Continuity of home-based care for persons with dementia from formal and family caregivers’ perspective

Continuity of care: a multidisciplinary review

Haggerty, J. L., Reid, R. J., Freeman, G. K., Starfield, B. H., Adair, C. E., & McKendry, R. (2003) · BMJ · doi:10.1136/bmj.327.7425.1219 · Cited by 2,374 · see citing works

Caregiver burden—a critical discussion

Bastawrous, M. (2013) · International Journal of Nursing Studies · doi:10.1016/j.ijnurstu.2012.10.005 · Cited by 440 · see citing works

What is 'continuity of care'?

Gulliford, M. C., Naithani, S., & Morgan, M. (2006) · Journal of Health Services Research & Policy · doi:10.1258/135581906778476490 · Cited by 319 · see citing works

From personhood to citizenship: Broadening the lens for dementia practice and research

Bartlett, R. L., & O’Connor, D. (2007) · Journal of Aging Studies · doi:10.1016/j.jaging.2006.09.002 · Cited by 312 · see citing works

Experienced Continuity of Care When Patients See Multiple Clinicians: A Qualitative Metasummary

Haggerty, J. L., Roberge, D., Freeman, G. K., & Beaulieu, C. (2013) · The Annals of Family Medicine · doi:10.1370/afm.1499 · Cited by 280 · see citing works

How unique is continuity of care? A review of continuity and related concepts

Uijen, A. A., Schers, H., Schellevis, F., & van den Bosch, W. J. H. M. (2011) · Family Practice · doi:10.1093/fampra/cmr104 · Cited by 208 · see citing works

Disputes as Complex Social Events

Harré, R., & Slocum-Bradley, N. R. (2003) · Common Knowledge · doi:10.1215/0961754x-9-1-100 · Cited by 170 · see citing works

Should Women Care Less? Intrinsic Motivation and Gender Inequality

Folbre, N. R. (2012) · British Journal of Industrial Relations · doi:10.1111/bjir.12000 · Cited by 163 · see citing works

Family caregivers’ experiences of relinquishing the care of a person with dementia to a nursing home: insights from a meta‐ethnographic study

Graneheim, U. H., Johansson, A., & Lindgren, B. (2014) · Scandinavian Journal of Caring Sciences · doi:10.1111/scs.12046 · Cited by 151 · see citing works

‘Continuity of care’: a critical interpretive synthesis of how the concept was elaborated by a national research programme

Heaton, J., Corden, A., & Parker, G. M. (2012) · International Journal of Integrated Care · doi:10.5334/ijic.794 · Cited by 67 · see citing works

Research in hospital discharge procedures addresses gaps in care continuity in the community, but leaves gaping holes for people with dementia: A review of the literature: Deficient dementia patient discharge

Chenoweth, L., Kable, A., & Pond, D. (2015) · Australasian Journal on Ageing · doi:10.1111/ajag.12205 · Cited by 53 · see citing works

Continuity of care in home health-care practice: two management paradoxes

Gjevjon, E. R., Romøren, T. I., Kjøs, B. Ø., & Hellesø, R. (2012) · Journal of Nursing Management · doi:10.1111/j.1365-2834.2012.01366.x · Cited by 53 · see citing works

Measuring interpersonal continuity in high‐frequency home healthcare services

Gjevjon, E. R., Eika, K. H., Romøren, T. I., & Landmark, B. F. (2013) · Journal of Advanced Nursing · doi:10.1111/jan.12214 · Cited by 49 · see citing works

Planning individually? Spotting international welfare trends in the field of rehabilitation in Norway

Breimo, J. P. (2014) · Scandinavian Journal of Disability Research · doi:10.1080/15017419.2014.972447 · Cited by 27 · see citing works

“It is a good idea, but…” A qualitative study of implementation of ‘Individual Plan’ in Norwegian mental health care

Holum, L. C. (2012) · International Journal of Integrated Care · doi:10.5334/ijic.809 · Cited by 25 · see citing works

Det ble en annerledes plan

Michaelsen, R., Vatne, S., & Hollingen, A. (2011) · Tidsskrift for psykisk helsearbeid · doi:10.18261/issn1504-3010-2011-03-04 · Cited by 17 · see citing works

Clinical Manual of Alzheimer Disease and Other Dementias

(2012) · American Psychiatric Association Publishing eBooks · doi:10.1176/appi.books.9781585629619 · Cited by 15 · see citing works

Older Patients’ and Next of Kin’s Perspectives on Continuity in Long-Term Home Health Care

Gjevjon, E. R., Romøren, T. I., Bragstad, L. K., & Hellesø, R. (2016) · Home Health Care Management & Practice · doi:10.1177/1084822315626001 · Cited by 13 · see citing works

How do people in the early stage of Alzheimer’s disease see their future?

