Ethical Challenges in Community-Based Participatory Research: A Scoping Review
Abstract
Ethical challenges in community-based participatory research (CBPR) are of increasing interest to researchers; however, it is not known how widespread these challenges are or how extensively the topic has been explored. Using Arksey and O’Malley’s scoping review method, studies on ethical challenges in CBPR were mapped. Findings indicate that researchers continue to raise questions about ethics associated with CBPR. Our purpose in this article is to present a thematic summary of international ethical challenges as a guide for researchers interested in community participatory approaches and to better prepare them for qualitative health research with communities.
Integrity signals
Registry
Cites
Statistics
Claims the paper makes
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
Many health and development organisations have frameworks to help design a theory of change.
“Many health and development organisations (such as Social Velocity 56 ) have frameworks to help design a theory of change.”
From Participatory action research (2023) · cites this paper as [56]
Cites
Using thematic analysis in psychology
Braun, V., & Clarke, V. (2006) · Qualitative Research in Psychology · doi:10.1191/1478088706qp063oa · Cited by 194,414 · see citing works
Scoping studies: towards a methodological framework
Arksey, H., & O'Malley, L. (2005) · International Journal of Social Research Methodology · doi:10.1080/1364557032000119616 · Cited by 36,742 · see citing works
Basics of Qualitative Research: Grounded Theory Procedures and Techniques
Long, D. R., Strauss, A., & Corbin, J. M. (1993) · Modern Language Journal · doi:10.2307/328955 · Cited by 17,612 · see citing works
Scoping studies: advancing the methodology
Levac, D., Colquhoun, H., & O'Brien, K. K. (2010) · Implementation Science · doi:10.1186/1748-5908-5-69 · Cited by 15,268 · see citing works
A typology of reviews: an analysis of 14 review types and associated methodologies
Grant, M. J., & Booth, A. (2009) · Health Information & Libraries Journal · doi:10.1111/j.1471-1842.2009.00848.x · Cited by 10,817 · see citing works
(2011) · Cited by 7,157 · see citing works
Action Research and Minority Problems
Lewin, K. (1946) · Journal of Social Issues · doi:10.1111/j.1540-4560.1946.tb02295.x · Cited by 6,554 · see citing works
A scoping review of scoping reviews: advancing the approach and enhancing the consistency
Pham, M. T., Rajić, A., Greig, J. D., Sargeant, J. M., Papadopoulos, A., & McEwen, S. A. (2014) · Research Synthesis Methods · doi:10.1002/jrsm.1123 · Cited by 3,078 · see citing works
Reason, P., & Bradbury, H. M. (2006) · Cited by 2,381 · see citing works
Methods For Community - Based Participatory Research For Health
Israel, B. A., & Satcher, D. S. (2013) · Cited by 2,128 · see citing works
Community-based participatory research for health : from process to outcomes
Minkler, M., & Wallerstein, N. B. (2008) · Cited by 2,089 · see citing works
Daudt, H. M., van Mossel, C., & Scott, S. J. (2013) · BMC Medical Research Methodology · doi:10.1186/1471-2288-13-48 · Cited by 1,891 · see citing works
Data analysis in qualitative research
Thorne, S. (2000) · Evidence Based Nursing · doi:10.1136/ebn.3.3.68 · Cited by 1,431 · see citing works
Community-Based Research Partnerships: Challenges and Opportunities
Minkler, M. (2005) · Journal of Urban Health · doi:10.1093/jurban/jti034 · Cited by 918 · see citing works
What are scoping studies? A review of the nursing literature
Davis, K., Drey, N., & Gould, D. (2009) · International Journal of Nursing Studies · doi:10.1016/j.ijnurstu.2009.02.010 · Cited by 855 · see citing works
Ethical Challenges for the “Outside” Researcher in Community-Based Participatory Research
Minkler, M. (2004) · Health Education & Behavior · doi:10.1177/1090198104269566 · Cited by 658 · see citing works
Castleden, H., Morgan, V. S., & Lamb, C. (2012) · Canadian Geographies / Géographies canadiennes · doi:10.1111/j.1541-0064.2012.00432.x · Cited by 420 · see citing works
Flicker, S., Travers, R., Guţă, A., McDonald, S., & Meagher, A. (2007) · Journal of Urban Health · doi:10.1007/s11524-007-9165-7 · Cited by 419 · see citing works
Everyday ethics in community-based participatory research
Banks, S., Armstrong, A., Carter, K., Graham, H., Hayward, P., Henry, A., Holland, T., Holmes, C., Lee, A., McNulty, A., et al. (2013) · Contemporary Social Science · doi:10.1080/21582041.2013.769618 · Cited by 392 · see citing works
Community-Based Participatory Research
Hacker, K. A. (2013) · Sage eBooks · doi:10.4135/9781452244181 · Cited by 379 · see citing works
Using scoping literature reviews as a means of understanding and interpreting existing literature
Rumrill, P. D., Fitzgerald, S. M., & Merchant, W. R. (2010) · WORK: A Journal of Prevention, Assessment & Rehabilitation · doi:10.3233/wor-2010-0998 · Cited by 358 · see citing works
Community-Based Participatory Research
Boyd, A. S. (2014) · Encyclopedia of Human Services and Diversity · doi:10.4135/9781483346663.n119 · Cited by 169 · see citing works
Ezzy, D. (2013) · doi:10.4324/9781315015484 · Cited by 159 · see citing works
Crossing Methodological Borders: Decolonizing Community-Based Participatory Research
Stanton, C. R. (2014) · Qualitative Inquiry · doi:10.1177/1077800413505541 · Cited by 150 · see citing works
Is Community-Based Participatory Research Possible?
