The DOI matches its Crossref record; 76 of the 76 references it cites were found in a registry or an index.
Reducing caregiver stress with internet-based interventions: a systematic review of open-label and randomized controlled trials
Open accessAbstract
Objective The high level of stress associated with caring for others with medical conditions has been recognized for some time. Reducing caregiver stress can improve caregiver quality of life as well as improve the care they provide to loved ones. This systematic review assesses the effectiveness of internet-based interventions to decrease caregiver stress. Materials and methods A comprehensive literature search of Ovid MEDLINE (1946–2013), Embase (1988–2013), PsycINFO (1987–2013), and CINAHL was conducted using terms related to caregiver and internet-based interventions. Internet-based interventions involving informal caregivers in an open-label or randomized controlled trial setting were included. A pair of raters independently reviewed all published abstracts. Data regarding participants, interventions, and outcomes were extracted and, for randomized trials, methodology quality was also reviewed. Results Eight open-label trials met the review criteria: three showed positive benefit in reducing caregiver stress, four were partially positive (some outcomes positive, others negative), and one was a negative study. Sixteen randomized trials met the review criteria: six showed positive benefit, five were partially positive, and five were negative. There were no clear patterns as to the variables (such as study duration and complexity of intervention) associated with better outcomes, although earlier studies typically had more negative outcomes. Discussion Internet-based interventions were mostly effective in reducing aspects of caregiver stress and improving their well-being. Further studies to assess outcomes for caregivers and their recipients’ health, different technology delivery methods, and the cost of such interventions are needed.
Overview
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Integrity signals
Registry
Cites
Statistics
Verification
Claims the paper makes
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
The cited source says what the claim attributes to it.
In the citing paper
“Online programs also have the potential to reduce distress and improve wellbeing in those who care for someone with a medical condition [33].”
Self-check
Percentages, sums and reported differences re-computed from the paper’s own numbers.
The self-check needs the paper’s full text.
Citations
Cites
Cochrane Handbook for Systematic Reviews of Interventions Version 5.0.1. The Cochrane Collaboration
Higgins, J., Green, S. R., & Higgins, J. (2008) · Cited by 5,544
Updated Method Guidelines for Systematic Reviews in the Cochrane Collaboration Back Review Group
van Tulder, M., Furlan, A., Bombardier, C., & Bouter, L. (2003) · Spine · doi:10.1097/01.brs.0000065484.95996.af · Cited by 2,180
Caregiver Burden: A Clinical Review
Adelman, R. D., Tmanova, L. L., Delgado, D., Dion, S., & Lachs, M. S. (2014) · JAMA · doi:10.1001/jama.2014.304 · Cited by 2,002
Boots, L. M. M., de Vugt, M. E., van Knippenberg, R. J. M., Kempen, G. I. J. M., & Verhey, F. R. J. (2014) · International Journal of Geriatric Psychiatry · doi:10.1002/gps.4016 · Cited by 449
A Social Media–Based Physical Activity Intervention
Cavallo, D. N., Tate, D. F., Ries, A. V., Brown, J. D., DeVellis, R. F., & Ammerman, A. S. (2012) · American Journal of Preventive Medicine · doi:10.1016/j.amepre.2012.07.019 · Cited by 442
Kuijpers, W., Groen, W. G., Aaronson, N. K., & van Harten, W. H. (2013) · Journal of Medical Internet Research · doi:10.2196/jmir.2281 · Cited by 391
