Cited by 649Adolescent and Pediatric HealthcareChild and Adolescent HealthHospital Admissions and Outcomes

The DOI matches its Crossref record.

Improving the transition between paediatric and adult healthcare: a systematic review

Crowley, R, Wolfe, I, Lock, K, McKee, M·2011·Archives of Disease in Childhood

DOI 10.1136/adc.2010.202473

Open this paper in CoChat — free account

Abstract

Introduction The transition between paediatric and adult care for young people with chronic illness or disability is often poorly managed, with adverse consequences for health. Although many agree that adolescent services need to be improved, there is little empirical data on which policies can be based. Objectives To systematically review the evidence of effectiveness of transitional care programmes in young people aged 11-25 with chronic illness (physical or mental) or disability, and identify their successful components. Design A systematic literature review in July 2010 of studies which consistently evaluated health outcomes following transition programmes, either by comparison with a control group or by measurement pre-intervention and post-intervention. Results 10 studies met the inclusion criteria, six of which showed statistically significant improvements in outcomes. Descriptive analysis identified three broad categories of intervention, directed at: the patient (educational programmes, skills training); staffing (named transition co-ordinators, joint clinics run by paediatric and adult physicians); and service delivery (separate young adult clinics, out of hours phone support, enhanced follow-up). The conditions involved varied (eg, cystic fibrosis, diabetes mellitus), and outcome measures varied accordingly. All six interventions that resulted in significant improvements were in studies of patients with diabetes mellitus, with glycosylated haemoglobin level, acute…

Integrity signals

Registry

Crossref · 10.1136/adc.2010.202473

Cites

Statistics

Recomputing p-values needs the paper’s full text.

Claims the paper makes

This paper’s full text isn’t openly available, so its claims and self-check weren’t run. The registry and citation checks still apply.

Claims other papers make about this one

Each is checked against this paper’s own text: does it say what the citing paper says it does?

