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Development and cross-cultural translations of a 31-item quality of life in epilepsy inventory
Abstract
PURPOSE: We report the development of a questionnaire to assess health-related quality-of-life (HRQOL) in people with epilepsy and the process of cross-cultural translations of the questionnaire. METHODS: A sample of 304 adults with epilepsy from 25 seizure clinics in the United States was used to derive an abbreviated questionnaire focusing on epilepsy-related issues from a longer, 89-item instrument (QOLIE-89). A rigorous forward-backward-forward system was used for cross-cultural translation. RESULTS: A 31-item questionnaire (QOLIE-31, version 1.0) resulted, comprising seven subscales covering general and epilepsy-specific domains. Subscale and total scores can be calculated. The subscales were grouped into two factors: Emotional/Psychological Effects (seizure worry, overall QOL, emotional well-being, energy/fatigue subscales) and Medical/Social Effects (medication effects, work-driving-social limits, cognitive function subscales). Cross-cultural translations were made from U.S.-English into Danish, Dutch, German, Canadian French, French, Italian, Spanish, Swedish, and U.K. English Versions 1.1. CONCLUSIONS: Our results support the reliability and validity of the QOLIE-31 (U.S.-English version 1.0) as a measure of HRQOLIE. Cross-cultural translations into nine other languages make it feasible to use the QOLIE-31 (version 1.1) in multinational clinical trials after validation in each population or concurrent with the clinical trial.
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“This scale was initially developed by Cramer et al. and showed acceptable reliability and validity in patients with epilepsy [32]”
From The Psychological Flexibility in Epilepsy Questionnaire (PFEQ): Psychometric properties of the Persian version (2022) · cites this paper as [32]
In the citing paper
“The most commonly used scale for assessing HRQoL was the Quality of Life in Epilepsy-31/-31-P/-89 (QOLIE-31/31-P/-89). 51,52”
From Cochrane systematic review and meta-analysis of the impact of psychological treatments for people with epilepsy on health-related quality of life (2018) · cites this paper as [51]
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Outcome of corpus callosotomy in adults
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The Personal Impact of Epilepsy Scale (PIES)
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Factors associated with generic and disease-specific quality of life in temporal lobe epilepsy
Meldolesi, G., Picardi, A., Quarato, P. P., Grammaldo, L. G., Esposito, V., Mascia, A., Sparano, A., Morosini, P., & Gennaro, G. D. (2006) · Epilepsy Research · doi:10.1016/j.eplepsyres.2006.01.010 · Cited by 56
“The 31-item version of the quality of life in epilepsy instrument (QOLIE-31) is a self-administered questionnaire, which includes seven subscales: seizure worry, overall QOL, emotional well-being, energy, cognitive functioning, medication effects, and social functioning (Cramer et al., 1998).”
MethodPakpour, A. H., Gholami, M., Esmaeili, R., Naghibi, S. A., Updegraff, J. A., Molloy, G. J., & Dombrowski, S. U. (2015) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2015.08.036 · Cited by 55
Stress regulation in drug-resistant epilepsy
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Evaluating Health‐Related Quality of Life Outcomes in Clinical Trials of Antiepileptic Drug Therapy
Leidy, N. K., Rentz, A. M., & Grace, E. M. (1998) · Epilepsia · doi:10.1111/j.1528-1157.1998.tb01446.x · Cited by 54
Treatments for patients with comorbid epilepsy and depression: A systematic literature review
Mehndiratta, P., & Sajatovic, M. (2013) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2013.03.029 · Cited by 50
“The Hopkins Symptom Checklist 20 (HSCL-20), QOLIE-31, Cornell Services Index, and seizure frequency were recorded at 6 months and 12 months.”
