The DOI matches its Crossref record; 64 of the 64 references it cites were found in a registry or an index.
‘Something needs to change’: Mental health experiences of young autistic adults in England
Open accessAbstract
There is a high incidence and prevalence of mental health problems among young people, with several barriers to help-seeking noted in this group. High rates of mental health problems have also been reported in children and adults on the autism spectrum. Taken together, young autistic people may be a particularly vulnerable group when it comes to mental health. Yet, there has been remarkably little work on the mental health needs and experiences of young autistic adults (16–25 years). Adopting a community-based participatory research (CBPR) approach – in which academic researchers and young autistic adults collaborated in an equitable research partnership – we explored young autistic people’s experiences of mental health problems and their perspectives on the support they sought, if any, for these problems. A total of 130 young autistic adults took part in the research: 109 completed an online survey and 21 took part in detailed interviews. The results highlight how young autistic people find it difficult to evaluate their mental health, experience high levels of stigma and often face severe obstacles when trying to access mental health support. The findings also demonstrate how listening to – and learning from – young autistic people is crucial in ensuring that their mental health needs are met.
Overview
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Integrity signals
Registry
Cites
Statistics
Verification
Claims the paper makes
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
The source backs part of the claim, not all of it — or backs it for a different population, condition or comparison.
In the citing paper
“and many autistic adults also report a need and desire for psychotherapy (Baldwin & Costley, 2016;Crane et al., 2019).”
From A mixed methods study of autistic adults' mental health therapy experiences (2023) · cites this paper as Crane et al., 2019
Experimental — accuracy not yet measuredThe source backs part of the claim, not all of it — or backs it for a different population, condition or comparison.
In the citing paper
“However, autistic youth transitioning to adulthood are often reluctant to seek support for their mental health due to social stigma and uncertainty around where to go for care, often leading to the worsening of symptoms.”
From Tackling healthcare access barriers for individuals with autism from diagnosis to adulthood (2022) · cites this paper as [72]
Experimental — accuracy not yet measuredThe source backs part of the claim, not all of it — or backs it for a different population, condition or comparison.
In the citing paper
“Adult services struggle with providing adequate care for autistic adults (Anderson et al., 2022; Camm-Crosbie et al., 2019; Crane et al., 2019; Nicolaidis et al., 2015)”
From Mindfulness-based stress reduction for autistic adults: A feasibility study in an outpatient context. (2024) · cites this paper as Crane et al., 2019
Experimental — accuracy not yet measuredThe cited source says what the claim attributes to it.
In the citing paper
“yet access to mental healthcare and appropriate supports are lacking for many autistic adults (e.g. Crane et al., 2019).”
From Listening to the autistic voice: Mental health priorities to guide research and practice in autism from a stakeholder-driven project (2020) · cites this paper as Crane et al., 2019
Self-check
Percentages, sums and reported differences re-computed from the paper’s own numbers.
The self-check needs the paper’s full text.
