Cited by 400Community Health and DevelopmentEthics in Clinical ResearchHealth disparities and outcomes

A Systematic Review of Community‐Based Participatory Research to Enhance Clinical Trials in Racial and Ethnic Minority Groups

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De Las Nueces, Denise, Hacker, Karen, DiGirolamo, Ann, Hicks, LeRoi S.·2012·Health Services Research

Abstract

Objective: To examine the effectiveness of current community‐based participatory research (CBPR) clinical trials involving racial and ethnic minorities. Data Source: All published peer‐reviewed CBPR intervention articles in PubMed and CINAHL databases from January 2003 to May 2010. Study Design: We performed a systematic literature review. Data Collection/Extraction Methods: Data were extracted on each study's characteristics, community involvement in research, subject recruitment and retention, and intervention effects. Principle Findings: We found 19 articles meeting inclusion criteria. Of these, 14 were published from 2007 to 2010. Articles described some measures of community participation in research with great variability. Although CBPR trials examined a wide range of behavioral and clinical outcomes, such trials had very high success rates in recruiting and retaining minority participants and achieving significant intervention effects. Conclusions: Significant publication gaps remain between CBPR and other interventional research methods. CBPR may be effective in increasing participation of racial and ethnic minority subjects in research and may be a powerful tool in testing the generalizability of effective interventions among these populations. CBPR holds promise as an approach that may contribute greatly to the study of health care delivery to disadvantaged populations.

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Crossref · 10.1111/j.1475-6773.2012.01386.x

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  • Community engagement would be more important in ethnic minority recruitment, and less so in older peoples recruitment, as anticipated by the literature.

    “That community engagement would be more important in ethnic minority recruitment, and less so in older peoples recruitment, is anticipated by the literature [44,46,47],”

    From Development and evaluation of culturally sensitive psychosocial interventions for under-served people in primary care (2014) · cites this paper as [46]

    The Discussion (page not available) says community-based participatory research may be particularly effective for recruiting racial and ethnic minorities. The paper does not assess whether community engagement is less important for recruiting older people or compare the two groups. (LLM, conf=0.87)

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Authors
De Las Nueces, D., Hacker, K., DiGirolamo, A., & Hicks, L. S.
Affiliations
  • Office of Diversity and Community Partnership Harvard Medical School Boston MA
  • Cambridge Health Alliance (US)
  • CARE USA (US)
  • UMass Memorial Health Care (US)
Venue
Health Services Research
Publisher
Wiley
Published
2012-02-21
Volume
47
Issue
3pt2
Pages
1363-1386
ISSN
  • 0017-9124 (ISSN-L)
  • 1475-6773
OpenAlex
W2107954772
Cited by
400
References
33
Citations by year
2026: 15 · 2025: 26 · 2024: 37 · 2023: 29 · 2022: 41 · 2021: 34 · 2020: 31 · 2019: 32 · 2018: 25 · 2017: 48 · 2016: 21 · 2015: 16 · 2014: 29 · 2013: 11 · 2012: 3
FWCI
2.83
Type
journal article
Language
en
Open access
Locations
  • Health Services Research (publishedVersion)
  • PubMed Central (publishedVersion)
  • Europe PMC (PubMed Central) (publishedVersion)
  • PubMed (publishedVersion)
Topics
  • Health Sciences › Health Professions › General Health Professions › Community Health and Development
  • Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Ethics in Clinical Research
  • Social Sciences › Health › Health disparities and outcomes
Keywords
community-based participatory research, racial and ethnic minorities, clinical trials, minority participation in research, participant recruitment, participant retention, community-engaged research, intervention effectiveness
MeSH terms
Clinical Trials as Topic, Ethnicity, Humans, Outcome and Process Assessment, Health Care, Research Design, Health Behavior, Racial Groups, Community-Based Participatory Research

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