Identification of community‐residing individuals with dementia and their unmet needs for care
Open accessAbstract
Background: Innovative approaches to the widespread delivery of evidence‐based dementia care are needed. The aims of this study were to determine whether a telephone screening method could efficiently identify individuals in the community in need of care for dementia and to develop a multidimensional needs assessment tool for identifying the type and frequency of unmet needs related to memory disorders in the home setting. Methods: This was a cross‐sectional evaluation of 292 community‐residing individuals aged 70 and older in Maryland. Participants were given a brief cognitive telephone screen. A subsample (n = 43) received a comprehensive in‐home assessment for dementia and dementia‐related needs. Cognitive, functional, behavioral, and clinical factors were assessed. The Johns Hopkins Dementia Care Needs Assessment (JHDCNA) was used to identify unmet needs related to dementia. Results: Telephone screening for the sample took 350 h, and 27% screened positive for dementia. Virtually all participants with dementia who received an in‐home assessment had at least one unmet need, with the most frequent unmet needs being for a dementia workup, general medical care, environmental safety, assistance with ADL impairments, and access to meaningful activities. Caregivers, when present, also had a number of unmet needs, with the most common being caregiver education about dementia, knowledge of community resources, and caregiver mental health care. Conclusions: Effective and efficient means for identifying community‐residing individuals with dementia are needed so that dementia care interventions can be provided to address unmet care needs of patients and their caregivers. Copyright © 2010 John Wiley & Sons, Ltd.
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Unmet needs may contribute to a higher likelihood of institutionalization, placing additional strain on both healthcare systems and family caregivers.
“Furthermore, unmet needs may contribute to a higher likelihood of institutionalization, placing additional strain on both healthcare systems and family caregivers [5, 6].”
From Unmet Needs in Dementia Care: The Predictive Role of Caregiver Challenges (2025) · cites this paper as [6]
The Discussion (page not provided) suggests that addressing unmet needs may reduce adverse outcomes for people with dementia and their caregivers. The Results (page not provided) document unmet caregiver needs but state that this cross-sectional pilot had no prospective outcome data. The paper does not identify institutionalization as an outcome of unmet needs or show that it adds strain to healthcare systems and families. (LLM, conf=0.82)
Experimental — accuracy not yet measuredThe study used a translated and adapted Brazilian Portuguese version of the Johns Hopkins Dementia Care Needs Assessment (JHDCNA, 2.0) to assess need for care.
“To assess the need for care, we used the translated and adapted Brazilian Portuguese version [15] of the Johns Hopkins Dementia Care Needs Assessment (JHDCNA, 2.0) [5, 6].”
From Unmet Needs in Dementia Care: The Predictive Role of Caregiver Challenges (2025) · cites this paper as [6]
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Case example for Chapter 6: Engaging key partners or relevant parties
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- Authors
- Johnston, D., Samus, Q. M., Morrison, A., Leoutsakos, J. S., Hicks, K., Handel, S., Rye, R., Robbins, B., Rabins, P. V., Lyketsos, C. G., & Black, B. S.
- Affiliations
- Johns Hopkins University (US)
- Corresponding author
- Johnston, D.
- Venue
- International Journal of Geriatric Psychiatry
- Publisher
- Wiley
- Published
- 2011-02-14
- Volume
- 26
- Issue
- 3
- Pages
- 292-298
- ISSN
- 0885-6230 (ISSN-L)
- 1099-1166
- PMC
- PMC3039061
- OpenAlex
- W2028062432
- Cited by
- 71
- References
- 26
- Citations by year
- 2026: 3 · 2025: 3 · 2024: 6 · 2023: 4 · 2022: 6 · 2021: 6 · 2020: 3 · 2019: 6 · 2018: 4 · 2017: 9 · 2016: 3 · 2015: 1 · 2014: 6 · 2013: 5 · 2012: 1
- FWCI
- 2.40
- Type
- journal article
- Language
- en
- Open access
- green
- www.ncbi.nlm.nih.gov
- Locations
- International Journal of Geriatric Psychiatry (publishedVersion)
- PubMed (publishedVersion)
- Europe PMC (PubMed Central) (acceptedVersion)
- PubMed Central (acceptedVersion)
- Funders
- Johns Hopkins University
- National Institute on Aging (P50AG005146, T32AG027668)
- National Institute of Mental Health (K01MH085142)
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Health Sciences › Health Professions › General Health Professions › Geriatric Care and Nursing Homes
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
- Keywords
- dementia, community-dwelling older adults, telephone screening, unmet care needs, home-based assessment, caregiver needs, activities of daily living, environmental safety, caregiver education, memory disorders
- MeSH terms
- Aged, Aged, 80 and over, Community Mental Health Services, Cross-Sectional Studies, Dementia, Female, Health Services Needs and Demand, Humans, Male, Maryland, Mass Screening, Telephone, Health Care Surveys, Needs Assessment
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