Prevalence and Predictors of Distress, Anxiety, Depression, and Quality of Life in Bereaved Family Caregivers of Patients with Advanced Cancer
Abstract
OBJECTIVE: To investigate prevalence and predictors of postloss distress, depressive and anxiety symptoms, and quality of life among bereaved family caregivers of patients with advanced cancer. METHODS: Prospective multicenter study. Family caregivers (N = 160, mean age 56.8 years, 66% female) completed validated outcome measures (Distress Thermometer, Generalized Anxiety Disorder 7-item scale, Patient Health Questionnaire depression module 9-item scale, SF-8 Health Survey Questionnaire) 6 months after patient's discharge or death at specialist inpatient palliative care ward. RESULTS: Clinically relevant distress was observed in 82% with sadness (89%), exhaustion (74%), sleeping problems (68%), loneliness (53%), and sorrows (52%) being the most common distress-causing problems. Moderate/severe anxiety and depressive symptoms were observed in 27% and 35%, respectively. Compared to an adjusted norm sample, quality of life was significantly impaired with exception of "bodily pain" and physical component score. Preloss caregiving (odds ratio [OR] 2.195) and higher preloss distress (OR 1.345) predicted high postloss distress. Utilization of psychosocial support services (OR 2.936) and higher preloss anxiety symptoms (OR 1.292) predicted moderate/severe anxiety symptoms, lower preloss physical quality of life (OR 0.952), and higher preloss depressive symptoms (OR 1.115) predicted moderate/severe depressive symptoms. CONCLUSION: Preloss mental burden showed to be a consistent predictor for postloss burden and should be addressed during palliative care. Future research should examine specific caregiver-directed interventions during specialist palliative care.
Integrity signals
Registry
Cites
Statistics
Claims the paper makes
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
Attachment theory has been deemed a crucial tool for understanding the grief reaction.
“In this regard, attachment theory has been deemed as a crucial tool for understanding the grief reaction insofar as the loss of a loved one may potentially have negative effects on the attachment system of the mourner [7].”
Cites
The PHQ-9: Validity of a brief depression severity measure
Kroenke, K., Spitzer, R. L., & Williams, J. B. W. (2001) · Journal of General Internal Medicine · doi:10.1046/j.1525-1497.2001.016009606.x · Cited by 44,910 · see citing works
A Brief Measure for Assessing Generalized Anxiety Disorder: The GAD-7
Spitzer, R. L., Kroenke, K., Williams, J. B. W., & Löwe, B. (2006) · Archives of Internal Medicine · doi:10.1001/archinte.166.10.1092 · Cited by 31,765 · see citing works
von Elm, E., Altman, D. G., Egger, M., Pocock, S. J., Gøtzsche, P. C., & Vandenbroucke, J. P. (2008) · Journal of Clinical Epidemiology · doi:10.1016/j.jclinepi.2007.11.008 · Cited by 17,893 · see citing works
Löwe, B., Decker, O., Müller, S., Brähler, E., Schellberg, D., Herzog, W., & Herzberg, P. Y. (2008) · Medical Care · doi:10.1097/mlr.0b013e318160d093 · Cited by 4,527 · see citing works
National Cancer Control Programmes, Policies and Managerial Guidelines
Ezzat, A. A. (1996) · Annals of Saudi Medicine · doi:10.5144/0256-4947.1996.358b · Cited by 1,271 · see citing works
Kocalevent, R.-D., Hinz, A., & Brähler, E. (2013) · General Hospital Psychiatry · doi:10.1016/j.genhosppsych.2013.04.006 · Cited by 748 · see citing works
Distress Management Clinical Practice Guidelines in Oncology
(2003) · Journal of the National Comprehensive Cancer Network · doi:10.6004/jnccn.2003.0031 · Cited by 506 · see citing works
Social Support, Negative Life Events and Mental Health
Dalgard, O. S., Bj⊘rk, S., & Tambs, K. (1995) · The British Journal of Psychiatry · doi:10.1192/bjp.166.1.29 · Cited by 413 · see citing works
Mindestindikatorensatz zur Erfassung des Migrationsstatus