Blumenthal, D. S. (2011) · American Journal of Preventive Medicine · doi:10.1016/j.amepre.2010.11.011 · Cited by 143 · see citing works
Journal of Immigrant and Minority Health
Terui, S., & Hsieh, E. (2014) · Encyclopedia of Human Services and Diversity · doi:10.4135/9781483346663.n327 · Cited by 133 · see citing works
Cahill, C. (2015) · ACME · doi:10.14288/acme.v6i3.784 · Cited by 113 · see citing works
Teti, M., Murray, C., Johnson, L. P., & Binson, D. (2012) · Journal of Empirical Research on Human Research Ethics · doi:10.1525/jer.2012.7.4.34 · Cited by 112 · see citing works
From Subject to Participant: Ethics and the Evolving Role of Community in Health Research
Bromley, E., Mikesell, L., Jones, F., & Khodyakov, D. (2015) · American Journal of Public Health · doi:10.2105/ajph.2014.302403 · Cited by 108 · see citing works
Re-Conceptualizing the Belmont Report
Shore, N. (2006) · Journal of Community Practice · doi:10.1300/j125v14n04_02 · Cited by 107 · see citing works
Ethics and power in community-campus partnerships for research
Boser, S. (2006) · Action Research · doi:10.1177/1476750306060538 · Cited by 107 · see citing works
Ethical issues in participatory action research
Löfman, P., Pelkonen, M., & Pietilä, A. (2004) · Scandinavian Journal of Caring Sciences · doi:10.1111/j.1471-6712.2004.00277.x · Cited by 105 · see citing works
Worth the Risk? Muddled Relationships in Community-Based Participatory Research
Mayan, M. J., & Daum, C. (2015) · Qualitative Health Research · doi:10.1177/1049732315618660 · Cited by 101 · see citing works
Ethics, “Vulnerability,” and Feminist Participatory Action Research With a Disability Community
Gustafson, D. L., & Brunger, F. (2014) · Qualitative Health Research · doi:10.1177/1049732314538122 · Cited by 79 · see citing works
Brunger, F., & Wall, D. (2016) · Qualitative Health Research · doi:10.1177/1049732316649158 · Cited by 79 · see citing works
The ethics of conducting a co‐operative inquiry with vulnerable people
Tee, S., & Lathlean, J. (2004) · Journal of Advanced Nursing · doi:10.1111/j.1365-2648.2004.03130.x · Cited by 68 · see citing works
Ethics and Community-Based Participatory Research: Perspectives From the Field
Bastida, E., Tseng, T., McKeever, C., & Jack, L. (2009) · Health Promotion Practice · doi:10.1177/1524839909352841 · Cited by 68 · see citing works
Reflexive Research Ethics for Environmental Health and Justice: Academics and Movement Building
Cordner, A., Ciplet, D., Brown, P., & Morello-Frosch, R. A. (2012) · Social movement studies · doi:10.1080/14742837.2012.664898 · Cited by 56 · see citing works
Migration and health : a research methods handbook
Schenker, M. B., Castañeda, X., & Rodríguez-Lainz, A. (2014) · Cited by 49 · see citing works
A case study of community-based participatory research ethics: The healthy public housing initiative
Brugge, D., & Kole, A. (2003) · Science and Engineering Ethics · doi:10.1007/s11948-003-0046-5 · Cited by 49 · see citing works
Chabot, C., Shoveller, J., Spencer, G., & Johnson, J. L. (2012) · Journal of Empirical Research on Human Research Ethics · doi:10.1525/jer.2012.7.2.20 · Cited by 49 · see citing works
Misbehaviors of Front-Line Research Personnel and the Integrity of Community-Based Research
True, G., Alexander, L. B., & Richman, K. A. (2011) · Journal of Empirical Research on Human Research Ethics · doi:10.1525/jer.2011.6.2.3 · Cited by 49 · see citing works
Logie, C. H., James, L., Tharao, W. E., & Loutfy, M. R. (2012) · Journal of Empirical Research on Human Research Ethics · doi:10.1525/jer.2012.7.4.10 · Cited by 47 · see citing works
Flicker, S., & Worthington, C. (2012) · Canadian Journal of Public Health · doi:10.1007/bf03404063 · Cited by 46 · see citing works
Community-Based Participatory Research and the Ethics Review Process
Shore, N. (2007) · Journal of Empirical Research on Human Research Ethics · doi:10.1525/jer.2007.2.1.31 · Cited by 44 · see citing works
Reid, C. J., & Brief, E. (2009) · Journal of Academic Ethics · doi:10.1007/s10805-009-9085-0 · Cited by 42 · see citing works
Lundy, P., & McGovern, M. (2006) · Action Research · doi:10.1177/1476750306060542 · Cited by 42 · see citing works
Mitchell, T., & Baker, E. (2005) · Journal of Cancer Education · doi:10.1207/s15430154jce2001s_10 · Cited by 39 · see citing works
Mistry, J., Berardi, A., Bignante, E., & Tschirhart, C. (2015) · Geoforum · doi:10.1016/j.geoforum.2015.02.010 · Cited by 36 · see citing works
