Caregiver burden—a critical discussion

Bastawrous, Marina

doi:10.1016/j.ijnurstu.2012.10.005

Cited by 443Nursing care and researchIntergenerational Family Dynamics and CaregivingAging, Elder Care, and Social Issues

Caregiver burden—a critical discussion

Bastawrous, Marina·2013·International Journal of Nursing Studies

DOI 10.1016/j.ijnurstu.2012.10.005

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Abstract

Currently, 15%, 12.8% and 17.1% of the Canadian, American and European populations, respectively, are 65 years or older. Due to aging-related disabilities, elderly individuals will require support from family members while in the community. Annually, family caregivers save the Canadian and American healthcare systems $25 billion and $350 billion, respectively. However, to maintain the important role they play, caregivers' experiences must be investigated in order to provide appropriate support. Despite the fact that 'caregiver burden' is preponderantly used as an indicator of the caregiving experience, much disagreement remains on what the term entails and how it should be utilized. This paper endeavors to critically discuss the concept of 'caregiver burden', its use in the literature and the implications this has for future research and clinical practice. The vagueness derived from the various 'caregiver burden' definitions limits the term's relevance to policy-making and clinical practice. Additionally, much of the literature on 'caregiver burden' is not theoretically framed, which reduces the conceptual clarity of the term. Quantitative measures are largely used to investigate 'caregiver burden', which can sometimes fail to capture contextual features that are relevant to caregiving outcomes (e.g., culture). Stress theory and role theory are recommended as guiding frameworks for future research that investigates 'caregiver burden'. Future research on 'caregiver burden' would also benefit from integrating qualitative and quantitative approaches into mixed method designs in order to gain a holistic understanding of the concept.

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This situation mainly occurs during the period when older parents partially or completely lose mobility, and their dependence on their children's care gradually increases.
“This situation mainly occurs during the period when older parents partially or completely lose mobility, and their dependence on their children’s care gradually increases (43).”
From Caring alone: older adult care burdens, practices, and structural imbalances among China's one-child generation (2025) · cites this paper as [43]

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Authors: Bastawrous, M.
Venue: International Journal of Nursing Studies
Publisher: Elsevier BV
Published: 2013-03
Volume: 50
Issue: 3
Pages: 431-441
ISSN: 0020-7489 (ISSN-L)
DOI: 10.1016/j.ijnurstu.2012.10.005
OpenAlex: W2146405208
Cited by: 440
References: 82
Citations by year: 2026: 25 · 2025: 34 · 2024: 38 · 2023: 59 · 2022: 35 · 2021: 55 · 2020: 47 · 2019: 32 · 2018: 29 · 2017: 26 · 2016: 25 · 2015: 18 · 2014: 15 · 2013: 2
FWCI: 26.15
Type: journal article
Language: en
Open access: closed
Licence: www.elsevier.com/tdm/userlicense/1.0/ (tdm)
www.elsevier.com/legal/tdmrep-license (tdm)
Locations: International Journal of Nursing Studies (publishedVersion)
PubMed (publishedVersion)
Topics: Health Sciences › Health Professions › Pharmacy › Nursing care and research
Social Sciences › Sociology and Political Science › Intergenerational Family Dynamics and Caregiving
Health Sciences › Health Professions › General Health Professions › Aging, Elder Care, and Social Issues
Keywords: caregiver burden, family caregivers, elderly care, population aging, caregiver experiences, conceptual clarity, stress theory, role theory, caregiver support, mixed methods
MeSH terms: Aged, Canada, Europe, Humans, Stress, Psychological, United States, Caregivers, Cost Savings

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Caregiver burden—a critical discussion

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