Cited by 649Adolescent and Pediatric HealthcareChild and Adolescent HealthHospital Admissions and Outcomes

The DOI matches its Crossref record.

Improving the transition between paediatric and adult healthcare: a systematic review

Crowley, R, Wolfe, I, Lock, K, McKee, M·2011·Archives of Disease in Childhood

DOI 10.1136/adc.2010.202473

Open this paper in CoChat — free account

Abstract

Introduction The transition between paediatric and adult care for young people with chronic illness or disability is often poorly managed, with adverse consequences for health. Although many agree that adolescent services need to be improved, there is little empirical data on which policies can be based. Objectives To systematically review the evidence of effectiveness of transitional care programmes in young people aged 11-25 with chronic illness (physical or mental) or disability, and identify their successful components. Design A systematic literature review in July 2010 of studies which consistently evaluated health outcomes following transition programmes, either by comparison with a control group or by measurement pre-intervention and post-intervention. Results 10 studies met the inclusion criteria, six of which showed statistically significant improvements in outcomes. Descriptive analysis identified three broad categories of intervention, directed at: the patient (educational programmes, skills training); staffing (named transition co-ordinators, joint clinics run by paediatric and adult physicians); and service delivery (separate young adult clinics, out of hours phone support, enhanced follow-up). The conditions involved varied (eg, cystic fibrosis, diabetes mellitus), and outcome measures varied accordingly. All six interventions that resulted in significant improvements were in studies of patients with diabetes mellitus, with glycosylated haemoglobin level, acute…

Integrity signals

Registry

Crossref · 10.1136/adc.2010.202473

Cites

Statistics

Recomputing p-values needs the paper’s full text.

Claims the paper makes

This paper’s full text isn’t openly available, so its claims and self-check weren’t run. The registry and citation checks still apply.

Claims other papers make about this one

Each is checked against this paper’s own text: does it say what the citing paper says it does?

