Cited by 649Adolescent and Pediatric HealthcareChild and Adolescent HealthHospital Admissions and Outcomes

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Improving the transition between paediatric and adult healthcare: a systematic review

Crowley, R, Wolfe, I, Lock, K, McKee, M·2011·Archives of Disease in Childhood

DOI 10.1136/adc.2010.202473

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Abstract

Introduction The transition between paediatric and adult care for young people with chronic illness or disability is often poorly managed, with adverse consequences for health. Although many agree that adolescent services need to be improved, there is little empirical data on which policies can be based. Objectives To systematically review the evidence of effectiveness of transitional care programmes in young people aged 11-25 with chronic illness (physical or mental) or disability, and identify their successful components. Design A systematic literature review in July 2010 of studies which consistently evaluated health outcomes following transition programmes, either by comparison with a control group or by measurement pre-intervention and post-intervention. Results 10 studies met the inclusion criteria, six of which showed statistically significant improvements in outcomes. Descriptive analysis identified three broad categories of intervention, directed at: the patient (educational programmes, skills training); staffing (named transition co-ordinators, joint clinics run by paediatric and adult physicians); and service delivery (separate young adult clinics, out of hours phone support, enhanced follow-up). The conditions involved varied (eg, cystic fibrosis, diabetes mellitus), and outcome measures varied accordingly. All six interventions that resulted in significant improvements were in studies of patients with diabetes mellitus, with glycosylated haemoglobin level, acute…

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Background
Development and Content Validation of the Transition Readiness Inventory Item Pool for Adolescent and Young Adult Survivors of Childhood Cancer
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“(Cole et al., 2015; Crowley et al., 2011; Nurre et al., 2019) Yet, acceptability and sustainability appear to be major limitations to current implementation of organized transition protocols.”
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Howland, S., & Fisher, K. (2015) · SpringerPlus · doi:10.1186/s40064-015-0888-8 · Cited by 22
“The themes are similar to those previously identified in other research in transitional care in chronic conditions (Crowley et al. 2011; Hilderson et al. 2010).”
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“The issue of transition of care is common tomany specialities [7], and many researchers have evaluated how best to undertake this process [8–10].”
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Shanahan, P., Ollis, L., Balla, K., Patel, R., & Long, K. (2020) · Health and Social Care in the community · doi:10.1111/hsc.13198 · Cited by 21
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de Hosson, M., Backer, J. D., de Wolf, D., Groote, K. D., Demulier, L., Mels, S., Vandekerckhove, K., & Goossens, E. (2019) · European Journal of Pediatrics · doi:10.1007/s00431-019-03515-4 · Cited by 21
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Ardoin, S. P. (2018) · Pediatric Clinics of North America · doi:10.1016/j.pcl.2018.04.007 · Cited by 19
“35 Adult rheumatology practices may have less access to ancillary support, such as social workers, who can support struggling young adults or devote time to tracking down patients who do not show for appointments.”
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“Table 1 presents factors leading to a successful transition from a patient perspective, as published by the United Kingdom Department of Health.(5)”
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Background
Self-Management of Health Care Among Youth: Implications for Policies on Transitions of Care
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Background
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Background
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Background
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Background
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A framework for transitioning patients from pediatric to adult health settings for patients with neurogenic bladder
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“Inefficient and inadequate transition leads to a variety of health complications and adverse outcomes that with consistency and continuity of health care services could otherwise have been prevented or detected early.(4,5) Advanced health care technology and intervention has led to improved survival of patients with c…”
Background
Does Transitional Care Prevent Older Adults from Rehospitalization? A Review
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“Rather, as a process of transition, it should ensure that a young person’s physical, social, and psychological developmental needs are continually reflected and encouraged.(13) Nevertheless, problems associated with the movement of survivors of childhood cancer to adult healthcare have been acknowledged previously.”
Background
Ein strukturierter Versorgungspfad von der Pädiatrie in die Erwachsenenmedizin für Jugendliche und junge Erwachsene mit einer seltenen Erkrankung
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Diabetes care for emerging adults: transition from pediatric to adult diabetes care systems
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“The aims of transition are [26,27] to provide high quality, coordinated health care which is patient-centred, age and developmentally appropriate, flexible, and comprehensive; to encourage skills in communication, decision-making, self-care and self-advocacy; to develop a sense of control and independence in health ca…”
Background
Psychosocial benefit and adherence of adolescents with chronic diseases participating in transition programs: a systematic review
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„Selten Gehörte“ für partizipative Gesundheitsforschung gewinnen: Herausforderungen und Strategien
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The socio-material self-care practices of children living with hemophilia or juvenile idiopathic arthritis in Denmark.
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Mixed‐methods evaluation of a transition and young adult clinic for kidney transplant recipients
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Forgeron, P. A., Higginson, A., & Truskoski, C. (2017) · Pain Management Nursing · doi:10.1016/j.pmn.2017.05.001 · Cited by 20
“Involvement of adult clinicians is key to successful transition (Crowley et al., 2011).”
Background
Assessing the level of evidence on transfer and transition in young people with chronic conditions: protocol of a scoping review
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Proceedings from the Turner Resource Network symposium: The crossroads of health care research and health care delivery
Backeljauw, P. F., Bondy, C. A., Chernausek, S. D., Cernich, J. T., Cole, D. A., Fasciano, L. P., Foodim, J., Hawley, S., Hong, D. S., Knickmeyer, R. C., et al. (2015) · American Journal of Medical Genetics Part A · doi:10.1002/ajmg.a.37121 · Cited by 14
“The symposium concluded with the consensus that two rationales justify the creation of a TRN:”
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Hansen, O. A., Clemensen, J., Beier, C. P., Pedersen, J. B., Smith, A. C., & Larsen, M. K. (2024) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2024.109955 · Cited by 15
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Being an adolescent with epilepsy during the transition from pediatric to adult hospital care: A qualitative descriptive study
Hansen, O. A., Clemensen, J., Beier, C. P., Klinting, G. P., Smith, A. C., & Larsen, M. K. (2024) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2024.109780 · Cited by 12
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Transition from Paediatric to adult health services: Aspirations and practices of human flourishing
Padley, N., Moubayed, D., Lanteigne, A., Ouimet, F., Clermont, M., Fournier, A., & Racine, É. (2023) · International Journal of Qualitative Studies on Health and Well-Being · doi:10.1080/17482631.2023.2278904 · Cited by 13
“Several relevant practices have been proposed to provide information and guidance (e.g., transition coordinators (Annunziato et al., 2013; Gray et al., 2018) and joint transition clinics (Crowley et al., 2011).”
Background
Transition of pediatric patients with bronchiectasis to adult medical care in the Northern Territory: A retrospective chart audit
Schutz, K. L., Fancourt, N., Chang, A. B., Morris, P., Buckley, R., Biancardi, E., Roberts, K., Cush, J., Heraganahally, S., & McCallum, G. (2023) · Frontiers in Pediatrics · doi:10.3389/fped.2023.1184303 · Cited by 14
Bridging Pediatric and Adult Rehabilitation Services for Young Adults With Childhood-Onset Disabilities: Evaluation of the LIFEspan Model of Transitional Care
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Disparities in healthcare transition support received by adolescents with special healthcare needs
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Systematic review of study designs and methods in health transition research for young people with intellectual disabilities
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“The findings show that there is relatively little empirical research in the field on this topic, even though there are now some systematic reviews emerging [12, 13, 54, 55].”
Background
Behandlungsangebote der Adoleszenzpsychiatrie – Ergebnisse einer deutschlandweiten Erhebung
Abzieher, P., Lipp, M., Staats, J. H., Banaschewski, T., Drießen, M., & Karow, A. (2019) · Fortschritte der Neurologie · Psychiatrie · doi:10.1055/a-1011-4198 · Cited by 17

