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A Queer Future for Digital Mental Health: LGBTQ+ Young Adult Perspectives on Engaging with Digital Mental Health Tools
Abstract
LGBTQ+ communities are more likely to experience stigma-related stressors that lead to poorer mental health compared to cisgender and heterosexual individuals. For LGBTQ+ young adults, navigating the duality of their sexual orientation or gender identity and mental health can be challenging. Digital Mental Health (DMH) tools offer an alternative form of clinical care that may be useful for LGBTQ+ individuals wishing to remain anonymous, who need to access care from remote locations, or for those who do not have financial means to seek treatment. However, a user’s personal data can be contextualised in a way that perpetuates rigid gender norms. Gender perspectives that encompass the broad and fluid spectrum of gender identities and LGBTQ+ experiences are rarely embedded in design of DMH tools, and intersectional differences remain largely underexplored in clinical research and practice. This study aimed to explore the perspectives and preferences of LGBTQ+ end users on DMH tools, the data that it collects, and how they may be developed to promote safety and well-being. We employed user-centred design methods in three workshops with gay men, lesbian women, and trans and gender diverse people (aged 22–32, n = 16). The study used a socio-cultural lens to consider how data justice can be maintained for LGBTQ+ individuals. We found that participants preferred to keep their identities private and control what and who their mental health data were shared with as a result of historical medicalisation of their sexual or gender identities. Participants were concerned that heteronormative healthcare practitioners conflated their sexual or gender orientation with their mental health. Alternative support routes were found to be important for participants who felt their mental health challenges would be burdensome on their families. Socio-structural factors necessitate specialised DMH services and support for LGBTQ+ individuals. We then propose a set of design strategies for the future development of DMH tools for LGBTQ+ communities including the sensitive collection of demographic data, allowing the user to regularly update their gender or sexual identity, and integrated options for in-person or community-based support networks, along with the right for LGBTQ+ users to review and withdraw their data from DMH tools.
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Butorac et al. (2026) found in co-design workshops with 16 LGBTQ+ young adults aged 22-32 in Australia that participants wanted meaningful control over their identity data in digital mental health tools, including ability to update gender and sexual identity over time, choose what information is stored, and withdraw data if circumstances changed.
“Similarly, Butorac et al. (2026) found in co-design workshops with 16 LGBTQ+ young adults aged 22-32 in Australia, an older group than this review's focal age range, that participants wanted meaningful control over their identity data in digital mental health tools, including the ability to update their gender and sexual identity over time, to choose what information is stored, and to withdraw”
From Artificial intelligence and immersive technologies for LGBTQ+ youth: a narrative review (2026) · cites this paper as Butorac et al. (2026)
Citations
Cites
Using thematic analysis in psychology
Braun, V., & Clarke, V. (2006) · Qualitative Research in Psychology · doi:10.1191/1478088706qp063oa · Cited by 194,414
Mapping the Margins: Intersectionality, Identity Politics, and Violence against Women of Color
Crenshaw, K. (1991) · Stanford Law Review · doi:10.2307/1229039 · Cited by 32,792
Epistemic Injustice: Power and the Ethics of Knowing
Fricker, M. (2007) · doi:10.1093/acprof:oso/9780198237907.001.0001 · Cited by 9,198
Development of the Gender Minority Stress and Resilience Measure.
