A comparison of psychosocial and physical functioning in patients with motor neurone disease and metastatic cancer
Abstract
Although their disease processes and treatments are different, patients with motor neurone disease (MND) and those with late-stage cancer share a common situation--one in which the quality of life, rather than a cure, becomes the focus of care. We report here a comparison of 126 patients with MND and 125 with metastatic cancer on a range of physical and psychosocial measures. Compared to cancer patients, MND patients were younger, had greater social contacts, but were more physically impaired. Cancer patients had more pain and were on more medication (opioids, steroids, and analgesics). Although the Beck depression scores were similar in both groups, MND patients had significantly higher scores for demoralization, hopelessness, and suicidal ideation. Cancer patients, on the other hand, scored significantly higher on anhedonia. We suggest this difference in the quality of depression represents a difference in illness experience of the two groups and has relevance for the ways we treat depression in the medically ill.
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In one study, motor neuron disease patients reported higher demoralization than metastatic cancer patients.
“Motor neuron disease patients reported higher demoralization than metastatic cancer patients in one study.”
From A systematic review of the demoralization syndrome in individuals with progressive disease and cancer: a decade of research (2015) · cites this paper as [38]
Cites
The PHQ-9: Validity of a brief depression severity measure
Kroenke, K., Spitzer, R. L., & Williams, J. B. W. (2001) · Journal of General Internal Medicine · doi:10.1046/j.1525-1497.2001.016009606.x · Cited by 44,910 · see citing works
Aaronson, N. K., Ahmedzai, S., Bergman, B., Bullinger, M., Cull, A., Duez, N. J., Filiberti, A., Flechtner, H., Fleishman, S. B., Haes, J. C. J. M. D., et al. (1993) · JNCI Journal of the National Cancer Institute · doi:10.1093/jnci/85.5.365 · Cited by 16,005 · see citing works
Psychometric properties of the Beck Depression Inventory: Twenty-five years of evaluation
Beck, A. T., Steer, R. A., & Carbin, M. G. (1988) · Clinical Psychology Review · doi:10.1016/0272-7358(88)90050-5 · Cited by 11,696 · see citing works
Scheier, M. F., Carver, C. S., & Bridges, M. W. (1994) · Journal of Personality and Social Psychology · doi:10.1037//0022-3514.67.6.1063 · Cited by 7,456 · see citing works
The measurement of pessimism: the hopelessness scale
Beck, A. T., Weissman, A., Lester, D., & Trexler, L. (1974) · Journal of Consulting and Clinical Psychology · doi:10.1037/h0037562 · Cited by 5,494 · see citing works
How many subjects does it take to do a regression analysis
Green, S. B. (1991) · Multivariate Behavioral Research · doi:10.1207/s15327906mbr2603_7 · Cited by 3,916 · cited 1× · see citing works
“The sample size was easily adequate for multivariate statistics with this number of variables (31).”
BackgroundAssessment of suicidal intention: The Scale for Suicide Ideation.
Beck, A. T., Kovacs, M., & Weissman, A. (1979) · Journal of Consulting and Clinical Psychology · doi:10.1037//0022-006x.47.2.343 · Cited by 3,419 · see citing works
Utility of a new procedure for diagnosing mental disorders in primary care. The PRIME-MD 1000 study
Spitzer, R. L. (1994) · JAMA · doi:10.1001/jama.272.22.1749 · Cited by 2,648 · see citing works
Utility of a New Procedure for Diagnosing Mental Disorders in Primary Care: The PRIME-MD 1000 Study
Spitzer, R. L. (1994) · JAMA · doi:10.1001/jama.1994.03520220043029 · Cited by 1,873 · see citing works
The functional neuroanatomy of emotion and affective style
Davidson, R. J., & Irwin, W. (1999) · Trends in Cognitive Sciences · doi:10.1016/s1364-6613(98)01265-0 · Cited by 1,684 · see citing works
A psychometric evaluation of the Beck Depression Inventory–II.
