Ethical Challenges in Community-Based Participatory Research: A Scoping Review

Using thematic analysis in psychology

Braun, V., & Clarke, V. (2006) · Qualitative Research in Psychology · doi:10.1191/1478088706qp063oa · Cited by 194,414

Scoping studies: towards a methodological framework

Arksey, H., & O'Malley, L. (2005) · International Journal of Social Research Methodology · doi:10.1080/1364557032000119616 · Cited by 36,742

Basics of Qualitative Research: Grounded Theory Procedures and Techniques

Long, D. R., Strauss, A., & Corbin, J. M. (1993) · Modern Language Journal · doi:10.2307/328955 · Cited by 17,625

Scoping studies: advancing the methodology

Levac, D., Colquhoun, H., & O'Brien, K. K. (2010) · Implementation Science · doi:10.1186/1748-5908-5-69 · Cited by 15,268

A typology of reviews: an analysis of 14 review types and associated methodologies

Grant, M. J., & Booth, A. (2009) · Health Information & Libraries Journal · doi:10.1111/j.1471-1842.2009.00848.x · Cited by 10,817

Untitled work

(2011) · Cited by 7,157

Action Research and Minority Problems

Lewin, K. (1946) · Journal of Social Issues · doi:10.1111/j.1540-4560.1946.tb02295.x · Cited by 6,554

A scoping review of scoping reviews: advancing the approach and enhancing the consistency

Pham, M. T., Rajić, A., Greig, J. D., Sargeant, J. M., Papadopoulos, A., & McEwen, S. A. (2014) · Research Synthesis Methods · doi:10.1002/jrsm.1123 · Cited by 3,078

Handbook of action research

Reason, P., & Bradbury, H. M. (2006) · Cited by 2,381

Methods For Community - Based Participatory Research For Health

Israel, B. A., & Satcher, D. S. (2013) · Cited by 2,128

Changing habits of mind: Seven concrete lessons for aspiring community-based researchers

Agner, J. (2025) · Journal of Occupational Science · doi:10.1080/14427591.2025.2501952 · Cited by 2

Is Refugee Health Equity Possible in the Context of Structural Oppression and Protracted Displacement?

Afifi, R., Nakkash, R. T., Hammad, S., Hajj, T. E., Makhoul, J., Abdulrahim, S., Mahfoud, Z. R., & Kanj, M. (2025) · Health Education & Behavior · doi:10.1177/10901981251358702 · Cited by 2

Adopting community-based research principles to enhance student learning.

Costigan, C. L. (2020) · Canadian Psychology/Psychologie canadienne · doi:10.1037/cap0000207 · Cited by 5

People first, preservation later: critical community engagement to activate dialogue-based archives

Han, Y. (2025) · Journal of Documentation · doi:10.1108/jd-09-2024-0210 · Cited by 1

The “Centering Justice” Symposium: A Call to Climate and Environmental Justice Centers Within Higher Education

Baptista, A. I., Lam, Y., Ramirez, J. S., Ventrella, J., & Austin, S. (2025) · Environmental Justice · doi:10.1089/env.2024.0083 · Cited by 1

Design and implementation of a Community Expert Group comprised of people with lived expertise of homelessness at an academic health research center: a program description and analysis of challenges

Yusuf, A. A., Hatfield, V., Pridham, K. F., Silva, G. D., Adams, R., Mergarten, D., Snooks, V., Crichlow, F., & Hwang, S. W. (2025) · Research Involvement and Engagement · doi:10.1186/s40900-025-00733-z · Cited by 1

Building trust to enhance community-engaged research and attain health equity

Jefferson, U. T., Litchman, M. L., Carpenter, J. G., Fritz, R., Covington, L. B., Campbell, G., Jones, L. M., Draughon, J. E., & Powell‐Cope, G. M. (2026) · Nursing Outlook · doi:10.1016/j.outlook.2026.102679 · Cited by 1