Schenk, L., Bau, A.-M., Borde, T., Butler, J., Lampert, T., Neuhauser, H. K., Razum, O., & Weilandt, C. (2006) · Bundesgesundheitsblatt - Gesundheitsforschung - Gesundheitsschutz · doi:10.1007/s00103-006-0018-4 · Cited by 300 · see citing works
Ullrich, A., Ascherfeld, L., Marx, G., Bokemeyer, C., Bergelt, C., & Oechsle, K. (2017) · BMC Palliative Care · doi:10.1186/s12904-017-0206-z · Cited by 215 · see citing works
Self-citationWilliams, A.-L., & McCorkle, R. (2011) · Palliative & Supportive Care · doi:10.1017/s1478951511000265 · Cited by 193 · see citing works
Family Caregivers and Palliative Care: Current Status and Agenda for the Future
Hudson, P., & Payne, S. A. (2011) · Journal of Palliative Medicine · doi:10.1089/jpm.2010.0413 · Cited by 187 · see citing works
Schenk, L., Bau, A.-M., Borde, T., Butler, J., Lampert, T., Neuhauser, H. K., Razum, O., & Weilandt, C. (2006) · Publication server of the Robert Koch Institute (Robert Kock Institute) · doi:10.25646/986 · Cited by 181 · see citing works
Götze, H., Brähler, E., Gansera, L., Schnabel, A., Gottschalk-Fleischer, A., & Köhler, N. (2018) · European Journal of Cancer Care · doi:10.1111/ecc.12606 · Cited by 163 · see citing works
Screening cancer patients' families with the distress thermometer (DT): a validation study
Zwahlen, D., Hagenbuch, N., Carley, M. I., Recklitis, C. J., & Büchi, S. (2008) · Psycho-Oncology · doi:10.1002/pon.1320 · Cited by 158 · see citing works
Aoun, S. M., Rumbold, B. D., Howting, D. A., Bolleter, A., & Breen, L. J. (2017) · PLoS ONE · doi:10.1371/journal.pone.0184750 · Cited by 150 · see citing works
Tsai, W.-I., Prigerson, H. G., Li, C., Chou, W., Kuo, S., & Tang, S. T. (2015) · Palliative Medicine · doi:10.1177/0269216315603261 · Cited by 107 · see citing works
Yamaguchi, T., Maeda, I., Hatano, Y., Mori, M., Shima, Y., Tsuneto, S., Kizawa, Y., Morita, T., Yamaguchi, T., Aoyama, M., et al. (2017) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2017.03.008 · Cited by 102 · see citing works
Grande, G., Austin, L., Ewing, G., O’Leary, N., & Roberts, C. (2015) · BMJ Supportive & Palliative Care · doi:10.1136/bmjspcare-2014-000829 · Cited by 90 · see citing works
Reliability testing of the FAMCARE-2 scale: measuring family carer satisfaction with palliative care
Aoun, S. M., Bird, S., Kristjanson, L. J., & Currow, D. C. (2010) · Palliative Medicine · doi:10.1177/0269216310373166 · Cited by 83 · see citing works
Messung der gesundheitsbezogenen Lebensqualität mit dem SF-8
Beierlein, V., Morfeld, M., Bergelt, C., Bullinger, M., & Brähler, E. (2012) · Diagnostica · doi:10.1026/0012-1924/a000068 · Cited by 80 · see citing works
Self-citationHalkett, G. K. B., Lobb, E. A., Shaw, T., Sinclair, M., Miller, L., Hovey, E. J., & Nowak, A. K. (2016) · Supportive Care in Cancer · doi:10.1007/s00520-016-3478-6 · Cited by 77 · see citing works
Rosenberger, C., Höcker, A., Cartus, M., Schulz‐Kindermann, F., Härter, M. C., & Mehnert, A. (2012) · PPmP - Psychotherapie · Psychosomatik · Medizinische Psychologie · doi:10.1055/s-0032-1304994 · Cited by 56 · see citing works
Yamamoto, S., Arao, H., Masutani, E., Aoki, M., Kishino, M., Morita, T., Shima, Y., Kizawa, Y., Tsuneto, S., Aoyama, M., et al. (2017) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2016.12.348 · Cited by 51 · see citing works
Shiozaki, M., Hirai, K., Dohke, R., Morita, T., Miyashita, M., Sato, K., Tsuneto, S., Shima, Y., & Uchitomi, Y. (2007) · Psycho-Oncology · doi:10.1002/pon.1312 · Cited by 39 · see citing works
Kuo, S., Chou, W., Chen, J., Chang, W., Chiang, M.-C., Hou, M., & Tang, S. T. (2016) · Journal of Palliative Medicine · doi:10.1089/jpm.2016.0116 · Cited by 30 · see citing works
Hatano, Y., Aoyama, M., Morita, T., Yamaguchi, T., Maeda, I., Kizawa, Y., Tsuneto, S., Shima, Y., & Miyashita, M. (2017) · Psycho-Oncology · doi:10.1002/pon.4412 · Cited by 30 · see citing works
Depressive symptoms predict cancer caregivers' physical health decline