Sorted by citations

Items 301–400 of 607

Childhood-onset growth hormone deficiency and the transition to adulthood: current perspective
Ahmid, M., Ahmed, S. F., & Shaikh, M. G. (2018) · Therapeutics and Clinical Risk Management · doi:10.2147/tcrm.s136576 · Cited by 16
“of transition centers to ensure that the needs of young adults with CO-GHD are being met.(93,94) In addition, for optimizing”
Background
Measuring satisfaction with health care in young persons with inflammatory bowel disease -an instrument development and validation study
Sadlo, A., Altevers, J., Peplies, J., Kaltz, B., Claßen, M., Bauer, A., Koletzko, S., & Timmer, A. (2014) · BMC Health Services Research · doi:10.1186/1472-6963-14-97 · Cited by 14
“At the same time, there is the additional problem of transitioning from paediatric to adult medical care which will, if poorly staged, result in a care giver gap right at the age peak in risk taking behaviour [3-6].”
Background
Transition readiness and anxiety among adolescents with a chronic condition and their parents: A cross-sectional international study.
Tornivuori, A., Kallio, M., Culnane, E., Pasanen, M., Salanterä, S., Sawyer, S., & Kosola, S. (2023) · Journal of Advanced Nursing · doi:10.1111/jan.15860 · Cited by 13
Defining the experiences of adolescent patients with multiple sclerosis in transition from pediatric care to adult care
Yüksel, D., Yardımcı, F., Erdemir, F., & Karabudak, R. (2022) · Multiple Sclerosis and Related Disorders · doi:10.1016/j.msard.2022.104123 · Cited by 13
Adult healthcare is associated with more emergency healthcare for young people with life-limiting conditions
Jarvis, S. W., Flemming, K., Richardson, G. A., & Fraser, L. (2022) · Pediatric Research · doi:10.1038/s41390-022-01975-3 · Cited by 15
Exploring the Perceived Self-management Needs of Young Adults With Osteogenesis Imperfecta
Michalovic, A., Anderson, C., Thorstad, K., Rauch, F., & Tsimicalis, A. (2020) · Clinical nurse specialist CNS · doi:10.1097/nur.0000000000000517 · Cited by 13
“Integral to optimizing the transition process for adolescents and young adults with OI would be the creation of a self-management and transitional care program.(15,22)”
BackgroundMethod
The transition of adolescents with chronic respiratory illness to adult care.
Srivastava, S., Elkin, S., & Bilton, D. (2012) · Paediatric Respiratory Reviews · doi:10.1016/j.prrv.2012.05.004 · Cited by 13
Transition is associated with lower disease activity, fewer relapses, better medication adherence, and lower lost-to-follow-up rate as opposed to self-transfer in pediatric-onset inflammatory bowel disease patients: results of a longitudinal, follow-up, controlled study
Tóbi, L., Prehoda, B., Balogh, A., Nagy-Pál, P., Kovács, K., Miheller, P., Iliás, Á., Dezsőfi‐Gottl, A., & Cseh, Á. (2024) · Therapeutic Advances in Gastroenterology · doi:10.1177/17562848241252947 · Cited by 12
Supportive use of digital technologies during transition to adult healthcare for young people with long-term conditions, focusing on Type 1 diabetes mellitus: A scoping review
Orpin, J., Rodriguez, A., Harrop, D., Mills, E., Campbell, F., Martin‐Kerry, J., Turner, J., Horsman, J. M., Painter, J., Julian, M., et al. (2023) · Journal of Child Health Care · doi:10.1177/13674935231184919 · Cited by 13
“…and speci ﬁ c transition clinics, and that have a solid theoretical approach and include a partnership with parents, can improve transition readiness in YP, support successful transition and improve post-transition outcomes (Campbell et al., 2016; Crowley et al., 2011; Dogba et al., 2014).”
Two-Year Follow-Up of a Transition-Specific Education Program for Young People With Chronic Conditions.
Ernst, G., Szczepanski, R., Lange, K., Staab, D., Thyen, U., & Menrath, I. (2022) · Journal of Adolescent Health · doi:10.1016/j.jadohealth.2022.03.010 · Cited by 12
Transitioning from paediatric to adult services with cystic fibrosis or bronchiectasis: What is the impact on engagement and health outcomes?
Moss, R., Farrant, B., & Byrnes, C. A. (2020) · Journal of Paediatrics and Child Health · doi:10.1111/jpc.15264 · Cited by 20
The Impact of Healthcare Education on Utilization among Adolescents preparing for Emancipation from Foster Care
Beal, S. J., Nause, K., Lutz, N., & Greiner, M. V. (2020) · Journal of Adolescent Health · doi:10.1016/j.jadohealth.2019.12.009 · Cited by 12
Somatic outcomes of young people with chronic diseases participating in transition programs: a systematic review
Becker, J., Ravens, E., Pape, L., & Ernst, G. (2020) · Journal of Transition Medicine · doi:10.1515/jtm-2020-0003 · Cited by 12
Transition readiness: The linkage between adverse childhood experiences (ACEs) and health-related quality of life.
Espeleta, H. C., Bakula, D. M., Delozier, A. M., Perez, M. N., Sharkey, C. M., & Mullins, L. (2019) · Translational Behavioral Medicine · doi:10.1093/tbm/iby130 · Cited by 12
Development of a clinical transition pathway for adolescents in the Netherlands.
Walter, M., Hazes, J., Dolhain, R., van Pelt, P. V., van Dijk, A., & Kamphuis, S. (2017) · Nursing children and young people · doi:10.7748/ncyp.2017.e932 · Cited by 12
The Transition of the Gastrointestinal Patient from Pediatric to Adult Care
de Silva, P. S., & Fishman, L. N. (2017) · Pediatric Clinics of North America · doi:10.1016/j.pcl.2017.02.001 · Cited by 12
Adolescent Urology and Transitional Care.
Woodhouse, C. (2015) · European Urology · doi:10.1016/j.eururo.2015.06.021 · Cited by 12
“Children and their families feel vulnerable as the patients approach adulthood [5].”
Background
Youth consultation-liaison psychiatry: How can we improve outcomes for young people with chronic illness?