Sorted by citations

Items 501–600 of 607

Transiting Out of Child and Adolescent Mental Health Services – Influences on Continuities and Discontinuities in Mental Health Care
Dowdney, L., & Bruce, H. (2014) · Early Intervention in Psychiatry · doi:10.1002/9781118557174.ch8 · Cited by 3
You're in Charge: an innovative intervention program for families with adolescents with chronic illnesses
Versnel, J. (2013) · World Federation of Occupational Therapists Bulletin · doi:10.1179/otb.2013.67.1.010 · Cited by 1
“Several studies have identified that families, specifically parents, play an influencing role in this transition but few studies have examined transition in a way that accounts for the systemic influences such as culture, government and policy (Crowley et al 2011).”
BackgroundInfluential
Transição dos cuidados de pacientes com doenças crônicas da pediatria para a medicina de adultos: práticas de um hospital terciário no Brasil
Pastura, P. S. V. C., & Paiva, C. (2018) · Revista de Pediatria SOPERJ · doi:10.31365/issn.2595-1769.v18i2p3-10 · Cited by 5
Outcomes of Transition to Adult HV Care in Perinatally HIV-infected Young Adults
Biersteker, S. (2016) · doi:10.25148/etd.fidc001193
“1980’s and late 1990’s), more patients than ever before will transfer from pediatric or adolescent services to adult care in the next decade.(23) Transition from pediatric and adolescent clinical services to adult care is widely regarded to be challenging, largely because of fundamental differences between pediatric a…”
BackgroundInfluential
Genetic and Metabolic Conditions for Children with Special Health Care Needs
Hollar, D. (2012) · Springer eBooks · doi:10.1007/978-1-4614-2335-5_14 · Cited by 2
Hospital, School, and Community-Based Strategies to Enhance the Quality of Life of Youth with Chronic Illnesses
Merianos, A. L., Vidourek, R. A., King, K. A., & Nabors, L. (2014) · Applied Research in Quality of Life · doi:10.1007/s11482-014-9311-9 · Cited by 11
Transitioning Adolescents and Young Adults With Neurogastroenterology and Motility Disorders to Adult Care. Current Practices and Challenges in North America
Wolfson, S., Santucci, N., Ambartsumayan, L., Patel, D., Khlevner, J., & Saps, M. (2026) · Neurogastroenterology and Motility · doi:10.1111/nmo.70394 · Cited by 1
Clinical decision-making in rare bone diseases – A survey among members of the European Paediatric Orthopaedic Society (EPOS) and the European Reference Network on Rare Bone Diseases (ERN BOND)
Gamage, T., Coutinho, S., Leardini, A., Alves, I., Großmann, N. Z., Sakkers, R., Marcucci, G., Masi, L., Brandi, M. L., Zillikens, M. C., et al. (2026) · Journal of Children's Orthopaedics · doi:10.1177/18632521261439074 · Cited by 1
“20 Furthermore, two systematic reviews on RBD transition identified key success factors: co-ordinated multi-disciplinary care with a lead clinician, individualised transition plans, attention to changing priorities in young adulthood, strong communication and shared decision-making, and supportive…”
Endocrine Care During Transition in Emerging Adults With Cystic Fibrosis: A Single Center Retrospective Study
Cobb, C., Feeley, J., Binongo, J., Hunt, W. R., Daley, T. C., Linnemann, R. W., Stecenko, A. A., & Tangpricha, V. (2026) · Endocrine Practice · doi:10.1016/j.eprac.2026.02.007 · Cited by 1
Pediatric to Adult Health Care Transition Preparation, Support, and Education Unmet Needs of Families Living With a Kawasaki Disease Diagnosis
Chahal, N., Lardizabal, A., Rush, J., Collins, T., Weiss, J., Nobile, R., & McCrindle, B. W. (2025) · CJC Pediatric and Congenital Heart Disease · doi:10.1016/j.cjcpc.2025.10.004 · Cited by 1
Building a bridge for transition: A user-driven study on developing a transition clinic for adolescents with epilepsy
Hansen, O. A., Beier, C. P., Smith, A. C., Larsen, M. K., & Clemensen, J. (2025) · Health Informatics Journal · doi:10.1177/14604582251382024 · Cited by 1
“50 55 – 57 Transition clinics are available for several chronic conditions such as diabetes, 58 heart disease, 59 or juvenile idiopathic arthritis.”
Families’ perspectives of transitioning young adults with cerebral palsy to independent living
Hickey, L., Harms, L., Culnane, E., Saunders, V., Imms, C., Ball, M., & Reddihough, D. S. (2025) · Disability and Rehabilitation · doi:10.1080/09638288.2025.2564289 · Cited by 1
Community health workers supporting emerging adults with sickle cell disease
Butcher, S. M., Steinway, C. M., Sivakumar, B., Wu, K., Oluwole, T., Williford, D. N., Jan, S., Trachtenberg, S. W., Smith‐Whitley, K., & Belton, T. D. (2024) · Health Care Transitions · doi:10.1016/j.hctj.2024.100091 · Cited by 1
[State of play of adolescent-adult transition platforms].
Bourgninaud, M., Bottius, S., Madaoui, F., Dupont, F., Castillo, M., & Clair, A. (2024) · La Revue de l Infirmière · doi:10.1016/j.revinf.2023.11.013 · Cited by 1
Mirror meetings as a tool to enhance professionals' awareness of the lived experiences of young people with inflammatory bowel disease
Sattoe, J. N. T., van Heijningen‐Tousain, H. J. M., & van Staa, A. (2023) · Child Care Health and Development · doi:10.1111/cch.13170 · Cited by 1
Experience of an Asian paediatric rheumatology transition programme: high success rate with the use of transition readiness assessment tool