Citations
Cites
Using thematic analysis in psychology
Braun, V., & Clarke, V. (2006) · Qualitative Research in Psychology · doi:10.1191/1478088706qp063oa · Cited by 194,414
(1988) · NFER-Nelson eBooks · Cited by 5,560
Skevington, S. M., Lotfy, M., & O'Connell, K. A. (2004) · Quality of Life Research · doi:10.1023/b:qure.0000018486.91360.00 · Cited by 4,686
Simonoff, E., Pickles, A., Charman, T., Chandler, S., Loucas, T., & Baird, G. (2008) · Journal of the American Academy of Child & Adolescent Psychiatry · doi:10.1097/chi.0b013e318179964f · Cited by 3,399
Gulliver, A., Griffiths, K. M., & Christensen, H. (2010) · BMC Psychiatry · doi:10.1186/1471-244x-10-113 · Cited by 3,292
Mental health of young people: A global public-health challenge
Patel, V., Flisher, A. J., Hetrick, S., & McGorry, P. (2007) · The Lancet · doi:10.1016/s0140-6736(07)60368-7 · Cited by 3,126
Jorm, A. F., Korten, A. E., Jacomb, P. A., Christensen, H., Rodgers, B., & Pollitt, P. (1997) · Medical Journal of Australia · doi:10.5694/j.1326-5377.1997.tb140071.x · Cited by 2,585
Which terms should be used to describe autism? Perspectives from the UK autism community
Kenny, L., Hattersley, C., Molins, B., Buckley, C., Povey, C., & Pellicano, E. (2016) · Autism · doi:10.1177/1362361315588200 · Cited by 1,941
Self-citationComorbid psychiatric disorders in children with autism: interview development and rates of disorders
Leyfer, O. T., Folstein, S. E., Bacalman, S., Davis, N. O., Dinh, E., Morgan, J., Tager-Flusberg, H., & Lainhart, J. E. (2006) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-006-0123-0 · Cited by 1,637
Young People’s Help-Seeking for Mental Health Problems
Rickwood, D., Deane, F. P., Wilson, C. J., & Ciarrochi, J. (2005) · Australian e-Journal for the Advancement of Mental Health · doi:10.5172/jamh.4.3.218 · Cited by 1,619
Research works printed but not linked: 6
- Autistica, 2016, Top 10 Research Priorities
- Constantino JN, 2012, Social Responsiveness Scale–Second Edition (SRS-2)
- Kamp-Becker I, 2010, Psycho-Social Medicine, 7, Doc03
- Rickwood D, 2007, The Medical Journal of Australia, 187, s35
- Royal College of Psychiatrists, 2010, No Health without Public Mental Health: The Case for Action
- World Health Organization (WHO), 1996, WHOQOL-BREF: Introduction, Administration, Scoring and Generic Version of the Assessment: Field Trial Version
Cited by
Sorted by citations
Avoiding Ableist Language: Suggestions for Autism Researchers
Bottema-Beutel, K., Kapp, S. K., Lester, J. N., Sasson, N. J., & Hand, B. N. (2021) · Autism in Adulthood · doi:10.1089/aut.2020.0014 · Cited by 1,251
Making the future together: Shaping autism research through meaningful participation
Fletcher-Watson, S., Adams, J., Brook, K., Charman, T., Crane, L., Cusack, J., Leekam, S., Milton, D., Parr, J. R., & Pellicano, E. (2019) · Autism · doi:10.1177/1362361318786721 · Cited by 776
Self-citationNicolaidis, C., Raymaker, D., Kapp, S. K., Baggs, A., Ashkenazy, E., McDonald, K., Weiner, M., Maslak, J., Hunter, M., & Joyce, A. (2019) · Autism · doi:10.1177/1362361319830523 · Cited by 547
Camm-Crosbie, L., Bradley, L., Shaw, R., Baron-Cohen, S., & Cassidy, S. (2019) · Autism · doi:10.1177/1362361318816053 · Cited by 415
“, 2014); and autistic young adults (16–25 years) face challenges in accessing appropriate treatment for mental health problems (Crane et al., 2018).”
Leadbitter, K., Buckle, K. L., Ellis, C., & Dekker, M. (2021) · Frontiers in Psychology · doi:10.3389/fpsyg.2021.635690 · Cited by 417
Understanding Stigma in Autism: A Narrative Review and Theoretical Model
Turnock, A., Langley, K., & Jones, C. R. G. (2022) · Autism in Adulthood · doi:10.1089/aut.2021.0005 · Cited by 490
Tackling healthcare access barriers for individuals with autism from diagnosis to adulthood
Malik-Soni, N., Shaker, A., Luck, H., Mullin, A. E., Wiley, R. E., Lewis, M. E. S., Fuentes, J., & Frazier, T. W. (2022) · Pediatric Research · doi:10.1038/s41390-021-01465-y · Cited by 309
Benevides, T. W., Shore, S. M., Palmer, K., Duncan, P., Plank, A., Andresen, M.-L., Caplan, R., Cook, B., Gassner, D., Hector, B. L., et al. (2020) · Autism · doi:10.1177/1362361320908410 · Cited by 258
“Email: tbenevides@augusta.edu lacking for many autistic adults (e.g. Crane et al., 2019).”