Dozois, D. J. A., Dobson, K. S., & Ahnberg, J. L. (1998) · Psychological Assessment · doi:10.1037/1040-3590.10.2.83 · Cited by 1,517 · see citing works
Functional neuroanatomy of emotions: A meta-analysis
MURPHY, F. C., NIMMO-SMITH, I., & LAWRENCE, A. D. (2003) · Cognitive, Affective, & Behavioral Neuroscience · doi:10.3758/cabn.3.3.207 · Cited by 1,135 · see citing works
Discovering Endophenotypes for Major Depression
Hasler, G., Drevets, W. C., Manji, H. K., & Charney, D. S. (2004) · Neuropsychopharmacology · doi:10.1038/sj.npp.1300506 · Cited by 1,123 · see citing works
Dignity-Conserving Care—A New Model for Palliative Care: Helping the Patient Feel Valued
Chochinov, H. M. (2002) · JAMA · doi:10.1001/jama.287.17.2253 · Cited by 725 · see citing works
Demoralization Syndrome — a Relevant Psychiatric Diagnosis for Palliative Care
Kissane, D. W., Clarke, D. M., & Street, A. F. (2001) · Journal of Palliative Care · doi:10.1177/082585970101700103 · Cited by 624 · see citing works
Self-citationKlein, D. F. (1974) · Archives of General Psychiatry · doi:10.1001/archpsyc.1974.01760160005001 · Cited by 601 · see citing works
Demoralization: its phenomenology and importance
Clarke, D. M., & Kissane, D. W. (2002) · Australian & New Zealand Journal of Psychiatry · doi:10.1046/j.1440-1614.2002.01086.x · Cited by 590 · see citing works
Physical Illness, the Individual and the Coping Processes
Lipowski, Z. J. (1970) · The International Journal of Psychiatry in Medicine · doi:10.2190/19q3-9ql8-xyv1-8xc2 · Cited by 437 · see citing works
Moos, R. H. (1990) · Family Process · doi:10.1111/j.1545-5300.1990.00199.x · Cited by 356 · see citing works
Coping strategies and associated features of medically ill patients.
Feifel, H., Strack, S., & Nagy, V. T. (1987) · Psychosomatic Medicine · doi:10.1097/00006842-198711000-00007 · Cited by 318 · see citing works
Quality of life in ALS depends on factors other than strength and physical function
Simmons, Z., Bremer, B. A., Robbins, R. A., Walsh, S. M., & Fischer, S. (2000) · Neurology · doi:10.1212/wnl.55.3.388 · Cited by 279 · see citing works
Correlates of suffering in amyotrophic lateral sclerosis
Ganzini, L., Johnston, W. S., & Hoffman, W. F. (1999) · Neurology · doi:10.1212/wnl.52.7.1434 · Cited by 250 · see citing works
The sources of convergence between measures of apathy and depression
Marin, R. S., Firinciogullari, S., & Biedrzycki, R. C. (1993) · Journal of Affective Disorders · doi:10.1016/0165-0327(93)90040-q · Cited by 213 · see citing works
Reframing Hope: Meaning-Centered Care for Patients Near the End of Life
BREITBART, W. S., & Heller, K. S. (2003) · Journal of Palliative Medicine · doi:10.1089/109662103322654901 · Cited by 202 · see citing works
Survival in Amyotrophic Lateral Sclerosis: The Role of Psychological Factors
McDonald, E. R. (1994) · Archives of Neurology · doi:10.1001/archneur.1994.00540130027010 · Cited by 193 · see citing works
Anhedonia: a neglected symptom of psychopathology
Snaith, P. R. (1993) · Psychological Medicine · doi:10.1017/s0033291700026428 · Cited by 179 · see citing works
Degree of life-threat and differential use of coping modes
Feifel, H., Strack, S., & Nagy, V. T. (1987) · Journal of Psychosomatic Research · doi:10.1016/0022-3999(87)90103-6 · Cited by 157 · see citing works
The Melbourne Family Grief Study, I: Perceptions of family functioning in bereavement
Kissane, D. W., Bloch, S., Dowe, D. L., Snyder, R. D., Onghena, P., McKenzie, D. P., & Wallace, C. S. (1996) · American Journal of Psychiatry · doi:10.1176/ajp.153.5.650 · Cited by 141 · see citing works
Bradley, W. G., Anderson, F. A., Bromberg, M. B., Gutmann, L., Harati, Y., Ross, M. A., Miller, R. G., & the ALS CARE Study Group (2001) · Neurology · doi:10.1212/wnl.57.3.500 · Cited by 141 · see citing works
Demoralization, anhedonia and grief in patients with severe physical illness.