von Podewils, F., Gasse, C., Geithner, J., Wang, Z. I., Bombach, P., Berneiser, J., Herzer, R., Kessler, C., & Runge, U. (2014) · Epilepsia · doi:10.1111/epi.12491 · Cited by 54
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Improved tolerability and efficacy in epilepsy patients with extended-release carbamazepine
Ficker, D. M., Privitera, M., Krauss, G. L., Kanner, A. M., Moore, J. L., & Glauser, T. A. (2005) · Neurology · doi:10.1212/01.wnl.0000172932.95985.51 · Cited by 54
Delanty, N., Jones, J. J., & Tonner, F. (2011) · Epilepsia · doi:10.1111/j.1528-1167.2011.03300.x · Cited by 53
“…included assessments from the health-related quality of life (HRQoL) questionnaire [Patient Quality of Life Inventory in Epilepsy-31 (QOLIE-31-P)] (Cramer et al., 1998), which was completed at each yearly evaluation visit and at the final visit or early discontinuation visit by patients who had…”
Seynaeve, L., Devroye, A., Dupont, P., & van Paesschen, W. (2016) · Epilepsia · doi:10.1111/epi.13247 · Cited by 64
Quality of life improvement with conversion to lamotrigine monotherapy
Cramer, J. A., Hammer, A. E., & Kustra, R. P. (2004) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2003.11.031 · Cited by 53
Walpole, P., Isaac, C. L., & Reynders, H. J. (2008) · Epilepsia · doi:10.1111/j.1528-1167.2008.01655.x · Cited by 53
“Cramer JA, Perrine K, Devinsky O, Bryant-Comstock L, Meador K, Hermann BP. (1998) Development and cross-cultural translation of a 31-item quality of life questionnaire (QOLIE-31).”
BackgroundInfluentialГерасимовна, М. Э., Guekht, A. B., Мильчакова, Л. Е., Лебедева, А. В., Bondareva, I. B., & Гусев, Е. И. (2012) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2012.09.042 · Cited by 52
Physical activity, stigma, and quality of life in patients with epilepsy
Tedrus, G. M. A. S., Sterca, G. S., & Pereira, R. B. (2017) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2017.07.039 · Cited by 52
Tedrus, G. M. A. S., Pereira, R. B., & Zoppi, M. (2017) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2017.08.007 · Cited by 52
Epilepsy-associated stigma from the perspective of people with epilepsy and the community in Italy
Tombini, M., Assenza, G., Quintiliani, L., Ricci, L., Lanzone, J., Mojà, R. D., Ulivi, M., & Lazzaro, V. D. (2019) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2019.06.026 · Cited by 52
Life 12 years after temporal lobe epilepsy surgery: A long-term, prospective clinical study
Tanrıverdi, T., Poulin, N., & Olivier, A. (2008) · Seizure · doi:10.1016/j.seizure.2007.11.003 · Cited by 51
Piperidou, C., Karlovasitou, A., Triantafyllou, N. I., Dimitrakoudi, E., Terzoudi, A., Mavraki, E., Trypsianis, G. A., Vadikolias, Κ., Heliopoulos, I., Vassilopoulos, D., et al. (2008) · Quality of Life Research · doi:10.1007/s11136-008-9375-9 · Cited by 52
Zhao, Y., Zhang, Q., Tsering, T., Sangwan, Hu, X., Liu, L., Shang, H., Chen, Q., Liu, Y., Yang, X., et al. (2008) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2007.10.012 · Cited by 51
“HRQOL was measured with the 31-item Quality of Life in Epilepsy Inventory (QOLIE-31), the validity and reliability of which have been extensively tested [10].”
MethodMartins, H. H., Alonso, N., Vidal-Dourado, M., Carbonel, T. D., Filho, G. M. D. A., Caboclo, L. O. S. F., Yacubian, E. M. T., & Guilhoto, L. M. D. F. F. (2011) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2011.08.005 · Cited by 51
Nubukpo, P., Clément, J., Houinato, D. S., Radji, A., Grunitzky, E. K., Avodé, G., & Preux, P. (2004) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2004.07.002 · Cited by 51
Beran, R. G., Berkovic, S. F., Black, A. B., Danta, G., Hiersemenzel, R., Schapel, G. J., & Vajda, F. J. E. (2005) · Epilepsy Research · doi:10.1016/j.eplepsyres.2004.09.005 · Cited by 51
Cognitive Behaviour Therapy to Improve Mood in People with Epilepsy: A Randomised Controlled Trial
Gandy, M., Sharpe, L., Nicholson Perry, K., Thayer, Z., Miller, L., Boserio, J., & Mohamed, A. (2014) · Cognitive Behaviour Therapy · doi:10.1080/16506073.2014.892530 · Cited by 52
“The Quality of Life Inventory in Epilepsy-31 (QOLIE-31; Cramer et al., 1998).”