BackgroundBeck, J. S., Lundwall, R. A., Gabrielsen, T., Cox, J. C., & South, M. (2020) · Autism · doi:10.1177/1362361320912147 · Cited by 224
Maddox, B. B., Crabbe, S., Beidas, R. S., Brookman-Frazee, L., Cannuscio, C. C., Miller, J. S., Nicolaidis, C., & Mandell, D. S. (2020) · Autism · doi:10.1177/1362361319882227 · Cited by 203
Adams, D., & Young, K. (2021) · Review Journal of Autism and Developmental Disorders · doi:10.1007/s40489-020-00226-7 · Cited by 179
Dwyer, P., Mineo, E., Mifsud, K., Lindholm, C., Gurba, A., & Waisman, T. C. (2023) · Autism in Adulthood · doi:10.1089/aut.2021.0042 · Cited by 164
van Kessel, R., Hrzic, R., O’Nuallain, E., Weir, E. M., Wong, B. L. H., Anderson, M., Baron‐Cohen, S., & Mossialos, E. A. (2021) · Journal of Medical Internet Research · doi:10.2196/33819 · Cited by 169
Brede, J., Cage, E., Trott, J., Palmer, L., Smith, A., Serpell, L., Mandy, W., & Russell, A. (2022) · Clinical Psychology Review · doi:10.1016/j.cpr.2022.102131 · Cited by 139
Au-Yeung, S. K., Bradley, L., Robertson, A. E., Shaw, R., Baron-Cohen, S., & Cassidy, S. (2019) · Autism · doi:10.1177/1362361318818167 · Cited by 136
Autistic adults’ views of their communication skills and needs
Cummins, C., Pellicano, E., & Crane, L. (2020) · International Journal of Language & Communication Disorders · doi:10.1111/1460-6984.12552 · Cited by 125
Self-citationParticipatory autism research: Early career and established researchers’ views and experiences
Pickard, H., Pellicano, E., den Houting, J., & Crane, L. (2021) · Autism · doi:10.1177/13623613211019594 · Cited by 139
Self-citationPellicano, E., Brett, S., den Houting, J., Heyworth, M., Magiati, I., Steward, R., Urbanowicz, A., & Stears, M. (2022) · Autism · doi:10.1177/13623613211035936 · Cited by 113
Self-citationCrane, L., Hearst, C., Ashworth, M., Davies, J., & Hill, E. L. (2020) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-020-04486-4 · Cited by 110
Self-citationCribb, S., Kenny, L., & Pellicano, E. (2019) · Autism · doi:10.1177/1362361319830029 · Cited by 103
Self-citationCassidy, S. A., Bradley, L., Bowen, E., Wigham, S., & Rodgers, J. (2018) · Clinical Psychology Review · doi:10.1016/j.cpr.2018.05.002 · Cited by 104
“Given that autistic adults have difficulty accessing psychiatric services due to lack of expertise and service provision for mental health in autism (Crane et al. 2018; Raja, 2014), suicidality assessment tools used in screening the general population in research and clinical practice will be…”
Babb, C., Brede, J., Jones, C. R. G., Elliott, M., Zanker, C. L., Tchanturia, K., Serpell, L., Mandy, W., & Fox, J. R. E. (2021) · Autism · doi:10.1177/1362361321991257 · Cited by 105
Inclusive Practices for Neurodevelopmental Research
Fletcher‐Watson, S., Brook, K., Hallett, S., Murray, F., & Crompton, C. J. (2021) · Current Developmental Disorders Reports · doi:10.1007/s40474-021-00227-z · Cited by 114
Halsall, J., Clarke, C., & Crane, L. (2021) · Autism · doi:10.1177/13623613211012819 · Cited by 101
Self-citationRepresentativeness of autistic samples in studies recruiting through social media
Rødgaard, E., Jensen, K. L., Miskowiak, K. W., & Mottron, L. (2022) · Autism Research · doi:10.1002/aur.2777 · Cited by 100
