Unmet Need and Problems Accessing Core Health Care Services for Children with Autism Spectrum Disorder

Chiri, Giuseppina; Warfield, Marji Erickson

doi:10.1007/s10995-011-0833-6

Cited by 283Adolescent and Pediatric HealthcareAutism Spectrum Disorder ResearchFamily and Disability Support Research

Unmet Need and Problems Accessing Core Health Care Services for Children with Autism Spectrum Disorder

Chiri, Giuseppina, Warfield, Marji Erickson·2012·Maternal and Child Health Journal

DOI 10.1007/s10995-011-0833-6

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Abstract

To investigate the health care experiences of children with autism spectrum disorder, whether they have unmet needs, and if so, what types, and problems they encounter accessing needed care. We address these issues by identifying four core health care services and access problems related to provider and system characteristics. Using data from the 2005-2006 National Survey of Children with Special Health Care Needs (NS-CSHCN) we compared children with autism spectrum disorder with children with special health care needs with other emotional, developmental or behavioral problems (excluding autism spectrum disorder) and with other children with special health care needs. We used weighted logistic regression to examine differences in parent reports of unmet needs for the three different health condition groups. Overall unmet need for each service type among CSHCN ranged from 2.5% for routine preventive care to 15% for mental health services. After controlling for predisposing, enabling and need factors, some differences across health condition groups remained. Families of children with autism spectrum disorder were in fact significantly more at risk for having unmet specialty and therapy care needs. Additionally, families of children with autism spectrum disorder were more likely to report provider lack of skills to treat the child as a barrier in obtaining therapy and mental health services. Disparities in unmet needs for children with autism suggest that organizational features…

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A significant proportion of children with autism experience co-occurring medical concerns requiring access to healthcare services unrelated to their diagnosis.
“However, a significant proportion of children with autism also experience co- occurring medical concerns requiring access to healthcare services unrelated to their diagnosis (Chiri & Warfield, 2012; Karpur et al., 2019; Kohane et al., 2012).”
From A meta‐synthesis of how parents of children with autism describe their experience of accessing and using routine healthcare services for their children (2021) · cites this paper as Chiri & Warfield, 2012
HCPs may not recognise the need to increase their knowledge and skills for working with children with autism.
“suggests that HCPs may not recognise the need to increase their knowledge and skills for working with children with autism.”
From A meta‐synthesis of how parents of children with autism describe their experience of accessing and using routine healthcare services for their children (2021) · cites this paper as Chiri & Warfield, 2012

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Self-citation

Authors: Chiri, G., & Warfield, M. E.
Affiliations: Brandeis University (US)
Corresponding author: Chiri, Giuseppina
ORCID: Chiri, Giuseppina
Warfield, Marji Erickson
Venue: Maternal and Child Health Journal
Publisher: Springer Science and Business Media LLC
Published: 2011-06-11
Volume: 16
Issue: 5
Pages: 1081-1091
ISSN: 1092-7875 (ISSN-L)
1573-6628
DOI: 10.1007/s10995-011-0833-6
OpenAlex: W1964724464
Cited by: 283
References: 54
Citations by year: 2026: 7 · 2025: 3 · 2024: 16 · 2023: 25 · 2022: 16 · 2021: 24 · 2020: 41 · 2019: 28 · 2018: 30 · 2017: 25 · 2016: 23 · 2015: 18 · 2014: 14 · 2013: 8 · 2012: 5
FWCI: 20.37
Type: journal article
Language: en
Open access: closed
Licence: www.springer.com/tdm (tdm)
Locations: Maternal and Child Health Journal (publishedVersion)
PubMed (publishedVersion)
Topics: Health Sciences › Health Professions › Speech and Hearing › Adolescent and Pediatric Healthcare
Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
Keywords: autism spectrum disorder, unmet health needs, health care access, children with special health care needs, mental health services, preventive medicine, specialist care, therapeutic services, managed care, health disparities, National Survey of Children with Special Health Care Needs
MeSH terms: Adolescent, Child, Child Development Disorders, Pervasive, Child Health Services, Child, Preschool, Female, Health Services Accessibility, Health Services Needs and Demand, Humans, Insurance, Health, Male, Parents, Socioeconomic Factors, United States, Logistic Models, Insurance Coverage, Health Care Surveys, Children with Disabilities, Disabled Children, Needs Assessment, Healthcare Disparities

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Unmet Need and Problems Accessing Core Health Care Services for Children with Autism Spectrum Disorder

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