Unraveling Ethics: Reflections from a Community-based Participatory Research Project with Youth
Walsh, C. A., Hewson, J., & Shier, M. (2015) · The Qualitative Report · doi:10.46743/2160-3715/2008.1584 · Cited by 33 · see citing works
Morgan, M. F., Cuskelly, M., & Moni, K. (2014) · Disability & Society · doi:10.1080/09687599.2014.934440 · Cited by 33 · see citing works
Peer Research Assistantships and the Ethics of Reciprocity in Community-Based Research
Greene, S. (2013) · Journal of Empirical Research on Human Research Ethics · doi:10.1525/jer.2013.8.2.141 · Cited by 33 · see citing works
Ethics of Health Research in Communities: Perspectives From the Southwestern United States
Williams, R., Willging, C. E., Quintero, G., Kalishman, S. G., Sussman, A. L., Freeman, W. L., & Members, O. B. O. R. N. (2010) · The Annals of Family Medicine · doi:10.1370/afm.1138 · Cited by 32 · see citing works
Baydala, L. T., Worrell, S., Fletcher, F., Letendre, S., Letendre, L., & Ruttan, L. (2013) · Progress in community health partnerships · doi:10.1353/cpr.2013.0015 · Cited by 29 · see citing works
Proximity, Ethical Dilemmas, and Community Research Workers
Richman, K. A., Alexander, L. B., & True, G. (2012) · AJOB Primary Research · doi:10.1080/21507716.2012.714837 · Cited by 26 · see citing works
Chenhall, R. D., Senior, K., & Belton, S. (2011) · Anthropology Today · doi:10.1111/j.1467-8322.2011.00827.x · Cited by 26 · see citing works
Jamshidi, E., Morasae, E. K., Shahandeh, K., Majdzadeh, R., Seydali, E., Aramesh, K., & Loori, N. (2014) · PubMed Central · Cited by 25 · see citing works
Ethical Ambiguities in Participatory Action Research With Unauthorized Migrants
Brabeck, K. M., Lykes, M. B., Sibley, E., & Kene, P. (2014) · Ethics & Behavior · doi:10.1080/10508422.2014.920707 · Cited by 25 · see citing works
Puffer, E. S., Pian, J., Sikkema, K. J., Ogwang‐Odhiambo, R. A., & Broverman, S. A. (2013) · Journal of Empirical Research on Human Research Ethics · doi:10.1525/jer.2013.8.2.119 · Cited by 25 · see citing works
Managing Ethical Dilemmas in Community-Based Participatory Research With Vulnerable Populations
Campbell–Page, R. M., & Shaw-Ridley, M. (2013) · Health Promotion Practice · doi:10.1177/1524839913482924 · Cited by 25 · see citing works
DePalma, R. (2010) · International Journal of Research & Method in Education · doi:10.1080/1743727x.2010.511713 · Cited by 25 · see citing works
Addressing the Ethical Challenges of Community-Based Research
Brydon‐Miller, M., & Society for Ethics Across the Curriculum (2012) · Teaching Ethics · doi:10.5840/tej201212223 · Cited by 24 · see citing works
A Virtue Ethics Guide to Best Practices for Community-Based Participatory Research
Schaffer, M. A. (2009) · Progress in community health partnerships · doi:10.1353/cpr.0.0053 · Cited by 24 · see citing works
Qualitative Methods in Community-Based Participatory Research
Clark, L., & Ventres, W. (2015) · Qualitative Health Research · doi:10.1177/1049732315617445 · Cited by 24 · see citing works
Issues of Disclosure and Intrusion: Ethical Challenges for a Community Researcher
Carter, K., Banks, S., Armstrong, A., Kindon, S., & Burkett, I. (2013) · Ethics and Social Welfare · doi:10.1080/17496535.2013.769344 · Cited by 20 · see citing works
DiStefano, A. S., Quitugua, L., Hui, B., Barrera-Ng, A., Peters, R., Vunileva, I., Dimaculangan, J., Tui’one, V., Takahashi, L. M., & Tanjasiri, S. P. (2013) · Journal of Empirical Research on Human Research Ethics · doi:10.1525/jer.2013.8.1.68 · Cited by 19 · see citing works
Coming to an ethics of research practice in a remote Aboriginal Australian community
Bainbridge, R. G., Tsey, K., Brown, C., McCalman, J., Cadet‐James, Y., Margolis, S., & Ypinazar, V. (2013) · Contemporary Nurse · doi:10.5172/conu.2013.46.1.18 · Cited by 19 · see citing works
Anderson, E. E. (2013) · Journal of Empirical Research on Human Research Ethics · doi:10.1525/jer.2013.8.1.20 · Cited by 17 · see citing works
Balakrishnan, V., & Cornforth, S. (2013) · Educational Action Research · doi:10.1080/09650792.2013.832347 · Cited by 17 · see citing works
Rink, E., Montgomery-Andersen, R., Koch, A., Mulvad, G., & Gesink, D. (2013) · Journal of Empirical Research on Human Research Ethics · doi:10.1525/jer.2013.8.2.110 · Cited by 16 · see citing works
Davison, C., Kahwa, E., Edwards, N. C., Atkinson, U., Roelofs, S. M., Hepburn-Brown, C., Aiken, J., Dawkins, P. E., Rae, T., & MacFarlane, D. (2013) · Journal of Empirical Research on Human Research Ethics · doi:10.1525/jer.2013.8.1.55 · Cited by 14 · see citing works
