Needs in Early Onset Dementia: A Qualitative Case From the NeedYD Study

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Praktisering av medborgerskap

Ursin, G. (2017) · Norsk sosiologisk tidsskrift · doi:10.18261/issn.2535-2512-2017-06-02 · Cited by 7 · see citing works

Perceived barriers and solutions by generalist physicians to work towards timely young-onset dementia diagnosis

Perry, M., Michgelsen, J., Timmers, R., Peetoom, K. K. B., Koopmans, R. T. C. M., & Bakker, C. (2023) · Aging & Mental Health · doi:10.1080/13607863.2023.2248026 · Cited by 7 · see citing works

Global burden of young-onset Alzheimer's disease and other dementias: a secondary analysis of the global burden of disease study, 2019

Rojas‐Gualdrón, D. F., Henao, M. S., Zuluaga, C. A. U., Henao, A. E., & Gómez‐Henck, C. (2024) · Dementia & Neuropsychologia · doi:10.1590/1980-5764-dn-2024-0134 · Cited by 7 · see citing works

Creating change: the experiences of women living with young onset dementia

Broders, K., & Wiersma, E. C. (2020) · Disability & Society · doi:10.1080/09687599.2020.1848801 · Cited by 7 · see citing works

Supportive care needs of individuals with young-onset dementia: A systematic review and qualitative meta-synthesis

Zhang, B., Wu, B., Lou, J., Zhang, C., Pei, Y., Shen, X., & Wang, L. (2025) · Journal of Alzheimer s Disease · doi:10.1177/13872877251344562 · Cited by 5 · see citing works

Transitions: Living With Young‐Onset Alzheimer's Disease: A Qualitative Interview Study

Aspö, M., Visser, L. N. C., Kivipelto, M., Boström, A., & Cronfalk, B. S. (2024) · Health Expectations · doi:10.1111/hex.70034 · Cited by 6 · see citing works

Physical activity for people with young-onset dementia and carers: protocol for a scoping review

Rodgers, C., Rogerson, D., Stevenson, J. A., & Porock, D. C. (2018) · Systematic Reviews · doi:10.1186/s13643-018-0698-5 · Cited by 6 · see citing works

Evaluation of Systolic and Diastolic Hypotension in Dementia with Lewy Bodies and Alzheimer’s Disease

Bengtsson-Lindberg, M. E., Larsson, V., Minthon, L., Wattmo, C., & Londos, E. (2013) · Healthy Aging & Clinical Care in the Elderly · doi:10.4137/hacce.s12670 · Cited by 5 · see citing works

Constraints and ethical tensions in the area of young-onset dementia

Kilty, C., Naughton, C., & Róiste, Á. D. (2019) · British Journal of Nursing · doi:10.12968/bjon.2019.28.21.1380 · Cited by 5 · see citing works

Lived experiences of maintaining self-identity among persons living with young-onset dementia: A qualitative meta-synthesis

Tang, X., Wang, J., Wu, B., Navarra, A.-M. D., Cui, X., & Wang, J. (2023) · Dementia · doi:10.1177/14713012231193547 · Cited by 5 · see citing works

A Systematic Review of Palliative Care Needs in Young-Onset Dementia

Dang, J., Yong, A. C. W., Fong, Z. H., Ang, K., & Ng, A. S. L. (2024) · Journal of the American Medical Directors Association · doi:10.1016/j.jamda.2024.105219 · Cited by 5 · see citing works

Utilising Semantic Technologies for Decision Support in Dementia Care

Osman, T., Rmaswamy, S., Mahmoud, S. M., & Saeed, M. (2013) · UKSim International Conference on Computer Modelling and Simulation (UKSim) · doi:10.1109/uksim.2013.110 · Cited by 4 · see citing works

Healthy Aging & Clinical Care in the Elderly

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Needs of people living with young-onset dementia and family carers, explored by dementia subtype, phase in the disease process, and living setting: A scoping review

Ritzen, M., Peetoom, K. K. B., Bartels, S. L., Bakker, C., & de Vugt, M. E. (2025) · Journal of Alzheimer s Disease · doi:10.1177/13872877251372148 · Cited by 3 · see citing works

