The evolution of IBD perceived engagement and care needs across the life-cycle: a scoping review
Open accessPublished version of a preprint
Abstract
Background: The chronic and progressive evolution of Inflammatory Bowel Diseases (IBD), with its prototypical fluctuating trend, creates a condition of psycho-social discomfort, impacting the quality of life in terms of personal, working, and interpersonal. Aims: In this article, we want to identify the nature and extent of the research evidence on the life experiences, the perceived engagement, the psychological, social care and welfare needs of people affected by IBD across the lifecycle. Methods: Following the approach set out by Arksey and O’Malley and the PRISMA extension for scoping reviews, we conducted a scoping review in March 2019 and closed the review with an update in October 2019. It was performed using electronic databases covering Health and Life Sciences, Social Sciences and Medical Sciences, such as PubMed, Medline, Embase, Scopus, Cochrane, Web of Science, PsycInfo. Results: We identified 95 peer-reviewed articles published from 2009 to 2019, that allowed to detection the main needs in children (psychological, need to be accepted, physical activity, feeding, parent style, support, social needs), adolescents (to understand, physical and psychological needs, protection, relational, gratitude, respect, and engagement) and adults (information, medical, psychological, social, work-related, practical, future-related, engagement). Although the literature confirms that the majority of the IBD units have planned provision for the different types of transitions, the quality and appropriateness of these services have not been assessed or audited for all the kinds of challenges across the life cycle. Conclusions: The literature shows the relevance of organizing a flexible, personalized health care process across all the critical phases of the life cycle, providing adequate benchmarks for comparison in a multidisciplinary perspective and ensuring continuity between hospital and territory.
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Integrity signals
Registry
Cites
Statistics
Claims the paper makes
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
The use of personal values as a navigational tool aims to empower individuals to confront avoidant behavior, a common coping strategy in IBD given the nature of symptoms, which often leads to worsened outcomes in all aspects of an individual's everyday life.
“The use of personal values as a navigational tool aims to empower individuals to confront avoidant behavior, a common coping strategy in IBD given the nature of symptoms, which often leads to worsened outcomes in all aspects of an individual’s everyday life (Volpato et al., 2021).”
From Moving Towards Acceptance and Values: A Qualitative Study of ACTforIBD Compared to IBD Psychoeducation (2024) · cites this paper as Volpato et al., 2021
Split into 2 atoms — 0 confirmed, 1 partially supported, 0 disputed, 0 misattributed, 1 unverifiable. Expand the claim to see per-atom verdicts.
Experimental — accuracy not yet measuredThis may be why modules on assertiveness and self-esteem were so well received by this group.
“and this may be why modules on assertiveness and self-esteem were so well received by this group (Volpato et al., 2021).”
From Moving Towards Acceptance and Values: A Qualitative Study of ACTforIBD Compared to IBD Psychoeducation (2024) · cites this paper as Volpato et al., 2021
Feelings of powerlessness or shame are commonly associated with a diagnosis of IBD, resulting from unpredictability of symptoms and societal stigma.
“Feelings of powerlessness or shame are commonly associated with a diagnosis of IBD, resulting from unpredictability of symptoms and societal stigma”
From Moving Towards Acceptance and Values: A Qualitative Study of ACTforIBD Compared to IBD Psychoeducation (2024) · cites this paper as Volpato et al., 2021
Self-check
Percentages, sums and reported differences re-computed from the paper’s own numbers.
The self-check needs the paper’s full text.