Deeds, B. G., Castillo, M., Beason, Z., Cunningham, S. D., Ellen, J. M., Peralta, L., & Interventions Adolescent Trials Network for HIV/AIDS (2008) · Journal of Empirical Research on Human Research Ethics · doi:10.1525/jer.2008.3.2.77 · Cited by 13 · see citing works
Kuriloff, P. J., Andrus, S. H., & Ravitch, S. M. (2011) · Mind Brain and Education · doi:10.1111/j.1751-228x.2011.01110.x · Cited by 12 · see citing works
Hunt, M. R., Gogognon, P., & Ridde, V. (2014) · BMC Medical Ethics · doi:10.1186/1472-6939-15-13 · Cited by 12 · see citing works
Nepal, V., Banerjee, D., Slentz, M., Perry, M., & Scott, D. (2010) · Journal of Empirical Research on Human Research Ethics · doi:10.1525/jer.2010.5.4.53 · Cited by 11 · see citing works
Action Research in Inter-Organisational Networks: Impartial Studies or the Trojan Horse?
Goduscheit, R. C., Bergenholtz, C., Jørgensen, J. H., & Rasmussen, E. S. (2008) · Systemic Practice and Action Research · doi:10.1007/s11213-008-9096-6 · Cited by 10 · see citing works
Flagged first, then by citations
Cited by
Sorted by citations
Cornish, F., Breton, N., Moreno-Tabarez, U., Delgado, J., Rua, M., de-Graft Aikins, A., & Hodgetts, D. (2023) · Nature Reviews Methods Primers · doi:10.1038/s43586-023-00214-1 · Cited by 743 · see citing works
Panel, S. G. P. C., Hoekstra, F., Mrklas, K., Khan, M., McKay, R. C., Vis‐Dunbar, M., Sibley, K. M., Nguyen, T., Graham, I. D., & Gainforth, H. L. (2020) · Health Research Policy and Systems · doi:10.1186/s12961-020-0544-9 · Cited by 346 · see citing works
Ortiz, K. S., Nash, J. L., Shea, L., OETZEL, J. G., Garoutte, J., Sanchez‐Youngman, S., & Wallerstein, N. B. (2020) · Annual Review of Public Health · doi:10.1146/annurev-publhealth-040119-094220 · Cited by 224 · see citing works
Participatory Research Approaches with Youth: Ethics, Engagement, and Meaningful Action
Teixeira, S., Augsberger, A., Richards‐Schuster, K., & Sprague Martinez, L. (2021) · American Journal of Community Psychology · doi:10.1002/ajcp.12501 · Cited by 112 · see citing works
Groot, B. C., Vink, M., Haveman, A., Huberts, M., Schout, G., & Abma, T. (2018) · Educational Action Research · doi:10.1080/09650792.2018.1450771 · Cited by 90 · see citing works
Community-Based Participatory Action Research
Wilson, E. (2019) · Springer eBooks · doi:10.1007/978-981-10-5251-4_87 · Cited by 78 · see citing works
Self-citationInnovating for Transformation in First Nations Health Using Community-Based Participatory Research
Kyoon-Achan, G., Lavoie, J., Avery Kinew, K., Phillips-Beck, W., Ibrahim, N., Sinclair, S., & Katz, A. (2018) · Qualitative Health Research · doi:10.1177/1049732318756056 · Cited by 69 · see citing works
Engaging with care: ethical issues in Participatory Research
Bussu, S., Lalani, M., Pattison, S., & Marshall, M. (2020) · Qualitative Research · doi:10.1177/1468794120904883 · Cited by 72 · see citing works
Sileo, K. M., Baldwin, A., Huynh, T. A., Olfers, A., Woo, J., Greene, S. L., Casillas, G. L., & Taylor, B. S. (2022) · Journal of Health Psychology · doi:10.1177/13591053211027652 · Cited by 71 · see citing works
Hyett, N., Kenny, A. J., & Dickson‐Swift, V. (2018) · Scandinavian Journal of Occupational Therapy · doi:10.1080/11038128.2017.1423374 · Cited by 61 · see citing works
Self-citationExpanding syphilis testing: a scoping review of syphilis testing interventions among key populations
Ong, J. J., Fu, H., Smith, M. K., & Tucker, J. D. (2018) · Expert Review of Anti-infective Therapy · doi:10.1080/14787210.2018.1463846 · Cited by 54 · see citing works
Montreuil, M., Martineau, J. T., & Racine, É. (2019) · Journal of Bioethical Inquiry · doi:10.1007/s11673-019-09904-6 · Cited by 54 · see citing works
Defining ethical challenge(s) in healthcare research: a rapid review
Schofield, G., Dittborn, M., Selman, L. E., & Huxtable, R. (2021) · BMC Medical Ethics · doi:10.1186/s12910-021-00700-9 · Cited by 52 · see citing works
Chesser, S. A., Porter, M. M., & Tuckett, A. G. (2019) · International Journal of Social Research Methodology · doi:10.1080/13645579.2019.1704355 · Cited by 52 · see citing works
Scher, B. D., Scott-Barrett, J., Hickman, M., & Chrisinger, B. W. (2023) · Journal of Participatory Research Methods · doi:10.35844/001c.74807 · Cited by 51 · see citing works
Nurturing the buffer zone: conducting collaborative action research in contemporary contexts
