`Having cancer changed my life, and changed my life forever': survival, illness legacy and service provision following cancer in childhood
Abstract
Objectives: To explore how having cancer in childhood influences social and personal wellbeing in young adulthood. Methods: Questionnaires (55) eliciting lengthy written responses and in-depth interviews (32) were used with male and female survivors of cancer in childhood (aged between 18 and 28 years). Analysis drew on a combination of grounded-theory techniques and narrative analysis. Results: Three key areas are outlined relating to the characterization of survivorship by participants. These include highlighting survival as not necessarily a simple end to a cancer story, issues relating to post-cancer bodily self-concept and its gendering, and, efforts at managing uncertainties through medical interactions and information gathering. Discussion: Participant stories in this study illustrate that even in long-term survival, cancer is present as a web of ongoing influences from the original disease and treatment, as well as the social and personal aftershocks that can occur well after malignant cells have been controlled. Findings highlight the necessity for complex redevelopment of healthcare services and social support provisions for this growing population.
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Research identifying the specific psychological problems and needs experienced by young people diagnosed with cancer during adolescence and evidence-based cognitive-behavioural models for treating anxiety and depression guided development of the programme.
“Research identifying the specific psychological problems and needs experienced by young people diagnosed with cancer during adolescence30–38 and evidence-based cognitive–behavioural models for treating anxiety and depression58–66 guided development of the programme.”
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- Authors
- Drew, S.
- Affiliations
- Royal Children's Hospital (AU)
- Corresponding author
- Drew, Sarah
- ORCID
- Drew, Sarah
- Venue
- Chronic Illness
- Publisher
- SAGE Publications
- Published
- 2007-12
- Volume
- 3
- Issue
- 4
- Pages
- 278-295
- ISSN
- 1742-3953 (ISSN-L)
- 1745-9206
- OpenAlex
- W1965244918
- Cited by
- 37
- References
- 66
- Citations by year
- 2024: 2 · 2022: 1 · 2021: 3 · 2019: 2 · 2018: 4 · 2017: 2 · 2016: 4 · 2015: 4 · 2014: 2 · 2013: 1 · 2012: 3
- FWCI
- 0.63
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Chronic Illness (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Childhood Cancer Survivors' Quality of Life
- Health Sciences › Medicine › Oncology › Cancer survivorship and care
- Social Sciences › Sociology and Political Science › Family Support in Illness
- Keywords
- childhood cancer survivors, early adulthood, long-term survival, well-being, gender, uncertainty management, health information seeking, health services, social support
- MeSH terms
- Adolescent, Adult, Delivery of Health Care, Female, Humans, Interviews as Topic, Life Change Events, Male, Neoplasms, Patients, Quality of Life, Self Concept, Survivors
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