Kristiansen, P. J. L., Normann, H. K., Norberg, A., Fjelltun, A. S., & Skaalvik, M. W. (2015) · Dementia · doi:10.1177/1471301215584223 · Cited by 11 · see citing works

Working with Individual Plans: users' perspectives on the challenges and conflicts of users' needs in health and social services

Langhammer, B., Madsen, V. H., Hellem, E., Bruusgaard, K. A., Alve, G., & Slettebø, Å. (2013) · Scandinavian Journal of Disability Research · doi:10.1080/15017419.2013.795912 · Cited by 9 · see citing works

“Individual plan” in a user-oriented and empowering perspective: A qualitative study of “individual plans” in Norwegian mental health services

Holum, L. (2012) · Nordic Psychology · doi:10.1080/19012276.2012.693725 · Cited by 6 · see citing works

ICT in ICP: Analysing user participation in testing of a web-based tool for Individual Care Plans

Bjerkan, J. (2015) · NORA - Norwegian Open Research Archives · Cited by 1 · see citing works

Green spaces, dementia and a meaningful life in the community: A mixed studies review

Mmako, N. J., Courtney‐Pratt, H., & Marsh, P. (2020) · Health & Place · doi:10.1016/j.healthplace.2020.102344 · Cited by 82 · see citing works

Needs of patients with dementia and their caregivers in primary care: lessons learned from the Alzheimer plan of Quebec

Khanassov, V., Rojas‐Rozo, L., Sourial, R., Yang, X. Q., & Vedel, I. (2021) · BMC Family Practice · doi:10.1186/s12875-021-01528-3 · Cited by 41 · see citing works

Person-centered dementia care in home care services – highly recommended but still challenging to obtain: a qualitative interview study

Hoel, K.-A., Rokstad, A. M. M., Feiring, I. H., Lichtwarck, B., Selbæk, G., & Bergh, S. (2021) · BMC Health Services Research · doi:10.1186/s12913-021-06722-8 · Cited by 36 · see citing works

Home care in dementia: The views of informal carers from a co-designed consultation

Dalgarno, E. L., Gillan, V., Roberts, A., Tottie, J., Britt, D., Toole, C., & Clarkson, P. (2021) · Dementia · doi:10.1177/1471301221990504 · Cited by 27 · see citing works

Everyday experiences of people living with dementia and their carers relating to oral health and dental care

Curtis, S., Scambler, S., Manthorpe, J., Samsi, K., Rooney, Y. M., & Gallagher, J. E. (2020) · Dementia · doi:10.1177/1471301220975942 · Cited by 26 · see citing works

Staff's perspectives on the organization of homecare services to people with dementia—A qualitative study

Hoel, K.-A., Rokstad, A. M. M., Feiring, I. H., Lichtwarck, B., Selbæk, G., & Bergh, S. (2021) · Nursing Open · doi:10.1002/nop2.822 · Cited by 23 · see citing works

Home‐care workers' experiences of assisting people with dementia with their personal care: A qualitative interview study

Backhouse, T., & Ruston, A. (2021) · Health & Social Care in the Community · doi:10.1111/hsc.13445 · Cited by 22 · see citing works

Resonating moments: Exploring socio-material connectivity through artistic encounters with people living with dementia

Mittner, L. (2021) · Dementia · doi:10.1177/14713012211039816 · Cited by 17 · see citing works

Important aspects of home care service: An interview study of persons with dementia

Olsen, M., Udo, C., Boström, A., & Hammar, L. M. (2020) · Dementia · doi:10.1177/1471301220964393 · Cited by 15 · see citing works

Towards defining quality in home care for persons living with dementia

Saragosa, M., Jeffs, L., Okrainec, K., & Kuluski, K. (2022) · PLOS ONE · doi:10.1371/journal.pone.0274269 · Cited by 10 · see citing works