Shaffer, K. M., Kim, Y., Carver, C. S., & Cannady, R. (2017) · Cancer · doi:10.1002/cncr.30835 · Cited by 27 · see citing works
Mori, M., Yoshida, S., Shiozaki, M., Morita, T., Baba, M., Aoyama, M., Kizawa, Y., Tsuneto, S., Shima, Y., & Miyashita, M. (2017) · Journal of Palliative Medicine · doi:10.1089/jpm.2017.0267 · Cited by 25 · see citing works
Lai, C., Luciani, M., Galli, F., Morelli, E., Moriconi, F., Penco, I., Aceto, P., & Lombardo, L. (2016) · Journal of Mental Health · doi:10.3109/09638237.2016.1167855 · Cited by 18 · see citing works
Sewtz, C., Muscheites, W., Kriesen, U., Große-Thie, C., Kragl, B., Panse, J., Aoun, S. M., Cella, D. F., & Junghanß, C. (2018) · Annals of Palliative Medicine · doi:10.21037/apm.2018.03.17 · Cited by 17 · see citing works
Caregiver characteristics and bereavement needs: Findings from a population study
DiGiacomo, M. L., Hatano, Y., Phillips, J. L., Lewis, J. M., Abernethy, A. P., & Currow, D. C. (2016) · Palliative Medicine · doi:10.1177/0269216316663855 · Cited by 15 · see citing works
Perner, A., Köhler, N., Brähler, E., & Götze, H. (2012) · Zeitschrift für psychosomatische Medizin und Psychotherapie · doi:10.13109/zptm.2012.58.3.267 · Cited by 10 · see citing works
Heckel, M., Bussmann, S., Weber, M., Ostgathe, C., & Stiel, S. (2017) · Journal of Palliative Care · doi:10.1177/0825859717711319 · Cited by 4 · see citing works
Gottschalk-Fleischer, A., Köhler, N., Brähler, E., Mehnert, A., & Götze, H. (2017) · Das Gesundheitswesen · doi:10.1055/s-0043-102181 · Cited by 3 · see citing works
Flagged first, then by citations
Cited by
Sorted by citations
Caregiving burden, depression, and anxiety in family caregivers of patients with cancer
Unsar, S., Erol, O., & Ozdemir, O. (2021) · European Journal of Oncology Nursing · doi:10.1016/j.ejon.2020.101882 · Cited by 164 · see citing works
Understanding and supporting informal cancer caregivers
Molassiotis, A., & Wang, M. (2022) · Current Treatment Options in Oncology · doi:10.1007/s11864-022-00955-3 · Cited by 138 · see citing works
A systematic review of loneliness in bereavement: Current research and future directions
Vedder, A., Boerner, K., Stokes, J. E., Schut, H. A. W., Boelen, P. A., & Stroebe, M. (2021) · Current Opinion in Psychology · doi:10.1016/j.copsyc.2021.06.003 · Cited by 97 · see citing works
Cheng, D., Wang, X., Hu, J., Dai, L.-L., Lv, Y., Feng, H., Zhang, Y., Guo, Y. H., & Wang, L. (2021) · Chinese Journal of Integrative Medicine · doi:10.1007/s11655-021-3278-9 · Cited by 54 · see citing works
Self-citationSystematic review and meta-analysis of prevalence of depression among caregivers of cancer patients
Pan, Y.-C., & Lin, Y.-S. (2022) · Frontiers in Psychiatry · doi:10.3389/fpsyt.2022.817936 · Cited by 52 · see citing works
Psychological Distress in Bereaved Caregivers of Patients With Advanced Cancer
El-Jawahri, A. R., Greer, J. A., Park, E. R., Jackson, V. A., Kamdar, M. M., Rinaldi, S. P., Gallagher, E. R., Jagielo, A. D., Topping, C. E. W., Elyze, M., et al. (2020) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2020.08.028 · Cited by 49 · see citing works
Walbaum, C., Philipp, R., Oechsle, K., Ullrich, A., & Vehling, S. (2023) · Psycho-Oncology · doi:10.1002/pon.6239 · Cited by 40 · see citing works
Self-citationValero-Cantero, I., Martínez-Valero, F. J., Espinar-Toledo, M., Casals, C., Barón-López, F. J., & Vázquez‐Sánchez, M. Á. (2020) · BMC Palliative Care · doi:10.1186/s12904-020-00570-9 · Cited by 38 · see citing works
Social Determinants of Health and Symptom Burden During Cancer Treatment
Badger, T. A., Segrin, C. G., Crane, T. E., Chalasani, P., Arslan, W., Hadeed, M., & Sikorskii, A. E. (2022) · Nursing Research · doi:10.1097/nnr.0000000000000636 · Cited by 35 · see citing works
The influence of symptom severity of palliative care patients on their family caregivers