Allison, S., Baune, B., Roeger, L., Coppin, B., Bastiampillai, T., & Reed, R. L. (2013) · Australian and New Zealand journal of psychiatry (Print) · doi:10.1177/0004867413478983 · Cited by 12
Transitions from adolescent to adult care.
Shah, P., & Boudos, R. (2012) · Pediatric annals · doi:10.3928/00904481-20120110-11 · Cited by 12
Factors related to the readiness of Brazilian chronic pediatric patients to transition to care in adult clinics
Carrara, F., Piotto, D., Silva, I. I., Len, C., Russo, G. C. S., Chiba, S., Sdepanian, V., Braga, J., Figueiredo, M. S., Andrade, M. C., et al. (2022) · Jornal de Pediatria · doi:10.1016/j.jped.2022.10.006 · Cited by 11
Psychological Interventions for Individuals With Acquired Brain Injury, Cerebral Palsy, and Spina Bifida: A Scoping Review
Jefferies, M., Peart, T., Perrier, L., Lauzon, A., & Munce, S. (2022) · Frontiers in Pediatrics · doi:10.3389/fped.2022.782104 · Cited by 11
Review on pediatric coeliac disease from a clinical perspective
Wessels, M. M. S., Auricchio, R., Dolinšek, J., Donat, E., Gillett, P. M., Mårild, K., Meijer-Boekel, C. R., Popp, A., & Mearin, M. L. (2022) · European Journal of Pediatrics · doi:10.1007/s00431-022-04379-x · Cited by 12
“An increase of more than 25 IELs/100 enterocytes is considered abnormal [129] 1788 European Journal of Pediatrics (2022) 181:1785–1795”
Background
The added value of transition programs in Dutch diabetes care: A controlled evaluation study.
Peeters, M. A. C., Sattoe, J., Bronner, M., Bal, R., & van Staa, A. (2020) · Journal of pediatric nursing · doi:10.21203/rs.3.rs-74456/v1 · Cited by 11
“Page 3/22 Several interventions have been developed and implemented to bridge the gap between pediatric and adult care, and to support young adults and healthcare professionals; from educational programs and skills training to appointing transition coordinators and setting up transition clinics [17].”
Background
Manejo de la diabetes mellitus tipo 2 en adolescentes y adultos jóvenes en atención primaria
Miravet-Jiménez, S., Pérez-Unanua, M. P., Alonso-Fernández, M., Lavado, F. J. E., Loro, B. G.-M., & Carbonell, A. M. P. (2020) · Medicina de Familia SEMERGEN · doi:10.1016/j.semerg.2019.11.008 · Cited by 19
Harnessing the Electronic Health Record to Distribute Transition Services to Adolescents With Inflammatory Bowel Disease.
Huang, J. S., Yueh, R., Wood, K., Ma, S., Cruz, R., Boyd, N., Kruth, R., & Parker, J. (2020) · Journal of Pediatric Gastroenterology and Nutrition - JPGN · doi:10.1097/mpg.0000000000002516 · Cited by 11
“Two reviews evaluating transition interventions have determined that structured transition interventions, patient education programs, and joint pediatric-adult or specific young adult clinics can improve transition outcomes as measured after transfer of care (5,6).”
Background
A Queueing Network Model for Analysis of Patient Transitions Within Hospitals
Lee, H. K., Musa, A. J., Bain, P. A., Nelson, K., Baker, C., & Li, J. (2018) · IEEE Transactions on Automation Science and Engineering · doi:10.1109/tase.2018.2793251 · Cited by 9
“Due to its importance, patient transitions have received substantial research efforts [6]–[9].”
Background
Transition of care from children’s to adult services
Wells, F., & Manning, J. C. (2017) · Nursing Children and Young People · doi:10.7748/ncyp.2017.e897 · Cited by 11
“Other staff based interventions, such as having named transition co-ordinators, have shown to improve patient outcomes in a number of research studies and service evaluations (Cadario et al, 2009; Crowley et al., 2011; CQC, 2014; Lewis and Slobovor, 2015).”
Background
The Use of Virtual Reality Learning on Transition Education in Adolescents with Congenital Heart Disease
Kieu, V., Sumski, C., Cohen, S., Reinhardt, E., Axelrod, D. M., & Handler, S. S. (2023) · Pediatric Cardiology · doi:10.1007/s00246-023-03292-w · Cited by 10
“Given that a lack of continuity of care and follow-up place these patients at risk for adverse health-related consequences [5, 6], preventing loss of follow-up has become a pressing point of investigation.”
Background
Neuromuscular disorders and transition from pediatric to adult care in a multidisciplinary perspective: a narrative review of the scientific evidence and current debate
Accogli, G., Ferrante, C., Fanizza, I., Oliva, M. C., Gallo, I., Rinaldis, M. D., & Trabacca, A. (2022) · Acta myologica · doi:10.36185/2532-1900-083 · Cited by 10
Understanding the health-care experiences of people with sickle cell disorder transitioning from paediatric to adult services: This Sickle Cell Life, a longitudinal qualitative study
Renedo, A., Miles, S., Chakravorty, S., Leigh, A., Warner, J. O., & Marston, C. (2020) · Health Services and Delivery Research · doi:10.3310/hsdr08440 · Cited by 12
“Reports are published in Health Services and Delivery Research (HS&DR) if (1) they have resulted from work for the HS&DR programme, and (2) they are of a sufficiently high scientific quality as assessed by the reviewers and editors.”
BackgroundInfluential
The usefulness and acceptability of a personal health record to children and young people living with a complex health condition: A realist review of the literature
Diffin, J., Byrne, B., Kerr, H., Price, J. E., Abbott, A., McLaughlin, D., & O’Halloran, P. D. (2019) · Child Care Health and Development · doi:10.1111/cch.12652 · Cited by 10
Young people with congenital heart disease — Transitioning to adult care
Uzark, K. C., & Wray, J. (2018) · Progress in Pediatric Cardiology · doi:10.1016/j.ppedcard.2018.01.010 · Cited by 9
