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Cited by 103Dementia and Cognitive Impairment ResearchNursing care and researchGeriatric Care and Nursing Homes

Literature review: Use of respite by carers of people with dementia

Neville, Christine, Beattie, Elizabeth, Fielding, Elaine, MacAndrew, Margaret·2015·Health & Social Care in the Community
DOI 10.1111/hsc.12095
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Abstract

Respite care is a cornerstone service for the home management of people with dementia. It is used by carers to mitigate the stress related to the demands of caring by allowing time for them to rest and do things for themselves, thus maintaining the caring relationship at home and perhaps forestalling long-term placement in a residential aged care facility. Despite numerous anecdotal reports in support of respite care, its uptake by carers of people with dementia remains relatively low. The aim of this paper was to examine the factors that constitute the use of respite by carers of people with dementia by reviewing quantitative and qualitative research predominantly from the years 1990 to 2012. Seventy-six international studies of different types of respite care were included for this review and their methods were critically appraised. The key topics identified were in relation to information access, the barriers to carers realising need for and seeking respite, satisfaction with respite services including the outcomes for carers and people with dementia, the characteristics of an effective respite service and the role of health workers in providing appropriate respite care. Finally, limitations with considering the literature as a whole were highlighted and recommendations made for future research.

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Crossref · 10.1111/hsc.12095

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  • Guilt from perceptions of abandoning the person with dementia and failure in the fulfilment of marital or familial duty often become barriers for family carers to access respite services.

    “However, guilt from perceptions of abandoning the person with dementia and failure in the fulfilment of their marital or familial duty often become barriers for family carers to access respite services and the literature suggests that its uptake by carers remains relatively low (Neville, Beattie, Fielding, & MacAndrew, 2015).”

    From Exploring the impact of carer stressors and psychological inflexibility on depression and anxiety in family carers of people with dementia (2020) · cites this paper as Neville, Beattie, Fielding, & MacAndrew, 2015

  • The uptake of respite services by family carers remains relatively low.

    “However, guilt from perceptions of abandoning the person with dementia and failure in the fulfilment of their marital or familial duty often become barriers for family carers to access respite services and the literature suggests that its uptake by carers remains relatively low (Neville, Beattie, Fielding, & MacAndrew, 2015).”

    From Exploring the impact of carer stressors and psychological inflexibility on depression and anxiety in family carers of people with dementia (2020) · cites this paper as Neville, Beattie, Fielding, & MacAndrew, 2015

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Authors
Neville, C., Beattie, E., Fielding, E., & MacAndrew, M.
Affiliations
  • The University of Queensland (AU)
  • Queensland University of Technology (AU)
ORCID
Venue
Health & Social Care in the Community
Publisher
Hindawi Limited
Published
2014-01-20
Volume
23
Issue
1
Pages
51-63
ISSN
0966-0410 (ISSN-L)
DOI
10.1111/hsc.12095
OpenAlex
W1489337391
Cited by
103
References
82
Citations by year
2026: 3 · 2025: 10 · 2024: 9 · 2023: 6 · 2022: 11 · 2021: 11 · 2020: 12 · 2019: 9 · 2018: 9 · 2017: 9 · 2016: 7 · 2015: 7
FWCI
1.06
Type
journal article
Language
en
Open access
closed
Licence
doi.wiley.com/10.1002/tdm_license_1.1 (tdm, 589 d)
Locations
  • Health & Social Care in the Community (publishedVersion)
  • PubMed (publishedVersion)
  • QUT ePrints (Queensland University of Technology) (submittedVersion)
  • Faculty of Health; Institute of Health and Biomedical Innovation
Topics
  • Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
  • Health Sciences › Health Professions › Pharmacy › Nursing care and research
  • Health Sciences › Health Professions › General Health Professions › Geriatric Care and Nursing Homes
Keywords
respite care, dementia, caregivers, caregiver stress, access to information, home care, nursing homes, healthcare workers, caregiver well-being
MeSH terms
Consumer Behavior, Dementia, Health Status, Interpersonal Relations, Mental Health, Respite Care, Sleep, Caregivers, Qualitative Research

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