Teh, K. L., Hoh, S. F., Chan, S.-W. B., Gao, X.-C., Das, L., Book, Y., & Arkachaisri, T. (2023) · Singapore medical journal · doi:10.4103/singaporemedj.smj-2021-279 · Cited by 1
“[2] A lack of proper transition can lead to poor compliance, loss to follow‑up, suboptimal disease control and adverse clinical outcomes.”
Appel à l’action : des recommandations pour améliorer la transition des jeunes ayant des besoins de santé complexes vers les soins aux adultes
Toulany, A., Gorter, J. W., & Harrison, M. E. (2022) · Paediatrics & Child Health · doi:10.1093/pch/pxac046 · Cited by 9
Best practice in the transition to adult services for young adults who had childhood cancer
Kerr, H. (2021) · Cancer Nursing Practice · doi:10.7748/cnp.2021.e1808 · Cited by 1
THE TRANSITION OF ADOLESCENTS TO ADULT NEPHROLOGY CARE: A SURVEY ON YOUNG ADULTS’ EXPERIENCE
Çiçek, N., & Alpay, H. (2021) · Journal of Istanbul Faculty of Medicine / İstanbul Tıp Fakültesi Dergisi · doi:10.26650/iuitfd.2021.910335 · Cited by 1
“Poor health outcomes were also reported in patients with pediatric cancers and cardiac surgery (7-9).”
Background
How to Organize the Transition from Paediatric Care to Adult Health Care
Montoro, M. A., & Belloc-Barbastro, B. (2021) · Springer eBooks · doi:10.1007/978-3-030-82401-3_12 · Cited by 2
Development and Evaluation of a Transition Model for Adolescents With Inflammatory Bowel Disease Moving From Pediatric to Adult Surgical Care
Bergström, J., Dellenmark-Blom, M., Gatzinsky, V., Abrahamsson, K., Bräutigam, M., & Gatzinsky, C. (2021) · Journal of Pediatric Surgical Nursing · doi:10.1097/jps.0000000000000323 · Cited by 1
“It has been shown that the transition from pediatric to adult care is often a challenging time for patients with chronic medical conditions and for their health providers (Crowley et al., 2011).”
Background
Exploration of the costs of accessing health services: data from a longitudinal study of young people in transition from paediatric to adult services
Simpson, J., Robinson, T., & Vale, L. D. (2021) · BMC Health Services Research · doi:10.1186/s12913-021-06280-z · Cited by 2
“The Transition Research Programme sought to establish how successful transition; defined as “the purposeful, planned process that addresses the medical, psychosocial, educational, and vocational needs of adolescents and young adults with chronic medical and physical conditions as they move from child-centred to adult-…”
BackgroundInfluential
The individualized, accompanied transition program “TraiN” for adolescent kidney patients – a local initiative
Collette, P., Klein, L., Körner, L. M., Ernst, G., Brengmann, S., Schäuble, J., Habbig, S., & Weber, L. (2021) · Journal of Transition Medicine · doi:10.1515/jtm-2021-0002 · Cited by 1
“Another two-day generic transition-training course designed at the Universities of Greifswald and Luebeck showed significant improvements in the participants’ transition competence and self-efficacy six months later compared to non-participants [13].”
Background
The role of observation within a project aiming at facilitating the transition of young patients with juvenile diabetes from paediatric to adults’ services
Adamo, S. M. G., Racioppi, F., & Siani, G. (2019) · Infant Observation · doi:10.1080/13698036.2019.1619612 · Cited by 1
Establishing the Administrative Structure and Support for a Healthcare Transition Program
Ciccarelli, M., & Woodward, J. (2018) · Springer eBooks · doi:10.1007/978-3-319-72868-1_9 · Cited by 1
The International Perspective on Healthcare Transition
Anderson, B., Singh, S., Stansfield, C., & Liabo, K. (2018) · Springer eBooks · doi:10.1007/978-3-319-72868-1_28 · Cited by 1
Comparison of factors associated with successful transition of care in patients with HIV versus other chronic diseases.
In-iw, S., Lapwech, B., & Manaboriboon, B. (2018) · Pediatrics and Neonatology · doi:10.1016/j.jadohealth.2017.11.237 · Cited by 1
Multi-criteria assignment policies to improve global effectiveness of medico-social service sector
Osorio, G., Monteiro, T., Trilling, L., & Albert, F. (2017) · Engineering applications of artificial intelligence · doi:10.1016/j.engappai.2017.02.009 · Cited by 1
“, 2012) or towards the implementation of good professional practices (Crowley et al., 2011).”
Background
Editorial: Should the Wealth of Nations be Invested in the Health of their Children?
Glasper, E. A. (2015) · Issues in Comprehensive Pediatric Nursing · doi:10.3109/01460862.2015.1080072 · Cited by 1
“In these situations the care provision for this group of vulnerable children might be badly managed, with the risk of adverse health outcomes for specific children (Crowley et al., 2011).”
Background
Evaluation of the transition from paediatric to adult diabetic unit for adolescents with type 1 diabetes
Martín-Frías, M., Álvarez, M. A., Yelmo, R., Alonso, M., & Barrio, R. (2014) · Anales de Pediatría (English Edition) · doi:10.1016/j.anpede.2013.10.016
Transition de la pédiatrie aux soins d’adulte Une transition, et non un simple transfert
Durieu, I. (2014) · doi:10.1016/s0929-693x(14)71439-3 · Cited by 1
Clinical Insights: Mental Health in Adolescents: Bipolar Disorder
Duffy, A. C. (2014) · doi:10.2217/9781780843780 · Cited by 1
Transition aus der Sicht des Kinderrheumatologen