“Other reviews [85] have identified that methodological quality of reported studies is generally poor and the interventions frequently involve multiple components which makes it difficult to determine the effectiveness of individual elements.”
Background
Adolescents et jeunes adultes atteints de diabète : réussir la transition de la pédiatrie à la médecine d’adulte
Jacquin, P., Loison, S., Roux, É. L., Rocaboy, C., Guilmin‐Crépon, S., & Tubiana‐Rufi, N. (2015) · Médecine des Maladies Métaboliques · doi:10.1016/s1957-2557(15)30242-x · Cited by 9
Transitioning patients with inflammatory bowel disease (IBD) from adolescent to adult services: a systematic review
Clarke, T., & Lusher, J. (2015) · Frontline Gastroenterology · doi:10.1136/flgastro-2015-100575 · Cited by 10
Transition into adult healthcare services in Scotland: findings from a study concerning service users at the Scottish Spina Bifida Association
Levy, S., Wynd, A. H. D., & Carachi, R. (2014) · Scottish Medical Journal · doi:10.1177/0036933014556200 · Cited by 13
Adolescent Rheumatology Transition Care in the UK
McDonagh, J. E. R., & Shaw, K. L. (2012) · Pediatric Annals · doi:10.3928/00904481-20120426-15 · Cited by 11
Empowering Young Persons During the Transition to Adulthood
Mora, M. A., Sparud‐Lundin, C., Bratt, E., & Moons, P. (2019) · Springer eBooks · doi:10.1007/978-3-030-23384-6_2 · Cited by 14
Recommendations for Transitioning Young People with Primary Immunodeficiency Disorders and Autoinflammatory Diseases to Adult Care
Israni, M., Alderson, E., Mahlaoui, N., Obici, L. P., Rossi‐Semerano, L., Lachmann, H. J., Avramovič, M. Z., Guffroy, A., Dalm, V. A. S. H., Rimmer, R., et al. (2024) · Journal of Clinical Immunology · doi:10.1007/s10875-024-01838-y · Cited by 13
“Initial clinical trials evaluating transition programmes for chronic illnesses such as diabetes, cystic fibrosis, and inflammatory bowel disease show promising effects on appointment attendance, transition readiness, and health-related distress among young patients [9, 38, 39].”
Exploring six successful nurse-led transition clinics: Experiences and outcomes
Sturm, J., van Staa, A., Escher, J., & Sattoe, J. (2024) · Health care transitions · doi:10.1016/j.hctj.2024.100071 · Cited by 9
“25 30 Nevertheless, detailed knowledge about the specific operations, structure, and valued elements of TCs remains limited.”
No one really plans to have multiple sclerosis: Transition readiness and quality of life in paediatric multiple sclerosis.
Thoby, E., Veras, J., Nallapati, S., Jimenez, M. E., & Bhise, V. (2024) · Child: Care, Health and Development · doi:10.1111/cch.13304 · Cited by 9
Are transition preparation consultations for adolescents with chronic conditions valuable? A mixed-methods study
Mellerio, H., Dumas, A., Alberti, C., Guilmin-Crépon, S., Gastaldi, M., Passini, L., Gabarro, C., Morsa, M., Roux, E. L., & Jacquin, P. (2022) · European Journal of Pediatrics · doi:10.1007/s00431-022-04473-0 · Cited by 9
Estimation of age of transition from children's to adult healthcare for young people with long term conditions using linked routinely collected healthcare data
Jarvis, S. W., Richardson, G. A., Flemming, K., & Fraser, L. (2021) · International Journal for Population Data Science · doi:10.23889/ijpds.v6i1.1685 · Cited by 7
Developmentally appropriate transitional care during the Covid-19 pandemic for young people with juvenile-onset rheumatic and musculoskeletal diseases: the rationale for a position statement
McDonagh, J. E. R., Tattersall, R. S., Clinch, J., Swan, J., Foster, H., & McCann, L. J. (2021) · Pediatric Rheumatology · doi:10.1186/s12969-021-00609-y · Cited by 14
“There is evidence to support the concept of a young adult clinic for 16–25 year olds as having better outcomes than the more traditional combined clinic with adult and paediatric rheumatology teams in the same consultation [30].”
Background
Data linkage and pain medication in people with cerebral palsy: a cross‐sectional study
Jalon, E. G. G., Maguire, A., Perra, O., Gavin, A., O'Reilly, D., & Thurston, A. (2021) · Developmental Medicine & Child Neurology · doi:10.1111/dmcn.14854 · Cited by 9
A mixed‐methods analysis of younger adults' perceptions of asthma, self‐management, and preventive care: "This isn't helping me none"
Mammen, J., Turgeon, K., Philibert, A., Schoonmaker, J. D., Java, J., Halterman, J., Berliant, M. N., Crowley, A., Reznik, M., Feldman, J. M., et al. (2020) · Clinical and Experimental Allergy · doi:10.1111/cea.13751 · Cited by 9
“provider.(14,45,46) While there are no data on the frequency of preventive asthma visits in young”
Background
Getting health services right for 16–25 year-olds
Rigby, E., Hagell, A., Davis, M., Gleeson, H., Mathews, G., & Turner, G. (2020) · Archives of Disease in Childhood · doi:10.1136/archdischild-2019-318648 · Cited by 9
Health Care Transition of Adolescents and Young Adults with Haemophilia: the Situation in Germany and the Munich experience
Bidlingmaier, C., Olivieri, M., Schilling, F. H., Kurnik, K., & Pekrul, I. (2020) · Hämostaseologie · doi:10.1055/s-0039-3402804 · Cited by 9
Development of a benchmarking toolkit for adolescent and young adult rheumatology services (BeTAR)
Cai, R. A., Chaplin, H., Livermore, P., Lee, M., Sen, D., Wedderburn, L. R., Wilkinson, N. M., Jeffery, R. C., Kempa, A., Norton, I., et al. (2019) · Pediatric Rheumatology · doi:10.1186/s12969-019-0323-8 · Cited by 8
Determinants of adherence and consequences of the transition from adolescence to adulthood among young people with severe haemophilia (TRANSHEMO): study protocol for a multicentric French national observational cross-sectional study