Pelton, M., Crawford, H., Robertson, A., Rodgers, J., Baron‐Cohen, S., & Cassidy, S. (2020) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-020-04393-8 · Cited by 119
Autistic adults have poorer quality healthcare and worse health based on self-report data
Weir, E. M., Allison, C. L., & Baron‐Cohen, S. (2022) · Molecular Autism · doi:10.1186/s13229-022-00501-w · Cited by 112
Strömberg, M., Liman, L., Bang, P., & Igelström, K. (2022) · Autism in Adulthood · doi:10.1089/aut.2020.0074 · Cited by 100
Gillespie-Lynch, K., Daou, N., Sanchez-Ruiz, M.-J., Kapp, S. K., Obeid, R., Brooks, P. J., Someki, F., Silton, N., & Abi-Habib, R. (2019) · Autism · doi:10.1177/1362361318823550 · Cited by 88
‘When my autism broke’: A qualitative study spotlighting autistic voices on menopause
Moseley, R. L., Druce, T., & Turner‐Cobb, J. M. (2020) · Autism · doi:10.1177/1362361319901184 · Cited by 91
Gender differences in mental health prevalence in autism
Sedgewick, F., Leppänen, J., & Tchanturia, K. (2020) · Advances in Autism · doi:10.1108/aia-01-2020-0007 · Cited by 108
Taylor, E., Livingston, L. A., Clutterbuck, R. A., Callan, M. J., & Shah, P. (2023) · Autism · doi:10.1177/13623613221146440 · Cited by 97
Sex Differences in Mental Health Problems and Psychiatric Hospitalization in Autistic Young Adults
Martini, M. I., Kuja‐Halkola, R., Butwicka, A., Rietz, E. D., D'Onofrio, B. M., Happe, F. G. E., Kanina, A., Larsson, H., Lundström, S., Martin, J., et al. (2022) · JAMA Psychiatry · doi:10.1001/jamapsychiatry.2022.3475 · Cited by 98
Participatory autism research: how consultation benefits everyone
Keating, C. T. (2021) · Frontiers in Psychology · doi:10.3389/fpsyg.2021.713982 · Cited by 85
Brice, S., Rodgers, J., Ingham, B., Mason, D., Wilson, C., Freeston, M. H., Couteur, A. S. L., & Parr, J. R. (2021) · BMJ Open · doi:10.1136/bmjopen-2020-043336 · Cited by 80
Linden, A., Best, L., Elise, F., Roberts, D., Branagan, A., Tay, Y. B. E., Crane, L., Cusack, J., Davidson, B., Davidson, I., et al. (2023) · Autism · doi:10.1177/13623613221117931 · Cited by 78
Self-citationCrane, L., Davidson, I. A., Prosser, R., & Pellicano, E. (2019) · BJPsych Open · doi:10.1192/bjo.2019.12 · Cited by 78
Self-citationMeasurement Properties of the Suicidal Behaviour Questionnaire-Revised in Autistic Adults
Cassidy, S., Bradley, L., Cogger-Ward, H., Shaw, R., Bowen, E., Glod, M., Baron‐Cohen, S., & Rodgers, J. (2020) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-020-04431-5 · Cited by 78
Considering the Autistic advantage in qualitative research: the strengths of Autistic researchers
Grant, A., & Kara, H. (2021) · Contemporary Social Science · doi:10.1080/21582041.2021.1998589 · Cited by 91
Harmens, M., Sedgewick, F., & Hobson, H. (2021) · Autism in Adulthood · doi:10.1089/aut.2021.0016 · Cited by 77
Pantazakos, T., & Vanaken, G.-J. (2023) · Frontiers in Psychology · doi:10.3389/fpsyg.2023.1225152 · Cited by 59
“Sometimes these encounters are even associated with counter-productive results as stigma and misunderstanding of autistic clients are still prevalent among practitioners (Crane et al., 2019).”
