Patient and caregiver outcomes and experiences with team-based memory care: A mixed methods study
Abstract
Patients with dementia and their caregivers need ongoing educational and psychosocial support to manage their complex diagnosis. This mixed methods study evaluated the impact of a memory clinic with an embedded dementia navigator on the experiences and health outcomes of patients with dementia and their caregivers. At the 12-month follow-up, patients receiving memory clinic services ( n = 238) had higher emergency department visits than a matched cohort with dementia ( n = 938), although hospitalizations did not differ. Patient quality of life and caregiver burden scores also did not differ between baseline and 12-months. Interviews revealed that caregivers ( n = 12) valued the educational and social support components of the memory clinic and perceived that the clinic had a positive impact on their experiences. Findings suggest that this embedded navigator model is useful for addressing caregiver needs and may have potential to stem increases in caregiver burden and patient quality of life that occur with disease progression.
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Specialist services, including Memory Clinics and Admiral nurses, provided expert support tailored to the evolving needs of families during transition periods.
“Specialist services, including Memory Clinics and Admiral nurses, also provided expert support tailored to the evolving needs of families during transition periods (Liu et al., 2021; Mogan et al., 2022).”
From Mind the gap: a systematic review of barriers, facilitators, and experiences of care transitions for people living with dementia and their informal caregivers. (2026) · cites this paper as Liu et al., 2021
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Greene, L., Brain, J., Watkins, P., Kafadar, A. H., Sabatini, S., Blundell, B., Bothe, E., Harper, K., Hersh, D., Morrisby, C., et al. (2026) · The Gerontologist · doi:10.1093/geront/gnaf275 · Cited by 9 · see citing works
- Authors
- Liu, T.-L., Yates, T. D., Taylor, Y. J., Rossman, W., Mangieri, D., Black, S., Stephens, C., Connor, C. D., & Skudlarska, B.
- Affiliations
- Center for Outcomes Research and Evaluation, Atrium Health, Charlotte, NC
- Atrium Health Senior Care, Atrium Health, Charlotte, NC
- Corresponding author
- Yates, Traci D.
- Venue
- Journal of Applied Gerontology
- Publisher
- SAGE Publications
- Published
- 2019-11-26
- Volume
- 40
- Issue
- 8
- Pages
- 872-880
- ISSN
- 0733-4648 (ISSN-L)
- 1552-4523
- OpenAlex
- W2991041362
- Cited by
- 10
- References
- 50
- Citations by year
- 2026: 1 · 2025: 4 · 2024: 2 · 2022: 3
- FWCI
- 0.60
- Type
- journal article
- Language
- en
- Update notices
- correction (2020-03-05)
- Open access
- closed
- Locations
- Journal of Applied Gerontology (publishedVersion)
- PubMed (publishedVersion)
- Funders
- Duke Endowment (Grant Number 6608-SP)
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Health Sciences › Health Professions › General Health Professions › Geriatric Care and Nursing Homes
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Keywords
- dementia, memory clinics, team-based care, caregiver burden, quality of life, emergency department visits, psychosocial support, caregiver education, social support, disease progression
- MeSH terms
- Caregiver Burden, Dementia, Humans, Quality of Life, Social Support, Caregivers
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