Testa, R. J., Habarth, J., Peta, J., Balsam, K., & Bockting, W. (2015) · Psychology of Sexual Orientation and Gender Diversity · doi:10.1037/sgd0000081 · Cited by 1,406
What is data justice? The case for connecting digital rights and freedoms globally
Taylor, L. (2017) · Big Data & Society · doi:10.1177/2053951717736335 · Cited by 802
Christofides, E., Muise, A., & Desmarais, S. (2009) · CyberPsychology & Behavior · doi:10.1089/cpb.2008.0226 · Cited by 696
Dane, A., & Bhatia, K. (2023) · PLOS Global Public Health · doi:10.1371/journal.pgph.0001091 · Cited by 289
Kretzschmar, K., Tyroll, H., Pavarini, G., Manzini, A., Singh, I., & NeurOx Young People’s Advisory Group (2019) · Biomedical Informatics Insights · doi:10.1177/1178222619829083 · Cited by 270
Meyer, I. H., Russell, S. T., Hammack, P. L., Frost, D. M., & Wilson, B. D. M. (2021) · PLOS ONE · doi:10.1371/journal.pone.0246827 · Cited by 249
Data mining for health: staking out the ethical territory of digital phenotyping
Martinez-Martin, N., Insel, T. R., Dagum, P., Greely, H. T., & Cho, M. K. (2018) · npj Digital Medicine · doi:10.1038/s41746-018-0075-8 · Cited by 218
Digital transformation of mental health services
Bond, R. R., Mulvenna, M. D., Potts, C., O’Neill, S., Ennis, E., & Torous, J. (2023) · npj Mental Health Research · doi:10.1038/s44184-023-00033-y · Cited by 199
Bell, I. H., Lim, M. H., Rossell, S. L., & Thomas, N. (2017) · Psychiatric Services · doi:10.1176/appi.ps.201600523 · Cited by 189
Hermes, E. D., Lyon, A. R., Schueller, S. M., & Glass, J. E. (2019) · Journal of Medical Internet Research · doi:10.2196/11752 · Cited by 149
Young People Seeking Help Online for Mental Health: Cross-Sectional Survey Study
Pretorius, C., Chambers, D., Cowan, B., & Coyle, D. (2019) · JMIR Mental Health · doi:10.2196/13524 · Cited by 143
Invalidation experiences among non-binary adolescents
Johnson, K. C., LeBlanc, A. J., Deardorff, J., & Bockting, W. O. (2020) · The Journal of Sex Research · doi:10.1080/00224499.2019.1608422 · Cited by 142
Budge, S. L., Rossman, H. K., & Howard, K. A. S. (2014) · Journal of LGBT Issues in Counseling · doi:10.1080/15538605.2014.853641 · Cited by 135
From Treatment to Healing:Envisioning a Decolonial Digital Mental Health
Pendse, S. R., Nkemelu, D., Bidwell, N. J., Jadhav, S., Pathare, S., De Choudhury, M., & Kumar, N. (2022) · CHI Conference on Human Factors in Computing Systems · doi:10.1145/3491102.3501982 · Cited by 115
Gilbey, D., Morgan, H., Lin, A., & Perry, Y. (2020) · Journal of Medical Internet Research · doi:10.2196/20158 · Cited by 112
Flagged first, then by citations
Research works printed but not linked: 139
- Richard Bränström Tonda Hughes and John Pachankis. 2024. Global LGBTQ Mental Health. Global LGBTQ Health. DOI: 10.1007/978-3-031-36204-0_3 · DOI
- Australian Bureau of Statistics. 2024. Mental Health Findings for LGBTQ+ Australians. Australian Bureau of Statistics.
- Orygen. 2021. Fact Sheet: Intersectionality and Youth Mental Health. Orygen Youth Health.
- 10.1016/S2215-0366(15)00586-6 · DOI · Paper page
- 10.1159/000355235 · DOI · Paper page
- 10.1176/appi.focus.20190030 · DOI
- 10.1111/jora.12291 · DOI
- 10.1080/19361650902927719 · DOI
- 10.1177/1534765610395622 · DOI
- United Nations High Commissioner for Refugees. 2011. Working with Lesbian, Gay, Bisexual, Transgender and Intersex Persons in Forced Displacement. UNHCR Geneva, Switzerland.
- 10.1089/jwh.2007.0447 · DOI
- 10.1080/00918369.2018.1519304 · DOI
- 10.1136/medethics-2018-105293 · DOI
- 10.1007/s11154-018-9452-5 · DOI
- 10.1080/09540121.2017.1300633 · DOI
- 10.1037/ort0000306 · DOI
- 10.1089/lgbt.2015.0124 · DOI
- Jaime M. Grant, Lisa A. Mottet, J. J. Tanis, and D. Min. 2011. Transgender Discrimination Survey. National Center for Transgender Equality and National Gay and Lesbian Task Force, Washington, DC.