Cites
PRISMA Extension for Scoping Reviews (PRISMA-ScR): Checklist and Explanation
Tricco, A. C., Lillie, E., Zarin, W., O'Brien, K. K., Colquhoun, H., Levac, D., Moher, D., Peters, M. D. J., Horsley, T., Weeks, L., et al. (2018) · Annals of Internal Medicine · doi:10.7326/m18-0850 · Cited by 43,565 · see citing works
Scoping studies: towards a methodological framework
Arksey, H., & O'Malley, L. (2005) · International Journal of Social Research Methodology · doi:10.1080/1364557032000119616 · Cited by 36,742 · see citing works
Molodecky, N. A., Soon, I. S., Rabi, D. M., Ghali, W. A., Ferris, M., Chernoff, G., Benchimol, E. I., Panaccione, R., Ghosh, S., Barkema, H. W., et al. (2012) · Gastroenterology · doi:10.1053/j.gastro.2011.10.001 · Cited by 4,833 · see citing works
Ford Alexander, C., Paul, M., Hanauer Steven, B., 谭蓓, & Dong, W. Z. (2001) · Cited by 3,021 · see citing works
Alatab, S., Sepanlou, S. G., Ikuta, K., Vahedi, H., Bisignano, C., Safiri, S., Sadeghi, A., Nixon, M. R., Abdoli, A., Abolhassani, H., et al. (2020) · The Lancet Gastroenterology & Hepatology · doi:10.1016/s2468-1253(19)30333-4 · Cited by 2,313 · see citing works
Epidemiology and Natural History of Inflammatory Bowel Diseases
Cosnes, J., Gower‐Rousseau, C., Seksik, P., & Cortot, A. (2011) · Gastroenterology · doi:10.1053/j.gastro.2011.01.055 · Cited by 2,212 · see citing works
Epidemiology and risk factors for IBD
Ananthakrishnan, A. N. (2015) · Nature Reviews Gastroenterology & Hepatology · doi:10.1038/nrgastro.2015.34 · Cited by 1,741 · see citing works
Transition from child-centered to adult health-care systems for adolescents with chronic conditions
Blum, R. W., Garell, D. C., Hodgman, C. H., Jorissen, T. W., Okinow, N., Orr, D. P., & Slap, G. B. (1993) · Journal of Adolescent Health · doi:10.1016/1054-139x(93)90143-d · Cited by 1,538 · see citing works
Danese, S., & Fiocchi, C. (2011) · New England Journal of Medicine · doi:10.1056/nejmra1102942 · Cited by 1,113 · see citing works
Dignass, A. U., Gasché, C., Bettenworth, D., Birgegård, G., Danese, S., Gisbert, J. P., Gomollón, F., Iqbal, T. H., Katsanos, K. H., Κoutroubakis, I. E., et al. (2014) · Journal of Crohn s and Colitis · doi:10.1093/ecco-jcc/jju009 · Cited by 635 · see citing works
Depression and anxiety in inflammatory bowel disease: A review of comorbidity and management
Graff, L. A., Walker, J. R., & Bernstein, C. N. (2009) · Inflammatory Bowel Diseases · doi:10.1002/ibd.20873 · Cited by 586 · see citing works
Health care transition: youth, family, and provider perspectives
Reiss, J. G., Gibson, R. W., & Walker, L. R. (2005) · Pediatrics · doi:10.1542/peds.2004-1321 · Cited by 568 · see citing works
Transition of care for adolescents from paediatric services to adult health services
Campbell, F., Biggs, K., Aldiss, S., O'Neill, P. M., Clowes, M., McDonagh, J. E. R., While, A., & Gibson, F. (2016) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd009794.pub2 · Cited by 526 · see citing works
Recent trends in the epidemiology of inflammatory bowel diseases: Up or down
Lakatos, P. L. (2006) · World Journal of Gastroenterology · doi:10.3748/wjg.v12.i38.6102 · Cited by 445 · see citing works
Schwartz, L. A., Tuchman, L. K., Hobbie, W. L., & Ginsberg, J. P. (2011) · Child Care Health and Development · doi:10.1111/j.1365-2214.2011.01282.x · Cited by 402 · see citing works
Feuerstein, J. D., & Cheifetz, A. S. (2014) · Mayo Clinic Proceedings · doi:10.1016/j.mayocp.2014.07.002 · Cited by 378 · see citing works
Gastroenterology Research and Practice