BackgroundOakley, B. F. M., Loth, E., & Murphy, D. (2021) · International Review of Psychiatry · doi:10.1080/09540261.2021.1872506 · Cited by 61
Colver, A. F., Rapley, T., Parr, J. R., McConachie, H., Dovey‐Pearce, G., Couteur, A. S. L., McDonagh, J. E. R., Bennett, C., Hislop, J., Maniatopoulos, G., et al. (2019) · Programme Grants for Applied Research · doi:10.3310/pgfar07040 · Cited by 53
Gray, L., Hill, V., & Pellicano, E. (2023) · Autism & Developmental Language Impairments · doi:10.1177/23969415231207816 · Cited by 62
Self-citationAutism, Discrimination and Masking: Disrupting a Recipe for Trauma
Cleary, M. L., West, S., Kornhaber, R. A., & Hungerford, C. L. (2023) · Issues in Mental Health Nursing · doi:10.1080/01612840.2023.2239916 · Cited by 61
Dow, D., Morgan, L., Hooker, J. L., Michaels, M. S., Joiner, T. E., Woods, J. J., & Wetherby, A. M. (2019) · Archives of Suicide Research · doi:10.1080/13811118.2019.1678537 · Cited by 52
Intensive Child‐Centered Play Therapy for Children on the Autism Spectrum: A Pilot Study
Schottelkorb, A. A., Swan, K. L., & Ogawa, Y. (2020) · Journal of Counseling & Development · doi:10.1002/jcad.12300 · Cited by 47
Scott, M. P., & Sedgewick, F. (2021) · Autism & Developmental Language Impairments · doi:10.1177/23969415211010419 · Cited by 61
Bundy, R., Mandy, W., Crane, L., Belcher, H., Bourne, L., Brede, J., Hull, L., Brinkert, J., & Cook, J. (2022) · Autism · doi:10.1177/13623613211065543 · Cited by 43
Self-citationPrevalence and Risk-Markers of Self-Harm in Autistic Children and Adults
Licence, L., Oliver, C., Moss, J., & Richards, C. (2020) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-019-04260-1 · Cited by 45
Sensory Sensitivity and Intolerance of Uncertainty Influence Anxiety in Autistic Adults
Normansell-Mossa, K. M., Top, D. N., Russell, N., Freeston, M., Rodgers, J., & South, M. (2021) · Frontiers in Psychology · doi:10.3389/fpsyg.2021.731753 · Cited by 45
A pilot study of dialectical behaviour therapy skills training for autistic adults
Ritschel, L., Guy, L., & Maddox, B. (2021) · Behavioural and Cognitive Psychotherapy · doi:10.1017/s1352465821000370 · Cited by 33
Barriers and Facilitators of Healthcare Access for Autistic Children in the UK: a Systematic Review
Babalola, T. T., Sanguedolce, G., Dipper, L. T., & Botting, N. (2024) · Review Journal of Autism and Developmental Disorders · doi:10.1007/s40489-023-00420-3 · Cited by 67
Investigating mental health crisis in youth with autism spectrum disorder
Vasa, R. A., Hagopian, L. P., & Kalb, L. G. (2019) · Autism Research · doi:10.1002/aur.2224 · Cited by 45
den Houting, J., Higgins, J. M., Isaacs, K., Mahony, J., & Pellicano, E. (2022) · Frontiers in Psychology · doi:10.3389/fpsyg.2022.876990 · Cited by 47
Self-citationJackson, L., Keville, S., & Ludlow, A. (2019) · Journal of Child and Family Studies · doi:10.1007/s10826-019-01662-8 · Cited by 48
Dreiling, N. G., Cook, M. L., Lamarche, E., & Klinger, L. G. (2022) · Autism · doi:10.1177/13623613211028000 · Cited by 41
Death by suicide among people with autism: beyond zebrafish.
