Impact of early onset dementia on caregivers: a review

van Vliet, Deliane; de Vugt, Marjolein E.; Bakker, Christian; Koopmans, Raymond T. C. M.; Verhey, Frans R. J.

doi:10.1002/gps.2439

Cited by 253Dementia and Cognitive Impairment ResearchNursing care and researchFamily Caregiving in Mental Illness

Impact of early onset dementia on caregivers: a review

van Vliet, Deliane, de Vugt, Marjolein E., Bakker, Christian, Koopmans, Raymond T. C. M., Verhey, Frans R. J.·2010·International Journal of Geriatric Psychiatry

DOI 10.1002/gps.2439

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Abstract

Objective: When it comes to dementia, caregiving can have adverse effects on the psychological and physical health of the informal caregiver. As yet, little is known about the impact of caring for a young dementia patient. This review provides an overview of the literature concerning the impact of early onset dementia (EOD) on informal caregivers and on children of EOD patients. The available literature comparing the impact on EOD and late onset dementia (LOD) caregivers will also be provided. Methods: PubMed, Psychinfo, and Cinahl were searched for articles that considered the psychological or psychosocial impact of EOD on informal caregivers and children. The methodological quality of the studies was assessed in order to make better judgments about the value of each article. Results: Seventeen articles were included, of which the overall methodological quality was limited. The results showed that EOD caregivers experienced high levels of burden, stress, and depression. When compared with LOD caregivers, results were inconclusive. Furthermore, the caregivers of EOD patients experienced a variety of psychosocial problems, including relational problems, family conflict, problems with employment, financial difficulties, and problems concerning diagnosis. Conclusions: Whether there is a difference in impact between EOD and LOD on caregivers is still unclear. The studies conducted are methodologically too limited to answer this question. Nevertheless, it is clear that EOD caregivers do seem to experience high levels of psychological suffering and specific problems related to their phase in life. Copyright © 2010 John Wiley & Sons, Ltd.

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Loss of autonomy and inability to perform conjugal and family tasks affects the socioprofessional, financial, and psychological dimensions of family life.
“In particular, the gradual loss of autonomy and the inability to accomplish conjugal and family daily tasks of the life partners of spouse caregivers has numerous repercussions on the socioprofessional, financial, and psychological dimensions of family life.15”
From The Unique Experience of Spouses in Early-Onset Dementia (2013) · cites this paper as [15]
Some particularities color the discourse of spouse caregivers of younger persons, and unique characteristics emerge from their experiences.
“However, some particularities color the discourse of the former group and, as mentioned in the review by van Vliet and colleagues, 15 unique characteristics emerge from their experiences.”
From The Unique Experience of Spouses in Early-Onset Dementia (2013) · cites this paper as [15]

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Authors: van Vliet, D., de Vugt, M. E., Bakker, C., Koopmans, R. T. C. M., & Verhey, F. R. J.
Affiliations: Radboud University Medical Center (NL)
Maastricht University Medical Centre (NL)
ORCID: Bakker, Christian
Koopmans, Raymond T. C. M.
Verhey, Frans R. J.
Venue: International Journal of Geriatric Psychiatry
Publisher: Wiley
Published: 2010-04-20
Volume: 25
Issue: 11
Pages: 1091-1100
ISSN: 0885-6230 (ISSN-L)
1099-1166
DOI: 10.1002/gps.2439
OpenAlex: W2008498400
Cited by: 252
References: 37
Citations by year: 2026: 7 · 2025: 13 · 2024: 16 · 2023: 19 · 2022: 15 · 2021: 21 · 2020: 15 · 2019: 20 · 2018: 17 · 2017: 20 · 2016: 21 · 2015: 12 · 2014: 20 · 2013: 24 · 2012: 6
FWCI: 1.58
Type: journal article
Language: en
Open access: closed
Licence: onlinelibrary.wiley.com/termsAndConditions#vor (vor)
Locations: International Journal of Geriatric Psychiatry (publishedVersion)
PubMed (publishedVersion)
Research Publications (Maastricht University) (submittedVersion)
Radboud Repository (Radboud University) (submittedVersion)
Funders: Alzheimer Nederland
Topics: Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
Health Sciences › Health Professions › Pharmacy › Nursing care and research
Social Sciences › Psychology › Clinical Psychology › Family Caregiving in Mental Illness
Keywords: early-onset dementia, late-onset dementia, informal caregivers, caregiver burden, caregiver stress, caregiver depression, family conflict, employment problems, financial hardship, psychosocial impact
MeSH terms: Adult, Aged, Child, Child, Preschool, Cross-Sectional Studies, Dementia, Family, Female, Humans, Long-Term Care, Male, Middle Aged, Stress, Psychological, Caregivers, Cost of Illness, Age of Onset, Qualitative Research

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Impact of early onset dementia on caregivers: a review

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