Clarke, D. M., Kissane, D. W., Trauer, T., & Smith, G. C. (2005) · PubMed Central · Cited by 118 · see citing works
Assessing individual quality of life in amyotrophic lateral sclerosis
Clarke, S., Hickey, A., O’Boyle, C. A., & Hardiman, O. M. (2001) · Quality of Life Research · doi:10.1023/a:1016704906100 · Cited by 115 · see citing works
Modifiability of Trait Anxiety and Neuroticism: A Meta-Analysis of the Literature
Jorm, A. F. (1989) · Australian & New Zealand Journal of Psychiatry · doi:10.3109/00048678909062588 · Cited by 86 · see citing works
Dimensions of Psychopathology in the Medically Ill
Clarke, D. M., Mackinnon, A. J., Smith, G. C., McKenzie, D. P., & Herrman, H. (2000) · Psychosomatics · doi:10.1176/appi.psy.41.5.418 · Cited by 75 · see citing works
An empirically derived taxonomy of common distress syndromes in the medically ill
Clarke, D. M., Smith, G. C., Dowe, D. L., & McKenzie, D. P. (2003) · Journal of Psychosomatic Research · doi:10.1016/s0022-3999(02)00410-5 · Cited by 68 · see citing works
Major depression and refusal of life‐sustaining medical treatment in the elderly
Hooper, S. C., Vaughan, K., Tennant, C. C., & Perz, J. (1996) · The Medical Journal of Australia · doi:10.5694/j.1326-5377.1996.tb138576.x · Cited by 49 · see citing works
Medical Illness Burden, Trait Neuroticism, and Depression in Older Primary Care Patients
Lyness, J. M., Duberstein, P. R., King, D. A., Cox, C., & Caine, E. D. (1998) · American Journal of Psychiatry · doi:10.1176/ajp.155.7.969 · Cited by 47 · see citing works
The Effect of Recovery From Depression on Preferences for Life-sustaining Therapy in Older Patients
Lee, M., & Ganzini, L. K. (1994) · Journal of Gerontology · doi:10.1093/geronj/49.1.m15 · Cited by 47 · see citing works
Lampe, I. K., Kahn, R. S., & Heeren, T. J. (2001) · Journal of Geriatric Psychiatry and Neurology · doi:10.1177/089198870101400104 · Cited by 45 · see citing works
End of life decisions in amyotrophic lateral sclerosis: a cross-cultural perspective
Smyth, A., Riedl, M., Kimura, R., Olick, R. S., & Siegler, M. A. (1997) · Journal of the Neurological Sciences · doi:10.1016/s0022-510x(97)00253-0 · Cited by 33 · see citing works
Monash Interview for Liaison Psychiatry (MILP) Development, Reliability, and Procedural Validity
Clarke, D. M., Smith, G. C., Herrman, H., & McKenzie, D. P. (1998) · Psychosomatics · doi:10.1016/s0033-3182(98)71320-9 · Cited by 25 · see citing works
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Boersma, I. M., Miyasaki, J. M., Kutner, J. S., & Kluger, B. M. (2014) · Neurology · doi:10.1212/wnl.0000000000000674 · Cited by 232 · see citing works
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Tang, P., Wang, H., & Chou, F. (2015) · Psychosomatics · doi:10.1016/j.psym.2015.06.005 · Cited by 142 · see citing works
Prevalence of depression in a 12‐month consecutive sample of patients with ALS
Wicks, P. J., Abrahams, S., Masi, D., Hejda-Forde, S., Leigh, P. N., & Goldstein, L. H. (2007) · European Journal of Neurology · doi:10.1111/j.1468-1331.2007.01843.x · Cited by 117 · see citing works