South, M., Costa, A. P., & McMorris, C. (2021) · JAMA Network Open · doi:10.1001/jamanetworkopen.2020.34018 · Cited by 39
Verhulst, I., MacLennan, K., Haffey, A., & Tavassoli, T. (2022) · Autism in Adulthood · doi:10.1089/aut.2022.0018 · Cited by 39
Hobson, H., Linden, A. H., Crane, L., & Kalandadze, T. (2023) · Research in Autism · doi:10.1016/j.rasd.2023.102196 · Cited by 44
Self-citationLe Cunff, A.-L., Ellis Logan, P., Ford, R., Martis, B.-L., Mousset, I., Sekibo, J., Dommett, E., & Giampietro, V. (2023) · Journal of Participatory Research Methods · doi:10.35844/001c.66184 · Cited by 38
Bertilsdotter Rosqvist, H., & Jackson-Perry, D. (2021) · Sexuality and Disability · doi:10.1007/s11195-020-09624-5 · Cited by 36
Pellicano, E. (2020) · Journal of Child Psychology and Psychiatry · doi:10.1111/jcpp.13212 · Cited by 37
Self-citationExperiences of social isolation and loneliness in middle-aged and older autistic adults
Stewart, G. R., Luedecke, E., Mandy, W., Charlton, R. A., & Happe, F. G. E. (2024) · Neurodiversity · doi:10.1177/27546330241245529 · Cited by 45
Pavlopoulou, G., Usher, C., & Pearson, A. (2022) · British Journal of Developmental Psychology · doi:10.1111/bjdp.12424 · Cited by 41
Adams, D., Simpson, K., & Keen, D. (2019) · Autism Research · doi:10.1002/aur.2246 · Cited by 34
An integrated early care pathway for autism
Green, J., Leadbitter, K., Ainsworth, J. D., & Bucci, S. (2022) · The Lancet Child & Adolescent Health · doi:10.1016/s2352-4642(22)00037-2 · Cited by 35
High School Experiences and Support Recommendations of Autistic Youth
Bottema‐Beutel, K., Cuda, J., Kim, S. Y., Crowley, S., & Scanlon, D. J. (2019) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-019-04261-0 · Cited by 37
A mixed methods study of autistic adults' mental health therapy experiences
Mazurek, M. O., Pappagianopoulos, J., Brunt, S., Sadikova, E., Nevill, R., Menezes, M., & Harkins, C. (2023) · Clinical Psychology & Psychotherapy · doi:10.1002/cpp.2835 · Cited by 33
Gillespie‐Lynch, K., Dwyer, P. S. R., Constantino, C. D., Kapp, S. K., Hotez, E., Riccio, A., DeNigris, D., Kofner, B., & Endlich, E. (2020) · Emerald Group Publishing Limited eBooks · doi:10.1108/s1479-354720200000012013 · Cited by 33
Beresford, B., Mukherjee, S., Mayhew, E., Heavey, E., Park, A., Stuttard, L., Allgar, V. L., & Knapp, M. R. J. (2020) · Health Services and Delivery Research · doi:10.3310/hsdr08480 · Cited by 38
Field, S. L., Fox, J. R. E., Jones, C. R. G., & Williams, M. O. (2023) · Journal of Eating Disorders · doi:10.1186/s40337-023-00740-z · Cited by 34
Family accommodation of anxiety in a community sample of children on the autism spectrum
Adams, D., & Emerson, L. (2020) · Journal of Anxiety Disorders · doi:10.1016/j.janxdis.2020.102192 · Cited by 31
Living in autistic bodies: bloggers discuss movement control and arousal regulation
Welch, C., Cameron, D., Fitch, M. I., & Polatajko, H. J. (2020) · Disability and Rehabilitation · doi:10.1080/09638288.2020.1729872 · Cited by 30
Coleman-Fountain, E., Buckley, C., & Beresford, B. (2020) · The British journal of general practice : the journal of the Royal College of General Practitioners · doi:10.3399/bjgp20x709421 · Cited by 20
