The experiences and needs of female adults with high-functioning autism spectrum disorder
Open accessAbstract
There is limited large-scale research into the lived experiences of female adults who have an autism spectrum disorder with no co-occurring intellectual disability. Drawing on the findings of an Australia-wide survey, this report presents self-report data from n = 82 women with high-functioning autism spectrum disorder in the areas of health, education, employment, social and community activities. Where relevant, comparisons are provided with the male subset of the same study population; however, in the majority of analyses, no discernible gender differences emerged. The findings highlight the diverse and complex challenges faced by women with high-functioning autism spectrum disorder, including high levels of mental health disorder, unmet support needs in education settings and the workplace, and social exclusion and isolation.
Integrity signals
Registry
Cites
Statistics
Claims the paper makes
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
Many autistic adults report a need and desire for psychotherapy.
“and many autistic adults also report a need and desire for psychotherapy (Baldwin & Costley, 2016;Crane et al., 2019).”
From A mixed methods study of autistic adults' mental health therapy experiences (2023) · cites this paper as Baldwin & Costley, 2016
Cites
A behavioral comparison of male and female adults with high functioning autism spectrum conditions
Lai, M.-C., Lombardo, M. V., Pasco, G., Ruigrok, A. N. V., Wheelwright, S. J., Sadek, S. A., Chakrabarti, B., MRC AIMS Consortium, & Baron-Cohen, S. (2011) · PLoS ONE · doi:10.1371/journal.pone.0020835 · Cited by 650 · see citing works
Dworzynski, K., Ronald, A., Bolton, P., & Happé, F. (2012) · Journal of the American Academy of Child & Adolescent Psychiatry · doi:10.1016/j.jaac.2012.05.018 · Cited by 633 · cited 2× · see citing works
“In one revealing study, Dworzynski et al. (2012) showed that girls who scored highly on a screening test for autistic-like traits were less likely than equivalent scoring boys to meet clinical diagnostic criteria for ASD, especially in the absence of accompanying intellectual or behavioural…”
BackgroundMattila, M.-L., Kielinen, M., Linna, S.-L., Jussila, K., Ebeling, H., Bloigu, R., Joseph, R. M., & Moilanen, I. (2011) · Journal of the American Academy of Child & Adolescent Psychiatry · doi:10.1016/j.jaac.2011.04.001 · Cited by 373 · cited 1× · see citing works
“Epidemiological studies, which apply clinical diagnostic criteria to general population samples, have indicated that actual male to female ratios for ASD prevalence may be as low as 2.5:1 (Kim et al., 2011) or 1.8:1 (Mattila et al., 2011).”
BackgroundInfluentialAttenuation of Typical Sex Differences in 800 Adults with Autism vs. 3,900 Controls
Baron-Cohen, S., Cassidy, S., Auyeung, B., Allison, C., Achoukhi, M., Robertson, S., Pohl, A., & Lai, M.-C. (2014) · PLoS ONE · doi:10.1371/journal.pone.0102251 · Cited by 177 · see citing works
Flagged first, then by citations
Cited by
Sorted by citations
“Putting on My Best Normal”: Social Camouflaging in Adults with Autism Spectrum Conditions
Hull, L., Petrides, K. V., Allison, C., Smith, P., Baron-Cohen, S., Lai, M.-C., & Mandy, W. (2017) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-017-3166-5 · Cited by 1,365 · see citing works
Bargiela, S., Steward, R., & Mandy, W. (2016) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-016-2872-8 · Cited by 1,087 · see citing works
Sex differences in autism spectrum disorder: a review
Ferri, S. L., Abel, T., & Brodkin, E. S. (2018) · Current Psychiatry Reports · doi:10.1007/s11920-018-0874-2 · Cited by 392 · see citing works
Diagnosis of autism in adulthood: A scoping review
Huang, Y., Arnold, S. R., Foley, K.-R., & Trollor, J. N. (2020) · Autism · doi:10.1177/1362361320903128 · Cited by 289 · see citing works
“…IQ (Lehnhardt et al., 2016; Nydén et al., 2010; Wilson et al., 2016), executive function (Lehnhardt et al., 2016; Nydén et al., 2010), psychosocial functioning (Baldwin & Costley, 2016; E. Rydén & Bejerot, 2008) or mental illness (Geurts & Jansen, 2012; Russell et al., 2016; Wilson et al., 2016).”