Minden, K., & Niewerth, M. (2013) · Zeitschrift für Rheumatologie (Print) · doi:10.1007/s00393-013-1226-6 · Cited by 1
Effective support for young people with type 1 diabetes
Kime, N. (2013) · doi:10.12968/indn.2013.6.5.98364 · Cited by 1
Transition of Care in Rheumatology: Managing the Rheumatic Patient from Childhood to Adulthood
van Pelt, P. V., & Wulffraat, N. (2012) · InTech eBooks · doi:10.5772/28809 · Cited by 1
“Just very few studies have been published with data to support current programs (14).”
Current attitude of rheumatology practitioners on transition and transfer from pediatric to adult health care
Hilderson, D., Moons, P., Westhovens, R., & Wouters, C. (2011) · Pediatric Rheumatology Online Journal · doi:10.1186/1546-0096-9-s1-p274 · Cited by 1
Nurse-Led Effort in Developing, Implementing and Evaluating Healthcare Transition and Promoting Developmentally Appropriate Healthcare for Young People with Haemophilia
Khair, K., Pembroke, L., & Christie, D. (2019) · Springer eBooks · doi:10.1007/978-3-030-23384-6_11 · Cited by 1
Understanding the Pediatric and Adult Healthcare System: Adapting to Change
Okumura, M., Harris, I., & Kleinhenz, M. (2018) · doi:10.1007/978-3-319-72868-1_15 · Cited by 1
Wellness Promotion in Children with Chronic Physical Illness
Thomson, K. A., & Bujoreanu, S. I. (2016) · Springer eBooks · doi:10.1007/978-1-4899-7711-3_16 · Cited by 1
Principles of Transitional Care in Haematology
Bolton‐Maggs, P. H. B., & Choudhuri, S. (2013) · Pediatric and adolescent medicine · doi:10.1159/000350353 · Cited by 1
Adolescents with chronic disease and use of technology for receipt of information regarding health and disease management
Lacey, C., Chun, S. W., Terrones, L., & Huang, J. S. (2014) · Health and Technology · doi:10.1007/s12553-014-0076-9 · Cited by 5
“Interventions to date have shown promising results including improved disease outcomes (improved disease control, reduced acute and chronic complications, and improved clinic attendance and screening compliance rates) [6] but have often been disease-centric and performed in person, with increased associated costs and…”
Background
Youth Experiences of the IDEA-Mandated Transition Planning Process: a Metasynthesis of Youth Voices
Munsell, E. G. S., & Schwartz, A. (2021) · Review Journal of Autism and Developmental Disorders · doi:10.1007/s40489-021-00268-5 · Cited by 4
Implementing Routine Mental Health Screening and Structured Follow-up for Youth With Juvenile Idiopathic Arthritis: A Single-center Quality Improvement Project
Xiao, E., Beattie, K., Cellucci, T., Dushnicky, M., Heale, L., Herrington, J., Prowse, K., & Batthish, M. (2026) · Pediatric Quality & Safety · doi:10.1097/pq9.0000000000000941
Transition of Rare and/or Complex Conditions From Paediatric to Adult Care: Use of the ITG Form and Outcome Analysis.
Olivero, E., Pinna, M., Corsi, D., Scozzari, G., Alvich, M., Scarmozzino, A., Bert, F., Scaioli, G., Siliquini, R., & Camussi, E. (2026) · Child: Care, Health and Development · doi:10.1111/cch.70365
Challenges in the Transition of Patients with Rare Diseases from Pediatric to Adult Care: Toward an Individualized, Person-Centered Model
Pire-García, T., Salgueiro-Origlia, G., Carrasco-Molina, S., & Ordieres-Ortega, L. (2026) · Journal of Personalized Medicine · doi:10.3390/jpm16100525
“Organizational measures such as dedicated young-adult clinics, telephone support, or proactive outreach to patients who miss appointments can improve adherence and reduce loss to follow-up at this stage [15]. https://doi.org/10.3390/jpm16100525”
Influential
Understanding caregivers’ experiences in healthcare transition of young people with chronic conditions: A qualitative study on formal and informal caregivers
Janssens, N., WILDER, L. V., Antonino, L., BERGHE, S. V. D., Haeghen, N. V. D., HECKE, A. V., Hoorenbeeck, K. V., Vandenwyngaert, K., Vyverman, L., Goossens, E., et al. (2026) · Patient Education and Counseling · doi:10.1016/j.pec.2026.110332
Transition from pediatric to adult care for patients with type 1 diabetes mellitus: more than just a handover
Maltezou, P. G., Vasilakis, I.-A., Angelopoulou, E., & Kanaka‐Gantenbein, C. (2026) · Endocrine Practice · doi:10.1016/j.eprac.2026.10.006
Knowledge, attitudes, and perceptions regarding the transition of epilepsy care among neurologists and pediatric neurologists in Colombia, 2025–2026: A convergent study
Atencia, J. D., Galíndez-González, A. L., Atencia, J. D., Hemer, D. C., Marriaga, G. A., & Moog, J. C. (2026) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2026.111268
Transition Failure in Pediatric Inflammatory Bowel Disease: An Underrecognized Determinant of Long-Term Outcomes
Rommel, F., Schumann, S., Weber, S., & Jenke, A. (2026) · Children · doi:10.3390/children13091270
“…staffed by paediatric and adult physicians—a finding corroborated in IBD by the TRANSIT study, with further support from retrospective IBD-specific studies demonstrating improved disease control, medication adherence, and care retention following structured versus unstructured transfer [6,36].”
Management of sexual health issues in adolescents and young adults with congenital lower urinary tract malformations: concerns emerging from a survey of Italian pediatric urology centers