Valero-Cantero, I., Casals, C., Carrión‐Velasco, Y., Barón-López, F. J., Martínez-Valero, F. J., & Vázquez‐Sánchez, M. Á. (2022) · BMC Palliative Care · doi:10.1186/s12904-022-00918-3 · Cited by 35 · see citing works
Death Anxiety in Patients With Advanced Cancer and Their Family Caregivers
Walbaum, C., Philipp, R., Bokemeyer, C., Härter, M. C., Junghans, J., Koch, U., Oechsle, K., Schilling, G., & Vehling, S. (2024) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2024.08.027 · Cited by 34 · see citing works
Self-citationBadger, T. A., Segrin, C. G., Crane, T. E., Morrill, K. E., & Sikorskii, A. E. (2023) · Journal of Psychosocial Oncology · doi:10.1080/07347332.2023.2248486 · Cited by 25 · see citing works
Dealing with Family Conflicts in Decision-making in End-of-Life Care of Advanced Cancer Patients
Laryionava, K., & Winkler, E. C. (2021) · Current Oncology Reports · doi:10.1007/s11912-021-01122-x · Cited by 24 · see citing works
Valero-Cantero, I., Wärnberǵ, J., Carrión‐Velasco, Y., Martínez-Valero, F. J., Casals, C., & Vázquez‐Sánchez, M. Á. (2021) · European Journal of Oncology Nursing · doi:10.1016/j.ejon.2021.101907 · Cited by 22 · see citing works
Ongko, E., Philip, J. A. M., & Zomerdijk, N. (2023) · Palliative & Supportive Care · doi:10.1017/s1478951523001013 · Cited by 17 · see citing works
Oakley-Girvan, I., Davis, S. W., Kurian, A., Rosas, L. G., Daniels, J., Palesh, O. G., Mesia, R. J., Kamal, A. H., Longmire, M., & Divi, V. (2021) · JMIR Formative Research · doi:10.2196/22608 · Cited by 17 · see citing works
Loneliness in Bereavement: Measurement Matters
Vedder, A., Stroebe, M. S., Schut, H. A. W., Boerner, K., Stokes, J. E., & Boelen, P. A. (2021) · Frontiers in Psychology · doi:10.3389/fpsyg.2021.741762 · Cited by 17 · see citing works
DNVF-Memorandum Versorgungsforschung im letzten Lebensjahr
Kremeike, K., Bausewein, C., Freytag, A., Junghanß, C., Marx, G., Schnakenberg, R., Schneider, N., Schulz, H., Wedding, U., & Voltz, R. (2022) · Das Gesundheitswesen · doi:10.1055/a-1889-4705 · Cited by 16 · see citing works
Self-citationZhu, H., Lin, R., Wang, J., Ruan, S., Hu, T., Yan, L., Ke, X., & Luo, H.-Y. (2024) · BMJ Open · doi:10.1136/bmjopen-2022-071417 · Cited by 13 · see citing works
Caregiver Burden of Palliative Cancer Patients: A Cross-Cultural Perspective
Kılıçaslan, K., Küçükakgün, H., & ALİKAN, B. (2024) · Florence Nightingale Journal of Nursing · doi:10.5152/fnjn.2024.23058 · Cited by 12 · see citing works
Mohammadnezhad, G., Noqani, H., Rostamian, P., Sattarpour, M., & Arabloo, J. (2023) · European Journal of Clinical Pharmacology · doi:10.1007/s00228-023-03502-7 · Cited by 12 · see citing works
Starr, L. T., Washington, K. T., McPhillips, M., Pitzer, K., Demiris, G., & Oliver, D. P. (2022) · Palliative Medicine · doi:10.1177/02692163221122956 · Cited by 10 · see citing works
Hospice preference of the family decision-makers for cancer patients in China: an exploratory study
Yao, N., Chen, H., & Lai, X. (2022) · BMC Palliative Care · doi:10.1186/s12904-022-01112-1 · Cited by 11 · see citing works
Valero-Cantero, I., Casals, C., Espinar-Toledo, M., Barón-López, F. J., Soler, N. G., & Vázquez‐Sánchez, M. Á. (2023) · Healthcare · doi:10.3390/healthcare11141985 · Cited by 11 · see citing works
Denche-Zamorano, Á. M., Rodríguez-Redondo, Y., My works are correct, B. M. I. A. A. I. S. R. L. M. T. I. D. A.-M., Mendoza-Muñoz, M., Rojo-Ramos, J., García-Gordillo, M. Á., Adsuar, J. C., & Bermejo, L. M. (2023) · Healthcare · doi:10.3390/healthcare11070990 · Cited by 10 · see citing works
Lenzo, V., Sardella, A., Musetti, A., Petralia, M. C., Grado, I., & Quattropani, M. C. (2022) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph191911930 · Cited by 10 · see citing works
“In this regard, attachment theory has been deemed as a crucial tool for understanding the grief reaction insofar as the loss of a loved one may potentially have negative effects on the attachment system of the mourner [7].”
