A qualitative investigation into the maternal experience of having a young child with severe food allergy

Rouf, Khadj; White, Loretta; Evans, Kathryn

doi:10.1177/1359104511415636

Cited by 71Food Allergy and Anaphylaxis ResearchFamily and Disability Support ResearchChild Nutrition and Feeding Issues

A qualitative investigation into the maternal experience of having a young child with severe food allergy

Rouf, Khadj, White, Loretta, Evans, Kathryn·2012·Clinical Child Psychology and Psychiatry

DOI 10.1177/1359104511415636

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Abstract

BACKGROUND: Severe food allergy has potentially life threatening consequences. Despite the significant impact on quality of life for families affected by food allergy, there is still relatively little known about the psychosocial experience in this area, especially with regards to the parenting experience. OBJECTIVES: This study focused on the following areas of parental experience: (1) having a young child with severe food allergy; (2) perception of the effect of food allergy on family relationships; (3) managing the challenges associated with severe food allergy. METHODS: Eight mothers of children with severe food allergy completed semi-structured interviews. Interview transcripts were analysed using Interpretative Phenomenological Analysis (IPA), a qualitative methodology. RESULTS: Three superordinate themes emerged from the analysis: (1) Parental adjustment-re-establishing an "even keel"; (2) It's a big responsibility: Living with risk; (3) Identity and the social aspects of allergy. This article focuses on the most psychologically salient findings within each of these superordinate themes. CONCLUSION: Mothers in this study shared similar concerns to mothers of children with other chronic illnesses. It is recommended that the experience of allergy should be viewed in the wider family context with specific consideration given to parental coping and anxiety. Services could better meet the psychological and social needs of those affected by allergy.

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Parents of children with food allergy frequently manage uncertainty relating to their child's health.
“Parents of children with food allergy frequently manage uncertainty relating to their child's health, as illustrated in a qualitative study where parents described anxiety relating to the impossibility of completely controlling their child's exposure to food allergens (Rouf et al., 2012).”
From Parental Anxiety and Posttraumatic Stress Symptoms in Pediatric Food Allergy. (2021) · cites this paper as Rouf et al., 2012
The strong relationship between intolerance of uncertainty and mental health outcomes is in keeping with qualitative parent reports and the nature of food allergy, due to the impossibility of guaranteeing nonexposure to allergens.
“This finding is also in keeping with qualitative parent reports (e.g. Rouf et al., 2012) and the nature of food allergy, due to the impossibility of guaranteeing nonexposure to allergens.”
From Parental Anxiety and Posttraumatic Stress Symptoms in Pediatric Food Allergy. (2021) · cites this paper as Rouf et al., 2012

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A qualitative investigation into the parental experience of having a young child with severe food allergy
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Authors: Rouf, K., White, L., & Evans, K.
Affiliations: Oxford Health NHS Foundation Trust (GB)
John Radcliffe Hospital (GB)
University of Oxford (GB)
ORCID: Evans, Kathryn
Venue: Clinical Child Psychology and Psychiatry
Publisher: SAGE Publications
Published: 2011-08-18
Volume: 17
Issue: 1
Pages: 49-64
ISSN: 1359-1045 (ISSN-L)
1461-7021
DOI: 10.1177/1359104511415636
OpenAlex: W1975493877
Cited by: 71
References: 30
Citations by year: 2026: 1 · 2025: 4 · 2024: 5 · 2023: 3 · 2022: 4 · 2021: 12 · 2020: 7 · 2019: 8 · 2018: 2 · 2017: 4 · 2016: 6 · 2015: 4 · 2014: 3 · 2013: 5 · 2012: 1
FWCI: 2.38
Type: journal article
Language: en
Open access: closed
Licence: journals.sagepub.com/page/policies/text-and-data-mining-license (tdm)
Locations: Clinical Child Psychology and Psychiatry (publishedVersion)
PubMed (publishedVersion)
Topics: Health Sciences › Medicine › Immunology and Allergy › Food Allergy and Anaphylaxis Research
Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
Health Sciences › Medicine › Psychiatry and Mental health › Child Nutrition and Feeding Issues
Keywords: severe food allergy, maternal experience, parenting, mothers of children with chronic illness, family relationships, parental adjustment, living with risk, parental anxiety, parental coping, social identity, psychosocial impact
MeSH terms: Adaptation, Psychological, Adult, Child, Child, Preschool, Chronic Disease, Female, Food Hypersensitivity, Humans, Interview, Psychological, Male, Mothers, Risk, Severity of Illness Index, Social Adjustment, Qualitative Research

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A qualitative investigation into the maternal experience of having a young child with severe food allergy

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