Borgogni, R., Gatti, C., Caravaggi, F., Manghi, I., Berrettini, A., Minoli, D., Capitanucci, M., Mele, E., Caione, P., Cretĭ, G., et al. (2026) · Frontiers in Pediatrics · doi:10.3389/fped.2026.1900529
The COCCOS study: A protocol for a multicentric quasi-experimental study of a healthcare transition program for young people with chronic conditions
Wilder, L. V., Janssens, N., Hoorenbeeck, K. V., Wyngaert, K. V., Goossens, E., & Smedt, D. D. (2026) · PLoS ONE · doi:10.1371/journal.pone.0353932
“…care, important knowledge gaps in real-world data and effectiveness remain [5,14], particularly regarding which programme elements are most beneficial in specific contexts and populations, process-level factors such as uptake and implementation, and experiences of patients and caregivers [15,17].”
Linear growth is independently associated with health-related quality of life during healthcare transition in youth with special health care needs
Zamberlan, P., Doria, C. R., Praxedes, A. C. S. R., Ferrer, A. P. S., Souza, D. C., Fonseca, C. B., Yarshell, F. C., Sampaio, P. H. P., Luglio, M., Gualano, B., et al. (2026) · Frontiers in Nutrition · doi:10.3389/fnut.2026.1905544
“These findings are consistent with studies showing that readiness for transition is strongly linked to autonomy, health literacy, and engagement in care (4, 11).”
Delayed Diagnosis of Type 1 Gaucher Disease at Age 15 After Years of Mild Cytopenias and Splenomegaly: A Case Report and Long-Term Follow-Up
Muras-Szwedziak, K., Kasznicki, J., Wegner, O., Wójcik, M., & Wojtyczka, O. (2026) · The American journal of case reports · doi:10.12659/ajcr.952793
“Transition may follow different models, including individual transition, group-based programs, or joint pediatric-adult visits; no universally accepted standard exists [43,45,46].”
Evaluating the transition of young adults with osteogenesis imperfecta: a patient-focused prospective study
Collins, L., Lim, A., Alwaheb, S., Chee, N. S. S., Chew, C., Farag, G. G. R., Gurdev, K., Zacharin, M., & Simm, P. J. (2026) · Journal of Pediatric Endocrinology & Metabolism (JPEM) · doi:10.1515/jpem-2025-0273
“A systematic review critically evaluated both outcomes; the use of a transition co-ordinator and joint paediatric/adult clinics [30].”
Medical and social challenges awaiting adolescents with congenital adrenal hyperplasia
Nixon, M., & Davies, J. H. (2026) · Frontiers in Adolescent Medicine · doi:10.3389/fradm.2026.1870467
Transition Care for Young People with Rare Bone and Mineral Conditions: A Scoping Review
Coutinho, S., Jensen, L., Gamage, T., Hestnes, T. M., Appelmann-Dijkstra, N. M., Bazzocchi, A., Cohen-Solal, M., Crowley, R., Eekhoff, E. M. W., Großmann, N. Z., et al. (2026) · Advances in Therapy · doi:10.1007/s12325-026-03632-1
Self-citation
Epilepsien mit Beginn im Kindesalter: Transition und Weiterbehandlung aus Sicht des Neurologen für Erwachsene?
von Podewils, F. (2026) · Clinical Epileptology · doi:10.1007/s10309-026-00851-y
Trends in out-of-hospital healthcare use and costs in adolescents with complex conditions transitioning from pediatric care
Wu, N., Huang, L., Loftus, H., Culnane, E., & Dalziel, K. (2026) · Pediatric Research · doi:10.1038/s41390-026-04979-5
Implementation of the first adolescence-to-adulthood transition programme for Multiple Sclerosis in Latin America
Silva, B. A., Kenny, J. I., Jerez, J., Míguez, J., & González, A. (2026) · Multiple Sclerosis and Related Disorders · doi:10.1016/j.msard.2026.107200
Building a framework for adolescent and young adult transition of care for patients with neurofibromatosis type 1 and neurofibromatosis type 2-related schwannomatosis syndromes
Schwartzbaum, D., Dinh, C. T., Borja, N. A., Dhir, A., Coto, J., Jung, D., Pei, M., Kalmanson, O., & Gampel, B. (2026) · Frontiers in Oncology · doi:10.3389/fonc.2026.1773687
“Disruptions in care can delay identi ﬁ cation of disease progression and access to rehabilitative and psychosocial support, leading to worse morbidity and mortality (54, 55).”
Transition from Pediatric to Adult Care in Patients with Transfusion-Dependent Beta-Thalassemia in France: A National Study Concerning a Rare Disease
Szepetowski, S., Benoit, A., Berbis, J., Badens, C., Consortium NaThalY, Jean, E., Marie, B. D. S., Agouti, I., & Thuret, I. (2026) · Journal of Clinical Medicine · doi:10.3390/jcm15062203
“Shared consultations between pediatric and adult teams are rare, and psychological support is not systematically provided, despite well-documented emotional and organizational vulnerabilities during this period [24,26,27].”
"You don't know how to live like me" - Survivors' experiences of burn care in New South Wales (NSW).
Connolly, S. M., Holland, A. J. A., Taylor, N., & Ivers, R. Q. (2026) · Burns · doi:10.1016/j.burns.2026.107918
Clinical practice guidelines for the management of differences of sex development in Japan
Ishii, T., Kashimada, K., Kawai, M., Itonaga, T., Iwasa, T., Nakamura‐Utsunomiya, A., Ozaki, K., Kawamura, K., Kanno, J., Koh, J. R. D., et al. (2025) · Endocrine Journal · doi:10.1507/endocrj.ej25-0392
“…including: 1) multidisciplinary medical care by an expert team, 2) planned transition programs, 3) patient educa‐ tion and empowerment, 4) access to reproductive medicine, 5) long-term follow-up, 6) family support, and 7) establishment of adult medical systems post-transition [147, 167, 316-320].”