Bennett, H. P., & Brunner, R. (2020) · Qualitative Research · doi:10.1177/1468794120965373 · Cited by 50 · see citing works
Traditional Healers and Mental Health in Nepal: A Scoping Review
Pham, T. V., Kaiser, B. N., Koirala, R., Maharjan, S. M., Upadhaya, N., Franz, L., & Kohrt, B. A. (2020) · Culture Medicine and Psychiatry · doi:10.1007/s11013-020-09676-4 · Cited by 48 · see citing works
Collaborative Filmmaking: A Participatory, Visual Research Method
Baumann, S. E., Lhaki, P., & Burke, J. G. (2020) · Qualitative Health Research · doi:10.1177/1049732320941826 · Cited by 46 · see citing works
Salma, J., & Giri, D. (2021) · International Journal of Qualitative Methods · doi:10.1177/16094069211036293 · Cited by 43 · see citing works
Phillips, L. J., Christensen-Strynø, M. B., & Frølunde, L. (2022) · Evidence & Policy · doi:10.1332/174426421x16445103995426 · Cited by 40 · see citing works
Phillips, L. J., Frølunde, L., & Christensen-Strynø, M. B. (2021) · Qualitative Health Research · doi:10.1177/10497323211003863 · Cited by 40 · see citing works
Power to participants: a call for person‐centred HIV prevention services and research
Pantelic, M., Stegling, C., Shackleton, S., & Restoy, E. (2018) · Journal of the International AIDS Society · doi:10.1002/jia2.25167 · Cited by 34 · see citing works
Gillespie‐Lynch, K., Dwyer, P. S. R., Constantino, C. D., Kapp, S. K., Hotez, E., Riccio, A., DeNigris, D., Kofner, B., & Endlich, E. (2020) · Emerald Group Publishing Limited eBooks · doi:10.1108/s1479-354720200000012013 · Cited by 32 · see citing works
Circles of impacts within and beyond participatory action research with older people
Bendien, E., Groot, B. C., & Abma, T. (2020) · Ageing and Society · doi:10.1017/s0144686x20001336 · Cited by 31 · see citing works
Petteway, R. J., Mujahid, M. S., Allen, A. M., & Morello-Frosch, R. A. (2019) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph16203983 · Cited by 28 · see citing works
Cherniack, M. G., Berger, S., Namazi, S., Henning, R. A., & Punnett, L. (2019) · Occupational Health Science · doi:10.1007/s41542-019-00051-3 · Cited by 26 · see citing works
Roder‐DeWan, S., Baril, N. C., Belanoff, C. M., Declercq, E. R., & Langer, A. (2021) · Journal of Midwifery & Women s Health · doi:10.1111/jmwh.13240 · Cited by 21 · see citing works
Nelson, G., Jenkins, M., Knox, B., Purkey, E., Chan-Nguyen, S., Cole, M., Jackson, L., & Bayoumi, I. (2025) · International Journal for Equity in Health · doi:10.1186/s12939-025-02573-5 · Cited by 19 · see citing works
Fontaine, G., Smith, M. A., Langmuir, T., Mekki, K., Ghazal, H., Noad, E. E., Buchan, J. L., Dubey, V., Patey, A. M., McCleary, N., et al. (2024) · BMC Public Health · doi:10.1186/s12889-024-18270-x · Cited by 22 · see citing works
True, G., Davidson, L., Facundo, R., Meyer, D. V., Urbina, S., & Ono, S. S. (2019) · Journal of Humanistic Psychology · doi:10.1177/0022167819853344 · Cited by 20 · see citing works
Data sharing in the context of community-engaged research partnerships
Emmons, K. M., Mendez, S. R., Lee, R. M., Erani, D., Mascioli, L., Abreu, M., Adams, S., Daly, J. J., & Bierer, B. E. (2023) · Social Science & Medicine · doi:10.1016/j.socscimed.2023.115895 · Cited by 18 · see citing works
Heard, E. M. (2022) · Qualitative Research · doi:10.1177/14687941211072797 · Cited by 17 · see citing works
Nouri, S. S., Tan, C. H., Rangel, M., Wertz, M., Sanchez, A. X., Alvarado, A., Arreola, E., Quinn, M., Pantilat, S. Z., Lyles, C. R., et al. (2023) · Journal of the American Geriatrics Society · doi:10.1111/jgs.18236 · Cited by 17 · see citing works
Gagnon, M., Payne, A., & Guţă, A. (2021) · Harm Reduction Journal · doi:10.1186/s12954-021-00529-w · Cited by 17 · see citing works
Participatory food events as collaborative public engagement opportunities
Pettinger, C., Parsons, J. M., Letherby, G., Cunningham, M., Withers, L., & Whiteford, A. (2019) · Methodological Innovations · doi:10.1177/2059799119863283 · Cited by 16 · see citing works
Huse, L.-K. (2020) · Frontiers in Communication · doi:10.3389/fcomm.2020.00041 · Cited by 16 · see citing works
Community-Based Participatory Action Research
Wilson, E. (2018) · Springer eBooks · doi:10.1007/978-981-10-2779-6_87-1 · Cited by 16 · see citing works
Self-citationRytkönen, P. I., & Tunón, H. (2020) · Sustainability · doi:10.3390/su12125217 · Cited by 14 · see citing works
