
- Funders
- National Cancer Institute (R01CA217841)
- Topics
- Health Sciences › Nursing › Research and Theory › Nursing care and research
- Health Sciences › Medicine › Oncology › Cancer survivorship and care
- Social Sciences › Sociology and Political Science › Intergenerational Family Dynamics and Caregiving
- Keywords
- caregiver burden, caregiver quality of life, elderly cancer patients, caregiver support, cancer surgery, caregiver needs, research priorities
- MeSH terms
- Aging, Family, Humans, Mental Health, Neoplasms, Quality of Life, Stress, Psychological, Caregivers
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