MethodPlace of care and death preferences among recently bereaved family members: a cross-sectional survey
O’Sullivan, A., Larsdotter, C., Sawatzky, R. G., Alvariza, A., Imberg, H., Cohen, J., & Öhlén, J. (2024) · BMJ Supportive & Palliative Care · doi:10.1136/spcare-2023-004697 · Cited by 9 · see citing works
Zhou, Y., Zhang, J., Pan, Y.-F., Dai, Y., Sun, Y., Xiao, Y., Tang, F.-Y., & Yu, Y. (2024) · Journal of Clinical Nursing · doi:10.1111/jocn.17548 · Cited by 8 · see citing works
Chen, H., Zou, T., Teng, Z., Qin, Y., Deng, Y., Wu, R., Huang, J., & Luo, Q. (2025) · Scientific Reports · doi:10.1038/s41598-025-23331-1 · Cited by 8 · see citing works
Matthys, O., Dierickx, S., Deliëns, L., Lapeire, L., Hudson, P., Audenhove, C. V., Vleminck, A. D., & Cohen, J. (2023) · Patient Education and Counseling · doi:10.1016/j.pec.2023.107654 · Cited by 8 · see citing works
Mohammadnezhad, G., Esmaily, H., Talebi, M., & Jafari, M. (2024) · Journal of Gastrointestinal Cancer · doi:10.1007/s12029-024-01038-2 · Cited by 8 · see citing works
Teo, I., Paramasivam, K., Chee, W. Y., Ng, C., Neo, P. S. H., & Lee, G. L. (2024) · Palliative and Supportive Care · doi:10.1017/s1478951523001670 · Cited by 7 · see citing works
Breivik, E., Ervik, B., & Kitzmüller, G. (2025) · International Journal of Circumpolar Health · doi:10.1080/22423982.2025.2507443 · Cited by 7 · see citing works
Lin, X., Chen, Z., Zhao, Q., & Zhou, X. (2024) · Asia-Pacific Journal of Oncology Nursing · doi:10.1016/j.apjon.2024.100480 · Cited by 7 · see citing works
Makinde, K. W., Pitzer, K., Benson, J. J., Mitchell, M., Oliver, D. P., Demiris, G., & Washington, K. T. (2024) · American Journal of Hospice and Palliative Medicine® · doi:10.1177/10499091241263016 · Cited by 7 · see citing works
Badger, T. A., Segrin, C., Crane, T. E., Chalasani, P., Arslan, W., Hadeed, M., Given, C. W., & Sikorskii, A. E. (2024) · Supportive Care in Cancer · doi:10.1007/s00520-024-08734-6 · Cited by 7 · see citing works
Takedomi, Y., Tabuchi, Y., Kumagai, Y., Sakamoto, M., Kosugi, T., Kanegae, S., Maezato, K., & Yakabe, S. (2021) · European Journal of Oncology Nursing · doi:10.1016/j.ejon.2021.102058 · Cited by 7 · see citing works
Wang, C., Bi, S., Lu, Y., Li, Y., Han, B., Xu, M., Meng, G., & Zhou, Q. (2024) · BMC Palliative Care · doi:10.1186/s12904-024-01475-7 · Cited by 6 · see citing works
Oechsle, K., Theißen, T., Heckel, M., Schwenzitzki, L., Ullrich, A., & Ostgathe, C. (2021) · DMW - Deutsche Medizinische Wochenschrift · doi:10.1055/a-1543-2511 · Cited by 6 · see citing works
Self-citationDallı, Ö. E., & Bulut, H. (2023) · Supportive Care in Cancer · doi:10.1007/s00520-023-08259-4 · Cited by 6 · see citing works
K., N. V. S. L., Rajkumar, E., Gopi, A., Hareesh, P. V., Romate, J., Lakshmı, R., & Abraham, J. (2024) · PLoS ONE · doi:10.1371/journal.pone.0300291 · Cited by 6 · see citing works
Wang, T., Kong, J., Chen, X., Yang, Y., Liu, D., Liu, T., & Li, L. (2025) · Asia-Pacific Journal of Oncology Nursing · doi:10.1016/j.apjon.2025.100719 · Cited by 5 · see citing works
Sun, H., Wacharasin, C., & Hengudomsub, P. (2023) · Journal of Psychosomatic Research · doi:10.1016/j.jpsychores.2023.111538 · Cited by 5 · see citing works