Resseguier, N., Rosso, N., Anzola, A. B., Baumstarck, K., Milien, V., Ardillon, L., Bayart, S., Berger, C., Bertrand, M.-A., Biron‐Andréani, C., et al. (2018) · BMJ Open · doi:10.1136/bmjopen-2018-022409 · Cited by 10
Hyperglycemia in Young Adults With Types 1 and 2 Diabetes Seen in the Emergency Department: A Health Records Review
Yan, J. W., Hamelin, A. L., Gushulak, K. M., Aarsen, K. V., Columbus, M. P., & Stiell, I. G. (2017) · Canadian Journal of Diabetes · doi:10.1016/j.jcjd.2017.06.016 · Cited by 11
“Various studies have examined the transition of care from pediatric to adult diabetes clinics, where there may be less support, less supervision and infrequent follow up for these individuals (9,10).”
Background
Diabetes in Emerging Adulthood: Transitions Lost in Translation
Markowitz, B., Parsons, J. A., & Advani, A. (2016) · Canadian Journal of Diabetes · doi:10.1016/j.jcjd.2016.06.004 · Cited by 9
“In general, these articles tend to discuss practicebased interventions, such as joint pediatric/adult clinics, transition navigators, dedicated transition clinics, education programs, skills training and out-of-hours phone support (14).”
Background
Transition from Pediatric to Adult Health Care in Patients with Chronic Illnesses: An Integrative Review
Lewis, J. V., & Slobodov, G. (2015) · Urologic Nursing · doi:10.7257/1053-816x.2015.35.5.231 · Cited by 7
“Crowley et al. (2011) emphasized patient, staff, and service aspects of transition programs that encompass cooperative efforts from pediatric and adult health care teams.”
Background
Multidisciplinary Support for Healthcare Transitioning Across an Urban Healthcare Network.
Davidson, L. F., Doyle, M., & Silver, E. (2015) · Journal of pediatric nursing · doi:10.1016/j.pedn.2015.05.011 · Cited by 9
Health care transition preparation in youth with chronic conditions: Working towards translational evidence with a patient perspective
Ferris, M., Ferris, M. T., Okumura, M. J., Cohen, S. E., & Hooper, S. R. (2015) · Journal of Pediatric Rehabilitation Medicine · doi:10.3233/prm-150316 · Cited by 10
“Reviews of programs show that transition coordinators and ways to work across processes have improved clinical outcomes [3,19].”
Background
Effectiveness of Transitional Care in Inflammatory Bowel Disease; Development, Validation, and Initial Outcomes of a Transition Success Score
van Gaalen, M. V., van Pieterson, M., Waaijenberg, P., Kindermann, A., Wolters, V., Dijkstra, A., van Wering, H. V., Wessels, M., de Ridder, L., Rizopoulos, D., et al. (2024) · Journal of Crohn's & Colitis · doi:10.1093/ecco-jcc/jjae166 · Cited by 8
Health care management adequacy among French persons with severe profound intellectual and multiple disabilities: a longitudinal study
Baumstarck, K., Hamouda, I., Aim, M., Anzola, A. B., Khaldi-Cherif, S., Felce, A., Maincent, K., Lind, K., Auquier, P., de Villemeur, T. B., et al. (2024) · BMC Health Services Research · doi:10.1186/s12913-024-10552-9 · Cited by 8
“A cultural shift in staff attitudes and effective transition programs are required [17].”
Background
Transitioning from paediatric to adult healthcare: Exploring the practices and experiences of care providers
Splane, J., Doucet, S., & Luke, A. (2023) · Journal of Child Health Care · doi:10.1177/13674935231202870 · Cited by 8
“A service delivery recommendation, consistent with previous research, supports a period of blended practice (Betz, 2018a, Crowley et al., 2011, Kyrana et al., 2016, Van Staa et al., 2011, Young et al., 2009).”
Transition of patients with metabolic bone disease from paediatric to adult healthcare services: current situation and proposals for improvement
Casado, E., Gómez‐Alonso, C., Pintos‐Morell, G., Bou, R., Bonis, A. C. B., Torregrosa, J., Broseta, J. J., Arango-Sancho, P., Chocrón, S., Olmedilla-Ishishi, Y., et al. (2023) · Orphanet Journal of Rare Diseases · doi:10.1186/s13023-023-02856-6 · Cited by 10
The role and the composition of a liaison team to facilitate the transition of adolescents and young adults: an umbrella review
Wyngaert, K. V., Nédée, M.-L., Piessevaux, O., Martelaer, T. D., Biesen, W. V., Cocquyt, V., daele, S. V., & Munter, J. D. (2023) · European Journal of Pediatrics · doi:10.1007/s00431-023-04835-2 · Cited by 8
“Evidence regarding the support on social level Fifty percent of the included reviews reported the involvement of someone who is keyed into community services [4, 6, 19, 22, 23, 26, 28, 30] and can act as an advocate for AYAs [21–25, 30].”
BackgroundInfluential
The Coming-of-Age Transition Care for Adolescents with Rheumatic Disease—Where Are We and What Have We Done in Asia?
Teh, K. L., Hoh, S. F., & Arkachaisri, T. (2021) · Journal of Clinical Medicine · doi:10.3390/jcm10040821 · Cited by 8
“However, the transition from pediatric care to adult care is often a challenging time for adolescents and young adults (AYA) with chronic medical conditions and their healthcare providers [2].”
Background
A multidisciplinary approach to improving transition readiness in pediatric liver transplant recipients
Shapiro, J., Himes, R. W., Khaderi, S., Economides, J., & El-Serag, H. (2020) · Pediatric Transplantation · doi:10.1111/petr.13839 · Cited by 8
“Patient RTQ self-scores 19 (15, 36) 30 (24, 37) .”
Background
Demographics and baseline care among newly transitioning adult congenital urology patients
Leva, N., Copp, H., Quanstrom, K., & Hampson, L. A. (2020) · Journal of Pediatric Urology · doi:10.1016/j.jpurol.2020.05.167 · Cited by 8
“[7] Specifically, the transitioning population in urology is at risk for bladder dysfunction, stone formation, metabolic and neoplastic changes, and renal damage[9].”
Background
Shifting the mindset—adolescent and young adult rheumatology in transition