- 10.1097/med.0000000000000227 · DOI
- N. Amos, G. Lim, P. Buckingham, A. Lin, S. Liddelow-Hunt, J. Mooney-Somers, and A. Bourne. 2024. Rainbow Realites Report. Thorne Harbou Health.
- 10.1176/appi.ps.201800193 · DOI
- 10.1007/s13347-021-00445-8 · DOI
- 10.1089/tmj.2015.0002 · DOI · Paper page
- 10.1080/13811118.2022.2096520 · DOI
- 10.1016/j.genhosppsych.2013.03.008 · DOI · Paper page
- 10.2196/20581 · DOI
- 10.2196/17019 · DOI
- 10.2196/52336 · DOI
- 10.1002/wps.20550 · DOI
- 10.1080/10474412.2017.1287574 · DOI
- 10.5206/fpq/2019.2.7285 · DOI
- Gail Knudson. 2020. Language and terminology in transgender health. In Gender Confirmation Surgery: Principles and Techniques for an Emerging Field. Loren S. Scheter (Ed.), Springer Publishing.
- 10.3390/ijerph21081052 · DOI
- 10.1007/s10903-016-0530-z · DOI
- 10.2307/j.ctv1k531j6 · DOI
- Kimberle Crenshaw. 1989. Demarginalizing the intersection of race and sex: A black feminist critique of antidiscrimination doctrine, feminist theory and antiracist politics. The University of Chicago Legal Forum, 140.
- Judith Butler. 1990. Gender Trouble. Feminism and the Subversion of Identity. Routledge, New York.
- 10.1016/S2589-7500(21)00118-7 · DOI
- 10.1016/S0140-6736(18)31431-4 · DOI · Paper page
- Victorian State Government. 2022. Applying Intersectionality. Victorian State Government.
- 10.1007/s10508-020-01755-2 · DOI
- 10.1016/j.pcl.2016.07.005 · DOI
- 10.1007/s10964-012-9865-5 · DOI
- 10.1111/jocn.15062 · DOI
- 10.3390/jcm11041090 · DOI
- 10.2196/jmir.3103 · DOI · Paper page
- Josh Bardlow, Fay Batram, and April Guasp. 2017. School Report: The Experiences of Lebsian, Gay, Bi and Trans Young People in Britain’s Schools in 2017. Stonewall.
- Penelope Straus, Angus Cook, Sam Winter, Vanessa Watson, Dani Wright, and Ashleigh Lin. 2017. Trans Pathways: The Mental Health Experiences and Care Pathways of Trans Young People. The Kids Research Institute.
- UNICEF. 2017. Children in a Digital World. UNICEF, New York.
- Trevor G. Gates and Brian Kelly. 2017. Affirming Strengths-Based Models of Practice. Retrieved from https://www.researchgate.net/publication/357859075_Affirming_and_strengths-based_models_of_practice
- Kieran C. O’Doherty, Emily Christofides, Jeffery Yen, Heidi Beate Bentzen, Wylie Burke, Nina Hallowell, Barbara A. Koenig, and Donald J. Willison. 2016. If you build it, they will come: Unintended future uses of organised health data collections. BMC Medical Ethics 17 (2016), 1–16.
- 10.5210/fm.v14i10.2611 · DOI · Paper page
- K. Singh. 2025. US to Screen Social Media of Immigrants, Rights Advocates Raise Ethical Concerns. Reuters.
- Nicole Bennett. 2025. From Help to Harm: How the Government is Quietly Repurposing Everyone’s Data for Surveillance. The Conversation.
- 10.1177/2053951718820549 · DOI · Paper page
- 10.7551/mitpress/11455.001.0001 · DOI
- 10.1177/2053951720933286 · DOI
- 10.1080/17439884.2023.2207141 · DOI
- Ronald Bayer. 1987. Homosexuality and American Psychiatry: The Politics of Diagnosis. Princeton University Press.
- 10.5040/9781350230767 · DOI
- Shoshana Rosenberg, Marina Carman, Adam Bourne, and T. Cook. 2024. Research Matters: Trans and Gender Diverse Health and Wellbeing. Rainbow Health Australia, 49–66.