Reblin, M., Iacob, E., Tay, D. L., Li, H., Hebdon, M., Beck, A. C., Donaldson, G. W., Cloyes, K. G., & Ellington, L. (2022) · American Journal of Hospice and Palliative Medicine® · doi:10.1177/10499091221108119 · Cited by 5 · see citing works
Redefining caregiver strain for family caregivers in end-of-life care in Hong Kong
Chow, A. Y. M., Fordjour, G. A., Jiao, K., Jung, N., Chan, I. K. N., & Kuok, C. N. (2023) · Palliative & Supportive Care · doi:10.1017/s1478951523000020 · Cited by 5 · see citing works
The psychological burden of bereavement in the general population of UK and Ireland
Redican, E., Shevlin, M. E., Hyland, P., Murphy, J., Duffy, M., & Karatzias, T. (2024) · Death Studies · doi:10.1080/07481187.2024.2420877 · Cited by 4 · see citing works
Stone, M., McDonald, F. E. J., Kangas, M., Sherman, K. A., & Allison, K. R. (2024) · Palliative & Supportive Care · doi:10.1017/s1478951524000932 · Cited by 5 · see citing works
Kunz, R., Oechsle, K., Ullrich, A., Peng‐Keller, S., Stetter, B., Benkel, T., Meitzler, M., Monteverde, S., Rehsmann, J., Metzger, G. U., et al. (2022) · doi:10.53788/cast0001 · Cited by 3 · see citing works
Self-citationPérez-Núñez, P., O'Callaghan, C., López-Paz, J. F., de Lazcano, A. R., Rodríguez, A. A., & Amayra, I. (2024) · Frontiers in Psychology · doi:10.3389/fpsyg.2024.1334875 · Cited by 4 · see citing works
Chen, C. H., Chen, S. C., & Lee, H. J. (2025) · Journal of Nursing Research · doi:10.1097/jnr.0000000000000711 · Cited by 3 · see citing works
Death Literacy, Anxiety, and Uncertainty in Elderly’s Family Caregivers: A Cross-Sectional Study
Şahin, Z. A., Aydın, Ş., & Kına, V. (2025) · OMEGA - Journal of Death and Dying · doi:10.1177/00302228251346910 · Cited by 3 · see citing works
Malhotra, C., Chaudhry, I., Balasubramanian, I., & Teo, I. (2025) · Journal of the American Medical Directors Association · doi:10.1016/j.jamda.2025.105909 · Cited by 3 · see citing works
Şener, A., Kurtgöz, A., & Koç, Z. (2022) · Celal Bayar Üniversitesi Sağlık Bilimleri Enstitüsü Dergisi · doi:10.34087/cbusbed.974401 · Cited by 3 · see citing works
Grief reactions of family members after the death of cancer patients: a phenomenological study
Ghaljeh, M., Mardani‐Hamooleh, M., & Rezaee, N. (2022) · Oncology in Clinical Practice · doi:10.5603/ocp.2022.0014 · Cited by 3 · see citing works
García‐Torres, F., Jabłoński, M. J., Gómez-Solís, Á., Jaén‐Moreno, M. J., Moriana, J. A., Moreno‐Díaz, M. J., & Aranda, E. (2023) · Psychology Health & Medicine · doi:10.1080/13548506.2023.2208367 · Cited by 3 · see citing works
Noei, F. R., Atashi, V., & Ashouri, E. (2023) · The Journal of Mental Health Training Education and Practice · doi:10.1108/jmhtep-08-2022-0068 · Cited by 3 · see citing works
Neumann, J., Beckord, J., Hesse, S., Martin, C., Mons, C., Chur, D., Hense, J., Tewes, M., Teufel, M., & Skoda, E.-M. (2025) · Frontiers in Psychology · doi:10.3389/fpsyg.2024.1492219 · Cited by 2 · see citing works
Approaching Serious Illness Conversations in Amyotrophic Lateral Sclerosis Using Telehealth
Scirocco, E., Paganoni, S., & Brizzi, K. T. (2026) · Neurology Clinical Practice · doi:10.1212/cpj.0000000000200600 · Cited by 2 · see citing works
Rechenmacher, M. (2026) · Journal of Medical Ethics · doi:10.1136/jme-2026-111731 · Cited by 2 · see citing works