Systematic review of information and support interventions for caregivers of people with dementia
Thompson, C. A., Spilsbury, K., Hall, J., Birks, Y., Barnes, C., & Adamson, J. (2007) · BMC Geriatrics · doi:10.1186/1471-2318-7-18 · Cited by 374
The Effect of a Family Therapy and Technology-Based Intervention on Caregiver Depression
Eisdorfer, C., Czaja, S. J., Loewenstein, D., Rubert, M. P., Argüelles, S., Mitrani, V. B., & Szapocznik, J. (2003) · The Gerontologist · doi:10.1093/geront/43.4.521 · Cited by 314
Internet-Enabled Interactive Multimedia Asthma Education Program: A Randomized Trial
Krishna, S., Francisco, B. D., Balas, E. A., König, P., Graff, G. R., & Madsen, R. (2003) · PEDIATRICS · doi:10.1542/peds.111.3.503 · Cited by 274
Rains, S. A., & Young, V. (2009) · Human Communication Research · doi:10.1111/j.1468-2958.2009.01353.x · Cited by 265
The Effects of a Special Computer Network on Caregivers of Persons with Alzheimer??s Disease
BRENNAN, P. F., MOORE, S. M., & SMYTH, K. A. (1995) · Nursing Research · doi:10.1097/00006199-199505000-00007 · Cited by 242
Using a touch screen computer to support relationships between people with dementia and caregivers
Astell, A. J., Ellis, M. P., Bernardi, L. U., Alm, N. A., Dye, R., Gowans, G., & Campbell, J. (2010) · Interacting with Computers · doi:10.1016/j.intcom.2010.03.003 · Cited by 237
Worksite-Based Internet Multimedia Program for Family Caregivers of Persons With Dementia
Beauchamp, N., Irvine, A. B., Seeley, J., & Johnson, B. (2005) · The Gerontologist · doi:10.1093/geront/45.6.793 · Cited by 218
An online family intervention to reduce parental distress following pediatric brain injury.
Wade, S. L., Carey, J., & Wolfe, C. R. (2006) · Journal of Consulting and Clinical Psychology · doi:10.1037/0022-006x.74.3.445 · Cited by 199
Needs assessment of family caregivers of cancer survivors: three cohorts comparison
Kim, Y., Kashy, D. A., Spillers, R. L., & Evans, T. V. (2009) · Psycho-Oncology · doi:10.1002/pon.1597 · Cited by 190
Dementia Caregivers’ Responses to 2 Internet-Based Intervention Programs
Marziali, E., & Garcia, L. J. (2011) · American Journal of Alzheimer's Disease & Other Dementias® · doi:10.1177/1533317510387586 · Cited by 186
Marziali, E., & Donahue, P. (2006) · The Gerontologist · doi:10.1093/geront/46.3.398 · Cited by 185
Efficacy of an internet-based intervention for infant and toddler sleep disturbances
Mindell, J. A., Du Mond, C. E., Sadeh, A., Telofski, L. S., Kulkarni, N., & Gunn, E. (2011) · Sleep · doi:10.1093/sleep/34.4.451 · Cited by 161
Kajiyama, B., Thompson, L. W., Eto-Iwase, T., Yamashita, M., Mario, J. D., Tzuang, M., & Gallagher-Thompson, D. E. (2013) · Aging & Mental Health · doi:10.1080/13607863.2013.775641 · Cited by 157
E-Care: A Telecommunications Technology Intervention for Family Caregivers of Dementia Patients
Finkel, S. I., Czaja, S. J., Martinovich, Z., Harris, C., Pezzuto, D., & Schulz, R. (2007) · American Journal of Geriatric Psychiatry · doi:10.1097/jgp.0b013e3180437d87 · Cited by 155
Smith, G. C., Egbert, N., Dellman-Jenkins, M., Nanna, K., & Palmieri, P. A. (2012) · Rehabilitation Psychology · doi:10.1037/a0029587 · Cited by 140
Dew, M. A., Goycoolea, J. M., Harris, R., Lee, A., Zomak, R. A., Dunbar‐Jacob, J. M., Rotondi, A. J., Griffith, B. P., & Kormos, R. L. (2004) · The Journal of Heart and Lung Transplantation · doi:10.1016/j.healun.2003.07.002 · Cited by 138
Torp, S., Hanson, E., Hauge, S., Ulstein, I., & Magnusson, L. (2007) · Health & Social Care in the Community · doi:10.1111/j.1365-2524.2007.00725.x · Cited by 129