(2008) · Gastroenterology Research and Practice · doi:10.1155/grp · Cited by 342 · see citing works
Rieder, F., Bettenworth, D., Ma, C., Parker, C. E., Williamson, L., Nelson, S., Assche, G. V., Sabatino, A. D., Bouhnik, Y., Stidham, R. W., et al. (2018) · Alimentary Pharmacology & Therapeutics · doi:10.1111/apt.14853 · Cited by 265 · see citing works
Psychological issues in inflammatory bowel disease: an overview
Sajadinejad, M. S., Asgari, K., Molavi, H., Kalantari, M., & Adibi, P. (2012) · Gastroenterology Research and Practice · doi:10.1155/2012/106502 · Cited by 242 · see citing works
Prevalence of anxiety and depression in patients with inflammatory bowel disease
Byrne, G., Rosenfeld, G., Leung, Y., Qian, H., Raudzus, J., Nunez, C., & Bressler, B. (2017) · Canadian Journal of Gastroenterology and Hepatology · doi:10.1155/2017/6496727 · Cited by 234 · see citing works
Diet and Inflammatory Bowel Disease: Review of Patient-Targeted Recommendations
Hou, J. K., Lee, D. Y., & Lewis, J. D. (2013) · Clinical Gastroenterology and Hepatology · doi:10.1016/j.cgh.2013.09.063 · Cited by 204 · see citing works
Miele, E., Shamir, R., Aloi, M., Assa, A., Braegger, C., Bronsky, J., de Ridder, L., Escher, J. C., Hojsak, I., Kolaček, S., et al. (2018) · Journal of Pediatric Gastroenterology and Nutrition · doi:10.1097/mpg.0000000000001896 · Cited by 191 · see citing works
van Tilburg, M. A. L., Palsson, O. S., & Whitehead, W. E. (2013) · Journal of Psychosomatic Research · doi:10.1016/j.jpsychores.2013.03.004 · Cited by 151 · see citing works
Patient engagement in hospital health service planning and improvement: a scoping review
Liang, L., Cako, A., Urquhart, R., Straus, S. E., Wodchis, W. P., Baker, G. R., & Gagliardi, A. R. (2018) · BMJ Open · doi:10.1136/bmjopen-2017-018263 · Cited by 145 · see citing works
An exploration of the follow-up up needs of patients with inflammatory bowel disease
Kemp, K., Griffiths, J., Campbell, S. S., & Lovell, K. (2013) · Journal of Crohn s and Colitis · doi:10.1016/j.crohns.2013.03.001 · Cited by 142 · see citing works
A Diet Low in Red and Processed Meat Does Not Reduce Rate of Crohn’s Disease Flares
Albenberg, L. G., Brensinger, C. M., Wu, Q., Gilroy, E. D., Kappelman, M. D., Sandler, R. S., & Lewis, J. D. (2019) · Gastroenterology · doi:10.1053/j.gastro.2019.03.015 · Cited by 140 · see citing works
Patient’s Dietary Beliefs and Behaviours in Inflammatory Bowel Disease
de Vries, J. H. M., Dijkhuizen, M., Tap, P., & Witteman, B. J. M. (2018) · Digestive Diseases · doi:10.1159/000494022 · Cited by 136 · see citing works
Taura, N., Ichikawa, T., Miyaaki, H., Kadokawa, Y., Tsutsumi, T., Tsuruta, S., Kato, Y., INOUE, O., Kinoshita, N., Ohba, K., et al. (2012) · Gastroenterology Research and Practice · doi:10.1155/2012/317580 · Cited by 129 · see citing works
Concerns, Barriers, and Recommendations to Improve Transition from Pediatric to Adult IBD Care
Gray, W. N., Resmini, A., Baker, K. D., Holbrook, E., Morgan, P. J., Ryan, J. L., Saeed, S. A., Denson, L. A., & Hommel, K. A. (2015) · Inflammatory Bowel Diseases · doi:10.1097/mib.0000000000000419 · Cited by 119 · see citing works
The Influence of Depression on Quality of Life in Patients with Inflammatory Bowel Disease
Zhang, H., Hewett, J., Hemming, J., Grant, T., Zhao, H., Abraham, C., Oikonomou, I. K., Kanakia, M., Cho, J. H., & Proctor, D. D. (2013) · Inflammatory Bowel Diseases · doi:10.1097/mib.0b013e318281f395 · Cited by 117 · see citing works
Kemp, K. (2012) · World Journal of Gastroenterology · doi:10.3748/wjg.v18.i43.6240 · Cited by 116 · see citing works
