Cited by 649Adolescent and Pediatric HealthcareChild and Adolescent HealthHospital Admissions and Outcomes

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Improving the transition between paediatric and adult healthcare: a systematic review

Crowley, R, Wolfe, I, Lock, K, McKee, M·2011·Archives of Disease in Childhood

DOI 10.1136/adc.2010.202473

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Abstract

Introduction The transition between paediatric and adult care for young people with chronic illness or disability is often poorly managed, with adverse consequences for health. Although many agree that adolescent services need to be improved, there is little empirical data on which policies can be based. Objectives To systematically review the evidence of effectiveness of transitional care programmes in young people aged 11-25 with chronic illness (physical or mental) or disability, and identify their successful components. Design A systematic literature review in July 2010 of studies which consistently evaluated health outcomes following transition programmes, either by comparison with a control group or by measurement pre-intervention and post-intervention. Results 10 studies met the inclusion criteria, six of which showed statistically significant improvements in outcomes. Descriptive analysis identified three broad categories of intervention, directed at: the patient (educational programmes, skills training); staffing (named transition co-ordinators, joint clinics run by paediatric and adult physicians); and service delivery (separate young adult clinics, out of hours phone support, enhanced follow-up). The conditions involved varied (eg, cystic fibrosis, diabetes mellitus), and outcome measures varied accordingly. All six interventions that resulted in significant improvements were in studies of patients with diabetes mellitus, with glycosylated haemoglobin level, acute…