- A. Hill, A. Bourne, R. McNair, M. Carman, and A. Lyons. 2021. Private Lives 3: The Health and Wellbeing of LGBTQ People in Victoria. La Trobe University.
- 10.1080/10538720.2019.1683113 · DOI
- Robert Booth. 2024. Grindr Accused of Treating Gay Man’s Medical Data like ‘Piece of Meat’. The Guardian.
- Thomas Brewster. 2025. A Massive Mobile Location Data Hack May Have Risked Gay People’s Safety. Forbes.
- 10.1145/3613904.3642494 · DOI
- 10.1145/3432951 · DOI · Paper page
- 10.1145/3359328 · DOI
- 10.1145/3415172 · DOI
- 10.1145/3613904.3642482 · DOI
- 10.1145/3613904.3642509 · DOI · Paper page
- 10.1145/3274320 · DOI
- 10.1145/3361108 · DOI
- 10.1145/3173574.3173905 · DOI
- 10.1145/2998181.2998349 · DOI
- U. Bronfenbrenner. 1994. Ecological Models of Human Development. Readings on the Development of Children. Freeman, New York.
- 10.7551/mitpress/12255.001.0001 · DOI
- K. Crenshaw. 1989. De-Marginalising the Intersection of Race and Sex: A Black Feminist Critique of anti-Discrimination. Doctrine Feminist Theory and Antiracist Politics.
- Em Matsuno, Nat L. Bricker, Elizabeth Savarese, Roger Mohr, Jr, and Kimberly F. Balsam. 2022. “The default is just going to be getting misgendered”: Minority stress experiences among nonbinary adults. Psychology of Sexual Orientation and Gender Diversity 7, 1 (2022), 35–53.
- 10.2196/14127 · DOI
- 10.1089/g4h.2017.0058 · DOI
- 10.1145/3152771.3156186 · DOI
- 10.1177/00048674221082525 · DOI
- Australian Bureau of Statistics. 2013. Young Adults: Then and Now. ABS, Canberra, Australia.
- Shoshana Rosenberg, Marina Carman, Adam Bourne, and T. Cook. 2021. Research Matters: Trans and Gender Diverse Health and Wellbeing, Rainbow Health Australia.
- 10.1080/15710882.2014.888183 · DOI
- 10.2196/65163 · DOI
- 10.1080/14626268.2013.767276 · DOI
- 10.4324/9781315526379-2 · DOI
- Anthony Dunne and Fiona Raby. 2013. Speculative Everything: Design, Fiction, and Social Dreaming. MIT.
- Office of the Australian Information Commissioner. 2023. Australian Community Attitudes to Privacy Survey. Australian Government.
- 10.1136/bmjqs-2022-015629 · DOI
- 10.1016/j.socscimed.2023.115748 · DOI
- 10.17226/13128 · DOI
- 10.1093/jamia/ocac142 · DOI
- 10.1089/heq.2019.0009 · DOI
- 10.1089/lgbt.2023.0084 · DOI
- 10.1089/lgbt.2015.0107 · DOI
- 10.1080/15538605.2010.525455 · DOI
- 10.1186/s12888-016-0916-4 · DOI
- J. River, D. Parker, D. Demant, S. Isobel, H. Kemp, K. Thorburn, S. Zhehoven, N. Bhattacharya, and N. Wall. 2023. Applied Systematic Literature Review LGBTQ+ People and Mental Health Services Research. Australian Government.
- Ewan Soubutts, Pranita Shrestha, Brittany I. Davidson, Chengcheng Qu, Charlotte Mindel, Aaron Sefi, Paul Marshall, and Roisin McNaney. 2024. Challenges and Opportunities for the Design of Inclusive Digital Mental Health Tools: Understanding Culturally Diverse Young People’s Experiences (CHI 2024).