Machine Translation for Low-Resource Languages: a community-based participatory approach

Weeks, C. A. (2021) · Cited by 1

Meeting in the middle: experiences of citizenship in community-engaged psychosis research

Higgs, R., Liao, A., Windsor, T., & Ben‐David, S. (2023) · Journal of Public Mental Health · doi:10.1108/jpmh-10-2022-0103 · Cited by 1

Methodological development of the CBPR conceptual model in promoting partnership in a multidisciplinary paediatric care project in western China

He, L. (2024) · Asia Pacific Viewpoint · doi:10.1111/apv.12405 · Cited by 1

The Challenging Process of Developing an Antenatal Social Intervention for Parents From Culturally Diverse Backgrounds to Reduce Postnatal Distress: A Participatory Action Research Study

Isobel, S., Dixon, K., Tutt, A., Clay, B., & Lim‐Gibson, S. (2025) · Health Expectations · doi:10.1111/hex.70135 · Cited by 1

“So, This Is Actually Going to Somebody, Right?”: Critical Reflections on Participatory Planning, Implementation, and Evaluation of a Peer Support Group for Parents From Historically Marginalized Communities

Lovell, C. C., Richard, A., Sanchez, A., Smyth, J., Gubrium, A., & Valdez, E. S. (2025) · Qualitative Health Research · doi:10.1177/10497323251320521 · Cited by 1

Understanding ‘Community’ in Wildfire Research in High-Latitude Areas

Dong, F., Ford, J. D., & Sallu, S. M. (2025) · Fire · doi:10.3390/fire8060239 · Cited by 1

Meeting complexity with collaboration: a proposed conceptual framework for participatory community-based music therapy research in end of life-care

Schmid, W. (2018) · Qualitative Research in Medicine & Healthcare · doi:10.4081/qrmh.2018.7850 · Cited by 1

Empowering Skepticism: Neuroethics Engagement with Tibetan Buddhist Monastics

Sullivan, L. S. (2021) · Frontiers in Communication · doi:10.3389/fcomm.2021.777803 · Cited by 1

Heritage-led Planning for Rural Community Resilience: Terrace Landscapes in Peru

Bhattacharya, S. (2021) · The Atrium (University of Guelph) · Cited by 1

One Size Doesn’t Fit All: Methodological Reflections in Conducting Community-Based Behavioural Science Research to Tailor COVID-19 Vaccination Initiatives for Public Health Priority PopulationsPreprint

Fontaine, G., Smith, M. A., Langmuir, T., Mekki, K., Ghazal, H., Noad, E. E., Buchan, J. L., Dubey, V., Patey, A. M., McCleary, N., et al. (2024) · Research Square · doi:10.21203/rs.3.rs-3740639/v1 · Cited by 1

Addressing contemporary challenges in the Unified Code of Ethics for Health Educators

Johnson, S.-A. H., & Melendez, K. (2019) · Health Education Journal · doi:10.1177/0017896919888556

Perceptions of a community-based cooking skills and nutrition education class

Powell, M. C. (2020) · UTC Scholar (University of Tennessee at Chattanooga)

Contesting care: applying a critical social citizenship lens to care for trans children

MacAdams, A. (2020) · UVic’s Research and Learning Repository (University of Victoria)

Community-Based Research and Participatory Approaches in Support of SDG14

Gauthier, M. (2021) · Encyclopedia of the UN sustainable development goals · doi:10.1007/978-3-319-71064-8_155-1

Community-Based Research and Participatory Approaches in Support of SDG14

Gauthier, M. (2022) · Encyclopedia of the UN sustainable development goals · doi:10.1007/978-3-319-98536-7_155

Making of Compost Fertilizer through Waste Raw Materials for Water Spinach Plants in Polybag

Nasution, H., Saat, A., & Yusfaneti, Y. (2022) · Bulletin of Community Engagement · doi:10.51278/bce.v3i1.380