Najmi, K., Emami, H., Seifi, S., Khosravi, A., Ilbeigi, A., Mortezaee, V., Lookzadeh, S., Emami, M., Jamaati, H., & Velayati, A. A. (2022) · PubMed Central · Cited by 2 · see citing works
Roderick, Q., Kuil, K., Kunkler, E., Mondi, N., Rhode, A., & Moriello, G. (2023) · Rehabilitation Oncology · doi:10.1097/01.reo.0000000000000353 · Cited by 2 · see citing works
Home Caregivers of Elderly People: Perceptions and Quality of Life
Genaro, L. E., Marconato, J. V., Júnior, A. V., Saliba, T. A., & Rosell, F. L. (2025) · Geriatrics · doi:10.3390/geriatrics10030061 · Cited by 1 · see citing works
Chen, C. H., Chen, S. C., & Lee, H. J. (2025) · Supportive Care in Cancer · doi:10.1007/s00520-025-10057-z · Cited by 1 · see citing works
Rong, C., Zheng, L.-J., Zhang, Q. F., Cao, Y., Shen, S., Gao, Z.-Q., Wan, D., Shen, W.-W., Xu, C., & Wang, X. (2020) · Frontiers in Public Health · doi:10.3389/fpubh.2020.507785 · Cited by 1 · see citing works
Supporting Caregivers of Patients with Childhood Malignancies
Tsitsi, T., & Michail, K. A. (2023) · Springer eBooks · doi:10.1007/978-3-031-16745-4_9 · Cited by 1 · see citing works
Rosario-Ramos, L., Peña-Vargas, C., & Torres‐Blasco, N. (2023) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph20064996 · Cited by 1 · see citing works
Adelstein, K. E., & Archer‐Nanda, E. (2021) · Oxford University Press eBooks · doi:10.1093/med/9780197559321.003.0038 · Cited by 1 · see citing works
Yasui, N., Kawahara, T., & Yamazaki, A. (2024) · Home Health Care Management & Practice · doi:10.1177/10848223241268226 · Cited by 1 · see citing works
Quach, H., Lim‐Soh, J., Azman, N. D., & Malhotra, R. (2025) · Journal of Social Work in End-of-Life & Palliative Care · doi:10.1080/15524256.2025.2515843 · Cited by 1 · see citing works
Hospice preference among families with cancer patients in China: An exploratory studyPreprint
Yao, N., Hao, C. H. E. N., & Lai, X. B. (2022) · Research Square · doi:10.21203/rs.3.rs-1774952/v1 · Cited by 1 · see citing works
Psycho-Oncology Curriculum Needs Assessment in Postgraduate Education
Amani, O., & Sharbafchi, M. R. (2020) · International journal of body, mind and culture · doi:10.22122/ijbmc.v7i2.215
Distrés en el cuidador primario del paciente adulto con enfermedad oncológica avanzada
Sánchez-Román, S., Mejía-Castrejón, J., Montelongo-Niño, D., Barrientos-Casarrubias, V., Zavala, C. B., Alfaro-Espejel, I., Quiróz-Friedman, P., Pacheco-Arroyo, D., Lara-Solares, A., Cuevas, G. R., et al. (2020) · Latin American Journal of Clinical Sciences and Medical Technology · doi:10.34141/ljcs8421479
Valero-Cantero, I., Casals, C., Carrión‐Velasco, Y., Barón-López, F. J., Martínez-Valero, F. J., & Vázquez‐Sánchez, M. Á. (2021) · Research Square · doi:10.21203/rs.3.rs-923516/v1
Stalhandske, K. (2021) · doi:10.1093/med/9780197559321.003.0048
Palyatif Bakım Hastalarında Hasta Yakınlarının Bakım Yükü
Ersoy, S., Koç, Ş. Ö., & Özcan, F. (2023) · Özgür Yayınları eBooks · doi:10.58830/ozgur.pub249.c1180
Bahrami, M., Sebzari, A., & Nasiri, A. (2024) · Modern Care Journal · doi:10.5812/mcj-146988
Eggert, L., Drueke, B., Bremen, R., Geiser, F., Heier, L., Heuser-Loy, C., Karger, A., Klett, M. K., Ernstmann, N., Habel, U., et al. (2025) · Supportive Care in Cancer · doi:10.1007/s00520-025-09697-y