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Background
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Background
Transition from paediatric to adult care: a qualitative study of the experiences of young adults with type 1 diabetes
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Background
Transfer from paediatric rheumatology to the adult rheumatology setting: experiences and expectations of young adults with juvenile idiopathic arthritis
Hilderson, D., Eyckmans, L., der Elst, K. V., Westhovens, R., Wouters, C., & Moons, P. (2013) · Clinical Rheumatology · doi:10.1007/s10067-012-2135-9 · Cited by 33
“Crowley and colleagues confirm the success of young adult clinics held on separate days from general clinics [30].”
Background
Attitudes of rheumatology practitioners toward transition and transfer from pediatric to adult healthcare
Hilderson, D., Moons, P., Westhovens, R., & Wouters, C. (2012) · Rheumatology International · doi:10.1007/s00296-011-2273-4 · Cited by 33
The Scope of Research on Transfer and Transition in Young Persons With Chronic Conditions
Mora, M. A., Saarijärvi, M., Moons, P., Sparud‐Lundin, C., Bratt, E., & Goossens, E. (2019) · Journal of Adolescent Health · doi:10.1016/j.jadohealth.2019.07.014 · Cited by 42
A qualitative study on the educational needs of young people with chronic conditions transitioning from pediatric to adult care
Morsa, M., Lombrail, P., Boudailliez, B., Godot, C., Jeantils, V., & Gagnayre, R. (2018) · Patient Preference and Adherence · doi:10.2147/ppa.s184991 · Cited by 32
“8,9 In a systematic review, Crowley et al 10 showed the importance of patient education to empower young people and to optimize their health during transition.”
Background
Healthcare and Research Priorities of Adolescents and Young Adults with Systemic Lupus Erythematosus: A Mixed-methods Study
Tunnicliffe, D. J., Singh‐Grewal, D., Craig, J. C., Howell, M., Tugwell, P., Mackie, F., Lin, M.-W., O'Neill, S. G., Ralph, A. F., & Tong, A. (2017) · The Journal of Rheumatology · doi:10.3899/jrheum.160720 · Cited by 30
Programmes to support paediatric to adult healthcare transitions for youth with complex care needs and their families: A scoping review
Doucet, S., Splane, J., Luke, A., Asher, K., Breneol, S., Pidduck, J., Grant, A., Dionne, E., Scott, C., Keeping-Burke, L., et al. (2022) · Child: Care, Health and Development · doi:10.1111/cch.12984 · Cited by 31
“…a growing field (Breneol et al., 2017; Canadian Association of Pediatric Health Centres [CAPHC] & National Transitions Community of Practice, 2016; Crowley et al., 2011; Dewan & Cohen, 2013; FernandesAlcantara, 2010; Fernandes-Alcantara, 2014; Levy et al., 2020; Sharma et al., 2018; Stroud et…”
BackgroundInfluential
Challenges in transitioning adolescents and young adults with rheumatologic diseases to adult Care in a Developing Country - the Brazilian experience
Anelli, C. G., Amorim, A. L. M., Osaku, F., Terreri, M., Len, C., & Reiff, A. (2017) · Pediatric Rheumatology Online Journal · doi:10.1186/s12969-017-0176-y · Cited by 31
Cystic Fibrosis Transitions of Care
Okumura, M. J., & Kleinhenz, M. E. (2015) · Clinics in Chest Medicine · doi:10.1016/j.ccm.2015.11.007 · Cited by 31
“Some programs were patient focused, using transition readiness assessments, whereas others developed curricula as the basis for comprehensive programs.(2,9) IMPROVING CYSTIC FIBROSIS TRANSITIONS”
Background
Health care transition from pediatric to adult-focused gastroenterology in patients with eosinophilic esophagitis
Dellon, E. S., Jones, P. D., Martin, N. B., Kelly, M., Kim, S. C., Freeman, K. L., Dellon, E. P., Ferris, M. E., & Shaheen, N. (2012) · Diseases of the esophagus · doi:10.1111/j.1442-2050.2011.01315.x · Cited by 31
Planned Transition of Adolescent Patients with Inflammatory Bowel Disease Results in Higher Remission Rates
Otto, C., Tárnok, A., Erős, A., Szakács, Z., Vincze, Á., Farkas, N., & Sarlós, P. (2019) · Journal of pediatric nursing · doi:10.1016/j.pedn.2019.02.003 · Cited by 30
The transition of adolescents with juvenile idiopathic arthritis or epilepsy from paediatric health-care services to adult health-care services: A scoping review of the literature and a synthesis of the evidence
Burke, L., Kirkham, J., Arnott, J., Gray, V., Peak, M., & Beresford, M. (2018) · Journal of Child Health Care · doi:10.1177/1367493517753330 · Cited by 30
“…of needing to support and increase adolescent’s self-advocacy during this time is supported in the wider literature (Bell, 2007; Viner, 2008) with self-management interventions for young adults with chronic conditions being used and evaluated increasingly (Bal et al., 2016; Crowley et al., 2011).”
BackgroundInfluential
Impact of a Complex Care Management Model on Cost and Utilization Among Adolescents and Young Adults with Special Care and Health Needs
Maeng, D., Snyder, S. R., Davis, T., & Tomcavage, J. (2017) · Population health management · doi:10.1089/pop.2016.0167 · Cited by 30
“9 Many of the previous intervention studies have focused either on a population with a speciﬁc disease (eg, diabetes, asthma, epilepsy, spina biﬁda, sickle cell anemia), 25,26 or children who are mostly not of transition age and overall have lesser functional limitations than a complex population.”
Parents in transition: Experiences of parents of young people with a liver transplant transferring to adult services
Wright, J. R., Elwell, L., McDonagh, J. E. R., Kelly, D. A., & Wray, J. (2016) · Pediatric Transplantation · doi:10.1111/petr.12760 · Cited by 35
“(7-10) Effective transition from parental to youth health management should also be considered a facilitator of successful transition (11) given the important role that parents have in helping their young”
Background
Internet-based incentives increase blood glucose testing with a non-adherent, diverse sample of teens with type 1 diabetes mellitus: a randomized controlled Trial
Raiff, B., Barrry, V. B., Ridenour, T., & Jitnarin, N. (2016) · Translational Behavioral Medicine · doi:10.1007/s13142-016-0397-5 · Cited by 30
Current Issues in Transitioning from Pediatric to Adult-Based Care for Youth with Chronic Health Care Needs
Hergenroeder, A. C., Wiemann, C. M., & Cohen, M. B. (2015) · The Journal of Pediatrics · doi:10.1016/j.jpeds.2015.08.005 · Cited by 34
Management of adults with paediatric-onset chronic liver disease: Strategic issues for transition care
Vajro, P., Ferrante, L., Lenta, S., Mandato, C., & Persico, M. (2013) · Digestive and Liver Disease · doi:10.1016/j.dld.2013.10.018 · Cited by 36
Parental Involvement in the Transition from Paediatric to Adult Care for Youth with Chronic Illness: A Scoping Review of the North American Literature
Badour, B., Bull, A., Gupta, A. A., Mirza, R., & Klinger, C. A. (2023) · International Journal of Pediatrics · doi:10.1155/2023/9392040 · Cited by 29
Patient and parent perspectives on transition from paediatric to adult healthcare in rheumatic diseases: an interview study
Jiang, I., Major, G. A. C., Singh‐Grewal, D., Teng, C., Kelly, A., Niddrie, F., Chaitow, J., O'Neill, S. G., Hassett, G., Damodaran, A. K., et al. (2021) · BMJ Open · doi:10.1136/bmjopen-2020-039670 · Cited by 38
Pediatric to adult healthcare transitioning for adolescents living with HIV in Nigeria: A national survey
Badejo, O. A., Menson, W. N. A., Sam-Agudu, N. A., Pharr, J. R., Erekaha, S. C., Bruno, T., Nwanne, G., Ogunsola, O. O., Ilozumba, J., Busari, O. A., et al. (2018) · PLoS ONE · doi:10.1371/journal.pone.0198802 · Cited by 29
Transition structures and timing of transfer from paediatric to adult-based care after kidney transplantation in Germany: a qualitative study
Prüfe, J., Dierks, M., Bethe, D., Oldhafer, M., Müther, S., Thumfart, J., Feldkötter, M., Büscher, A., Sauerstein, K., Hansen, M., et al. (2017) · BMJ Open · doi:10.1136/bmjopen-2016-015593 · Cited by 29
Cardiovascular Health in the Transition From Adolescence to Emerging Adulthood: A Scientific Statement From the American Heart Association
Scott, J., Agarwala, A., Baker-Smith, C. M., Feinstein, M. J., Jakubowski, K., Kaar, J. L., Parekh, N., Patel, K. V., & Stephens, J. D. (2025) · Journal of the American Heart Association · doi:10.1161/jaha.124.039239 · Cited by 48
Treatment management during the adolescent transition period of girls and young women with Mayer-Rokitansky-Küster-Hauser syndrome (MRKHS): a systematic literature review
Wagner, A., Brucker, S., Ueding, E., Gröber-Grätz, D., Simoes, E., Rall, K., Kronenthaler, A., Schäffeler, N., & Rieger, M. A. (2016) · Orphanet Journal of Rare Diseases · doi:10.1186/s13023-016-0536-6 · Cited by 28
“Studies were also excluded if, due to the target group, the subject, or the disease, there was no transferability to the situation of patients with MRKHS. • Integration Phase A total of 12 publications were included from the full-text analysis and an additional 7 publications from the reference…”
Background
Concept Analysis of Health Care Transition in Adolescents with Chronic Conditions.
Ladores, S. (2015) · Journal of pediatric nursing · doi:10.1016/j.pedn.2015.06.003 · Cited by 28
Building the Bridge From Pediatric to Adult Diabetes Care
Egan, E. A., Corrigan, J., & Shurpin, K. (2015) · The Science of Diabetes Self-Management and Care · doi:10.1177/0145721715581666 · Cited by 29