Glueckauf, R. L., Ketterson, T. U., Loomis, J. S., & Dages, P. (2004) · Telemedicine Journal and e-Health · doi:10.1089/tmj.2004.10.223 · Cited by 120
Rotondi, A. J., Haas, G. L., ANDERSON, C. M., Newhill, C. E., Spring, M. B., Ganguli, R., Gardner, W., & Rosenstock, J. B. (2005) · Rehabilitation Psychology · doi:10.1037/0090-5550.50.4.325 · Cited by 116
Randomized controlled trial of maintaining quality of life during radiotherapy for advanced cancer
Clark, M. M., Rummans, T. A., Atherton, P. J., Cheville, A. L., Johnson, M. E., Frost, M. H., Miller, J. J., Sloan, J. A., Graszer, K. M., Haas, J. G., et al. (2013) · Cancer · doi:10.1002/cncr.27776 · Cited by 115
Self-citationThe Buffering Effect of a Computer Support Network on Caregiver Strain
Bass, D. M., Mcclendon, M. J., Brennan, P. F., & Mccarthy, C. (1998) · Journal of Aging and Health · doi:10.1177/089826439801000102 · Cited by 115
Jang, J., Dixon, D. R., Tarbox, J., Granpeesheh, D., Kornack, J., & de Nocker, Y. L. (2012) · Research in Autism · doi:10.1016/j.rasd.2011.11.004 · Cited by 113
A systematic review of networked technologies supporting carers of people with dementia
Powell, J., Chiu, T., & Eysenbach, G. (2008) · Journal of Telemedicine and Telecare · doi:10.1258/jtt.2008.003018 · Cited by 113
Grover, M., Naumann, U., Mohammad-Dar, L., Glennon, D., Ringwood, S., Eisler, I., Williams, C. J., Treasure, J. L., & Schmidt, U. H. (2011) · Psychological Medicine · doi:10.1017/s0033291711000766 · Cited by 108
Pierce, L. L. B., Steiner, V., Khuder, S., Govoni, A. L., & Horn, L. J. (2009) · Disability and Rehabilitation · doi:10.1080/09638280902751972 · Cited by 99
Wade, S. L., Walz, N. C., Carey, J., McMullen, K. M., Cass, J., Mark, E., & Yeates, K. O. (2012) · Health Psychology · doi:10.1037/a0028440 · Cited by 94
Lorig, K. R., Gallagher-Thompson, D. E., Traylor, L., Ritter, P. L., Laurent, D. D., Plant, K., Thompson, L. W., & Hahn, T. J. (2010) · Journal of Applied Gerontology · doi:10.1177/0733464810389806 · Cited by 89
An Interactive Web-based Intervention for Persons With TBI and Their Families
Rotondi, A. J., Sinkule, J., & Spring, M. B. (2005) · Journal of Head Trauma Rehabilitation · doi:10.1097/00001199-200503000-00005 · Cited by 85
Wade, S. L., Oberjohn, K. S., Burkhardt, A., & Greenberg, I. (2009) · Journal of Head Trauma Rehabilitation · doi:10.1097/htr.0b013e3181ad6680 · Cited by 83
Chih, M., DuBenske, L. L., Hawkins, R. P., Brown, R., Dinauer, S., Cleary, J. F., & Gustafson, D. H. (2012) · Palliative Medicine · doi:10.1177/0269216312457213 · Cited by 83
A randomized comparison of two motivationally enhanced Internet behavioral weight loss programs
Webber, K. H., Tate, D. F., & Michael Bowling, J. (2008) · Behaviour Research and Therapy · doi:10.1016/j.brat.2008.06.008 · Cited by 82
Glynn, S. M., Randolph, E. T., Garrick, T., & Lui, A. (2010) · Psychiatric Rehabilitation Journal · doi:10.2975/33.4.2010.278.287 · Cited by 73
van der Roest, H. G., Meiland, F. J. M., Jonker, C., & Dröes, R. (2010) · Aging & Mental Health · doi:10.1080/13607860903311741 · Cited by 72
Creating a Bond Between Caregivers Online: Effect on Caregivers’ Coping Strategies
Namkoong, K., DuBenske, L. L., Shaw, B. R., Gustafson, D. H., Hawkins, R. P., Shah, D. V., Mctavish, F. M., & Cleary, J. F. (2011) · Journal of Health Communication · doi:10.1080/10810730.2011.585687 · Cited by 69
An Internet-based videoconferencing system for supporting frail elderly people and their carers
Savolainen, L., Hanson, E., Magnusson, L., & Gustavsson, T. (2008) · Journal of Telemedicine and Telecare · doi:10.1258/jtt.2007.070601 · Cited by 64
Do age and quality of life of patients with cancer influence quality of life of the caregiver?