Interactions between healthcare personnel and family caregivers of people with dementia from minority ethnic backgrounds in home‐based care—An explorative qualitative study

Gulestø, R. J. A., Lillekroken, D., Bjørge, H., & Halvorsrud, L. (2021) · Journal of Advanced Nursing · doi:10.1111/jan.15101 · Cited by 8 · see citing works

Views of homecare staff and carers on oral needs and dental care for people living with dementia: A qualitative study

Soilemezi, D., Wanyonyi, K., Hill, V., & Manthorpe, J. (2023) · International Journal of Geriatric Psychiatry · doi:10.1002/gps.6039 · Cited by 7 · see citing works

Trust, consistency and transparency: in-home respite needs and preferences of people living with dementia and their carers

Grogan, C., Harriman, S., Martin, E. K., Waite, R., & Fisher, O. J. (2025) · Frontiers in Health Services · doi:10.3389/frhs.2025.1550729 · Cited by 4 · see citing works

Cohort and Gender Differences in Stability Over Five Years Among Mexican-Origin Caregivers to Older Adults Living With Cognitive Impairment

Vazquez, C. E., Rote, S. M., Antequera, F., Cabrera, A., Cantu, P. A., & Angel, J. L. (2025) · Research on Aging · doi:10.1177/01640275241310518 · Cited by 3 · see citing works

Exploring intersectoral collaboration in diabetes care: A positioning theoretical perspective

Andersen, A. B., Frederiksen, K., Laursen, H. S., & Gravesen, J. D. (2023) · Nursing Inquiry · doi:10.1111/nin.12586 · Cited by 2 · see citing works

Omsorg til siste livsfase for yngre personer med demens: Omsorg som fremmer livskvalitet?

Thorsen, K., & Johannessen, A. (2021) · Nordisk tidsskrift for helseforskning · doi:10.7557/14.5851 · Cited by 2 · see citing works

Social workers’ consideration of dental support for people living with dementia: Findings from interviews and care assessment documentation

Soilemezi, D., Wanyonyi, K., Hill, V., & Manthorpe, J. (2024) · Dementia · doi:10.1177/14713012241284779 · Cited by 1 · see citing works

Discontinuity of social support among US adults with cognitive impairment before and after the confirmed diagnosis of dementia: a matched ambidirectional cohort study

Zhang, H., Underwood, B. R., London, S., Zhao, H., Yu, J., Da, F., & Chen, S. (2025) · BMC Medicine · doi:10.1186/s12916-025-04264-y · Cited by 1 · see citing works

Selbst und Selbstaktualisierung

Kruse, A. (2022) · Springer eBooks · doi:10.1007/978-3-662-63164-5_27

Additional file 1 of Needs of patients with dementia and their caregivers in primary care: lessons learned from the Alzheimer plan of Quebec

Khanassov, V., Rojas‐Rozo, L., Sourial, R., Yang, X. Q., & Vedel, I. (2021) · Figshare · doi:10.6084/m9.figshare.16625435

Home care in dementia: The views of informal carers from a co-designed consultation

Dalgarno, E. L., Gillan, V., Roberts, A., Tottie, J., Britt, D., Toole, C., & Clarkson, P. (2021) · Dementia · doi:10.1177/1471301221990504 · Cited by 27 · see citing works

Processes of user participation among formal and family caregivers in home-based care for persons with dementia

Larsen, L. S., Normann, H. K., & Hamran, T. (2015) · Dementia · doi:10.1177/1471301215584702 · Cited by 13 · see citing works

Dementia care in European countries, from the perspective of people with dementia and their caregivers

Karlsson, S., Bleijlevens, M. H. C., Roe, B. H., Saks, K., Martin, M. S., Stephan, A., Suhonen, R., Zabalegui, A., & Hallberg, I. R. (2014) · Journal of Advanced Nursing · doi:10.1111/jan.12581 · Cited by 72 · see citing works

Dementia Care Planning: Shared Experience and Collaboration

Pashby, P., Hann, J., & Sunico, M. E. S. (2009) · Journal of Gerontological Social Work · doi:10.1080/01634370903088051 · Cited by 18 · see citing works

Care and services at home for persons with dementia. Structure, process, and outcomes.

Bökberg, C. (2017) · Lund University Publications (Lund University) · doi:10.13140/rg.2.2.22397.97764