On the Misery of Bioethics

(2023) · Advances in medical education, research, and ethics (AMERE) book series · doi:10.4018/978-1-6684-4808-3.ch005

“That’s why you camp here”: An experiential analysis of access and inclusion in BC parks

Carr, M. (2023) · doi:10.24124/2023/59409

Transforming Sanitation and Hygiene Behaviour of Basic-Level Students Through Participatory Classroom Pedagogy in a Public School in Nepal

Devkota, G. P., Devkota, B., Pandey, M. K., & Maharjan, S. K. (2023) · Advances in educational marketing, administration, and leadership book series · doi:10.4018/979-8-3693-0607-9.ch010

Building trust in vulnerable and under-resourced communities: Ethical considerations in research

Tseng, T., & Li, M. (2023) · Elsevier eBooks · doi:10.1016/b978-0-323-95229-3.00007-7

Analyzing Data in Community-Based Research With Indigenous Communities

Giles, A. R., Stewart‐Withers, R., Hapeta, J., & Rynne, S. B. (2024) · Routledge eBooks · doi:10.4324/9781003430339-17

The Role of an Ethics Committee in Co-Produced Research: The Experience of The Disability Research on Independent Living and Learning (Drill) Project

Koslowski, A., Byrne, B., Gulland, J., & Scott, P. (2024) · Emerald Group Publishing Limited eBooks · doi:10.1108/s2398-601820240000011007

A Qualitative Study of the Ethics of Community Scientists’ Role in Environmental Health Research from the Perspective of Community Scientists and Institutional Review Board Staff

Baron, S., Cuervo, I., Wilets, I. F., Cruz, J., Gonzalez, A., Flores, D., & Harari, H. C. (2025) · Environmental Health Perspectives · doi:10.1289/ehp15824

A social web to stimulate interdisciplinary collaborations

Sharanowski, B. J., Maughan, H., Goodey, N. M., Meyer, W. K., Li‐Byarlay, H., Mayes, M. L., & Smith, K. N. (2025) · Integrative and Comparative Biology · doi:10.1093/icb/icaf033

Additional file 1 of Perceptions of mothers on child well-being, changes in everyday life and social sustainability: lessons learned from a community-based health promotion programme in Anuradhapura District, Sri Lanka

Guruge, N. D., Arhelger, A., & Abhayasinghe, K. M. P. W. (2022) · Figshare · doi:10.6084/m9.figshare.19766445

Additional file 2 of Perceptions of mothers on child well-being, changes in everyday life and social sustainability: lessons learned from a community-based health promotion programme in Anuradhapura District, Sri Lanka

Guruge, N. D., Arhelger, A., & Abhayasinghe, K. M. P. W. (2022) · Figshare · doi:10.6084/m9.figshare.19766448

Teaching and Learning Community-Based Participatory Research in an Underserved Neighborhood: Reflections on a Pedagogy for Graduate Sociology Courses

Adler, M. A., & Schlinzig, T. (2025) · Maryland Shared Open Access Repository (USMAI Consortium) · doi:10.13016/m2cvbv-ykj7

Tensions in empowerment- or community-based HIV prevention interventions: lessons learned from ETOILE, a collaborative France–US self-study project

Albritton, T., Gosselin, A., Coulibaly, K., Zouménou, I., Paige, M. Q., Matthews, D., Davis, C., Garard, C., & Frye, V. A. (2026) · Global Health Promotion · doi:10.1177/17579759251379463

Silent Sufferings of Sudanese Refugee Women in Egypt: An Advocacy for Global Protection

Adebayo, P. T. (2025) · International Relations and Diplomacy · doi:10.17265/2328-2134/2025.06.004

Ethical considerations for the use of administrative child welfare data in public health surveillance: A qualitative study

Houston, E. A. L., Ouédraogo, A. M., Fluke, J., Tonmyr, L., & Pollock, N. J. (2026) · Child Protection and Practice · doi:10.1016/j.chipro.2026.100299

