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Ethical Challenges in Community-Based Participatory Research: A Scoping Review

Wilson, Elena, Kenny, Amanda, Dickson-Swift, Virginia·2018·Qualitative Health Research

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Abstract

Ethical challenges in community-based participatory research (CBPR) are of increasing interest to researchers; however, it is not known how widespread these challenges are or how extensively the topic has been explored. Using Arksey and O’Malley’s scoping review method, studies on ethical challenges in CBPR were mapped. Findings indicate that researchers continue to raise questions about ethics associated with CBPR. Our purpose in this article is to present a thematic summary of international ethical challenges as a guide for researchers interested in community participatory approaches and to better prepare them for qualitative health research with communities.

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Basics of Qualitative Research: Grounded Theory Procedures and Techniques
Long, D. R., Strauss, A., & Corbin, J. M. (1993) · Modern Language Journal · doi:10.2307/328955 · Cited by 17,625
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Grant, M. J., & Booth, A. (2009) · Health Information & Libraries Journal · doi:10.1111/j.1471-1842.2009.00848.x · Cited by 10,817
Untitled work
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Action Research and Minority Problems
Lewin, K. (1946) · Journal of Social Issues · doi:10.1111/j.1540-4560.1946.tb02295.x · Cited by 6,554
A scoping review of scoping reviews: advancing the approach and enhancing the consistency
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Reason, P., & Bradbury, H. M. (2006) · Cited by 2,381
Methods For Community - Based Participatory Research For Health
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Data analysis in qualitative research
Thorne, S. (2000) · Evidence Based Nursing · doi:10.1136/ebn.3.3.68 · Cited by 1,431
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Jamshidi, E., Morasae, E. K., Shahandeh, K., Majdzadeh, R., Seydali, E., Aramesh, K., & Loori, N. (2014) · PubMed Central · Cited by 25
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DePalma, R. (2010) · International Journal of Research & Method in Education · doi:10.1080/1743727x.2010.511713 · Cited by 25
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Brydon‐Miller, M., & Society for Ethics Across the Curriculum (2012) · Teaching Ethics · doi:10.5840/tej201212223 · Cited by 24
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Schaffer, M. A. (2009) · Progress in community health partnerships · doi:10.1353/cpr.0.0053 · Cited by 24
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Coming to an ethics of research practice in a remote Aboriginal Australian community
Bainbridge, R. G., Tsey, K., Brown, C., McCalman, J., Cadet‐James, Y., Margolis, S., & Ypinazar, V. (2013) · Contemporary Nurse · doi:10.5172/conu.2013.46.1.18 · Cited by 19
Views of Academic and Community Partners Regarding Participant Protections and Research Integrity: A Pilot Focus Group Study
Anderson, E. E. (2013) · Journal of Empirical Research on Human Research Ethics · doi:10.1525/jer.2013.8.1.20 · Cited by 17
Using working agreements in participatory action research: working through moral problems with Malaysian students
Balakrishnan, V., & Cornforth, S. (2013) · Educational Action Research · doi:10.1080/09650792.2013.832347 · Cited by 17
Ethical Challenges and Lessons Learned from Inuulluataarneq — “Having the Good Life” Study: A Community-Based Participatory Research Project in Greenland
Rink, E., Montgomery-Andersen, R., Koch, A., Mulvad, G., & Gesink, D. (2013) · Journal of Empirical Research on Human Research Ethics · doi:10.1525/jer.2013.8.2.110 · Cited by 16
Ethical Challenges and Opportunities for Nurses in HIV and AIDS Community-Based Participatory Research in Jamaica
Davison, C., Kahwa, E., Edwards, N. C., Atkinson, U., Roelofs, S. M., Hepburn-Brown, C., Aiken, J., Dawkins, P. E., Rae, T., & MacFarlane, D. (2013) · Journal of Empirical Research on Human Research Ethics · doi:10.1525/jer.2013.8.1.55 · Cited by 14
An HIV Prevention Protocol Reviewed at 15 National Sites: How do Ethics Committees Protect Communities?
Deeds, B. G., Castillo, M., Beason, Z., Cunningham, S. D., Ellen, J. M., Peralta, L., & Interventions Adolescent Trials Network for HIV/AIDS (2008) · Journal of Empirical Research on Human Research Ethics · doi:10.1525/jer.2008.3.2.77 · Cited by 13
Messy Ethics: Conducting Moral Participatory Action Research in the Crucible of University–School Relations
Kuriloff, P. J., Andrus, S. H., & Ravitch, S. M. (2011) · Mind Brain and Education · doi:10.1111/j.1751-228x.2011.01110.x · Cited by 12
Ethical considerations related to participation and partnership: an investigation of stakeholders’ perceptions of an action-research project on user fee removal for the poorest in Burkina Faso
Hunt, M. R., Gogognon, P., & Ridde, V. (2014) · BMC Medical Ethics · doi:10.1186/1472-6939-15-13 · Cited by 12
Community-Based Participatory Research in Disaster Preparedness Among Linguistically Isolated Populations: A Public Health Perspective
Nepal, V., Banerjee, D., Slentz, M., Perry, M., & Scott, D. (2010) · Journal of Empirical Research on Human Research Ethics · doi:10.1525/jer.2010.5.4.53 · Cited by 11
Action Research in Inter-Organisational Networks: Impartial Studies or the Trojan Horse?
Goduscheit, R. C., Bergenholtz, C., Jørgensen, J. H., & Rasmussen, E. S. (2008) · Systemic Practice and Action Research · doi:10.1007/s11213-008-9096-6 · Cited by 10

