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Development of six PROMIS pediatrics proxy-report item banks
Open accessAbstract
BACKGROUND: Pediatric self-report should be considered the standard for measuring patient reported outcomes (PRO) among children. However, circumstances exist when the child is too young, cognitively impaired, or too ill to complete a PRO instrument and a proxy-report is needed. This paper describes the development process including the proxy cognitive interviews and large-field-test survey methods and sample characteristics employed to produce item parameters for the Patient Reported Outcomes Measurement Information System (PROMIS) pediatric proxy-report item banks. METHODS: The PROMIS pediatric self-report items were converted into proxy-report items before undergoing cognitive interviews. These items covered six domains (physical function, emotional distress, social peer relationships, fatigue, pain interference, and asthma impact). Caregivers (n = 25) of children ages of 5 and 17 years provided qualitative feedback on proxy-report items to assess any major issues with these items. From May 2008 to March 2009, the large-scale survey enrolled children ages 8-17 years to complete the self-report version and caregivers to complete the proxy-report version of the survey (n = 1548 dyads). Caregivers of children ages 5 to 7 years completed the proxy report survey (n = 432). In addition, caregivers completed other proxy instruments, PedsQL™ 4.0 Generic Core Scales Parent Proxy-Report version, PedsQL™ Asthma Module Parent Proxy-Report version, and KIDSCREEN Parent-Proxy-52. RESULTS: Item content was well understood by proxies and did not require item revisions but some proxies clearly noted that determining an answer on behalf of their child was difficult for some items. Dyads and caregivers of children ages 5-17 years old were enrolled in the large-scale testing. The majority were female (85%), married (70%), Caucasian (64%) and had at least a high school education (94%). Approximately 50% had children with a chronic health condition, primarily asthma, which was diagnosed or treated within 6 months prior to theinterview. The PROMIS proxy sample scored similar or better on the other proxy instruments compared to normative samples. CONCLUSIONS: The initial calibration data was provided by a diverse set of caregivers of children with a variety of common chronic illnesses and racial/ethnic backgrounds. The PROMIS pediatric proxy-report item banks include physical function (mobility n = 23; upper extremity n = 29), emotional distress (anxiety n = 15; depressive symptoms n = 14; anger n = 5), social peer relationships (n = 15), fatigue (n = 34), pain interference (n = 13), and asthma impact (n = 17).
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“Even so, parents’ perceptions of their child’s symptoms should be taken into account, because they may influence healthcare utilization and quality of care provided to the child [18,19].”
From COVID-19-Related Anxiety Symptoms among Quarantined Adolescents and Its Impact on Sleep Pattern Changes and Somatic Symptoms (2022) · cites this paper as [19]
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Metadata
- Authors
- Irwin, D. E., Gross, H. E., Stucky, B. D., Thissen, D., DeWitt, E., Lai, J., Amtmann, D., Khastou, L., Varni, J. W., & DeWalt, D. A.
- Affiliations
- University of North Carolina at Chapel Hill (US)
- Cincinnati Children's Hospital Medical Center (US)
- Northwestern University (US)
- University of Washington (US)
- Texas A&M University (US)
- Corresponding author
- Irwin, Debra E
- Venue
- Health and Quality of Life Outcomes
- Published
- 2012
- Volume
- 10
- Issue
- 1
- Pages
- 22
- ISSN
- 1477-7525 (ISSN-L)
- PMC
- PMC3312870
- OpenAlex
- W2158301563
- Cited by
- 315
- References
- 33
- Citations by year
- 2026: 26 · 2025: 34 · 2024: 36 · 2023: 41 · 2022: 27 · 2021: 37 · 2020: 34 · 2019: 16 · 2018: 18 · 2017: 10 · 2016: 8 · 2015: 13 · 2014: 7 · 2013: 6
- FWCI
- 11.03
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Licence
- cc-by
- Locations
- Health and Quality of Life Outcomes (publishedVersion, cc-by)
- Europe PMC (PubMed Central) (publishedVersion, cc-by)
- PubMed Central (publishedVersion, cc-by)
- PubMed (publishedVersion)
- Carolina Digital Repository (University of North Carolina at Chapel Hill) (submittedVersion)
- Carolina Digital Repository (University of North Carolina at Chapel Hill) (submittedVersion, cc-by)
- DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion)
- OakTrust (Texas A&M University Libraries) (submittedVersion)
- UNC Libraries
- Funders
- National Institutes of Health
- National Institute of Arthritis and Musculoskeletal and Skin Diseases (U01AR052181)
- Topics
- Social Sciences › Decision Sciences › Management Science and Operations Research › Psychometric Methodologies and Testing
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Childhood Cancer Survivors' Quality of Life
- Health Sciences › Nursing › Research and Theory › Health Education and Validation
- Keywords
- PROMIS, patient-reported outcomes, item bank, item parameter estimation, cognitive interviewing, physical function, emotional distress, fatigue, pain interference, PedsQL, KIDSCREEN, children with chronic illness, asthma, item response theory, reference values
- MeSH terms
- Adolescent, Age Factors, Child, Child Welfare, Child, Preschool, Chronic Disease, Cross-Sectional Studies, Female, Humans, Male, Parents, Pediatrics, Psychometrics, Quality of Life, Surveys and Questionnaires, Sensitivity and Specificity, Sex Factors, United States, Databases, Factual, Caregivers, Outcome Assessment, Health Care, Proxy, Self Report
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