Zilli, C., Parsons, S., & Kovshoff, H. (2019) · British Journal of Educational Psychology · doi:10.1111/bjep.12331 · Cited by 30
Gellini, H., & Marczak, M. (2023) · Review Journal of Autism and Developmental Disorders · doi:10.1007/s40489-023-00356-8 · Cited by 38
Anxiety and Trauma-Related Disorders in Children on the Autism Spectrum
Ng‐Cordell, E., Wardell, V., Stewardson, C. I., & Kerns, C. M. (2022) · Current Psychiatry Reports · doi:10.1007/s11920-022-01331-6 · Cited by 28
Atherton, G., Edisbury, E., Piovesan, A., & Cross, L. (2022) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-022-05622-y · Cited by 32
McQuaid, G. A., Strang, J. F., & Jack, A. (2024) · Autism in Adulthood · doi:10.1089/aut.2023.0034 · Cited by 38
Khanlou, N., Khan, A., Landy, C. K., Srivastava, R., McMillan, S., VanDeVelde‐Coke, S., & Vázquez, L. M. (2022) · Nursing Open · doi:10.1002/nop2.1338 · Cited by 27
Autistic identity, culture, community, and space for well-being
Farahar, C. (2022) · Routledge eBooks · doi:10.4324/9781003056577-23 · Cited by 27
Cassidy, S., McLaughlin, E., McGranaghan, R., Pelton, M., O’Connor, R. C., & Rodgers, J. (2023) · Suicide and Life-Threatening Behavior · doi:10.1111/sltb.12965 · Cited by 33
Parenting Practices and Externalizing Behaviors in Autistic Children: A Systematic Literature Review
Suvarna, V., Farrell, L. J., Adams, D., Emerson, L., & Paynter, J. M. (2024) · Clinical Child and Family Psychology Review · doi:10.1007/s10567-024-00467-6 · Cited by 38
Sturm, D., Kholodovsky, M., Arab, R., Smith, D. S., Asanov, P., & Gillespie‐Lynch, K. (2018) · International Journal of Human-Computer Interaction · doi:10.1080/10447318.2018.1550180 · Cited by 30
Investigating the structure of trait rumination in autistic adults: A network analysis
Williams, Z. J., McKenney, E. E., & Gotham, K. O. (2021) · Autism · doi:10.1177/13623613211012855 · Cited by 27
Rodgers, J., Goodwin, J., Nielsen, E., Bhattarai, N., Heslop, P., Kharatikoopaei, E., O’Connor, R. C., Ogundimu, E. O., Ramsay, S. E., Steele, K., et al. (2023) · Pilot and Feasibility Studies · doi:10.1186/s40814-023-01264-8 · Cited by 26
Crowson, S., Poole, D., Scargill, K., & Freeth, M. (2023) · Autism · doi:10.1177/13623613231196805 · Cited by 41
Williams, G., Corbyn, J., & Hart, A. (2023) · Child Care in Practice · doi:10.1080/13575279.2022.2126437 · Cited by 25
Moore, L., Larkin, F., & Foley, S. (2023) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-023-06006-6 · Cited by 33
Zheng, S., Adams, R. E., Taylor, J. L., Pezzimenti, F., & Bishop, S. L. (2021) · Autism · doi:10.1177/13623613211008276 · Cited by 29
Parent Perspectives on Supports and Barriers for Autistic Youth Transitioning to Adulthood
Hoffman, J. M., & Kirby, A. V. (2021) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-021-05273-5 · Cited by 36
Gilmore, D., Longo, A., Krantz, M., Radford, D., & Hand, B. N. (2022) · Current Psychiatry Reports · doi:10.1007/s11920-022-01362-z · Cited by 32
Rosqvist, H. B., Hultman, L., & Hallqvist, J. (2022) · Autism · doi:10.1177/13623613221137428 · Cited by 24
