Cited by 782Epilepsy research and treatmentHealth Systems, Economic Evaluations, Quality of LifeHealth Education and Validation

The DOI matches its Crossref record; 22 of the 22 references it cites were found in a registry or an index.

Development and cross-cultural translations of a 31-item quality of life in epilepsy inventory

Cramer, Joyce A., Perrine, Kenneth, Devinsky, Orrin, Bryant‐Comstock, Lynda, Meador, Kimford, Hermann, Bruce·1998·Epilepsia

DOI 10.1111/j.1528-1157.1998.tb01278.x

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Abstract

PURPOSE: We report the development of a questionnaire to assess health-related quality-of-life (HRQOL) in people with epilepsy and the process of cross-cultural translations of the questionnaire. METHODS: A sample of 304 adults with epilepsy from 25 seizure clinics in the United States was used to derive an abbreviated questionnaire focusing on epilepsy-related issues from a longer, 89-item instrument (QOLIE-89). A rigorous forward-backward-forward system was used for cross-cultural translation. RESULTS: A 31-item questionnaire (QOLIE-31, version 1.0) resulted, comprising seven subscales covering general and epilepsy-specific domains. Subscale and total scores can be calculated. The subscales were grouped into two factors: Emotional/Psychological Effects (seizure worry, overall QOL, emotional well-being, energy/fatigue subscales) and Medical/Social Effects (medication effects, work-driving-social limits, cognitive function subscales). Cross-cultural translations were made from U.S.-English into Danish, Dutch, German, Canadian French, French, Italian, Spanish, Swedish, and U.K. English Versions 1.1. CONCLUSIONS: Our results support the reliability and validity of the QOLIE-31 (U.S.-English version 1.0) as a measure of HRQOLIE. Cross-cultural translations into nine other languages make it feasible to use the QOLIE-31 (version 1.1) in multinational clinical trials after validation in each population or concurrent with the clinical trial.

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Untitled work
(1992) · PubMed · Cited by 33,716
The MOS 36-ltem Short-Form Health Survey (SF-36): I. Conceptual Framework and Item Selection
Ware, J. E., & Sherbourne, C. D. (1992) · Medical Care · doi:10.1097/00005650-199206000-00002 · Cited by 30,033
Social Indicators of Well-Being
Andrews, F. M., & Withey, S. B. (1976) · Springer eBooks · doi:10.1007/978-1-4684-2253-5 · Cited by 4,911
The rand 36‐item health survey 1.0
Hays, R. D., Sherbourne, C. D., & Mazel, R. M. (1993) · Health Economics · doi:10.1002/hec.4730020305 · Cited by 2,960
Measuring Functioning and Well-Being: The Medical Outcomes Study Approach
Stewart, A., & Ware, J. (1992) · doi:10.7249/cb361 · Cited by 2,689
Profile of mood states
McNair, D. M. (1992) · Medical Entomology and Zoology · Cited by 2,527
Quality of life and pharmacoeconomics in clinical trials
Pater, J. L. (1996) · Controlled Clinical Trials · doi:10.1016/s0197-2456(97)82191-5 · Cited by 2,410
Testing the validity of the Euroqol and comparing it with the SF-36 health survey questionnaire
Brazier, J. E., Jones, N., & Kind, P. (1993) · Quality of Life Research · doi:10.1007/bf00435221 · Cited by 708
Development of the Quality of Life in Epilepsy Inventory
Devinsky, O., Vickrey, B. G., Cramer, J., Perrine, K., Hermann, B., Meador, K., & Hays, R. D. (1995) · Epilepsia · doi:10.1111/j.1528-1157.1995.tb00467.x · Cited by 634
Self-citation
A Brief Questionnaire to Screen for Quality of Life in Epilepsy The QOLIE‐10
Cramer, J. A., Perrine, K. R., Devinsky, O., & Meador, K. J. (1996) · Epilepsia · doi:10.1111/j.1528-1157.1996.tb00612.x · Cited by 381