MethodPerceived stigma, discrimination and psychological problems among patients with epilepsy
Malik, N. I., Fatima, R., Ullah, I., Atta, M., Awan, A., Nashwan, A. J., & Ahmed, S. (2022) · Frontiers in Psychiatry · doi:10.3389/fpsyt.2022.1000870 · Cited by 50
Marital status of patients with epilepsy: Factors and quality of life
Tedrus, G. M. A. S., Fonseca, L. C., & Pereira, R. B. (2015) · Seizure · doi:10.1016/j.seizure.2015.02.028 · Cited by 50
Garcia, M. E., García‐Morales, I., & Gil‐Nagel, A. (2014) · Epilepsy Research · doi:10.1016/j.eplepsyres.2014.11.003 · Cited by 50
A self-administered screening instrument for psychogenic nonepileptic seizures
Syed, T. U., Arozullah, A. M., Loparo, K. A., Jamasebi, R., Suciu, G., Griffin, C., Mani, R., Syed, I., Loddenkemper, T., & Alexopoulos, A. V. (2009) · Neurology · doi:10.1212/wnl.0b013e3181a55ef7 · Cited by 50
Ahorsu, D. K., Lin, C., Imani, V., Carlbring, P., Nygårdh, A., Broström, A., Hamilton, K., & Pakpour, A. H. (2020) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2020.107371 · Cited by 49
Quality of life in young adults who underwent resective surgery for epilepsy in childhood
Elliott, I., Kadis, D. S., Lach, L., Olds, J., McCleary, L., Whiting, S. E., Snyder, T. J., & Smith, M. L. (2012) · Epilepsia · doi:10.1111/j.1528-1167.2012.03594.x · Cited by 49
“QOL was measured with two epilepsy-specific questionnaires, the Quality of Life in Epilepsy-31 Inventory (QOLIE-31; Cramer et al., 1998) and the Subjective Handicap of Epilepsy Scale (SHE; O’Donoghue et al., 1998).”
MethodLennox–Gastaut syndrome: impact on the caregivers and families of patients
Gibson, P. (2014) · Journal of Multidisciplinary Healthcare · doi:10.2147/jmdh.s69300 · Cited by 49
Tedrus, G. M. A. S., Fonseca, L. C., Magri, F. D. P., & Mendes, P. H. M. (2013) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2013.05.011 · Cited by 49
Elsharkawy, A. E., Thorbecke, R., Ebner, A., & May, T. W. (2012) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2012.03.012 · Cited by 49
Barbella, G., Cocco, I., Freri, E., Marotta, G., Visani, E., Franceschetti, S., & Casazza, M. (2018) · Seizure · doi:10.1016/j.seizure.2018.06.016 · Cited by 48
Liu, Z., Yin, R. L., Fan, Z., Fan, H., Wu, H., Shen, B., Wu, S., & Kuang, F. (2020) · Frontiers in Psychiatry · doi:10.3389/fpsyt.2020.00670 · Cited by 48
Teleneuropsychology in the time of COVID-19: The experience of The Australian Epilepsy Project
Tailby, C., Collins, A., Vaughan, D. N., Abbott, D. F., O’Shea, M. F., Helmstaedter, C., & Jackson, G. D. (2020) · Seizure · doi:10.1016/j.seizure.2020.10.005 · Cited by 49
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Jhaveri, D. J., McGonigal, A., Becker, C., Benoliel, J. J., Nandam, L. S., Soncin, L., Kotwas, I., Bernard, C., & Bartoloméi, F. (2023) · eNeuro · doi:10.1523/eneuro.0200-23.2023 · Cited by 53
“…symptomatic load can be viewed as (1) stress as a trigger for seizures, affecting their frequency and severity; and (2) stress as a risk factor for developing psychiatric comorbidities such as anxiety and depression, which are known to result in poorer quality of life (Cramer et al., 1998).”