Authors: Crowley, R., Wolfe, I., Lock, K., & McKee, M.
Affiliations: London School of Hygiene & Tropical Medicine (GB)
Corresponding author: Wolfe, I
ORCID: Wolfe, I
McKee, M
Venue: Archives of Disease in Childhood
Publisher: BMJ
Published: 2011-03-08
Volume: 96
Issue: 6
Pages: 548-553
ISSN: 0003-9888 (ISSN-L)
1468-2044
DOI: 10.1136/adc.2010.202473
OpenAlex: W2121649468
Cited by: 649
References: 0
Citations by year: 2026: 29 · 2025: 27 · 2024: 25 · 2023: 33 · 2022: 45 · 2021: 44 · 2020: 49 · 2019: 54 · 2018: 43 · 2017: 57 · 2016: 53 · 2015: 56 · 2014: 47 · 2013: 44 · 2012: 32
FWCI: 7.89
Type: journal article
Language: en
Open access: closed
Locations: Archives of Disease in Childhood (publishedVersion)
PubMed (publishedVersion)
Research Portal (King's College London) (submittedVersion)
LSHTM Research Online (London School of Hygiene and Tropical Medicine) (submittedVersion)
Topics: Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Adolescent and Pediatric Healthcare
Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Child and Adolescent Health
Health Sciences › Nursing › Leadership and Management › Hospital Admissions and Outcomes
Keywords: care transitions, chronic disease, disability, youth, diabetes mellitus, patient education, glycosylated haemoglobin, health outcomes
MeSH terms: Adolescent, Adult, Child, Chronic Disease, Continuity of Patient Care, Delivery of Health Care, Health Services Research, Humans, Patient Education as Topic, Adolescent Health Services, Outcome Assessment, Health Care, Young Adult

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Improving the transition between paediatric and adult healthcare: a systematic review

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