Show all 22 references

Research works printed but not linked: 5

Cramer JA, 1996, Quality of i f e and pharmacoeconomies in clinical trials, 909
World Health Organization., 1958, World Health Organization: The first 10 years of the World Health Organization
MAPI Research Institute., 1966, Cultural adaptation of the QOLIE‐31 into UK‐English, Italian, Spanish, Canadian French, French, German, Danish, und Swedish
Vickrey BG, 1993, Quality of life in epilepsy QOLIE‐31 (version 1.0); scoring manual and patient inventory
Cramer JA, 1995, Adaptation of an epilepsy quality of life instrument for adolescents, Epilepsia, 36, 93

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Langston, J. W., Forno, L. S., Tetrud, J., Reeves, A. G., Kaplan, J. A., & Karluk, D. (1999) · Annals of Neurology · doi:10.1002/1531-8249(199910)46:4 · Cited by 1
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Ríos, D., & Carlos, J. (2015)
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Chamberlain, A. E. (2011) · Texas ScholarWorks (Texas Digital Library)
Is use of the QOLIE-31 in non-adult populations appropriate?
Martinović, Ž. (2007) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2007.01.008
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Лебедева, А. В., Kovaleva, I. Y., Khomutov, V. E., Каймовский, И. Л., & Мутаева, Р. Ш. (2013) · Neuroscience and Behavioral Physiology · doi:10.1007/s11055-013-9739-7
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Method
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Stevanović, D. (2007) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2007.01.007
Percepción de memoria y calidad de vida en pacientes con epilepsia del lóbulo temporal con y sin tratamiento quirúrgico
Bermúdez, M. Z., Chacón, L. M. M., Martín, M. M. B., Pérez, M. L., & González, Y. C. (2015) · Revista cubana de neurología y neurocirugía
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Wassenaar, M. (2014) · Utrecht University Repository (Utrecht University)
Aus der Universitätsklinik für Kinderheilkunde und Jugendmedizin
Krägeloh-Mann, I. (2004)
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Felisbino, M. B., Steidle, L. J. M., Tavares, M. G. D. S., Pizzichini, M. M. M., Pizzichini, M., & Pizzichini, E. (2014)
Estudio de calidad de vida y factores pronósticos de los pacientes con epilepsia refractaria del Hospital Miguel Grau de EsSalud, Lima - Perú Study of quality of life and prognostic factors of patients with refractory epilepsy of Essalud's Miguel Grau Hospital, Lima - Peru
Galdós, P. P. (2010) · Dialnet (Universidad de la Rioja)
The Situation, Surroundings, and Soil of St. Louis, considered from a Hygienic Stand-Point.
Homan, G. (1884) · PubMed Central
Avaliação do prognóstico das crises, depressão, memória verbal, efeitos adversos das drogas e qualidade de vida dos pacientes operados por epilepsia do lobo temporal mesial
Dias, L. A. M. (2015) · doi:10.26512/2015.08.t.19490
Evaluation of the quality of life in operated refractory epileptic patients
del Busto, J. E. B., Chacón, L. M. M., Mutuberría, L. R., Pérez, M. L., & Toledo, L. H. (2010) · Revista Habanera de Ciencias Médicas
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Korman, G. P., Sarudiansky, M., Lanzillotti, A. I., Pico, M. M. A., & Tenreyro, C. (2014) · VI Congreso Internacional de Investigación y Práctica Profesional en Psicología XXI Jornadas de Investigación Décimo Encuentro de Investigadores en Psicología del MERCOSUR
Epilepsia de lobo temporal com atrofia hipocampal: funções neuropsicológicas, qualidade de vida e adequação social
Paulo, S. (2010)
Quality of life issues for women with epilepsy
Cramer, J. A. (2003) · Cambridge University Press eBooks · doi:10.1017/cbo9780511545030.004
Consequences of Epilepsy
Krishnamoorthy, E. S., Shorvon, S. D., & Schachter, S. C. (2017) · Epilepsy · doi:10.1017/9781139547918.007
Monitorização terapêutica do topiramato em pacientes com epilepsia refratária
Marques, F. A. (2015) · doi:10.11606/d.60.2015.tde-01072015-094425
Transition from Paediatric to Adult Healthcare: Readiness and Experiences of Canadian Adolescents and Young Adults Diagnosed with Epilepsy in Childhood
Dasiewicz, A. S. B. (2017) · Scholarship@Western (Western University)
Health technology assessment in epilepsy: moving towards patient-centered, efficient care
Wijnen, B. (2017) · doi:10.26481/dis.20170705bw
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Gurr, B., & Tanskanen, S. (2017) · International Journal of Therapy and Rehabilitation · doi:10.12968/ijtr.2017.24.10.427
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Velasco, A. L., Velasco, F., Boleaga, B., Núñez, J. M., & Trejo, D. (2012) · Elsevier eBooks · doi:10.1016/b978-1-4160-6839-6.10108-x
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Alonso, N. B., & de Albuquerque, M. (2019) · Revista Neurociências · doi:10.34024/rnc.2002.v10.8901
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The woman with epilepsy
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Ghearing, G. R., Briggs, F. B. S., Cassidy, K. A., Privitera, M., Blixen, C. E., & Sajatovic, M. (2021) · Research Square · doi:10.21203/rs.3.rs-401711/v1
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Inuzuka, L. M., Brock, R. S., & Lúcio, J. E. D. C. (2007) · Springer eBooks · doi:10.1007/978-3-540-49250-4_32
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Petraglia, A. L., Kaufman, C. B., & Pilcher, W. H. (2011) · Elsevier eBooks · doi:10.1016/b978-1-4160-5316-3.00072-1
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Daniel, B. F. (2022) · doi:10.11606/d.17.2022.tde-21062022-143324