Poli, C. D., & Oyebode, J. R. (2023) · PLoS ONE · doi:10.1371/journal.pone.0296223 · Cited by 12 · see citing works
de Smet, S., Rousseau, C., Stalpaert, C., & Haene, L. D. (2020) · Qualitative Health Research · doi:10.1177/1049732320910411 · Cited by 14 · see citing works
Ramaano, A. I. (2025) · Forestry Economics Review · doi:10.1108/fer-04-2025-0005 · Cited by 11 · see citing works
Grattidge, L., Purton, T., Auckland, S., Lees, D., & Mond, J. (2021) · Australian and New Zealand Journal of Public Health · doi:10.1111/1753-6405.13116 · Cited by 11 · see citing works
Bouabida, K., Pomey, M., Cyr, G., Aho-Glele, U., & Chaves, B. G. (2021) · Patient Experience Journal · doi:10.35680/2372-0247.1538 · Cited by 11 · see citing works
Magasi, S. R., Angell, A. M., Papadimitriou, C., Ramirez, R. D., Ferlin, A., Reis, J. P., & Wilson, T. (2021) · American Journal of Occupational Therapy · doi:10.5014/ajot.2021.045468 · Cited by 11 · see citing works
Kenny, A. J., Dickson‐Swift, V., Chan, C. K. Y., Masood, M., Gussy, M. G., Christian, B., Hodge, B., Furness, S., Hanson, L. C., Clune, S., et al. (2021) · BMJ Open · doi:10.1136/bmjopen-2020-042937 · Cited by 10 · see citing works
Self-citationEthical Issues in Community-Based, Participatory, and Action-Oriented Forms of Research
Guţă, A., & Voronka, J. (2020) · Springer eBooks · doi:10.1007/978-3-030-16759-2_24 · Cited by 10 · see citing works
Yan, C. T., Haque, S., Chassler, D., Lobb, R., Battaglia, T. A., & Martinez, L. S. S. (2021) · Journal of Clinical and Translational Science · doi:10.1017/cts.2021.858 · Cited by 10 · see citing works
Improving Research Quality to Achieve Mental Health Equity
Moore, Q. L., Tennant, P. S., & Fortuna, L. R. (2020) · Psychiatric Clinics of North America · doi:10.1016/j.psc.2020.05.005 · Cited by 10 · see citing works
de Smet, S., Haene, L. D., Rousseau, C., & Stalpaert, C. (2018) · Research in Drama Education The Journal of Applied Theatre and Performance · doi:10.1080/13569783.2018.1438181 · Cited by 9 · see citing works
Backer, M. L. D. (2022) · Qualitative Research · doi:10.1177/14687941221098931 · Cited by 8 · see citing works
Dantzer, B., & Perry, N. E. (2022) · Youth · doi:10.3390/youth2040042 · Cited by 8 · see citing works
Roos, R. (2024) · Humanities and Social Sciences Communications · doi:10.1057/s41599-024-02942-5 · Cited by 8 · see citing works
The Case for Research-Informed Immigrant Health Policies Within Health Care Systems
Montoya‐Williams, D., Fuentes‐Afflick, E., & Wallis, K. E. (2020) · JAMA Network Open · doi:10.1001/jamanetworkopen.2020.3022 · Cited by 8 · see citing works
Blackwell, D., & Morrell, E. (2020) · Journal of Human Lactation · doi:10.1177/0890334420933134 · Cited by 8 · see citing works
Gaining Community Entry with Survivors for Forensic Human Rights and Humanitarian Intervention
Kim, J. J., Elgerud, L., & Tuller, H. (2022) · Forensic Sciences Research · doi:10.1080/20961790.2021.2002524 · Cited by 8 · see citing works
Hoover, S., Tiwari, S., Kim, J., Green, M. J., Richmond, A., Wynn, M. R., Nisbeth, K. S., Rennie, S., & Corbie-Smith, G. M. (2019) · Ethnicity & Disease · doi:10.18865/ed.29.2.309 · Cited by 8 · see citing works
Participatory research. Part 2: Practical considerations
Northway, R. (2017) · International Journal of Therapy and Rehabilitation · doi:10.12968/ijtr.2017.24.11.488 · Cited by 8 · see citing works
Scaling Deep with Local Community Champions in Living Labs
Weberg, O., Fors, V., & Lund, J. (2025) · Sustainability · doi:10.3390/su17135888 · Cited by 7 · see citing works
Kim, M., Shapiro, V. B., Ozer, E. J., Stone, S. I., Villa, B., Schotland, M., & Kohashi, C. (2023) · Journal of Community Practice · doi:10.1080/10705422.2023.2273912 · Cited by 8 · see citing works
Bungay, V., Guţă, A., Slemon, A., Varcoe, C., & Comber, S. (2022) · Qualitative Health Research · doi:10.1177/10497323221089877 · Cited by 7 · see citing works
Gutiérrez‐García, A. I., Ruiz, M. C. S., Perpiñá‐Galvañ, J., González, J. S., & Jiménez‐Ruiz, I. (2022) · Qualitative Health Research · doi:10.1177/10497323221097885 · Cited by 7 · see citing works
Molosi-France, K., & Dipholo, K. (2022) · Journal of Contemporary Issues in Education · doi:10.20355/jcie29514 · Cited by 7 · see citing works
Birger, L., & Shoham, S. (2023) · Journal of Ethnic and Migration Studies · doi:10.1080/1369183x.2023.2245155 · Cited by 6 · see citing works
Participatory data analysis in social change work: empowering, practical, or both?