Research works printed but not linked: 12

Albert Einstein College of Medicine, The Bronx Health Link, & Community-Campus Partnerships for Health (2012). Community IRBs and research review boards: Shaping the future of community-engaged research.
Blake M. K., 2007, ACME, 6, 411
Cahill C., 2007, ACME, 6, 360
Critical Appraisal Skills Programme. (2014). CASP Checklists. Oxford, UK: Author. Retrieved from http://media.wix.com/ugd/dded87_29c5b002d99342f788c6ac670e49f274.pdf
Flicker S., 2012, Canadian Journal of Public Health/Revue Canadienne de Sante Publique, 103, 19
Freire P., 1970, Pedagogy of the oppressed
Habermas J., 1974, Theory and practice
Israel B. A., 2005, Methods in community-based participatory research for health
Israel B. A., 2005, Methods for community-based participatory research for health
Jamshidi E., 2014, International Journal of Preventive Medicine, 5, 1328
10.2105/AJPH.2012.301605 · DOI
Walsh C. A., 2008, Qualitative Report, 13, 379

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A review of reviews on principles, strategies, outcomes and impacts of research partnerships approaches: a first step in synthesising the research partnership literature
Panel, S. G. P. C., Hoekstra, F., Mrklas, K., Khan, M., McKay, R. C., Vis‐Dunbar, M., Sibley, K. M., Nguyen, T., Graham, I. D., & Gainforth, H. L. (2020) · Health Research Policy and Systems · doi:10.1186/s12961-020-0544-9 · Cited by 365
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Ortiz, K. S., Nash, J. L., Shea, L., OETZEL, J. G., Garoutte, J., Sanchez‐Youngman, S., & Wallerstein, N. B. (2020) · Annual Review of Public Health · doi:10.1146/annurev-publhealth-040119-094220 · Cited by 224
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Groot, B. C., Vink, M., Haveman, A., Huberts, M., Schout, G., & Abma, T. (2018) · Educational Action Research · doi:10.1080/09650792.2018.1450771 · Cited by 90

See all 148

Authors: Wilson, E., Kenny, A., & Dickson-Swift, V.
Affiliations: La Trobe University (AU)
La Trobe University, Bendigo, Australia
Corresponding author: Wilson, Elena
ORCID: Kenny, Amanda
Venue: Qualitative Health Research
Publisher: SAGE Publications
Published: 2017-02-21
Volume: 28
Issue: 2
Pages: 189-199
ISSN: 1049-7323 (ISSN-L)
1552-7557
DOI: 10.1177/1049732317690721
OpenAlex: W2589287067
Cited by: 148
References: 76
Citations by year: 2026: 13 · 2025: 26 · 2024: 13 · 2023: 20 · 2022: 17 · 2021: 20 · 2020: 19 · 2019: 10 · 2018: 9 · 2017: 1
FWCI: 1.88
Type: journal article
Language: en
Open access: closed
Licence: journals.sagepub.com/page/policies/text-and-data-mining-license (tdm)
Locations: Qualitative Health Research (publishedVersion)
PubMed (publishedVersion)
Topics: Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Community Health and Development
Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Ethics in Clinical Research
Social Sciences › Sociology and Political Science › Qualitative Research Methods and Ethics
Keywords: community-based participatory research, research ethics, ethical considerations, community participation
MeSH terms: Confidentiality, Cooperative Behavior, Humans, Power, Psychological, Reproducibility of Results, Qualitative Research, Internationality, Community-Based Participatory Research

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Ethical Challenges in Community-Based Participatory Research: A Scoping Review

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