Caring for Others: Internet Video-Conferencing Group Intervention for Family Caregivers of Older Adults With Neurodegenerative Disease
Abstract
PURPOSE: The aim of this pilot feasibility study was to evaluate the effects of an innovative, Internet-based psychosocial intervention for family caregivers of older adults with neurodegenerative disease. DESIGN AND METHODS: After receiving signed informed consent from each participant, we randomly assigned 66 caregivers to an Internet-based intervention or to a no-intervention control group. The intervention group received computers and training in order to access a password-protected Web site with links to information, e-mail, and threaded discussion. Unique to the Web site was a video-conferencing link that supported caregivers' participation in a 10-session, manual-guided psychosocial support group, followed by 12 additional online sessions facilitated by a group member. Participants completed health-status and stress-response measures at baseline and 6-month follow-up. RESULTS: Content analysis of archived video sessions showed (a) reliable adherence to the manual-guided support-group intervention and (b) online group discussion themes similar to those in face-to-face caregiver support groups. Analyses of stress-response outcome data showed significant between-group differences, with the intervention group experiencing a decline in stress compared with an escalation in stress for the control group. IMPLICATIONS: Despite the limitations of this pilot study in terms of limited sample size and 54% dropout of control participants at 6-month follow-up, the results provide preliminary supportive evidence for a technology-based psychosocial intervention for family caregivers of individuals with neurodegenerative disease.
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All studies included results on feasibility, acceptability, and effectiveness, and some reported issues connected with implementation.
“All studies included results on feasibility, acceptability, and effectiveness, and some reported issues connected with implementation [33,36-38,40-44,47].”
From Telehealth Interventions Delivering Home-based Support Group Videoconferencing: Systematic Review (2018) · cites this paper as [40]
A common feature of low-quality studies was the use of mixed-methods with small sample sizes and limited detail on the method of integration of quantitative and qualitative data.
“A common feature of low-quality studies was the use of mixed-methods with small sample sizes and limited detail on the method of integration of quantitative and qualitative data [31,32,37,40,46].”
From Telehealth Interventions Delivering Home-based Support Group Videoconferencing: Systematic Review (2018) · cites this paper as [40]
Overall, inexperience with videoconferencing or computer use did not appear to be a major problem; the majority of studies reported that over time participants found the technology easy to use and enjoyable.
“Overall, inexperience did not appear to be a major problem as the majority of studies reported that, over time, participants found the technology easy to use [32-35,40-42,46] and found videoconferencing enjoyable [42,44-46].”
From Telehealth Interventions Delivering Home-based Support Group Videoconferencing: Systematic Review (2018) · cites this paper as [40]
Bonding and cohesiveness were reported in all high-quality studies and in one low-quality study.
“Bonding and cohesiveness were reported in all high-quality studies and in one low-quality study [40,41].”
From Telehealth Interventions Delivering Home-based Support Group Videoconferencing: Systematic Review (2018) · cites this paper as [40]
Validity was demonstrated through the analysis of discussion themes and was consistent with the face-to-face groups.
“Validity was demonstrated through the analysis of discussion themes such as cohesiveness, empathic support, problem solving, or issues in disease-specific caregiver literature and was consistent with the face-to-face groups [36,38,40-42].”
From Telehealth Interventions Delivering Home-based Support Group Videoconferencing: Systematic Review (2018) · cites this paper as [40]
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- Authors
- Marziali, E., & Donahue, P.
- Affiliations
- University of Toronto (CA)
- Corresponding author
- Marziali, Elsa
- Venue
- The Gerontologist
- Publisher
- Oxford University Press (OUP)
- Published
- 2006-06
- Volume
- 46
- Issue
- 3
- Pages
- 398-403
- ISSN
- 0016-9013 (ISSN-L)
- 1758-5341
- OpenAlex
- W2171211918
- Cited by
- 185
- References
- 28
- Citations by year
- 2026: 2 · 2025: 3 · 2024: 5 · 2023: 10 · 2022: 9 · 2021: 13 · 2020: 10 · 2019: 7 · 2018: 22 · 2017: 12 · 2016: 8 · 2015: 11 · 2014: 13 · 2013: 12 · 2012: 8
- FWCI
- 16.88
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- The Gerontologist (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Social Sciences › Demography › Technology Use by Older Adults
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Telemedicine and Telehealth Implementation
- Keywords
- family caregivers, neurodegenerative diseases, older adults, videoconferencing, online support groups, psychosocial interventions, caregiver stress, technology-based interventions, caregiver support
- MeSH terms
- Aged, Feasibility Studies, Female, Humans, Male, Telecommunications, Caregivers, Neurodegenerative Diseases, Internet
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