How autistic adults’ priorities for autism research differ by gender identity: A mixed-methods study
Putnam, O. C., Eddy, G., Goldblum, J., Swisher, M., & Harrop, C. (2023) · Women s Health · doi:10.1177/17455057231160342 · Cited by 36
The double empathy problem, camouflage, and the value of expertise from experience
Mitchell, P., Cassidy, S., & Sheppard, E. (2019) · Behavioral and Brain Sciences · doi:10.1017/s0140525x18002212 · Cited by 26
Autistic Adult Health and Professional Perceptions of It: Evidence From the ASDEU Project
Micai, M., Ciaramella, A., Salvitti, T., Fulceri, F., Fatta, L. M., Poustka, L., Diehm, R., Iskrov, G. G., Stefanov, R. S., Guillon, Q., et al. (2021) · Frontiers in Psychiatry · doi:10.3389/fpsyt.2021.614102 · Cited by 24
Mentalizing and narrative coherence in autistic adults: Cerebellar sequencing and prediction
Bylemans, T., Heleven, E., Baetens, K., Deroost, N., Baeken, C., & Overwalle, F. V. (2023) · Neuroscience & Biobehavioral Reviews · doi:10.1016/j.neubiorev.2023.105045 · Cited by 23
McGreevy, E., Quinn, A., Law, R., Botha, M., Evans, M., Rose, K., Moyse, R., Boyens, T., Matejko, M., & Pavlopoulou, G. (2024) · Journal of Humanistic Psychology · doi:10.1177/00221678241232442 · Cited by 29
Carik, B., Izaac, V. V., Ding, X., Scarpa, A., & Rho, E. H. (2025) · Proceedings of the 2025 CHI Conference on Human Factors in Computing Systems · doi:10.1145/3706598.3714287 · Cited by 21
Metadata
- Authors
- Crane, L., Adams, F., Harper, G., Welch, J., & Pellicano, E.
- Affiliations
- University College London (GB)
- Ambitious about Autism, UK
- Corresponding author
- Crane, Laura
- Venue
- Autism
- Publisher
- SAGE Publications
- Published
- 2018-02-07
- Volume
- 23
- Issue
- 2
- Pages
- 477-493
- ISSN
- 1362-3613 (ISSN-L)
- 1461-7005
- OpenAlex
- W2787370458
- Cited by
- 397
- References
- 62
- Citations by year
- 2026: 119 · 2025: 49 · 2024: 58 · 2023: 38 · 2022: 50 · 2021: 40 · 2020: 21 · 2019: 16 · 2018: 6
- FWCI
- 12.25
- Type
- journal article
- Language
- en
- Open access
- green
- discovery.ucl.ac.uk
- Locations
- Autism (publishedVersion)
- PubMed (publishedVersion)
- UCL Discovery (University College London) (submittedVersion)
- University of Birmingham Research Portal (University of Birmingham) (submittedVersion)
- Funders
- National Institute for Health and Care Research
- Mashhad University of Medical Sciences
- Topics
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Health Sciences › Medicine › Psychiatry and Mental health › Mental Health Treatment and Access
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Keywords
- mental health, autism spectrum disorder, help-seeking, mental health stigma, barriers to mental health support, mental health needs, lived experience, community-based participatory research, research collaboration
- MeSH terms
- Help-Seeking Behavior, Autism Spectrum Disorder, Adolescent, Adult, Anxiety, Attitude to Health, Autistic Disorder, Mental Disorders, Depression, England, Female, Health Services Accessibility, Humans, Male, Mental Health Services, Quality of Life, Community-Based Participatory Research, Young Adult, Social Stigma
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review