Transition to adult care in youth with type 1 diabetes: follow-up continuity, complications, and metabolic control
Yılmaz, U. C., Bektaş, M., Özel, Y., Demir, G., Kızılay, D. Ö., Darcan, Ş., Özen, S., Derviş, V. Ö., Şimşir, İ. Y., & Gökşen, D. (2025) · Endocrine Connections · doi:10.1530/ec-25-0495
“Collaboration between pediatric and adult care teams through individualized transition plans enhances follow-up continuity and patient satisfaction (6, 7).”
Transition bei Ösophagusatresie: medizinische, psychosoziale und strukturelle Aspekte einer lebenslangen Versorgung
Lacher, M., Bürkle, A., & Widenmann, A. (2025) · Kinder- und Jugendmedizin · doi:10.1055/a-2665-3314
“These initiatives promote health literacy, adherence, and quality of life [25,26].”
The Transition Care Index: Standardizing comprehensive transition and transfer for young adults with inflammatory bowel disease
Michel, H. K., Dotson, J. L., David, J. G., Donegan, A. M., Kiel, A., Maltz, R. M., McKillop, H. N., Oates, M., & Boyle, B. (2025) · JPGN Reports · doi:10.1002/jpr3.70045
“11,12 Despite this, transition practices for AYAs with IBD are heterogeneous and often absent.”
A clinic-based healthcare transition preparation program for adolescents and young adults with type 1 diabetes: Study protocol for the SHIFT randomized clinical trial
Caccavale, L., Streisand, R., LaRose, J., Wickham, E. P., Hilliard, M. E., Thornton, L., & Bean, M. K. (2025) · Contemporary Clinical Trials Communications · doi:10.1016/j.conctc.2025.101500
“Leading health organizations have focused considerable attention on developing transition guidelines [16,17]; yet the optimal transition model is unknown, due to limited empirical data and few randomized controlled trials in this area [18 – 22].”
Improving the Transition from Pediatric to Adult Healthcare: Recommendations from Young Adults with Lived Experience
Cassidy, M., Doucet, S. A., Luke, A., & MacNeill, L. (2025) · Canadian Journal of Family and Youth / Le Journal Canadien de Famille et de la Jeunesse · doi:10.29173/cjfy30137
“…education programs (e.g., transition workshop or a tour) with focus on preparing youth and YAs with CCN for the adult-oriented healthcare system improved outcomes such as medication adherence, quality of life, and self-care measures (Bomba et al., 2017; Crowley et al., 2011; Schmidt et al., 2020).”
Egyptian pediatric kidney transplantation: highlights on post-transplant follow-up and management of complications by the Egyptian Pediatric Clinical Practice Guidelines Committee (EPG) Nephrology Group
Moustafa, B. H., Soliman, N. A., Shaheen, I. S., Badr, A., Atia, F. M., Hatw, M. K. E., Mogahed, E. A., El-Ghamrawy, M., Elkhashab, K., Shaheen, N., et al. (2024) · Egyptian Pediatric Association Gazette · doi:10.1186/s43054-024-00321-y
Transition of care from adolescence to early adulthood in severe asthmatic patients treated with omalizumab in real life
Taillé, C., Humbert, M., Bourdin, A., Thonnelier, C., Lajoinie, A., Chassetuillier, J., Molimard, M., & Deschildre, A. (2024) · ERJ Open Research · doi:10.1183/23120541.00976-2023
[The transition preparation consultation: What for?]
Mellerio, H., & Jacquin, P. (2023) · Soins Pédiatrie/Puériculture · doi:10.1016/j.spp.2023.10.005
Transition process in children with chronic liver diseases: what is the challenging point?
Sessa, A. D., Capasso, G., Tirelli, P., del Giudice, E. M., & Marzuillo, P. (2023) · Hepatobiliary surgery and nutrition · doi:10.21037/hbsn-24-354
“Indeed, it should be noted that young patients often experienced greater fragility and vulnerability during the transition process from pediatric to adult care (13).”
BackgroundInfluential
Exploring GI Diseases Across the Lifespan.
Bajaj, J., & Long, M. (2022) · American Journal of Gastroenterology · doi:10.14309/ajg.0000000000002208
Transition of adult patients with pediatric orthostatic intolerance from child-centered care to adult-centered care
Yanagimoto, Y. (2022) · Frontiers in Pediatrics · doi:10.3389/fped.2022.946306
“reported that this is one of the most commonly used strategies in successful transition programs (29).”
Method
Barriers to weight management in adolescence: Measure adaptation among adolescents presenting to an interdisciplinary weight management clinic
Darling, K. E., Ruzicka, E. B., Shields, C. V., Putt, G. E., & Sato, A. F. (2022) · Journal of Child Health Care · doi:10.1177/13674935221087573
“It is vital to consider barriers to achieving a healthy weight status from the adolescent perspective, beyond those identi ﬁ ed by parents (Darling et al., 2018), given increasing autonomy during this developmental period (Crowley et al., 2011; Taube-Schiff and Yufe, 2017).”
Background
Pre-Transition Consultations for Adolescents With Chronic Conditions in a General Pediatric Hospital: Lessons Learned
Mellerio, H., Dumas, A., Alberti, C., Guilmin-Crépon, S., Gastaldi, M., Passini, L., Gabarro, C., Morsa, M., Roux, E. L., & Jacquin, P. (2021) · doi:10.21203/rs.3.rs-479174/v1
A potpourri of pediatric urology every sperm is sacred but when is a varicocele not a varicocele (that we need to worry about)?
Wood, D. (2020) · Journal of Pediatric Urology · doi:10.1016/j.jpurol.2020.11.011