Willis, E., & McDonagh, J. E. R. (2020) · The Lancet Rheumatology · doi:10.1016/s2665-9913(19)30163-8 · Cited by 10
Modeling and Analysis of Patient Transitions in Community Hospitals: A Systems Approach
Lee, H. K., Li, J., Musa, A. J., Bain, P. A., & Nelson, K. (2017) · IEEE Transactions on Systems Man and Cybernetics Systems · doi:10.1109/tsmc.2017.2723559 · Cited by 9
“Children with chronical illness or disability, such as diabetes, HIV, or cancer, may experience coordination problems with adverse consequences for health when they are transiting from pediatric care to adult care [9].”
Background
The Intersection Between Women’s Reproductive Desires and HIV Care Providers’ Reproductive Health Practices: A Mixed Methods Analysis
Tanner, A. E., Chambers, B. D., Philbin, M., Ware, S., Eluka, N., Ma, A., Kinnard, E. N., & Fortenberry, J. D. (2018) · Maternal and Child Health Journal · doi:10.1007/s10995-018-2603-1 · Cited by 8
“HCT is especially crucial for the health and wellbeing of HIV-infected young women including maintaining a low viral load and adhering to ART medication, all factors important reduce vertical transmission (Crowley et al. 2011).”
Advances and Challenges in Transitional Urology: Caring for Adolescents and Young Adults with Lifelong Complex Genitourinary Conditions
Skokan, A. J., & Kovell, R. C. (2018) · Current Urology Reports · doi:10.1007/s11934-018-0774-3 · Cited by 9
Partnership in transition: Experiences of adolescents with Type 1 diabetes
Hansen, K. K., & Jensen, A. L. (2017) · International Diabetes Nursing · doi:10.1080/20573316.2017.1382182 · Cited by 4
“This contributes to a greater sense of security, patient satisfaction, quality of life and adherence to self-care.(2,6) In addition, qualitative research has shown that a successful transition also depends on the relationship between the adolescent and the provider.”
Background
Still Lost in Transition?
Medforth, N., & Huntingdon, E. (2017) · Comprehensive Child and Adolescent Nursing · doi:10.1080/24694193.2017.1330370 · Cited by 8
Transitionsmedizin
Thun‐Hohenstein, L. (2016) · Pädiatrie & Pädologie · doi:10.1007/s00608-016-0380-x · Cited by 6
[Transition from paediatric to adult cystic fibrosis care centre].
Durieu, I., Reynaud, Q., & Nove-Josserand, R. (2016) · Revue de Pneumologie Clinique · doi:10.1016/j.pneumo.2015.03.001 · Cited by 8
Transición del paciente con diabetes tipo 1 desde la Unidad de Diabetes pediátrica a la Unidad de Diabetes de adultos
Rica, I., Ferrer-García, J. C., Barrio, R., Gila, A. L. G., & Fornos, J. A. (2014) · Avances en Diabetología · doi:10.1016/j.avdiab.2014.03.002 · Cited by 8
Transition of care in inflammatory bowel disease: mind the gap! Theory, practice and recommendations for an A ustralian context
Bryant, R. V., Trott, M. J., Bennett, A., Bampton, P. A., Moore, D., & Andrews, J. M. (2013) · Internal Medicine Journal · doi:10.1111/imj.12272 · Cited by 5
Transition in Type 1 diabetes mellitus from a tertiary pediatric center: what are we doing before they walk out the door?
White, M., O’Connell, M. A., & Cameron, F. J. (2012) · Diabetes Management · doi:10.2217/dmt.12.52 · Cited by 6
Transition in die Erwachsenenrheumatologie
Schalm, S., & Jansson, A. (2012) · Der Internist · doi:10.1007/s00108-012-3027-4 · Cited by 8
Leading contributors to success of transitional urology units
Wood, D. (2017) · Current Opinion in Urology · doi:10.1097/mou.0000000000000354 · Cited by 8
“The justification for maintaining and improving transition are the value in improving patient care [1].”
Background
Transitions for youth and young adults with eating disorders and/or other mental health conditions: a Canadian guideline
Dimitropoulos, G., Nicula, M., Krishnapillai, A., Austin, A., Singh, M., Lee, J., Webb, C., Scott, S., Almeida, A., Bergmann, C., et al. (2025) · Journal of Eating Disorders · doi:10.1186/s40337-025-01343-6 · Cited by 6
“Broader cross-condition reviews are available and offer helpful context [36–39].”
Supporting the parent‐to‐child transfer of self‐management responsibility for chronic kidney disease: A qualitative study
Nightingale, R., Kirk, S., Swallow, V., & McHugh, G. (2022) · Health Expectations · doi:10.1111/hex.13693 · Cited by 7
“This uncertainty around the optimal time for children to assume responsibility is compounded by studies highlighting adolescents' difficulties engaging in self‐management, resulting in adverse consequences for their health.(13) Additionally, the conflation between children's age and competency and the tendency of HCPs…”
Background
Transition to adult care of young patients with neurofibromatosis type 1 and cognitive deficits: a single-centre study
Lausdahl, S., Handrup, M., Rubak, S., Jensen, M., & Ejerskov, C. (2022) · Orphanet Journal of Rare Diseases · doi:10.1186/s13023-022-02356-z · Cited by 7
Accompagner la transition des jeunes avec une maladie chronique
Mellerio, H., Jacquin, P., & Roux, É. L. (2021) · médecine/sciences · doi:10.1051/medsci/2021114 · Cited by 6
Investigating health-related knowledge and independence for physical and mental health conditions in young adults with autism spectrum disorder
Cheak‐Zamora, N., Nowell, K. P., Helterbrand, E., & Tait, A. (2021) · Research in Autism · doi:10.1016/j.rasd.2021.101801 · Cited by 6
Rare genital malformations in women’s health research: sociodemographic, regional, and disease-related characteristics of patients with Mayer-Rokitansky-Küster-Hauser syndrome
Brucker, S. Y., Pösch, L.-S., Graf, J., Sokolov, A. N., Schäffeler, N., Kronenthaler, A., Hiltner, H., Wagner, A., Ueding, E., Rieger, M. A., et al. (2020) · BMC Women s Health · doi:10.1186/s12905-020-00969-9 · Cited by 6
