Cited by 124Palliative Care and End-of-Life IssuesNursing care and researchPalliative and Oncologic Care

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Analysis of caregiver burden in palliative care: An integrated review

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Choi, Soyoung, Seo, JooYoung·2019·Nursing Forum

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Abstract

The inclusion of caregivers in a holistic care approach represents a basic principle in palliative care. However, many palliative care professionals have a lack of understanding of difficulties or unmet needs among caregivers. To enhance the quality of life of caregivers and the quality of care for patients, healthcare professionals should be better informed about the constructs of caregiver burden. The aim of this study is to synthesize the concept of caregiver burden in palliative care, providing implications for the caregivers and their support systems. This concept analysis study adopts the integrative review approach and the basic text analysis method (ie, word frequency). The PubMed, CINAHL, Embase, and PsycINFO databases are explored for eligible studies. From this literature search, 66 articles from 1998 to 2018 are located. After data collection is completed, the two authors independently evaluate the quality of studies published before 1 September 2018. The caregiver burden is then redefined with its attributes, antecedents, consequences, empirical referents, and facilitators. It is recommended that the multidimensional concept of caregiver burden in palliative care be measured by considering caregiver characteristics and the caregiving context.

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Authors: Choi, S., & Seo, J.
Affiliations: Pennsylvania State University (US)
Corresponding author: Choi, Soyoung
ORCID: Choi, Soyoung
Seo, JooYoung
Venue: Nursing Forum
Publisher: Wiley
Published: 2019-02-08
Volume: 54
Issue: 2
Pages: 280-290
ISSN: 0029-6473 (ISSN-L)
1744-6198
DOI: 10.1111/nuf.12328
OpenAlex: W2914129129
Cited by: 124
References: 84
Citations by year: 2026: 13 · 2025: 18 · 2024: 24 · 2023: 22 · 2022: 19 · 2021: 13 · 2020: 13 · 2019: 2
FWCI: 10.82
Type: journal article
Language: en
Open access: bronze
doi.org
Licence: onlinelibrary.wiley.com/termsAndConditions#vor (vor)
doi.wiley.com/10.1002/tdm_license_1.1 (tdm)
Locations: Nursing Forum (publishedVersion)
PubMed (publishedVersion)
Topics: Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
Health Sciences › Nursing › Research and Theory › Nursing care and research
Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative and Oncologic Care
Keywords: caregiver burden, palliative care, family caregivers, caregiver needs, caregiver support systems, caregiver quality of life, conceptual analysis, caregiver characteristics
MeSH terms: Adaptation, Psychological, Aged, Aged, 80 and over, Concept Formation, Female, Humans, Male, Middle Aged, Palliative Care, Quality of Life, Caregivers, Data Mining

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Analysis of caregiver burden in palliative care: An integrated review

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