Systematic review: psychosocial factors associated with pain in inflammatory bowel disease
Sweeney, L., Moss‐Morris, R., Czuber‐Dochan, W., Meade, L., Chumbley, G., & Norton, C. (2018) · Alimentary Pharmacology & Therapeutics · doi:10.1111/apt.14493 · Cited by 112 · see citing works
van Rheenen, P. V., Aloi, M., Biron, I., Carlsen, K., Cooney, R., Cucchiara, S., Cullen, G., Escher, J., Kierkuś, J., Lindsay, J., et al. (2017) · Journal of Crohn's & Colitis · doi:10.1093/ecco-jcc/jjx010 · Cited by 107 · see citing works
Schreiner, P., Yılmaz, B., Rossel, J., Franc, Y., Misselwitz, B., Scharl, M. M., Zeitz, J., Frei, P., Greuter, T., Vavricka, S. R., et al. (2019) · United European Gastroenterology Journal · doi:10.1177/2050640619841249 · Cited by 103 · see citing works
Assessment of knowledge in adolescents with inflammatory bowel disease using a novel transition tool
Benchimol, E. I., Walters, T. D., Kaufman, M. E., Frost, K., Fiedler, K. B., Chinea, Z., & Zachos, M. (2010) · Inflammatory Bowel Diseases · doi:10.1002/ibd.21464 · Cited by 99 · see citing works
Emerging leadership lecture: Inflammatory bowel disease in A sia: Emergence of a “ W estern” disease
Ng, S. C. (2014) · Journal of Gastroenterology and Hepatology · doi:10.1111/jgh.12859 · Cited by 95 · see citing works
Ananthakrishnan, A. N., Gainer, V. S., Cai, T., Perez, R. G., Cheng, S., Savova, G., Chen, P., Peter Szolovits, B., Xia, Z., Jager, P. L. D., et al. (2013) · The American Journal of Gastroenterology · doi:10.1038/ajg.2012.471 · Cited by 93 · see citing works
How IBD patients cope with IBD: A systematic review
McCombie, A., Mulder, R., & Gearry, R. B. (2012) · Journal of Crohn s and Colitis · doi:10.1016/j.crohns.2012.05.021 · Cited by 89 · see citing works
Antibiotics exposure and risk of inflammatory bowel disease: a systematic review
Theochari, N. A., Stefanopoulos, A., Mylonas, K. S., & Economopoulos, K. P. (2017) · Scandinavian Journal of Gastroenterology · doi:10.1080/00365521.2017.1386711 · Cited by 89 · see citing works
Bokemeyer, B., Hardt, J., Hüppe, D., Prenzler, A., Conrad, S., Düffelmeyer, M., Hartmann, P., Hoffstadt, M., Klugmann, T., Schmidt, C., et al. (2013) · Journal of Crohn s and Colitis · doi:10.1016/j.crohns.2012.02.014 · Cited by 87 · see citing works
Disease-Specific Knowledge, Coping, and Adherence in Patients with Inflammatory Bowel Disease
Moradkhani, A., Kerwin, L. E., Dudley-Brown, S. L., & Tabibian, J. H. (2011) · Digestive Diseases and Sciences · doi:10.1007/s10620-011-1714-y · Cited by 80 · see citing works
van der Have, M., Brakenhoff, L. K. P. M., van Erp, S. J. H., Kaptein, A. A., Leenders, M. B., Scharloo, M., Veenendaal, R. A., van der Heijde, D. M. F. M., Jong, A. E. V. D. M., Hommes, D. W., et al. (2014) · Journal of Crohn s and Colitis · doi:10.1093/ecco-jcc/jju025 · Cited by 74 · see citing works
Jordan, C., Sin, J., Fear, N. T., & Chalder, T. (2016) · Clinical Psychology Review · doi:10.1016/j.cpr.2016.06.001 · Cited by 66 · see citing works
Transition of the Patient with IBD from Pediatric toAdult Care—An Assessment of Current Evidence
de Silva, P., & Fishman, L. (2014) · Inflammatory Bowel Diseases · doi:10.1097/mib.0000000000000045 · Cited by 65 · see citing works
Telemedicine in Inflammatory Bowel Disease
Aguas, M., del Hoyo, J., Bebia, P., Faubel, R., Barrios, A., Bastida, G., Valdivieso, B., & Nos, P. (2014) · Inflammatory Bowel Diseases · doi:10.1097/mib.0000000000000241 · Cited by 63 · see citing works
Transition Readiness in Pediatric Patients With Inflammatory Bowel Disease