Kogen, L. (2024) · Qualitative Research · doi:10.1177/14687941241288207 · Cited by 6 · see citing works
Health impact assessment of a mining project in Swedish Sápmi: lessons learned
Blåhed, H., & Sebastiån, M. S. (2021) · Impact Assessment and Project Appraisal · doi:10.1080/14615517.2021.1981759 · Cited by 6 · see citing works
Davis, S. G., van Nek, Y., & Horlings, L. (2021) · Springer eBooks · doi:10.1007/978-3-030-84248-2_8 · Cited by 6 · see citing works
Fernandez, S. B., Clarke, R. D., Langwerden, R. J., Perez, K., Howard, M. M., Morris, S. L., & Wagner, E. F. (2023) · Journal of Prevention and Health Promotion · doi:10.1177/26320770231189182 · Cited by 5 · see citing works
Frischmon, C., Crosslin, J., Burks, L., Weckesser, B., Hannigan, M., & Duderstadt, K. (2025) · Environmental Research Letters · doi:10.1088/1748-9326/adc28a · Cited by 5 · see citing works
Guruge, G. N. D., Arhelger, A., & Abhayasinghe, K. M. P. W. (2022) · Journal of Health Population and Nutrition · doi:10.1186/s41043-022-00295-w · Cited by 5 · see citing works
Takahashi, M., Nakagawa, Y., & Saijo, T. (2024) · Global Sustainability · doi:10.1017/sus.2024.29 · Cited by 4 · see citing works
Ethical challenges, responses and reasoning in co-creation for health promotion: a scoping review
Chrifou, R., Focquaert, F., Banks, S., Raus, K., Longworth, G. R., Loisel, Q. E. A., de Boer, J., Koobasi, M., Ghaly, M. M., CHASTIN, S. F. M., et al. (2025) · BMC Medical Ethics · doi:10.1186/s12910-025-01345-8 · Cited by 4 · see citing works
Moosa-Mitha, M., & Wallace, B. (2021) · The Canadian Journal of Action Research · doi:10.33524/cjar.v21i2.494 · Cited by 4 · see citing works
Malka, M., & Grodofsky, M. M. (2021) · Social Work Education · doi:10.1080/02615479.2021.1989398 · Cited by 4 · see citing works
Building Capacity for Community-Based Research
Wood, L. A. (2022) · Palgrave studies in education research methods · doi:10.1007/978-3-030-86402-6_3 · Cited by 4 · see citing works
Yan, C. T. (2023) · Journal of the Society for Social Work and Research · doi:10.1086/725433 · Cited by 4 · see citing works
Katwyk, T. V., Wong, V., & Geiger, G. (2020) · Aotearoa New Zealand Social Work · doi:10.11157/anzswj-vol32iss4id801 · Cited by 4 · see citing works
Ajaps, S., & Mbah, M. F. (2022) · World sustainability series · doi:10.1007/978-3-031-12326-9_4 · Cited by 4 · see citing works
The Development of a Satellite Food Pantry Through Community-Based Participatory Action Research
Juris, J. J., Scrivano, R. M., Speidel, E., Bailey, L., & Jarrott, S. E. (2021) · International Journal of Research on Service-Learning and Community Engagement · doi:10.37333/001c.31304 · Cited by 4 · see citing works
Subrahmanyam, V. R., & Smith, E. M. R. (2025) · International Journal of Qualitative Methods · doi:10.1177/16094069251332428 · Cited by 3 · see citing works
Gardiner, H., Pettinger, C., Hunt, L., & Hickson, M. (2025) · International Journal of Social Research Methodology · doi:10.1080/13645579.2025.2537405 · Cited by 3 · see citing works
Participatory health research and promotion with migrant communities in Germany: a scoping review
Lanfer, H. L., Landwehr, J., & Reifegerste, D. (2025) · Frontiers in Public Health · doi:10.3389/fpubh.2025.1585178 · Cited by 3 · see citing works
Chen, K., & LOU, V. W. Q. (2023) · Qualitative Health Research · doi:10.1177/10497323231186102 · Cited by 3 · see citing works
Kanjilal, M., & Arnull, E. (2025) · Social Work Education · doi:10.1080/02615479.2025.2462554 · Cited by 3 · see citing works
Walsh, L., Hyett, N., Hewson, D., Howley, J., Juniper, N., Li, C., MacLeod-Smith, B. J., Rodier, S., & Hill, S. (2022) · International Journal of Qualitative Methods · doi:10.1177/16094069221132173 · Cited by 3 · see citing works
The Impact of Community Learning During a Participatory Nursing Research Project
Heemskerk, W. M., Renden, P. G., Warning, T. D., Wallner, C., Bussemaker, J., & Dikken, J. (2023) · The Journal of Continuing Education in Nursing · doi:10.3928/00220124-20230214-08 · Cited by 3 · see citing works