Establishing Gold Standard Assessment for Young Onset Dementia: A Modified E‐Delphi Consensus Survey Based in Australia

Lau, J., Cations, M., O’Malley, M., Stamou, V., Oyebode, J. R., Parkes, J. H., Carter, J., & Loi, S. M. (2024) · International Journal of Geriatric Psychiatry · doi:10.1002/gps.70028 · Cited by 3 · see citing works

Clinical Application of Findings From Longitudinal Studies of Younger-Onset Dementia: Rapid Review and Recommendations

Loi, S. M., Goh, A., Walterfang, M., & Velakoulis, D. (2020) · Journal of Neuropsychiatry · doi:10.1176/appi.neuropsych.19110238 · Cited by 3 · see citing works

Young onset dementia: Care needs & service provision

Bakker, C. (2013) · Radboud Repository (Radboud University) · Cited by 3 · see citing works

Qualitative Evidence in Working with Cognitively Impaired Older Adults

Lingler, J. H., & Hu, L. (2015) · Handbooks in health, work, and disability · doi:10.1007/978-1-4939-2920-7_17 · Cited by 2 · see citing works

A tutorial on discourse analysis in healthy and pathological ageing

Suárez, A. V. (2023) · International Journal of Language & Communication Disorders · doi:10.1111/1460-6984.12919 · Cited by 2 · see citing works

Key Stakeholders’ Experiences and Perceptions of Virtual Reality for Older Adults Living with Dementia: A Systematic Review and Thematic Synthesis (Preprint)Preprint

Flynn, A., Healy, D., Barry, M., Brennan, A., Redfern, S., Houghton, C., & Casey, D. (2022) · doi:10.2196/preprints.37228 · Cited by 2 · see citing works

Neuropsychiatric symptoms and awareness in young-and-late-onset dementia

Baptista, M. A. T., Lacerda, I. B., Belfort, T. T., Nogueira, M. M. L., Neto, J. P. S., & Dourado, M. C. N. (2025) · Aging & Mental Health · doi:10.1080/13607863.2025.2515179 · Cited by 1 · see citing works

Recent insights into Early Onset Dementia (EOD): A Review

Bondyopadhyay, J., BHATTACHARYA, I., & Chakraverty, R. (2021) · Journal of Drug Delivery and Therapeutics · doi:10.22270/jddt.v11i4-s.4959 · Cited by 1 · see citing works

Public Health and Dementia - with focus on access to society

Johannessen, A. (2012) · KTH Publication Database DiVA (KTH Royal Institute of Technology) · Cited by 1 · see citing works

Intervention Program to Reduce the Perceived Burden among Caregivers of Cronic Mentally Ill Person

Bademli̇, K., & Lök, N. (2015)

Intergenerational experiences of young onset dementia: a qualitative longitudinal study

Bellass, S. (2016) · University of Salford Institutional Repository (University of Salford)

Characterising the pre-diagnostic phase of behavioural-variant frontotemporal dementia: a mixed-methods study

Rogers, K. (2018) · Minerva Access (University of Melbourne)

Delays in diagnosis for people with Young Onset Dementia.

Hussey, J. S., & Butler, G. (2019) · Journal of Mental Health and Aging

Perceptions of the Caregiving Role Among Young-Onset Dementia Adult Child Caregivers

Berry, C. (2021) · UWSpace (University of Waterloo)

Young onset dementia

Millenaar, J. (2016) · Research Publications (Maastricht University) · doi:10.26481/dis.20161222jm · Cited by 2 · see citing works

Young-Onset Dementia, Diagnosis, Course, and Interventions

Koopmans, R. T. C. M., Bakker, C., Gerritsen, D. L., Millenaar, J., Verhey, F. R. J., & de Vugt, M. E. (2017) · Springer eBooks · doi:10.1007/978-981-287-082-7_347