“And particularly in the case of rare diseases, tailored offers are presently lacking in the framework of transition care [38, 39].”
Background
Being diagnosed with type 1 diabetes during adolescence. How do young people develop a healthy understanding of diabetes?
Robinson, E. (2015) · doi:10.1002/pdi.1986 · Cited by 7
Le difficile passage à l’âge adulte en matière de soins : l’exemple de l’épilepsie
Affdal, A., Moutard, M., de Villemeur, T., Duchange, N., Hervé, C., & Moutel, G. (2015) · doi:10.1016/j.arcped.2015.01.014 · Cited by 7
Lifestyle Behavior Modification of Mothers of Diabetic Children's through Application of Trans-theoretical Model of Change
Mohsen, M. M., Attia, N. A. S. A., & El-Abassy, A. (2014) · Journal of Nursing & Care · doi:10.4172/2167-1168.1000153 · Cited by 7
Has the gap been bridged yet? Young people in paediatric and adult rheumatology.
McDonagh, J. (2013) · Rheumatology · doi:10.1093/rheumatology/kes407 · Cited by 7
Growing up: the role of the Royal College of Physicians
McDonagh, J. E. R., & Robinson, A. J. (2012) · Clinical Medicine · doi:10.7861/clinmedicine.12-3-197 · Cited by 7
Transition to Adulthood: Shifting Roles Between Young People with Chronic Conditions and Their Parents
Shaw, K. L., Heath, G., & Farré, A. (2021) · Springer eBooks · doi:10.1007/978-3-030-64293-8_6 · Cited by 6
Transfer and Transition in Congenital Heart Disease
Goossens, E., Kovacs, A. H., Mackie, A. S., & Moons, P. (2013) · Springer eBooks · doi:10.1007/978-1-4471-4619-3_190 · Cited by 5
Transitions between Realities: A Systematic Review on the Usage of XR Systems for Bridging Reality and Virtuality
Pavavimol, T., Ometov, A., Valkama, M., & Thibault, M. (2025) · ACM International Conference on Interactive Media Experiences · doi:10.1145/3706370.3727858 · Cited by 7
“Its notion is derived from the health literature, aiming to explore efficient healthcare services (e.g., [16], [25]) and identify the role of healthcare professions, individuals, and family members in promoting a safe transitional process (e.g., [71], [10]).”
The Potential of ChatGPT as a Source of Information for Kidney Transplant Recipients and Their Caregivers
Demirbaş, K. C., Saygılı, S., Yılmaz, E. K., Gülmez, R., Ağbaş, A., Taşdemir, M. S., & Canpolat, N. (2025) · Pediatric Transplantation · doi:10.1111/petr.70068 · Cited by 6
Exploring the transition experiences of young adults with cerebral palsy
Clough, I. M., Culnane, E., & Loftus, H. (2023) · Child Care Health and Development · doi:10.1111/cch.13186 · Cited by 8
A survey of Canadian adult rheumatologists’ knowledge, comfort level, and barriers in assessing psychosocial needs of young adults with rheumatic diseases
Prasad, M., Batthish, M., Beattie, K., & Berard, R. (2023) · Rheumatology International · doi:10.1007/s00296-023-05337-y · Cited by 6
Predicting the Need for Transition from Pediatric to Adult Pain Services: A Retrospective, Longitudinal Study Using the Electronic Persistent Pain Outcome Collaboration (ePPOC) Databases
Champion, J., Crawford, M., & Jaaniste, T. (2023) · Children · doi:10.3390/children10020357 · Cited by 6
“These programs strive to help youth with the challenges of managing their health care during a unique developmental period, whilst also navigating the changes from a pediatric to adult health care system [13,35].”
Background
Type 1 Diabetes Patient Experiences Before and After Transfer from a Paediatric to an Adult Hospital
Flor, M. V., Jansà, M., Yoldi-Vergara, C., Cardona‐Hernandez, R., Álvarez, M. G., Conget, I., & Pera, P. I. (2022) · Patient Preference and Adherence · doi:10.2147/ppa.s363081 · Cited by 8
“Nonetheless, similar to the results of previous studies, some youths felt limited by diabetes and having to maintain some stigmatizing situations such as injecting insulin or performing controls in public places.(7,49,50) The problems that the youths interviewed had before and after transferring to the adult hospital…”
Result
Transition of care of patients with eosinophilic gastrointestinal diseases: Challenges and opportunities
Hiremath, G. S., Chapa‐Rodríguez, A., Katzka, D. A., Spergel, J. M., Gold, B. D., Bredenoord, A. J., Dellon, E. S., Huang, J. S., & Gupta, S. K. (2022) · Translational Science of Rare Diseases · doi:10.3233/trd-220054 · Cited by 8
Methods for Measuring the Time of Transfer from Pediatric to Adult Care for Chronic Conditions Using Administrative Data: A Scoping Review
Shulman, R. M., Cohen, E., Benchimol, E. I., & Nakhla, M. M. (2020) · Clinical Epidemiology · doi:10.2147/clep.s256846 · Cited by 6
Validation of the Healthcare Transition Outcomes Inventory for Young Adults With Type 1 Diabetes
Pierce, J. S., Hossain, J., & Gannon, A. W. (2020) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/jsaa051 · Cited by 11
Improvement of Electronic Health Record Integrated Transition Planning Tools in Primary Care
Rusley, J. C., Tomaszewski, K., Kim, J., Robinson, L., Rose, K.-A., Aronin, C., Molloy, M. J., & Arrington‐Sanders, R. (2020) · Pediatric Quality and Safety · doi:10.1097/pq9.0000000000000282 · Cited by 5
Patients' association programs for adolescents and young adults: The JAP study.
Beaufils, C., Jacquin, P., Dumas, A., Limbourg, A., Romier, M., Larbre, J., Mellerio, H., & Belot, A. (2019) · Archives de pédiatrie · doi:10.1016/j.arcped.2019.03.006 · Cited by 6
Transitions- und Adoleszenzpsychiatrie in Österreich: Eine Pilotuntersuchung zur Sicht von Expert(innen)
Pollak, E., Kapusta, N. D., Diehm, R., Plener, P. L., & Skala, K. (2017) · Zeitschrift für Kinder- und Jugendpsychiatrie und Psychotherapie · doi:10.1024/1422-4917/a000559 · Cited by 12