A Provider-Facing eHealth Tool for Transitioning Youth With Special Health Care Needs From Pediatric to Adult Care: Mixed Methods, User-Engaged Usability Study (Preprint)
McMaughan, D., Lin, S., Ozmetin, J., Beverly, J., Brog, J., & Naiser, E. (2020) · doi:10.2196/preprints.22915
Creating awareness of the antegrade continence enema procedure and why nurses need to know about it
Woodhouse, F. (2020) · British Journal of Nursing · doi:10.12968/bjon.2020.29.6.s16 · Cited by 1
Endocrine Care During Adolescence into Young Adulthood
Gleeson, H. K. (2019) · Wiley eBooks · doi:10.1002/9781119152712.ch19
Transition in acquired brain injury youth (TrABI-Y): a systematic literature review protocol
Gauvin-Lepage, J., Farthing, J., Bissonnette, S., Koclas, L., Jaworski, M., Rochelle, J. L., & St-Pierre-Clément, A.-S. (2019) · BMJ Open · doi:10.1136/bmjopen-2018-027384
Effects of Transition from Pediatrics to Adult Oriented Health Care of Patients with Chronic Disease: A Literature Review
Francis, A. O. (2019) · Iris Journal of Nursing & Care · doi:10.33552/ijnc.2019.02.000528
“Transition of patients with chronic disease from pediatric to adult-oriented health care has tremendous effects on the physical, psychological and psychosocial health of the involved patients and their families [4,5].”
Background
The Novel Use of a Group Event for Young Adults with Diabetes to Promote Completion of Essential Diabetes Checks and Diabetes Education
Ravindran, R., Obuobie, K., Ward, S., & Jones, E. (2019) · International Journal of Diabetes and Clinical Research · doi:10.23937/2377-3634/1410108
“The transition from paediatric to adult care services for chronic conditions including diabetes is poorly managed in most units and is carried into young adulthood [3].”
Background
Transitional care of neurogenic bladder patient from adolescence to adulthood
Dítě, Z. (2018) · Czech Urology · doi:10.48095/cccu2018014
The Three I's of Diabetes Integration in Emerging Adulthood—Developing a Framework to Individualize Diabetes Care
Markowitz, B., Pritlove, C., Mukerji, G., Lavery, J. V., Parsons, J. A., & Advani, A. (2018) · Diabetes · doi:10.2337/db18-842-p · Cited by 1
“clinic attendance, mean HbA1c, self-reported “transition experience”, presence of complications, complication screening rates and DKA admissions) (Crowley et al., 2011; Hanna & Woodward, 2013; Lyons et al., 2014; O’Hara et al., 2017).”
Background
Gelingende Transition zum Erwachsenenalter
Pollitt, B. (2018) · Neurotransmitter · doi:10.1007/s15016-018-6295-y
Erfolgreicher Übergang in die Erwachsenenmedizin
Ernst, G. (2017) · Diabetes aktuell · doi:10.1055/s-0043-114935
Transitioning Youth With Attention Deficit Hyperactivity Disorder to Adult Health Care
Inman, D. D., Scott, L., & Aleshire, M. E. (2017) · The Journal for Nurse Practitioners · doi:10.1016/j.nurpra.2017.01.013
Promoting Health for Children and Youth With Special Health Care Needs
(2017) · Bright Futures Guidelines for Health Supervision of Infants, Children, and Adolescents, 4th Ed · doi:10.1542/9781610020237-part01-needs
Evaluation of liver transition services for young people at a UK paediatric hospital
Hubbard, R., Connolly, S., Towers, L., Bradbury, K., Fidment, S., Gleeson, D., & Mcfarlane, E. (2016) · Gastrointestinal Nursing · doi:10.12968/gasn.2016.14.sup10.s16
Placebo Effect or Not: Yoga Therapy in Children With Functional Abdominal Pain.
Vandenplas, Y. (2016) · Journal of Pediatric Gastroenterology and Nutrition - JPGN · doi:10.1097/mpg.0000000000001252
“Well-planned and coordinated transition from pediatric to adult care has been shown to improve outcomes in AYA patients with chronic diseases (7); however, similar studies in IBD are lacking.”
Background
Transition – ein erfolgreiches Konzept in der Behandlung der JIA
Minden, K., & Niewerth, M. (2015) · Aktuelle Rheumatologie · doi:10.1055/s-0035-1545322
Pledging the health of the nation's children.
Glasper, A. (2015) · British Journal of Nursing · doi:10.12968/bjon.2015.24.12.646
Transition from paediatric to adult care for chronic diseases may cause insecurity and unpreparedness for new relationships and surroundings
Begley, T. (2014) · Evidence-Based Nursing · doi:10.1136/eb-2014-101780
Transitioning from child to adult care
Sassi, R. B. (2014) · doi:10.2217/ebo.13.558
De longitudinale relatie tussen tevredenheid met transitiezorg en kwaliteit van leven bij chronisch zieke adolescenten
Cramm, J. M., Strating, M., Sonneveld, H., & Nieboer, A. (2013) · Tijdschrift voor kindergeneeskunde · doi:10.1007/s12456-013-0164-1
The experiences of adolescents with juvenile idiopathic arthritis with transition programs to adult services: A systematic review protocol
Mäkeläinen, P., & Korhonen, A. (2013) · doi:10.11124/jbisrir-2013-990
“JBI Database of Systematic Reviews and Implementation Reports JBL000739 2013;11(6) 181 - 196”
Background
Complicated Patients Transitioning From Pediatric to Adult Care
Webber, E. (2011) · AAP Grand Rounds · doi:10.1542/gr.26-5-56
Gluten-related disorders: monitoring and follow-up
Al-Toma, A. A., & Mulder, C. J. J. (2021) · Elsevier eBooks · doi:10.1016/b978-0-12-821846-4.00012-7
Self-Management Support for Young People with Chronic Conditions: Roles and Views of Professionals
McDonagh, J. E. R. (2021) · Springer eBooks · doi:10.1007/978-3-030-64293-8_5

