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Ethical Challenges in Community-Based Participatory Research: A Scoping Review

Wilson, Elena, Kenny, Amanda, Dickson-Swift, Virginia·2018·Qualitative Health Research

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Abstract

Ethical challenges in community-based participatory research (CBPR) are of increasing interest to researchers; however, it is not known how widespread these challenges are or how extensively the topic has been explored. Using Arksey and O’Malley’s scoping review method, studies on ethical challenges in CBPR were mapped. Findings indicate that researchers continue to raise questions about ethics associated with CBPR. Our purpose in this article is to present a thematic summary of international ethical challenges as a guide for researchers interested in community participatory approaches and to better prepare them for qualitative health research with communities.

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Using thematic analysis in psychology
Braun, V., & Clarke, V. (2006) · Qualitative Research in Psychology · doi:10.1191/1478088706qp063oa · Cited by 194,414
Scoping studies: towards a methodological framework
Arksey, H., & O'Malley, L. (2005) · International Journal of Social Research Methodology · doi:10.1080/1364557032000119616 · Cited by 36,742
Basics of Qualitative Research: Grounded Theory Procedures and Techniques
Long, D. R., Strauss, A., & Corbin, J. M. (1993) · Modern Language Journal · doi:10.2307/328955 · Cited by 17,625
Scoping studies: advancing the methodology
Levac, D., Colquhoun, H., & O'Brien, K. K. (2010) · Implementation Science · doi:10.1186/1748-5908-5-69 · Cited by 15,268
A typology of reviews: an analysis of 14 review types and associated methodologies
Grant, M. J., & Booth, A. (2009) · Health Information & Libraries Journal · doi:10.1111/j.1471-1842.2009.00848.x · Cited by 10,817
Untitled work
(2011) · Cited by 7,157
Action Research and Minority Problems
Lewin, K. (1946) · Journal of Social Issues · doi:10.1111/j.1540-4560.1946.tb02295.x · Cited by 6,554
A scoping review of scoping reviews: advancing the approach and enhancing the consistency
Pham, M. T., Rajić, A., Greig, J. D., Sargeant, J. M., Papadopoulos, A., & McEwen, S. A. (2014) · Research Synthesis Methods · doi:10.1002/jrsm.1123 · Cited by 3,078
Handbook of action research
Reason, P., & Bradbury, H. M. (2006) · Cited by 2,381
Methods For Community - Based Participatory Research For Health
Israel, B. A., & Satcher, D. S. (2013) · Cited by 2,128

Show all 76 references

Research works printed but not linked: 12

Albert Einstein College of Medicine, The Bronx Health Link, & Community-Campus Partnerships for Health (2012). Community IRBs and research review boards: Shaping the future of community-engaged research.
Blake M. K., 2007, ACME, 6, 411
Cahill C., 2007, ACME, 6, 360
Critical Appraisal Skills Programme. (2014). CASP Checklists. Oxford, UK: Author. Retrieved from http://media.wix.com/ugd/dded87_29c5b002d99342f788c6ac670e49f274.pdf
Flicker S., 2012, Canadian Journal of Public Health/Revue Canadienne de Sante Publique, 103, 19
Freire P., 1970, Pedagogy of the oppressed
Habermas J., 1974, Theory and practice
Israel B. A., 2005, Methods in community-based participatory research for health
Israel B. A., 2005, Methods for community-based participatory research for health
Jamshidi E., 2014, International Journal of Preventive Medicine, 5, 1328
10.2105/AJPH.2012.301605 · DOI
Walsh C. A., 2008, Qualitative Report, 13, 379

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Authors: Wilson, E., Kenny, A., & Dickson-Swift, V.
Affiliations: La Trobe University (AU)
La Trobe University, Bendigo, Australia
Corresponding author: Wilson, Elena
ORCID: Kenny, Amanda
Venue: Qualitative Health Research
Publisher: SAGE Publications
Published: 2017-02-21
Volume: 28
Issue: 2
Pages: 189-199
ISSN: 1049-7323 (ISSN-L)
1552-7557
DOI: 10.1177/1049732317690721
OpenAlex: W2589287067
Cited by: 148
References: 76
Citations by year: 2026: 13 · 2025: 26 · 2024: 13 · 2023: 20 · 2022: 17 · 2021: 20 · 2020: 19 · 2019: 10 · 2018: 9 · 2017: 1
FWCI: 1.88
Type: journal article
Language: en
Open access: closed
Licence: journals.sagepub.com/page/policies/text-and-data-mining-license (tdm)
Locations: Qualitative Health Research (publishedVersion)
PubMed (publishedVersion)
Topics: Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Community Health and Development
Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Ethics in Clinical Research
Social Sciences › Sociology and Political Science › Qualitative Research Methods and Ethics
Keywords: community-based participatory research, research ethics, ethical considerations, community participation
MeSH terms: Confidentiality, Cooperative Behavior, Humans, Power, Psychological, Reproducibility of Results, Qualitative Research, Internationality, Community-Based Participatory Research

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Ethical Challenges in Community-Based Participatory Research: A Scoping Review

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