Shahi, V., Lapid, M. I., Kung, S., Atherton, P. J., Sloan, J. A., Clark, M. M., & Rummans, T. A. (2014) · Journal of Geriatric Oncology · doi:10.1016/j.jgo.2014.03.003 · Cited by 62
Self-citationFarnham, S. D., Cheng, L., Stone, L., Zaner, M., Hibbeln, C., Syrjala, K. L., Clark, A. M., & Abrams, J. R. (2002) · CHI Conference on Human Factors in Computing Systems · doi:10.1145/503376.503444 · Cited by 62
Hoyle, D., Slater, J., Williams, C., Schmidt, U. H., & Wade, T. D. (2013) · International Journal of Eating Disorders · doi:10.1002/eat.22144 · Cited by 57
Demiris, G., Oliver, D. P., Wittenberg-Lyles, E. M., Washington, K. T., Doorenbos, A. Z., Rue, T. C., & Berry, D. L. (2012) · Journal of Palliative Medicine · doi:10.1089/jpm.2011.0488 · Cited by 56
Marziali, E., Donahue, P., & Crossin, G. (2005) · Families in Society The Journal of Contemporary Social Services · doi:10.1606/1044-3894.3435 · Cited by 53
Internet-based Support for Rural Caregivers of Persons with Stroke Shows Promise
Pierce, L. L. B., Steiner, V., Govoni, A. L., Hicks, B. C., Thompson, T. L., & Friedemann, M.-L. (2004) · Rehabilitation Nursing · doi:10.1002/j.2048-7940.2004.tb00319.x · Cited by 53
Kable, J. A., Coles, C. D., Strickland, D. C., & Taddeo, E. (2012) · International Journal of Mental Health and Addiction · doi:10.1007/s11469-012-9376-3 · Cited by 49
The use of Internet technology for psychoeducation and support with dementia caregivers.
Hayden, L. J., Glynn, S. M., Hahn, T. J., Randall, F., & Randolph, E. T. (2012) · Psychological Services · doi:10.1037/a0027056 · Cited by 49
Emotional Support, Physical Help, and Health of Caregivers of Stroke Survivors
Steiner, V., Pierce, L. L. B., Drahuschak, S., Nofziger, E. J., Buchman, D., & Szirony, T. A. (2008) · Journal of Neuroscience Nursing · doi:10.1097/01376517-200802000-00008 · Cited by 48
Grover, M., Williams, C., Eisler, I., Fairbairn, P., McCloskey, C., Smith, G., Treasure, J. L., & Schmidt, U. H. (2010) · International Journal of Eating Disorders · doi:10.1002/eat.20871 · Cited by 44
De, G. (1985) · PubMed · Cited by 42
Online and onsite training for family caregivers of people with dementia: results from a pilot study
Lai, C. K. Y., Wong, L. F., Liu, K.-H., Lui, W., Chan, M. F., & Yap, L. S. Y. (2012) · International Journal of Geriatric Psychiatry · doi:10.1002/gps.3798 · Cited by 40
Oliver, D. P., Demiris, G., Wittenberg-Lyles, E. M., Porock, D. C., Collier, J., & Arthur, A. J. (2010) · American Journal of Hospice and Palliative Medicine® · doi:10.1177/1049909110362402 · Cited by 39
Web-Based Training in Family Advocacy
McLaughlin, K. A., Glang, A. E., Beaver, S. V., Gau, J. M., & Keen, S. (2012) · Journal of Head Trauma Rehabilitation · doi:10.1097/htr.0b013e31824e1d43 · Cited by 39
