Abuse of people with dementia by family carers: representative cross sectional survey
Open accessAbstract
OBJECTIVE: To determine the prevalence of abusive behaviours by family carers of people with dementia. DESIGN: Representative cross sectional survey SETTING: Community mental health teams in Essex and London. PARTICIPANTS: 220 family carers of people newly referred to secondary psychiatric services with dementia who were living at home. MAIN OUTCOME MEASURE: Psychological and physical abuse (revised modified conflict tactics scale). RESULTS: 115 (52%, 95% confidence interval 46% to 59%) carers reported some abusive behaviour and 74 (34%, 27% to 40%) reported important levels of abuse. Verbal abuse was most commonly reported. Only three (1.4%) carers reported occasional physical abuse. CONCLUSIONS: Abusive behaviour by family carers towards people with dementia is common, with a third reporting important levels of abuse and half some abusive behaviour. We found few cases of physical or frequent abuse, although those with the most abusive behaviour may have been reluctant to report it.
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Levels of anxiety and depressive symptoms, case level anxiety and depression, neuropsychiatric symptoms, and carer abusive behaviour were slightly higher than in a recent cohort study of newly referred people with dementia.
“The levels of anxiety and depressive symptoms, case level anxiety and depression, neuropsychiatric symptoms, and carer abusive behaviour were slightly higher than in a recent cohort study of newly referred people with dementia”
From Clinical effectiveness of a manual based coping strategy programme (START, STrAtegies for RelaTives) in promoting the mental health of carers of family members with dementia: pragmatic randomised controlled trial (2013) · cites this paper as [36]
The Abstract describes newly referred people with dementia, and the Results report neuropsychiatric symptoms and carer abusive behaviour, providing figures for part of the comparison. The Methods and Results do not report carer anxiety or depression, and this paper does not establish that the citing study’s levels were slightly higher. It also describes itself as a cross-sectional survey, not a cohort study. (LLM, conf=0.84)
Experimental — accuracy not yet measuredOur earlier studies have found that family carers tend to become more anxious and depressed over time without intervention, and that this is associated with an increase in abusive behaviour.
“Our earlier studies have found that family carers tend to become more anxious and depressed over time without intervention, and that this is associated with an increase in abusive behaviour”
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O’Connor, C. M. C. (2011) · Irish Journal of Medical Science (1971 -) · doi:10.1007/s11845-010-0671-3 · Cited by 7 · see citing works
Gewalt gegen alte Menschen in häuslicher Pflege
Schwedler, A., Konopik, N., Heber, L., Wellenhofer, M., Oswald, F., Zenz, G., & Salgo, L. (2017) · Zeitschrift für Gerontologie und Geriatrie · doi:10.1007/s00391-017-1232-4 · Cited by 7 · see citing works
Older women and domestic abuse: through a glass darkly
Milne, A. J. (2023) · The Journal of Adult Protection · doi:10.1108/jap-10-2022-0022 · Cited by 6 · see citing works
Social Work with Older People: Approaches to Person-Centred Practice
Hall, Hall, B., & Scragg, T. (2012) · Cited by 6 · see citing works
The Need for Dementia Care Services
Livingston, G., & Cooper, C. (2013) · doi:10.1002/9781118378663.ch1 · Cited by 6 · see citing works
Self-citation
- Authors
- Cooper, C., Selwood, A., Blanchard, M., Walker, Z., Blizard, R., & Livingston, G.
- Affiliations
- University College London (GB)
- Corresponding author
- Cooper, C.
- Venue
- BMJ
- Publisher
- BMJ
- Published
- 2009-01-22
- Volume
- 338
- Issue
- jan22 2
- Pages
- b155-b155
- ISSN
- 0007-1447 (ISSN-L)
- 0959-8138
- 1468-5833
- PMC
- PMC2769065
- OpenAlex
- W2133881134
- Cited by
- 171
- References
- 12
- Citations by year
- 2026: 3 · 2025: 12 · 2024: 4 · 2023: 2 · 2022: 12 · 2021: 9 · 2020: 7 · 2019: 7 · 2018: 7 · 2017: 11 · 2016: 11 · 2015: 8 · 2014: 16 · 2013: 16 · 2012: 12
- FWCI
- 41.48
- Type
- journal article
- Language
- en
- Open access
- hybrid
- doi.org
- Licence
- cc-by-nc
- Locations
- BMJ (publishedVersion, cc-by-nc)
- PubMed Central (publishedVersion, cc-by-nc)
- PubMed (publishedVersion)
- UCL Discovery (University College London) (submittedVersion)
- DigitalGeorgetown (Georgetown University Library) (submittedVersion)
- Funders
- Alzheimer's Society
- Medical Research Council
- Topics
- Social Sciences › Demography › Elder Abuse and Neglect
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Social Sciences › Health › Intimate Partner and Family Violence
- Keywords
- dementia, family caregivers, abuse, psychological violence, physical abuse, verbal abuse, prevalence, underreporting, caregiver burden, community mental health services
- MeSH terms
- Adult, Aged, Aged, 80 and over, Cross-Sectional Studies, Dementia, Elder Abuse, England, Family Relations, Female, Humans, Male, Middle Aged, Prevalence, Caregivers, Young Adult
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
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