Demircioğlu, A., Güven, Z., Kabak, V. Y., Dağ, O., Düger, T., & Uysal, S. A. (2025) · Journal of Evaluation in Clinical Practice · doi:10.1111/jep.70184
Yılmaz, S., & Dalkiran, B. (2025) · Research Square · doi:10.21203/rs.3.rs-7906385/v1
Sapir, H., Gabay, G., Tikva, S. S., Zax, R. B., Friedlander, S. Y., Monas, L., Dadon, M., Kalman, T., Chawa, O., Ahmad, W. A., et al. (2025) · Patient Education and Counseling · doi:10.1016/j.pec.2025.109431
Yao, N., Chen, H., & Lai, X. (2024) · Figshare · doi:10.6084/m9.figshare.26554628
Yılmaz, S., & Dalkiran, B. (2026) · BMJ Supportive & Palliative Care · doi:10.1136/spcare-2026-006120
Toshishige, Y., Hasegawa, T., Tanaka, E., Aoyama, M., Mori, M., Morita, T., Tsuneto, S., Akechi, T., & Miyashita, M. (2026) · BMC Psychology · doi:10.1186/s40359-026-04687-z
Mitbetreuung von Angehörigen onkologischer Patient:innen
Oechsle, K., & Rechenmacher, M. (2026) · Die Onkologie · doi:10.1007/s00761-026-01978-3
Self-citationThe Challenges of Caregiving—Isn’t It Time We Stopped Just Admiring the Problem?
Walsh, L. E., Morrison, R. S., & Applebaum, A. J. (2026) · Journal of Palliative Medicine · doi:10.1177/10966218261474590
He, Y., Qu, C., Meng, L., Yin, G., Liu, C., Zhang, M., Ruoyuan, X., Zhang, X., & Ning, S. (2026) · Interdisciplinary Nursing Research · doi:10.1097/nr9.0000000000000133
Death anxiety in advanced cancer patients and family caregivers: A scoping review
Sun, Q., Yorke, J., Loong, H. H. F., Luo, H., Xuexun, X. I. A. O., Liu, Q., Mao, T., & Ho, K. Y. (2026) · European Journal of Oncology Nursing · doi:10.1016/j.ejon.2026.103334
- Authors
- Oechsle, K., Ullrich, A., Marx, G., Benze, G., Wowretzko, F., Zhang, Y., Dickel, L.-M., Heine, J., Wendt, K. N., Nauck, F., Bokemeyer, C., & Bergelt, C.
- Affiliations
- University Medical Center Hamburg-Eppendorf (DE)
- Universitätsmedizin Göttingen (DE)
- Department of Palliative Medicine, University Medical Center Goettingen, Goettingen, Germany
- Corresponding author
- Oechsle, Karin
- ORCID
- Venue
- American Journal of Hospice and Palliative Medicine®
- Publisher
- SAGE Publications
- Published
- 2019-10-09
- Volume
- 37
- Issue
- 3
- Pages
- 201-213
- ISSN
- 1049-9091 (ISSN-L)
- 1938-2715
- OpenAlex
- W2979427758
- Cited by
- 86
- References
- 35
- Citations by year
- 2026: 7 · 2025: 14 · 2024: 17 · 2023: 17 · 2022: 14 · 2021: 11 · 2020: 6
- FWCI
- 9.06
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- American Journal of Hospice and Palliative Medicine® (publishedVersion)
- PubMed (publishedVersion)
- Funders
- Hamburger Krebsgesellschaft e.V. (none)
- Topics
- Social Sciences › Psychology › Clinical Psychology › Grief, Bereavement, and Mental Health
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative and Oncologic Care
- Keywords
- family caregivers, advanced cancer, bereavement, caregiver anxiety, caregiver depression, quality of life, psychosocial support, palliative care, predictors of distress
- MeSH terms
- Adult, Aged, Aged, 80 and over, Anxiety Disorders, Depressive Disorder, Family, Female, Forecasting, Grief, Humans, Male, Middle Aged, Neoplasms, Prospective Studies, Quality of Life, Surveys and Questionnaires, Stress, Psychological, Prevalence, Caregivers
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review