Younger-Onset Dementia: Diagnosis, Course, and Interventions

Koopmans, R. T. C. M., Bakker, C., Gerritsen, D. L., Millenaar, J., Verhey, F. R. J., & de Vugt, M. E. (2016) · Springer eBooks · doi:10.1007/978-981-287-080-3_347-1

Awareness of Disease and Its Domains in Young-onset and Late-onset Dementia

Baptista, M. A. T., Lacerda, I. B., Belfort, T. T., Nogueira, M. M. L., Silva, F. D. O., & Dourado, M. C. N. (2023) · Alzheimer Disease & Associated Disorders · doi:10.1097/wad.0000000000000561

Disentangling factors that influence the spousal relationship of people with young-onset dementia: Starting points for person-centered care and support?

Bodde, H. E., Papma, J. M., & Poos, J. M. (2024) · International Psychogeriatrics · doi:10.1017/s1041610224000395

COMPARATIVE ASSESSMENT OF PSYCHIATRIC COMORBIDITY, SUBSTANCE USE, QUALITY OF LIFE IN PATIENTS WITH EARLY AND LATE ONSET DEMENTIA

(2024) · Journal of Cardiovascular Disease Research · doi:10.48047/jcdr.2021.12.06.356

Penser autrement le partenariat avec les proches aidants

Leocadie, M.-C. (2019) · doi:10.70675/d186b104z0bc0z4ddfz821ez5dc68534fbc5

Organising regional collaborations in Young-Onset Dementia care: how current practice reflects national integrated care policy recommendationsPreprint

van Westendorp, S., Hofman, C. S., Mortier, M. J. M. J., Appelhof, B., Gerring, P., Koopmans, R. C. T. M., & Bakker, C. (2026) · Research Square · doi:10.21203/rs.3.rs-9242306/v1

Design and baseline findings of the NEODEM prospective cohort on early‐onset neurodegenerative dementia

Auriacombe, S., Durand, E., Krêt, M., Cartz‐Piver, L., Etcharry‐Bouyx, F., Sauvée, M., Belliard, S., Julian, A., Bail, B. L., Frison, É., et al. (2026) · Alzheimer s & Dementia Diagnosis Assessment & Disease Monitoring · doi:10.1002/dad2.70361

A scoping review on the time to diagnosis, early symptoms, and the barriers and facilitators of diagnosis in young-onset dementia

David, C., Hendriks, S., Damsgaard, L., Köhler, S., & de Vugt, M. E. (2026) · Journal of Alzheimer s Disease · doi:10.1177/13872877261495145

Current Topics in Care Needs in Early Onset Dementia: A Qualitative Case From the NeedYD Study

Bakker, C., de Vugt, M. E., Vernooij-dassen, M., van Vliet, D., Verhey, F. R. J., & Koopmans, R. T. C. M. (2016)

P2‐345: Early‐onset dementia: Needs of patients and carers in the early diagnostic stage

Green, T., Smith, E. E., Hogan, D. B., Pearson, D. M., & Roach, P. (2012) · Alzheimer s & Dementia · doi:10.1016/j.jalz.2012.05.1054 · Cited by 3 · see citing works

Characteristics of Early Onset Dementia and Caring Experiences and Service Needs of Family Caregivers: A Mixed Methods Study

Kim, J. H., & Lee, G. (2023) · Journal of Korean Academy of Psychiatric and Mental Health Nursing · doi:10.12934/jkpmhn.2023.32.2.101

The Needs of Patients With Early Onset Dementia

Armari, E., Jarmolowicz, A. I., & Panegyres, P. K. (2012) · American Journal of Alzheimer s Disease & Other Dementias® · doi:10.1177/1533317512466690 · Cited by 35 · see citing works

Research protocol of the NeedYD-study (Needs in Young onset Dementia): a prospective cohort study on the needs and course of early onset dementia

van Vliet, D., Bakker, C., Koopmans, R. T. C. M., Vernooij-Dassen, M. J. F. J., Verhey, F. R. J., & de Vugt, M. E. (2010) · BMC Geriatrics · doi:10.1186/1471-2318-10-13 · Cited by 47 · see citing works