Cited by 782Epilepsy research and treatmentHealth Systems, Economic Evaluations, Quality of LifeHealth Education and Validation

The DOI matches its Crossref record; 22 of the 22 references it cites were found in a registry or an index.

Development and cross-cultural translations of a 31-item quality of life in epilepsy inventory

Cramer, Joyce A., Perrine, Kenneth, Devinsky, Orrin, Bryant‐Comstock, Lynda, Meador, Kimford, Hermann, Bruce·1998·Epilepsia

DOI 10.1111/j.1528-1157.1998.tb01278.x

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Abstract

PURPOSE: We report the development of a questionnaire to assess health-related quality-of-life (HRQOL) in people with epilepsy and the process of cross-cultural translations of the questionnaire. METHODS: A sample of 304 adults with epilepsy from 25 seizure clinics in the United States was used to derive an abbreviated questionnaire focusing on epilepsy-related issues from a longer, 89-item instrument (QOLIE-89). A rigorous forward-backward-forward system was used for cross-cultural translation. RESULTS: A 31-item questionnaire (QOLIE-31, version 1.0) resulted, comprising seven subscales covering general and epilepsy-specific domains. Subscale and total scores can be calculated. The subscales were grouped into two factors: Emotional/Psychological Effects (seizure worry, overall QOL, emotional well-being, energy/fatigue subscales) and Medical/Social Effects (medication effects, work-driving-social limits, cognitive function subscales). Cross-cultural translations were made from U.S.-English into Danish, Dutch, German, Canadian French, French, Italian, Spanish, Swedish, and U.K. English Versions 1.1. CONCLUSIONS: Our results support the reliability and validity of the QOLIE-31 (U.S.-English version 1.0) as a measure of HRQOLIE. Cross-cultural translations into nine other languages make it feasible to use the QOLIE-31 (version 1.1) in multinational clinical trials after validation in each population or concurrent with the clinical trial.

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“…(PHQ-9) [35]; the Generalized Anxiety Disorder-7 (GAD-7) [36]; the Pittsburgh Sleep Quality Index (PSQI) [37]; the Quality of Life in Epilepsy Inventory-31 (QOLIE-31) [38]; the Epilepsy Stigma Scale [39]; the Self-Reported Habit Index [40]; and the New General Self-Efficacy Scale [41].”
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Authors: Cramer, J. A., Perrine, K., Devinsky, O., Bryant‐Comstock, L., Meador, K., & Hermann, B.
Affiliations: VA Connecticut Healthcare System (US)
New York University Langone Orthopedic Hospital (US)
Augusta University (US)
University of Wisconsin–Madison (US)
Corresponding author: Cramer, Joyce A.
ORCID: Cramer, Joyce A.
Perrine, Kenneth
Devinsky, Orrin
Meador, Kimford
Hermann, Bruce
Venue: Epilepsia
Publisher: Wiley
Published: 1998-01
Volume: 39
Issue: 1
Pages: 81-88
ISSN: 0013-9580 (ISSN-L)
1528-1167
DOI: 10.1111/j.1528-1157.1998.tb01278.x
OpenAlex: W2021074267
Cited by: 782
References: 22
Citations by year: 2026: 51 · 2025: 63 · 2024: 46 · 2023: 43 · 2022: 62 · 2021: 49 · 2020: 48 · 2019: 29 · 2018: 29 · 2017: 31 · 2016: 21 · 2015: 38 · 2014: 37 · 2013: 30 · 2012: 23
FWCI: 6.48
Type: journal article
Language: en
Open access: closed
Licence: onlinelibrary.wiley.com/termsAndConditions#vor (vor, 2771 d)
Locations: Epilepsia (publishedVersion)
PubMed (publishedVersion)
Topics: Health Sciences › Medicine › Clinical Neurology › Epilepsy research and treatment
Social Sciences › Economics, Econometrics and Finance › Economics and Econometrics › Health Systems, Economic Evaluations, Quality of Life
Health Sciences › Nursing › Research and Theory › Health Education and Validation
Keywords: epilepsy, health-related quality of life, QOLIE-31, QOLIE-89, cross-cultural translation, questionnaire development, seizure worry, medication effects, fatigue, cognitive function, psychometric validation, international clinical trials
MeSH terms: Adolescent, Adult, Canada, Cross-Cultural Comparison, Epilepsy, Europe, Female, Health Status Indicators, Humans, Male, Middle Aged, Psychometrics, Quality of Life, Surveys and Questionnaires, Translations, United States, Reproducibility of Results, Sickness Impact Profile

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Development and cross-cultural translations of a 31-item quality of life in epilepsy inventory

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