A Theory-Based Online Hip Fracture Resource Center for Caregivers
Nahm, E., Resnick, B. M., Orwig, D., Magaziner, J. S., Bellantoni, M. F., Sterling, R. S., & Brennan, P. F. (2012) · Nursing Research · doi:10.1097/nnr.0b013e318270712a · Cited by 36
The use of information technology and mental health among older care-givers in Australia
Lam, L. T.-M., & Lam, M. K. (2009) · Aging & Mental Health · doi:10.1080/13607860802607306 · Cited by 34
Technology-Based Caregiver Intervention Research: Current Status and Future Directions
Schulz, R., Lustig, A. P., Handler, S. M., & Martire, L. M. (2002) · Gerontechnology · doi:10.4017/gt.2002.02.01.003.00 · Cited by 32
Providing internet lessons to oncology patients and family members: a shared project
Edgar, L., Greenberg, A., & Remmer, J. (2002) · Psycho-Oncology · doi:10.1002/pon.590 · Cited by 31
Rural carers online: A feasibility study
Dow, B., Moore, K., Scott, P., Ratnayeke, A., Wise, K., Sims, J., & Hill, K. (2008) · Australian Journal of Rural Health · doi:10.1111/j.1440-1584.2008.00982.x · Cited by 30
Developing a network of support for relative caregivers
Strozier, A. L., Elrod, B. A., Beiler, P., Smith, A., & Carter, K. (2004) · Children and Youth Services Review · doi:10.1016/j.childyouth.2004.02.018 · Cited by 27
Internet Intervention for Community Elders
Chang, B. L. (2004) · Western Journal of Nursing Research · doi:10.1177/0193945904263428 · Cited by 22
Torp, S., Bing‐Jonsson, P. C., & Hanson, E. J. (2012) · Informatics for Health and Social Care · doi:10.3109/17538157.2012.735733 · Cited by 18
Differential use of computer network services.
BRENNAN, P. F. (1993) · PubMed · Cited by 16
Dyer, E., Kansagara, D. L., McInnes, D. K., Freeman, M., & Woods, S. S. (2012) · Cited by 15
E-learning education solutions for caregivers in long-term care (LTC) facilities: new possibilities.
MacDonald, C., & Walton, R. (2007) · PubMed · Cited by 12
Promoting and Measuring Family Caregiver Self-Efficacy in Caregiver-Physician Interactions
Moore, C. D., & Cook, K. M. (2011) · Social Work in Health Care · doi:10.1080/00981389.2011.580835 · Cited by 12
Powerful Tools for Caregivers Online: An Innovative Approach to Support Employees
Kuhn, D., Hollinger-Smith, L. M., Presser, J., Civian, J., & Batsch, N. (2008) · Journal of Workplace Behavioral Health · doi:10.1080/15555240802188630 · Cited by 12
Tele-assistance in intellectual disability
Buono, S., & Città, S. (2007) · Journal of Telemedicine and Telecare · doi:10.1258/135763307781458903 · Cited by 11
A Pilot Study Using Electronic Communication in Home Healthcare
Haney, T. S., & Tufts, K. A. (2012) · Home Healthcare Now · doi:10.1097/nhh.0b013e31824c28f2 · Cited by 10
Computer networks promote caregiving collaboration: the ComputerLink Project.