Authors: Cramer, J. A., Perrine, K., Devinsky, O., Bryant‐Comstock, L., Meador, K., & Hermann, B.
Affiliations: VA Connecticut Healthcare System (US)
New York University Langone Orthopedic Hospital (US)
Augusta University (US)
University of Wisconsin–Madison (US)
Corresponding author: Cramer, Joyce A.
ORCID: Cramer, Joyce A.
Perrine, Kenneth
Devinsky, Orrin
Meador, Kimford
Hermann, Bruce
Venue: Epilepsia
Publisher: Wiley
Published: 1998-01
Volume: 39
Issue: 1
Pages: 81-88
ISSN: 0013-9580 (ISSN-L)
1528-1167
DOI: 10.1111/j.1528-1157.1998.tb01278.x
OpenAlex: W2021074267
Cited by: 782
References: 22
Citations by year: 2026: 51 · 2025: 63 · 2024: 46 · 2023: 43 · 2022: 62 · 2021: 49 · 2020: 48 · 2019: 29 · 2018: 29 · 2017: 31 · 2016: 21 · 2015: 38 · 2014: 37 · 2013: 30 · 2012: 23
FWCI: 6.48
Type: journal article
Language: en
Open access: closed
Licence: onlinelibrary.wiley.com/termsAndConditions#vor (vor, 2771 d)
Locations: Epilepsia (publishedVersion)
PubMed (publishedVersion)
Topics: Health Sciences › Medicine › Clinical Neurology › Epilepsy research and treatment
Social Sciences › Economics, Econometrics and Finance › Economics and Econometrics › Health Systems, Economic Evaluations, Quality of Life
Health Sciences › Nursing › Research and Theory › Health Education and Validation
Keywords: epilepsy, health-related quality of life, QOLIE-31, QOLIE-89, cross-cultural translation, questionnaire development, seizure worry, medication effects, fatigue, cognitive function, psychometric validation, international clinical trials
MeSH terms: Adolescent, Adult, Canada, Cross-Cultural Comparison, Epilepsy, Europe, Female, Health Status Indicators, Humans, Male, Middle Aged, Psychometrics, Quality of Life, Surveys and Questionnaires, Translations, United States, Reproducibility of Results, Sickness Impact Profile

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Development and cross-cultural translations of a 31-item quality of life in epilepsy inventory

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