BackgroundInfluentialA qualitative exploration of the female experience of autism spectrum disorder (ASD)
Milner, V., McIntosh, H., Colvert, E., & Happé, F. (2019) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-019-03906-4 · Cited by 262 · see citing works
Lawson, L. P., Richdale, A. L., Haschek, A., Flower, R. L., Vartuli, J., Arnold, S. R., & Trollor, J. N. (2020) · Autism · doi:10.1177/1362361320908107 · Cited by 138 · see citing works
Allely, C. S. (2019) · Advances in Autism · doi:10.1108/aia-09-2018-0036 · Cited by 123 · see citing works
Romualdez, A. M., Walker, Z., & Remington, A. (2021) · Autism & Developmental Language Impairments · doi:10.1177/23969415211022955 · Cited by 92 · see citing works
Sources and impact of occupational demands for autistic employees
Hayward, S. M., McVilly, K. R., & Stokes, M. A. (2020) · Research in Autism Spectrum Disorders · doi:10.1016/j.rasd.2020.101571 · Cited by 57 · see citing works
Current perspectives in autism spectrum disorder: from genes to therapy
Chahrour, M., O'Roak, B. J., Santini, E., Samaco, R. C., Kleiman, R. J., & Manzini, M. C. (2016) · The Journal of Neuroscience · doi:10.1523/jneurosci.2335-16.2016 · Cited by 54 · see citing works
The lived experience of autistic adults in employment: a systematic search and synthesis
Thorpe, D., McKinlay, M., Richards, J., Sang, K., & Stewart, M. E. (2024) · Autism in Adulthood · doi:10.1089/aut.2022.0114 · Cited by 43 · see citing works
A mixed methods study of autistic adults' mental health therapy experiences
Mazurek, M. O., Pappagianopoulos, J., Brunt, S., Sadikova, E., Nevill, R., Menezes, M., & Harkins, C. (2023) · Clinical Psychology & Psychotherapy · doi:10.1002/cpp.2835 · Cited by 33 · see citing works
- Authors
- Baldwin, S., & Costley, D.
- Affiliations
- Arthritis Australia (AU)
- Corresponding author
- Costley, Debra
- ORCID
- Costley, Debra
- Venue
- Autism
- Publisher
- SAGE Publications
- Published
- 2015-06-25
- Volume
- 20
- Issue
- 4
- Pages
- 483-495
- ISSN
- 1362-3613 (ISSN-L)
- 1461-7005
- OpenAlex
- W2279904543
- Cited by
- 248
- References
- 4
- Citations by year
- 2026: 20 · 2025: 25 · 2024: 28 · 2023: 29 · 2022: 39 · 2021: 34 · 2020: 14 · 2019: 26 · 2018: 16 · 2017: 11 · 2016: 6
- FWCI
- 6.60
- Type
- journal article
- Language
- en
- Open access
- Locations
- Autism (publishedVersion)
- PubMed (publishedVersion)
- Repository@Nottingham (University of Nottingham) (submittedVersion, cc-by)
- Nottingham ePrints (University of Nottingham) (submittedVersion, cc-by)
- Topics
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Social Sciences › Safety Research › Disability Education and Employment
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Keywords
- high-functioning autism, autistic women, lived experience, mental health, social exclusion, social isolation, employment, gender differences, support needs
- MeSH terms
- Autism Spectrum Disorder, Adolescent, Adult, Aged, Australia, Mental Disorders, Education, Employment, Female, Health Services, Health Services Needs and Demand, Humans, Middle Aged, Surveys and Questionnaires, Psychological Distance, Social Isolation, Social Support, Women, Young Adult, Self Report
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review