Systematic review of information and support interventions for caregivers of people with dementia
Open accessAbstract
BACKGROUND: Dementia is an important health and social care problem and is one of the main causes of disability in later life. The number of families affected by dementia will dramatically increase over the next five decades. Despite the implications for health and social care services in the future, the overwhelming majority of care for people with dementia takes place away from health care settings. Providing informal care for someone with dementia can be psychologically, physically and financially expensive and a range of health service interventions aimed at supporting and providing information to these carers has developed to help carers meet these demands. This review examines whether information and support interventions improve the quality of life of people caring for someone with dementia. METHODS: A systematic review examining evidence from randomised controlled trials in which technology, individualised or group-based interventions built around the provision of support and/or information were evaluated. RESULTS: Forty-four studies were included in the review. Controlling for the quality of the evidence, we found statistically significant evidence that group-based supportive interventions impact positively on psychological morbidity. However, whilst the improvement was unlikely to be due to chance, the clinical significance of this finding should be interpreted tentatively, due to the difficulties in interpreting the standardised mean difference as a measure of effect and the complex aetiology of depression. No evidence was found for the effectiveness of any other form of intervention on a range of physical and psychological health outcomes. CONCLUSION: There is little evidence that interventions aimed at supporting and/or providing information to carers of people with dementia are uniformly effective. There is a pressing need to ensure that supportive interventions at the development stage are accompanied by good quality randomised evaluations in which outcomes that are important to clinicians and carers are measured.
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Not all psychosocial interventions in family carers of people with dementia are effective.
“Not all psychosocial interventions in family carers of people with dementia are effective.15”
A recent structured intervention in family carers of people with stroke did not improve their mood, QoL or burden, or improve patient outcome.
“A recent structured intervention in family carers of people with stroke with care competencies taught and assessed by nurses did not improve their mood, QoL or burden, or improve patient outcome.15”
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Duggleby, W., Ploeg, J., McAiney, C., Fisher, K., Swindle, J., Chambers, T., Ghosh, S., Peacock, S., Markle-Reid, M., Triscott, J., et al. (2017) · BMC Geriatrics · doi:10.1186/s12877-017-0581-6 · Cited by 17 · see citing works
- Authors
- Thompson, C. A., Spilsbury, K., Hall, J., Birks, Y., Barnes, C., & Adamson, J.
- Affiliations
- University of York (GB)
- Portsmouth Hospitals NHS Trust (GB)
- Corresponding author
- Barnes, Colin
- Venue
- BMC Geriatrics
- Published
- 2007-07-27
- Volume
- 7
- Issue
- 1
- Pages
- 18-18
- ISSN
- 1471-2318 (ISSN-L)
- PMC
- PMC1951962
- OpenAlex
- W2010367297
- Cited by
- 374
- References
- 74
- Citations by year
- 2026: 5 · 2025: 8 · 2024: 9 · 2023: 7 · 2022: 11 · 2021: 18 · 2020: 23 · 2019: 23 · 2018: 30 · 2017: 15 · 2016: 28 · 2015: 42 · 2014: 22 · 2013: 30 · 2012: 15
- FWCI
- 2.52
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Licence
- Locations
- BMC Geriatrics (publishedVersion, cc-by)
- PubMed Central (publishedVersion, cc-by)
- PubMed (publishedVersion)
- White Rose Research Online (University of Leeds, The University of Sheffield, University of York) (acceptedVersion)
- DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Social Sciences › Psychology › Clinical Psychology › Family Caregiving in Mental Illness
- Keywords
- dementia, informal caregivers, caregiver support interventions, information interventions, group intervention, caregiver quality of life, psychological morbidity, depression, caregiver burden, intervention effectiveness
- MeSH terms
- Dementia, United Kingdom, Humans, Respite Care, Social Support, Caregivers, Outcome Assessment, Health Care
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
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