BackgroundZimmermann, F., & Endermann, M. (2008) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2008.02.005 · Cited by 47
Improved mood states with lamotrigine in patients with epilepsy
Cramer, J. A., Hammer, A. E., & Kustra, R. P. (2004) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2004.07.005 · Cited by 47
Endermann, M., & Zimmermann, F. (2008) · Seizure · doi:10.1016/j.seizure.2008.08.013 · Cited by 47
Beghi, E., Niero, M., & Roncolato, M. (2005) · Seizure · doi:10.1016/j.seizure.2005.07.008 · Cited by 46
“As a compromise it was suggested we should add the item ‘‘not applicable’’ in the ‘‘driving’’ and ‘‘working’’ scales in the Italian version of the QOLIE-31.”
MethodInfluentialPicot, M., Crespel, A., Daurès, J., Baldy-Moulinier, M., & Hasnaoui, A. E. (2004) · Epileptic Disorders · doi:10.1684/j.1950-6945.2004.tb00077.x · Cited by 46
“0), as compared to 63 (16) in the original US study [3], and 61.”
BackgroundMethodResultInfluentialFelt Stigma and Its Underlying Contributors in Epilepsy Patients
Mao, L., Wang, K., Zhang, Q., Wang, J., Zhao, Y., Peng, W., & Ding, J. (2022) · Frontiers in Public Health · doi:10.3389/fpubh.2022.879895 · Cited by 45
Changes in seizure severity and quality of life in patients with refractory partial epilepsy
Sancho, J., Iváñez, V., Molins, A., Gómez, V. L., Masramon, X., & Pérez, M. (2010) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2010.08.011 · Cited by 45
Quality of life among people with epilepsy: a cross-sectional study from rural southern India.
S, R. P., Ramesh, R., Rachel, P., Chanda, R., Satish, N., & Mohan, V. R. (2012) · PubMed · Cited by 45
Elliott, J. O., Jacobson, M. P., & Seals, B. F. (2006) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2006.07.007 · Cited by 45
Psychosocial interventions for conversion and dissociative disorders in adults
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Illness identity in young adults with refractory epilepsy
Luyckx, K., Oris, L., Raymaekers, K., Rassart, J., Moons, P., Verdyck, L., Mijnster, T., & Mark, R. E. (2018) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2017.12.036 · Cited by 54
Ketogenic dietary therapies for adults with epilepsy: Feasibility and classification of response
Schoeler, N. E., Wood, S. M., Aldridge, V., Sander, J. W. A. S., Cross, J. H., & Sisodiya, S. M. (2014) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2014.06.007 · Cited by 43
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Kubota, H., & Awaya, Y. (2010) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2010.04.045 · Cited by 45
“The QOLIE-31, which was developed in the United States, has been translated into various languages [12], and its reliability and validity have been assessed in numerous countries [13–21].”
BackgroundChanges in quality of life after epilepsy surgery: The role of reprioritization response shift
Sajobi, T. T., Fiest, K. M., & Wiebe, S. (2014) · Epilepsia · doi:10.1111/epi.12697 · Cited by 42
The effects of medication education and behavioral intervention on Chinese patients with epilepsy
Tang, F., Zhu, G., Jiao, Z., Ma, C.-L., Chen, N., & Wang, B. (2014) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2014.05.017 · Cited by 42
Tlusta, E., Zárubová, J., Simko, J., Hojdikova, H., Salek, S., & Vlček, J. (2008) · Seizure · doi:10.1016/j.seizure.2008.06.006 · Cited by 42
Stavem, K., Bjørnes, H., & Lossius, M. I. (2000) · Epilepsia · doi:10.1111/j.1528-1157.2000.tb01511.x · Cited by 42
Radhakrishnan, D. M., Ramanujam, B., Srivastava, M. V. P., Dash, D., & Tripathi, M. (2018) · Acta Neurologica Scandinavica · doi:10.1111/ane.12994 · Cited by 41
Macea, J., Bhagubai, M., Broux, V., Vos, M. D., & Paesschen, W. V. (2023) · Epilepsia · doi:10.1111/epi.17517 · Cited by 40