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McLeod, J. E., & Clarke, D. M. (2007) · Journal of the Neurological Sciences · doi:10.1016/j.jns.2007.03.001 · Cited by 117 · see citing works
Wasteson, E., Brenne, E., Higginson, I. J., Hotopf, M. H., Lloyd‐Williams, M., Kaasa, S., & Loge, J. H. (2009) · Palliative Medicine · doi:10.1177/0269216309106978 · Cited by 106 · see citing works
Aoun, S. M., Chochinov, H. M., & Kristjanson, L. J. (2015) · Journal of Palliative Medicine · doi:10.1089/jpm.2014.0213 · Cited by 74 · see citing works
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Caga, J., Turner, M. R., Hsieh, S., Ahmed, R. M., Devenney, E. M., Ramsey, E., Zoing, M. C., Mioshi, E., & Kiernan, M. C. (2016) · European Journal of Neurology · doi:10.1111/ene.12959 · Cited by 69 · see citing works
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Brettschneider, J., Kurent, J. E., & Ludolph, A. C. (2013) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd005226.pub3 · Cited by 66 · see citing works
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Jacobsen, J. C., Maytal, G., & Stern, T. A. (2007) · The Primary Care Companion to The Journal of Clinical Psychiatry · doi:10.4088/pcc.v09n0208 · Cited by 51 · see citing works
Gould, R. L., Coulson, M. C., Brown, R. G., Goldstein, L. H., Al-Chalabi, A., & Howard, R. J. (2015) · Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration · doi:10.3109/21678421.2015.1062515 · Cited by 47 · see citing works
Moreno, J. C., Martínez-Jaime, S., Schwartzmann, J., Karcher, D., Tillich, M., Graf, A., & Bock, R. (2017) · PLANT PHYSIOLOGY · doi:10.1104/pp.17.01635 · Cited by 46 · see citing works
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- Authors
- Clarke, D. M., McLeod, J. E., Smith, G. C., Trauer, T., & Kissane, D. W.
- Affiliations
- Monash Medical Centre (AU)
- Venue
- Journal of Palliative Care
- Publisher
- SAGE Publications
- Published
- 2005-09
- Volume
- 21
- Issue
- 3
- Pages
- 173-179
- ISSN
- 0825-8597 (ISSN-L)
- 2369-5293
- OpenAlex
- W2474962955
- Cited by
- 58
- References
- 40
- Citations by year
- 2025: 1 · 2023: 3 · 2022: 2 · 2021: 3 · 2020: 1 · 2019: 5 · 2018: 3 · 2017: 1 · 2016: 2 · 2015: 2 · 2014: 4 · 2013: 17 · 2012: 3
- FWCI
- 1.09
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Journal of Palliative Care (publishedVersion)
- PubMed (publishedVersion)
- Funders
- Bethlehem Griffiths Research Foundation
- Motor Neurone Disease Association
- Topics
- Health Sciences › Medicine › Oncology › Cancer survivorship and care
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative and Oncologic Care
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
- Keywords
- motor neuron disease, metastatic cancer, psychosocial functioning, physical function, depression, quality of life, pain, demoralization, hopelessness, suicidal ideation, anhedonia, palliative care
- MeSH terms
- Activities of Daily Living, Adaptation, Psychological, Adolescent, Aged, Attitude to Health, Depression, Family, Female, Health Status, Humans, Interpersonal Relations, Middle Aged, Morale, Neoplasms, Pain, Palliative Care, Quality of Life, Surveys and Questionnaires, Social Support, Victoria, Logistic Models, Motor Neuron Disease
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