Authors: Crowley, R., Wolfe, I., Lock, K., & McKee, M.
Affiliations: London School of Hygiene & Tropical Medicine (GB)
Corresponding author: Wolfe, I
ORCID: Wolfe, I
McKee, M
Venue: Archives of Disease in Childhood
Publisher: BMJ
Published: 2011-03-08
Volume: 96
Issue: 6
Pages: 548-553
ISSN: 0003-9888 (ISSN-L)
1468-2044
DOI: 10.1136/adc.2010.202473
OpenAlex: W2121649468
Cited by: 649
References: 0
Citations by year: 2026: 29 · 2025: 27 · 2024: 25 · 2023: 33 · 2022: 45 · 2021: 44 · 2020: 49 · 2019: 54 · 2018: 43 · 2017: 57 · 2016: 53 · 2015: 56 · 2014: 47 · 2013: 44 · 2012: 32
FWCI: 7.89
Type: journal article
Language: en
Open access: closed
Locations: Archives of Disease in Childhood (publishedVersion)
PubMed (publishedVersion)
Research Portal (King's College London) (submittedVersion)
LSHTM Research Online (London School of Hygiene and Tropical Medicine) (submittedVersion)
Topics: Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Adolescent and Pediatric Healthcare
Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Child and Adolescent Health
Health Sciences › Nursing › Leadership and Management › Hospital Admissions and Outcomes
Keywords: care transitions, chronic disease, disability, youth, diabetes mellitus, patient education, glycosylated haemoglobin, health outcomes
MeSH terms: Adolescent, Adult, Child, Chronic Disease, Continuity of Patient Care, Delivery of Health Care, Health Services Research, Humans, Patient Education as Topic, Adolescent Health Services, Outcome Assessment, Health Care, Young Adult

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Improving the transition between paediatric and adult healthcare: a systematic review

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