- 10.1186/s43058-024-00657-x · DOI
- 10.1002/smi.3141 · DOI
- 10.1177/1044389418768550 · DOI
- 10.1515/9780804772891 · DOI · Paper page
- 10.1080/21507740.2023.2188275 · DOI
- 10.1177/1090198120963102 · DOI
- 10.1057/s41292-022-00277-5 · DOI
- 10.1007/s13178-023-00791-6 · DOI
- 10.15353/joci.v12i3.3285 · DOI
- Rahul Bhargava and Catherine D’Ignazio. 2017. Data sculptures as a playful and low-tech introduction to working with data. Retrieved from https://hdl.handle.net/1721.1/123453
- 10.1146/annurev-anthro-102116-041244 · DOI
- 10.1145/3411764.3445141 · DOI
- eSafety Commissioner. 2021. Protecting LGBTIQ+ Voices Online: Resource Development Research. Australian Government.
- 10.1145/3434181 · DOI · Paper page
- S. L. M. Davis. 2020. The trojan horse: Digital health, human rights, and global health governance. Health and Human Rights 22, 2 (2020), 41–47.
- 10.1037/0033-2909.129.5.674 · DOI · Paper page
- 10.1145/3610195 · DOI
- J. Renner L. Täuber T. O. Nieder. 2022. Need for inclusive consideration of transgender and gender diverse people in E-health services: A systematic review. Journal of Clinical Medicines 11 4 (Feb. 2022) 1090. DOI: 10.3390/jcm11041090 · DOI
- 10.1080/19361653.2013.879464 · DOI
- 10.1080/17441692.2019.1682028 · DOI
- 10.2196/39094 · DOI
- 10.2196/humanfactors.7392 · DOI
- 10.2196/51702 · DOI
- 10.1016/j.chb.2016.06.009 · DOI
- 10.1177/21568693241266960 · DOI
- 10.1145/3757648 · DOI
- D. Angus and T. Leaver. 2025. Australia is about to Ban under-16s from Social Media. Here’s What Kids Can Do Right Now to Prepare. The conversation.
- Mozilla. 2023. Shady Mental Health Apps Inch Toward Privacy and Security Improvements, But Many Still Siphon Personal Data. Mozilla Foundation.
- 10.1007/s10664-022-10236-0 · DOI · Paper page
- Federal Trade Commission. 2023. FTC to Ban BetterHelp from Revealing Consumers’ Data, Including Sensitive Mental Health Information, to Facebook and Others for Targeted Advertising. Federal Trade Commission.
- Jarni Blakkarly. 2024. Did Online Therapy Provider BetterHelp Breach Australian Laws? Choice.
- Ruha Benjamin. 2019. Race after Technology: Abolitionist Tools for the New Jim Code. John Wiley & Sons.
- 10.1145/3392866 · DOI · Paper page
- Kath Browne. 2010. Queer Quantification or Queer(y)Ing Quantification. Queer Methods and Methodologies.
- 10.1080/1369118X.2019.1606268 · DOI · Paper page
- 10.2196/26811 · DOI
- 10.1145/3648614 · DOI
Cited by
Sorted by citations
Artificial intelligence and immersive technologies for LGBTQ+ youth: a narrative review
Shekarchi, R., Eleuteri, S., Saladino, V., Calaresi, D., Giordano, F., & Prunas, A. (2026) · Frontiers in Psychology · doi:10.3389/fpsyg.2026.2002054
Metadata
- Authors
- Butorac, I., McNaney, R., Thomas, J., Flores-Herrera, A., Seguin, J. P., Northam, J. C., & Carter, A.
- Affiliations
- Turner Institute, School of Psychological Sciences, Monash University, Melbourne, Australia
- School of Computing and Information Systems, The University of Melbourne, Melbourne, Australia and Monash University, Melbourne, Australia
- The Anáhuac Psychology, Universidad Anáhuac, Huixquilucan de Degollado, Mexico
- Action Lab, Faculty of Information Technology, Monash University, Melbourne, Australia
- School of Psychology, The University of Sydney, Sydney, Australia
- Monash Bioethics Centre School of Philosophical, Historical and Indigenous Studies and the School of Psychological Sciences, Monash University, Melbourne, Australia
- ORCID
- Venue
- ACM Transactions on Computing for Healthcare
- Published
- 2026-10-24
- Volume
- 7
- Issue
- 4
- Pages
- 1-25
- ISSN
- 2691-1957
- 2637-8051
- Cited by
- 3
- References
- 18
- Language
- en
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