Amiri, M., & Hansen, C. P. (2014) · Seizure · doi:10.1016/j.seizure.2014.08.009 · Cited by 40
Noble, A. J., & Marson, A. G. (2016) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2016.01.036 · Cited by 39
Libbon, R., Gadbaw, J., Watson, M. M., Rothberg, B., Sillau, S., Heru, A. M., & Strom, L. A. (2019) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2019.06.032 · Cited by 40
Resilience, quality of life, and clinical aspects of patients with epilepsy
Tedrus, G. M. A. S., Limongi, J. M., & Zuntini, J. V. R. (2019) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2019.06.041 · Cited by 40
The costs of epilepsy in three different populations of patients with epilepsy
Kotsopoulos, I. A. W., Evers, S., Ament, A. J. H. A., Kessels, F., de Krom, M. C. T. F. M., Twellaar, M., Metsemakers, J. F. M., & Knottnerus, J. A. (2003) · Epilepsy Research · doi:10.1016/s0920-1211(03)00062-7 · Cited by 40
Epilepsy in patients with primary brain tumors: The impact on mood, cognition, and HRQOL
Rahman, Z., Wong, C., Dexter, M. A. J., Olsson, G., Wong, M., Gebski, V., Nahar, N., Wood, A., Byth, K., King, M. T., et al. (2015) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2015.03.016 · Cited by 40
Improving quality of life beyond seizure control
Schachter, S. C. (2005) · Epileptic Disorders · doi:10.1684/j.1950-6945.2005.tb00150.x · Cited by 39
Zou, X., Hong, Z., Chen, J., & Zhou, D. (2014) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2013.11.028 · Cited by 39
Wijnen, B. F. M., Mosweu, I., Majoie, M., Ridsdale, L., de Kinderen, R. J. A., Evers, S., & McCrone, P. (2017) · The European Journal of Health Economics · doi:10.1007/s10198-017-0928-0 · Cited by 39
“condition-specific QoL instrument, the Quality of Life in Epilepsy-Patients-Weighted 31p (QOLIE-31P) [18].”
MethodKralj‐Hans, I., Goldstein, L. H., Noble, A. J., Landau, S., Magill, N., McCrone, P., Baker, G. A., Morgan, M., Richardson, M. P., Taylor, S. J., et al. (2014) · BMC Neurology · doi:10.1186/1471-2377-14-69 · Cited by 38
Validity and Reliability of the Quality of Life in Epilepsy Inventory (QOLIE-31) for Turkey
Mollaoğlu, M., Durna, Z., & Bolayır, E. (2015) · Nöro Psikiyatri Arşivi · doi:10.5152/npa.2015.8727 · Cited by 38
“Statistical Analysis The analysis and assessment of the collected data were performed by a computer using Statistical Package for the Social Sciences version 17.0 (SPSS Inc., Chicago, IL, USA) package program.”
BackgroundMethodResultInfluentialPsychosocial long‐term outcome in juvenile myoclonic epilepsy
Holtkamp, M., Senf, P., Kirschbaum, A., & Janz, D. (2014) · Epilepsia · doi:10.1111/epi.12751 · Cited by 38
Psychological characteristics of patients with newly developed psychogenic seizures
Merode, T. V. (2004) · Journal of Neurology Neurosurgery & Psychiatry · doi:10.1136/jnnp.2003.016923 · Cited by 38
Barahmand, U., & Haji, A. (2014) · Epilepsy Research · doi:10.1016/j.eplepsyres.2014.07.002 · Cited by 42
Assessment of Treatment Side Effects and Quality of Life in People with Epilepsy
Blond, B. N., Detyniecki, K., & Hirsch, L. J. (2016) · Neurologic Clinics · doi:10.1016/j.ncl.2015.11.002 · Cited by 37
Verma, N., Maiti, R., Mishra, B. R., Jha, M., Jena, M., & Mishra, A. (2021) · Journal of Neuroscience Research · doi:10.1002/jnr.24820 · Cited by 37
“• QOLIE- 31 was used to assess the change in the quality of life among the patients (Cramer et al. 1998).”
MethodPeters, M., Crocker, H., Dummett, S., Jenkinson, C., Doll, H., & Fitzpatrick, R. M. (2014) · Health and Quality of Life Outcomes · doi:10.1186/s12955-014-0123-2 · Cited by 36
“Quality of Life in Epilepsy (QOLIE-31) [20], Minnesota Living with Heart Failure Questionnaire (MLHFQ) [21,22] and the Stroke Impact Scale version 3 (SIS) [23].”