Authors: Crowley, R., Wolfe, I., Lock, K., & McKee, M.
Affiliations: London School of Hygiene & Tropical Medicine (GB)
Corresponding author: Wolfe, I
ORCID: Wolfe, I
McKee, M
Venue: Archives of Disease in Childhood
Publisher: BMJ
Published: 2011-03-08
Volume: 96
Issue: 6
Pages: 548-553
ISSN: 0003-9888 (ISSN-L)
1468-2044
DOI: 10.1136/adc.2010.202473
OpenAlex: W2121649468
Cited by: 649
References: 0
Citations by year: 2026: 29 · 2025: 27 · 2024: 25 · 2023: 33 · 2022: 45 · 2021: 44 · 2020: 49 · 2019: 54 · 2018: 43 · 2017: 57 · 2016: 53 · 2015: 56 · 2014: 47 · 2013: 44 · 2012: 32
FWCI: 7.89
Type: journal article
Language: en
Open access: closed
Locations: Archives of Disease in Childhood (publishedVersion)
PubMed (publishedVersion)
Research Portal (King's College London) (submittedVersion)
LSHTM Research Online (London School of Hygiene and Tropical Medicine) (submittedVersion)
Topics: Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Adolescent and Pediatric Healthcare
Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Child and Adolescent Health
Health Sciences › Nursing › Leadership and Management › Hospital Admissions and Outcomes
Keywords: care transitions, chronic disease, disability, youth, diabetes mellitus, patient education, glycosylated haemoglobin, health outcomes
MeSH terms: Adolescent, Adult, Child, Chronic Disease, Continuity of Patient Care, Delivery of Health Care, Health Services Research, Humans, Patient Education as Topic, Adolescent Health Services, Outcome Assessment, Health Care, Young Adult

About these checks

Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.

Statistics and arithmetic are recomputed, not judged.

Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.

What counts as a claim ›How we measure confidence ›How we check this ›

Are you an author, or do you see a problem with this page? Request a review

Improving the transition between paediatric and adult healthcare: a systematic review

Abstract

Overview

Integrity signals

Verification

Claims the paper makes

Claims other papers make about this one

Citations

Cited by

Metadata

Record

About these checks