Authors: Crowley, R., Wolfe, I., Lock, K., & McKee, M.
Affiliations: London School of Hygiene & Tropical Medicine (GB)
Corresponding author: Wolfe, I
ORCID: Wolfe, I
McKee, M
Venue: Archives of Disease in Childhood
Publisher: BMJ
Published: 2011-03-08
Volume: 96
Issue: 6
Pages: 548-553
ISSN: 0003-9888 (ISSN-L)
1468-2044
DOI: 10.1136/adc.2010.202473
OpenAlex: W2121649468
Cited by: 649
References: 0
Citations by year: 2026: 29 · 2025: 27 · 2024: 25 · 2023: 33 · 2022: 45 · 2021: 44 · 2020: 49 · 2019: 54 · 2018: 43 · 2017: 57 · 2016: 53 · 2015: 56 · 2014: 47 · 2013: 44 · 2012: 32
FWCI: 7.89
Type: journal article
Language: en
Open access: closed
Locations: Archives of Disease in Childhood (publishedVersion)
PubMed (publishedVersion)
Research Portal (King's College London) (submittedVersion)
LSHTM Research Online (London School of Hygiene and Tropical Medicine) (submittedVersion)
Topics: Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Adolescent and Pediatric Healthcare
Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Child and Adolescent Health
Health Sciences › Nursing › Leadership and Management › Hospital Admissions and Outcomes
Keywords: care transitions, chronic disease, disability, youth, diabetes mellitus, patient education, glycosylated haemoglobin, health outcomes
MeSH terms: Adolescent, Adult, Child, Chronic Disease, Continuity of Patient Care, Delivery of Health Care, Health Services Research, Humans, Patient Education as Topic, Adolescent Health Services, Outcome Assessment, Health Care, Young Adult

About these checks

Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.

Statistics and arithmetic are recomputed, not judged.

Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.

What counts as a claim ›How we measure confidence ›How we check this ›

Are you an author, or do you see a problem with this page? Request a review

Improving the transition between paediatric and adult healthcare: a systematic review

Abstract

Overview

Integrity signals

Verification

Claims the paper makes

Claims other papers make about this one

Citations

Cited by

Metadata

Record

About these checks