The Psychosocial Impact of Young Onset Dementia on Spouses
Abstract
Dementia in young adults is not very well studied in terms of clinical effects on the patient, and not much is known about the effects on spouses and caregivers. This study assessed the psychological impact of the diagnosis of young onset dementia on spouses. A questionnaire that used the Zarit Burden Interview and the Beck Depression Index was sent to 120 spouses of a cohort of patients with established diagnoses of young onset dementia (age of onset before 65 years), including frontotemporal lobar degeneration, Alzheimer’s disease, and primary progressive aphasia. A total of 100 usable responses were received. The mean age of respondents was 62.3 years (54% women, 46% men). A cross-sectional analysis showed that the diagnosis of young onset dementia has a significant impact on spouses, characterized by concerns of dependency, fear, and increased depression, especially in the spouses of patients with frontotemporal lobar degeneration.
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Selected studies report higher stress and burden among spouse caregivers of people with earlier-onset dementia than among family caregivers of people with later-onset dementia.
“In sum, selected studies have reported a higher level of stress and burden experienced by spouse caregivers of persons affected by dementia at an earlier age than by the family caregivers of persons affected at a later age.6,14,19”
From The Unique Experience of Spouses in Early-Onset Dementia (2013) · cites this paper as [19]
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- Authors
- Kaiser, S., & Panegyres, P. K.
- Affiliations
- Government of Western Australia Department of Health (AU)
- ORCID
- Panegyres, Peter K.
- Venue
- American Journal of Alzheimer's Disease & Other Dementias®
- Publisher
- SAGE Publications
- Published
- 2007-12
- Volume
- 21
- Issue
- 6
- Pages
- 398-402
- ISSN
- 0888-4897 (ISSN-L)
- 1533-3175
- 1938-2731
- OpenAlex
- W2003601873
- Cited by
- 161
- References
- 19
- Citations by year
- 2026: 1 · 2025: 4 · 2024: 4 · 2023: 7 · 2022: 10 · 2021: 8 · 2020: 38 · 2019: 8 · 2018: 7 · 2017: 8 · 2016: 10 · 2015: 6 · 2014: 6 · 2013: 9 · 2012: 13
- FWCI
- 3.82
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- American Journal of Alzheimer s Disease & Other Dementias® (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Social Sciences › Psychology › Clinical Psychology › Family Caregiving in Mental Illness
- Keywords
- early-onset dementia, spouses, caregiver burden, depression, frontotemporal lobar degeneration, Alzheimer's disease, primary progressive aphasia, Zarit Burden Interview
- MeSH terms
- Age Factors, Alzheimer Disease, Attitude to Health, Cross-Sectional Studies, Dementia, Major Depressive Disorder, Fear, Female, Humans, Male, Middle Aged, Psychology, Surveys and Questionnaires, Cohort Studies, Caregivers, Cost of Illness, Spouses
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