BRENNAN, P. F. (1992) · PubMed · Cited by 10
Mental Health Professionals' Contact with Family Members of People with Psychiatric Disabilities
Riebschleger, J. (2005) · Families in Society The Journal of Contemporary Social Services · doi:10.1606/1044-3894.1872 · Cited by 9
Learning Education Solutions for Caregivers in Long-Term Care (LTC) Facilities: New Possibilities
MacDonald, C., & Walton, R. (2007) · Education for Health · doi:10.4103/1357-6283.101603 · Cited by 9
Supporting community carers via videoconferencing
Ast, P. V. (2005) · Journal of Telemedicine and Telecare · doi:10.1258/135763305775124713 · Cited by 8
Theory-Based Evaluation of an Online Cancer Fatigue Class
Smith, T. G., Richardson, K., Crammer, C., Greer, G. E., Stein, K., Mehta, C. C., & Kepner, J. L. (2010) · Journal of Cancer Education · doi:10.1007/s13187-010-0067-0 · Cited by 4
Ml, V. (1980) · PubMed · Cited by 3
Research works printed but not linked: 2
- Biegel, 1991, Family caregiving in chronic illness: heart disease, cancer, stroke, Alzheimer's disease, and chronic mental illness
- Pingdom, 2012, Internet 2012 in numbers
Cited by
Sorted by citations
Evidence for telehealth group-based treatment: a systematic review
Gentry, M. T., Lapid, M. I., Clark, M. M., & Rummans, T. A. (2019) · Journal of Telemedicine and Telecare · doi:10.1177/1357633x18775855 · Cited by 200
Self-citationSherifali, D., Ali, M. U., Ploeg, J., Markle-Reid, M., Valaitis, R., Bartholomew, A., Fitzpatrick-Lewis, D., & McAiney, C. (2018) · Journal of Medical Internet Research · doi:10.2196/10668 · Cited by 151
Wijma, E. M., Veerbeek, M., Prins, M., Pot, A. M., & Willemse, B. M. (2017) · Aging & Mental Health · doi:10.1080/13607863.2017.1348470 · Cited by 164
DeHoff, B. A., Staten, L. K., Rodgers, R. C., & Denne, S. C. (2016) · Journal of Medical Internet Research · doi:10.2196/jmir.6722 · Cited by 143
Effectiveness of Digital Technologies to Support Nursing Care: Results of a Scoping Review
Hüter, K., Krick, T., Domhoff, D., Seibert, K., Wolf‐Ostermann, K., & Rothgang, H. (2020) · Journal of Multidisciplinary Healthcare · doi:10.2147/jmdh.s286193 · Cited by 142
Metadata
- Authors
- Hu, C., Kung, S., Rummans, T. A., Clark, M. M., & Lapid, M. I.
- Affiliations
- Mayo Clinic (US)
- Corresponding author
- Hu, Chunling
- Venue
- Journal of the American Medical Informatics Association
- Publisher
- Oxford University Press (OUP)
- Published
- 2014-08-14
- Volume
- 22
- Issue
- e1
- Pages
- e194-e209
- ISSN
- 1067-5027 (ISSN-L)
- 1527-974X
- PMC
- PMC11888335
- OpenAlex
- W2112114043
- Cited by
- 113
- References
- 76
- Citations by year
- 2026: 3 · 2025: 8 · 2024: 7 · 2023: 8 · 2022: 7 · 2021: 7 · 2020: 14 · 2019: 14 · 2018: 14 · 2017: 15 · 2016: 9 · 2015: 7
- FWCI
- 1.25
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- Journal of the American Medical Informatics Association (publishedVersion)
- PubMed Central (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Social Sciences › Psychology › Applied Psychology › Digital Mental Health Interventions
- Health Sciences › Nursing › Research and Theory › Nursing care and research
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Telemedicine and Telehealth Implementation
- Keywords
- caregiver stress, online intervention, informal caregivers, caregiver well-being, online health interventions, caregiver burden, intervention effectiveness
- MeSH terms
- Health Education, Humans, Stress, Psychological, Randomized Controlled Trials as Topic, Caregivers, Internet
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review