Participatory action research with Inuit societies: A scoping review
Hervé, C., Laneuville, P., & Lapointe, L. (2023) · Polar Record · doi:10.1017/s0032247423000128 · Cited by 3 · see citing works
Bell, S., den Berg, M. V., & Liboro, R. M. (2023) · Social Sciences · doi:10.3390/socsci12100543 · Cited by 3 · see citing works
Zabelski, S., Cascalheira, C. J., Shaw, T. J., Helminen, E. C., Messinger, A. M., Edwards, K. M., & Scheer, J. R. (2024) · Journal of Interpersonal Violence · doi:10.1177/08862605241265441 · Cited by 2 · see citing works
An introduction to conducting responsible and reproducible agricultural research
Ligowe, I. S., Joy, E. J. M., Manzeke-Kangara, M. G., Pino, L., Rivero, M. J., Devkota, M., Broadley, M. R., Haefele, S. M., & McGrath, S. P. (2024) · CABI Reviews · doi:10.1079/cabireviews.2024.0058 · Cited by 2 · see citing works
Reframing Citizen Participation: Turning Barriers into Guiding Enablers
Abernethy, P., Soini, K., Ommer, J., Artell, J. V., Tapiola, T., & Parodi, A. (2025) · Sustainability · doi:10.3390/su17198720 · Cited by 2 · see citing works
von Köppen, M. (2025) · International Journal of Qualitative Methods · doi:10.1177/16094069251399534 · Cited by 2 · see citing works
Adler, M. A., & Schlinzig, T. (2025) · Sociology · doi:10.1177/00380385251392373 · Cited by 2 · see citing works
Turin, T. C., Chowdhury, N. A., Raihan, M. M. H., Masiclat, R., Rahman, N., & Rumana, N. (2026) · BMC Global and Public Health · doi:10.1186/s44263-026-00298-3 · Cited by 2 · see citing works
Ethical Issues in Community-Based, Participatory, and Action-Oriented Forms of Research
Guţă, A., & Voronka, J. (2019) · Springer eBooks · doi:10.1007/978-3-319-76040-7_24-1 · Cited by 2 · see citing works
Data Decisions and Ethics: The Case of Stakeholder-Engaged Research
Goodman, M. S., Pierce, K. A., DuBois, J. M., & Thompson, V. L. S. (2023) · Philosophy and medicine · doi:10.1007/978-3-031-40379-8_16 · Cited by 2 · see citing works
An Evolving Ethical Framework for Patient and Community-Engaged Research
Mikesell, L. (2023) · Philosophy and medicine · doi:10.1007/978-3-031-40379-8_3 · Cited by 2 · see citing works
Hāpuku, A., Leahy, J., Ranabahu, N., Reid, K., Shahri, B., Yamit, T., Johnston, R., & Mathias, K. R. (2024) · Health & Social Care in the Community · doi:10.1155/2024/3835838 · Cited by 2 · see citing works
Kamlongera, M. I., Katenga-Kaunda, M. W., & Kamlongera, A. P. (2024) · Critical African Studies · doi:10.1080/21681392.2024.2433947 · Cited by 2 · see citing works
More, R. (2025) · Research Ethics · doi:10.1177/17470161251359788 · Cited by 2 · see citing works
- Authors
- Wilson, E., Kenny, A., & Dickson-Swift, V.
- Affiliations
- La Trobe University (AU)
- La Trobe University, Bendigo, Australia
- Corresponding author
- Wilson, Elena
- ORCID
- Kenny, Amanda
- Venue
- Qualitative Health Research
- Publisher
- SAGE Publications
- Published
- 2017-02-21
- Volume
- 28
- Issue
- 2
- Pages
- 189-199
- ISSN
- 1049-7323 (ISSN-L)
- 1552-7557
- OpenAlex
- W2589287067
- Cited by
- 148
- References
- 76
- Citations by year
- 2026: 13 · 2025: 26 · 2024: 13 · 2023: 20 · 2022: 17 · 2021: 20 · 2020: 19 · 2019: 10 · 2018: 9 · 2017: 1
- FWCI
- 1.88
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Qualitative Health Research (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Health Professions › General Health Professions › Community Health and Development
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Ethics in Clinical Research
- Social Sciences › Sociology and Political Science › Qualitative Research Methods and Ethics
- Keywords
- community-based participatory research, research ethics, ethical considerations, community participation
- MeSH terms
- Confidentiality, Cooperative Behavior, Humans, Power, Psychological, Reproducibility of Results, Qualitative Research, Internationality, Community-Based Participatory Research
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review