Ethical aspects in scientific literature on participatory research approaches with older adults: a scoping review protocol

Serrat, R., Urbaniak, A., Groot, B. C., İkier, S., Yellon, T., YAYLAGÜL, N. K., Gerdina, O., Pihlainen, K., Wanka, A., Ozola, A., et al. (2016) · JBI Evidence Synthesis · doi:10.11124/jbies-25-00291

Beyond Good Intentions: Duty of Care and Accountability in Service Learning for Accessible and Inclusive Computing

Hermann, J. (2026) · Research on Equity and Sustained Participation in Engineering, Computing, and Technology (RESPECT) · doi:10.1145/3796496.3811787

From presence to participation: Ethical engagement in community advisory boards for drug use research

Brothers, S., Gonzales, C. M., & Gomez, C. A. (2026) · Social Science & Medicine · doi:10.1016/j.socscimed.2026.119507

Challenges in documenting South Africa’s oral traditions and indigenous languages

Sibeko, J., Mvanyashe, A., & Jacobs, V. (2026) · E-Journal of Humanities Arts and Social Sciences · doi:10.38159/ehass.2026778

Nêhiyaw Pimwêwêhêwêwin Kiskinohtamowin (Plains Cree knowledge gathering): a relational model for ethical community-based participatory research

Bruno, G., & Makokis, L. (2026) · International Journal of Social Research Methodology · doi:10.1080/13645579.2026.2730292

Relational Accountability as a Conflict Resolution Framework for Rebuilding Trust in Indigenous Research Partnerships

Hayward, A., Phanlouvong, A., Wiebe, S., Cyr, M., & Herrera, D. (2026) · Journal of Participatory Research Methods · doi:10.35844/001c.167165

Climate and (Im)mobility research: a systematic review of current trends and future directions

Lažetić, M., Hussein, R. A., & Preston, C. J. (2026) · Population and Environment · doi:10.1007/s11111-026-00535-9

Sowing community, harvesting change: community gardening and collective social reproduction in London, UK

Vogelsanger, S. (2026) · Gender Place & Culture · doi:10.1080/0966369x.2026.2728059

Employing Implementation Science to Move from Paper to Practice

Stern, J., Buscemi-Kimmins, T., & Pappalardo, A. A. (2026) · Immunology and Allergy Clinics of North America · doi:10.1016/j.iac.2026.08.012

Navigating Ethical Dilemmas without a Road Map

Sapra, S., & Aggarwal, A. (2024) · Emerald Group Publishing Limited eBooks · doi:10.1108/979-8-88730-864-720251015

Ethical challenges of community based participatory research: exploring researchers’ experience

Wilson, E., Kenny, A. J., & Dickson‐Swift, V. (2017) · International Journal of Social Research Methodology · doi:10.1080/13645579.2017.1296714 · Cited by 67

Ethical challenges experienced by researchers in community-based participatory research

Wilson, E., Kenny, A. J., & Dickson‐Swift, V. (2020) · European Journal of Public Health · doi:10.1093/eurpub/ckaa165.803 · Cited by 1

Ethical Considerations of Community-based Participatory Research: Contextual Underpinnings for Developing Countries.

Jamshidi, E., Morasae, E. K., Shahandeh, K., Majdzadeh, R., Seydali, E., Aramesh, K., & Loori, N. (2014) · PubMed Central · Cited by 25

Ethical Issues in Conducting Community-Based Participatory Research: A Narrative Review of the Literature

Kwan, C., & Walsh, C. A. (2018) · The Qualitative Report · doi:10.46743/2160-3715/2018.3331 · Cited by 47

Ethical Community-Engaged Research: A Literature Review

Mikesell, L., Bromley, E., & Khodyakov, D. (2013) · American Journal of Public Health · doi:10.2105/ajph.2013.301605 · Cited by 267