MethodInfluentialRidsdale, L., McKinlay, A. R., Wojewodka, G., Robinson, E. J., Mosweu, I., Feehan, S. J., Noble, A. J., Morgan, M., Taylor, S. J., McCrone, P., et al. (2018) · Health Technology Assessment · doi:10.3310/hta22210 · Cited by 36
“It is a short, easy-to-use measure based on the original QOLIE-31.(80) The QOLIE-31-P varies slightly from the original QOLIE-31 with an addition of one item at the end of each subscale, asking the participant to rate the degree of ‘distress’ caused by that particular topic.”
BackgroundMethodQuality of life in young adults with uncomplicated epilepsy
Räty, L., & Wilde‐Larsson, B. (2006) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2006.09.010 · Cited by 36
McLaughlin, D., Pachana, N. A., & McFarland, K. A. (2010) · Seizure · doi:10.1016/j.seizure.2010.02.008 · Cited by 35
Determinants of quality of life in patients with drug-resistant focal epilepsy
Silva, B., Canas‐Simião, H., Cordeiro, S., Velosa, A., Oliveira-Maia, A. J., & Barahona-Corrêa, B. (2019) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2019.106525 · Cited by 35
O'Brien, T. J., Borghs, S., He, Q. (., Schulz, A., Yates, S. L., & Biton, V. (2020) · Epilepsia · doi:10.1111/epi.16484 · Cited by 35
Transcutaneous vagus nerve stimulation in the treatment of drug-resistant epilepsy
von Wrede, R. D., & Surges, R. (2021) · Autonomic Neuroscience · doi:10.1016/j.autneu.2021.102840 · Cited by 34
Quality of life after extratemporal epilepsy surgery: A prospective clinical study
Tanrıverdi, T., Poulin, N., & Olivier, A. (2007) · Clinical Neurology and Neurosurgery · doi:10.1016/j.clineuro.2007.08.021 · Cited by 35
PESOS-Fragebogen für Menschen mit Epilepsie—
May, T. W., Pfäfflin, M., Thorbecke, R., Specht, U., van Kampen, N., & Coban, I. (2004) · Clinical Epileptology · doi:10.1007/s10309-004-0087-z · Cited by 35
“Diese Ergebnisse stimmen mit denen anderer Studien (vgl. Berto, 2002; Cramer et al., 1998; Devinsky et al., 1995; Leidy et al., 1999; Djibuti & Shakarishvili, 2003), bei denen andere Lebensqualitäts-Fragebogen (QOLIE-31, QOLIE-89, ESI-55) eingesetzt wurden, überein, die ebenfalls den Einfluss der…”
BackgroundInfluentialde la Loge, C., Dimova, S., Mueller, K., Phillips, G., Durgin, T. L., Wicks, P. J., & Borghs, S. (2016) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2016.07.035 · Cited by 35
“…and review their information for a number of validated, standardized patient-reported outcome (PRO) instruments, namely, the Quality of Life in Epilepsy Inventory (QOLIE-31/P) [14], the Hospital Anxiety and Depression Scale (HADS) [15], and the EuroQoL 5-Dimensions Scale, 3 Levels (EQ-5D-3L) [16].”
Andelman, F., Fried, I., & Neufeld, M. Y. (2001) · Epilepsia · doi:10.1046/j.1528-1157.2001.19100.x · Cited by 35
Health-related quality of life in epilepsy: Findings obtained with a new Italian instrument
Piazzini, A., Beghi, E., Turner, K., & Ferraroni, M. (2008) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2008.02.017 · Cited by 35
“The ESI-55 [11], Liverpool Battery [12], QOLIE-89 [13], QOLIE-10 [14], and QOLIE-31 [15] are among the most representative existing epilepsy-specific questionnaires.”
BackgroundMitchell, J., Sossi, F., Miller, I., Jaber, P. B., Das‐Gupta, Z., Fialho, L. S., Amos, A., AUSTIN, J. K., Badzik, S., Baker, G. A., et al. (2024) · Epilepsia · doi:10.1111/epi.17971 · Cited by 34
de Vries, P. J., Franz, D. N., Curatolo, P., Nabbout, R., Neary, M. P., Herbst, F., Sully, K., Brohan, E., Bennett, B., & Lawson, J. A. (2018) · Frontiers in Pharmacology · doi:10.3389/fphar.2018.00964 · Cited by 34
Cano‐López, I., Hampel, K. G., Garcés, M., Villanueva, V., & González‐Bono, E. (2018) · Journal of Psychosomatic Research · doi:10.1016/j.jpsychores.2018.09.001 · Cited by 34
Quality of life in epilepsy in Bhutan
Saadi, A., Patenaude, B., Nirola, D. K., Deki, S., Tshering, L., Clark, S. J., Shaull, L., Sorets, T. R., Fink, G., & Mateen, F. J. (2016) · Seizure · doi:10.1016/j.seizure.2016.05.001 · Cited by 34
Effectiveness of a Self-Management Program to Improve Cognition and Quality of Life in Epilepsy
Streltzov, N. A., Schmidt, S. S., Schommer, L. M., Zhao, W., Tosteson, T. D., Mazanec, M. T., Kiriakopoulos, E. T., Chu, F., Henninger, H. L., Nagle, K. J., et al. (2022) · Neurology · doi:10.1212/wnl.0000000000200346 · Cited by 36
Prospective study of cenobamate on cognition, affectivity, and quality of life in focal epilepsy
Catalán‐Aguilar, J., Hampel, K. G., Cano‐López, I., Garcés, M., Lozano‐García, A., Tormos‐Pons, P., González‐Bono, E., & Villanueva, V. (2023) · Epilepsia Open · doi:10.1002/epi4.12857 · Cited by 33
“Quality of Life in Epilepsy Inventory (QOLIE-31), 26 in its Spanish version, 27 was used to assess QOL and includes 31 items distributed in seven scales: seizure worry; overall QOL; emotional well-being; energy; cognitive self-rating; medication effects; and social functioning, ranged from 0 to 100.”
MethodThe Greek Version of the Quality of Life in Epilepsy Inventory (QOLIE-31)
Piperidou, H., Terzoudi, A., Theofanis, V., Elizabeth, D., Heliopoulos, I., Konstantinos, V., Giassakis, G., Αγγελόπουλος, Π., Georgios, G., & Anna, K. (2006) · Quality of Life Research · doi:10.1007/s11136-005-5149-9 · Cited by 33
“Its validity and reliability have been documented [10] and the instrument has been and is currently used in numerous clinical studies [11, 12].”
BackgroundMethodGois, J., Valente, K. D. R., Vicentiis, S., Moschetta, S. P., Kuczynski, E., Fiore, L. A., & Fuentes, D. (2010) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2010.10.033 · Cited by 33
Metadata
- Authors
- Cramer, J. A., Perrine, K., Devinsky, O., Bryant‐Comstock, L., Meador, K., & Hermann, B.
- Affiliations
- VA Connecticut Healthcare System (US)
- New York University Langone Orthopedic Hospital (US)
- Augusta University (US)
- University of Wisconsin–Madison (US)
- Corresponding author
- Cramer, Joyce A.
- Venue
- Epilepsia
- Publisher
- Wiley
- Published
- 1998-01
- Volume
- 39
- Issue
- 1
- Pages
- 81-88
- ISSN
- 0013-9580 (ISSN-L)
- 1528-1167
- OpenAlex
- W2021074267
- Cited by
- 782
- References
- 22
- Citations by year
- 2026: 51 · 2025: 63 · 2024: 46 · 2023: 43 · 2022: 62 · 2021: 49 · 2020: 48 · 2019: 29 · 2018: 29 · 2017: 31 · 2016: 21 · 2015: 38 · 2014: 37 · 2013: 30 · 2012: 23
- FWCI
- 6.48
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Epilepsia (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Medicine › Clinical Neurology › Epilepsy research and treatment
- Social Sciences › Economics, Econometrics and Finance › Economics and Econometrics › Health Systems, Economic Evaluations, Quality of Life
- Health Sciences › Nursing › Research and Theory › Health Education and Validation
- Keywords
- epilepsy, health-related quality of life, QOLIE-31, QOLIE-89, cross-cultural translation, questionnaire development, seizure worry, medication effects, fatigue, cognitive function, psychometric validation, international clinical trials
- MeSH terms
- Adolescent, Adult, Canada, Cross-Cultural Comparison, Epilepsy, Europe, Female, Health Status Indicators, Humans, Male, Middle Aged, Psychometrics, Quality of Life, Surveys and Questionnaires, Translations, United States, Reproducibility of Results, Sickness Impact Profile
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