Whitfield, E. P., Fredericks, E. M., Eder, S. J., Shpeen, B. H., & Adler, J. (2014) · Journal of Pediatric Gastroenterology and Nutrition · doi:10.1097/mpg.0000000000000555 · Cited by 61 · see citing works
van den Brink, G., Stapersma, L., Vlug, L. E., Rizopolous, D., Bodelier, A. G., van Wering, H., Hurkmans, P. C. W. M., Stuyt, R. J. L., Hendriks, D. M., van der Burg, J. A. T., et al. (2018) · Alimentary Pharmacology & Therapeutics · doi:10.1111/apt.14832 · Cited by 61 · see citing works
McClave, S. A., Gualdoni, J., Nagengast, A., Marsano, L. S., Bandy, K., & Martindale, R. G. (2020) · Current Gastroenterology Reports · doi:10.1007/s11894-019-0736-z · Cited by 59 · see citing works
Gordon, J. P., McEwan, P. C., Maguire, A., et al. (2015) · European Journal of Gastroenterology & Hepatology · doi:10.1097/meg.0000000000000378 · Cited by 55 · see citing works
Patient engagement in healthcare: pathways for effective medical decision making
Barello, S., & Graffigna, G. (2015) · Neuropsychological Trends · doi:10.7358/neur-2015-017-bare · Cited by 54 · see citing works
Self-citationLarussa, T., Suraci, E., Marasco, R., Imeneo, M., Abenavoli, L., & Luzza, F. (2019) · Medicina · doi:10.3390/medicina55080507 · Cited by 50 · see citing works
Resource utilization during pediatric to adult transfer of care in IBD
Bollegala, N. P., Brill, H., & Marshall, J. K. (2012) · Journal of Crohn s and Colitis · doi:10.1016/j.crohns.2012.05.010 · Cited by 48 · see citing works
Results of a national survey on quality of life in inflammatory bowel diseases
Lesage, A., Hagège, H., Tucat, G., & Jp, G. (2010) · Clinics and Research in Hepatology and Gastroenterology · doi:10.1016/j.gcb.2009.08.015 · Cited by 47 · see citing works
Gumidyala, A., Plevinsky, J., Poulopoulos, N., Kahn, S., Walkiewicz, D., & Greenley, R. (2017) · Inflammatory Bowel Diseases · doi:10.1097/mib.0000000000000974 · Cited by 46 · see citing works
Patient knowledge in inflammatory bowel disease
Wardle, R. A., & Mayberry, J. F. (2013) · European Journal of Gastroenterology & Hepatology · doi:10.1097/meg.0b013e328365d21a · Cited by 45 · see citing works
Psychological factors and inflammatory bowel disease: A review of a decade of literature
Searle, A., & Bennett, P. D. (2001) · Psychology Health & Medicine · doi:10.1080/13548500120035382 · Cited by 45 · see citing works
Siegel, C. A., Lofland, J. H., Naim, A. B., Gollins, J., Walls, D. M., Rudder, L. E., & Reynolds, C. (2015) · Patient · doi:10.1007/s40271-015-0126-z · Cited by 45 · see citing works
Dibley, L. B., Czuber‐Dochan, W., Wade, T., Duncan, J., Burch, J., Warusavitarne, J. H., Norton, C. S., Artom, M., O’Sullivan, L., Verjee, A., et al. (2018) · Inflammatory Bowel Diseases · doi:10.1093/ibd/izx043 · Cited by 44 · see citing works
Long-term outcomes of colectomy surgery among patients with ulcerative colitis
Brown, C. J., Gibson, P. R., Hart, A. L., Kaplan, G. G., Kachroo, S., Ding, Q., Hautamaki, E., Fan, T., Black, C. M., Hu, X., et al. (2015) · SpringerPlus · doi:10.1186/s40064-015-1350-7 · Cited by 43 · see citing works
Patient Education in Inflammatory Bowel Disease: A Patient-Centred, Mixed Methodology Study
McDermott, E., Healy, G. M., Mullen, G., Keegan, D., Byrne, K., Guérandel, A., Forry, M., Moloney, J., Doherty, G. A., Cullen, G., et al. (2017) · Journal of Crohn s and Colitis · doi:10.1093/ecco-jcc/jjx175 · Cited by 42 · see citing works
Group intervention for burnout in parents of chronically ill children – a small‐scale study
Lindström, C., Åman, J., Anderzén‐Carlsson, A., & Norberg, A. L. (2015) · Scandinavian Journal of Caring Sciences · doi:10.1111/scs.12287 · Cited by 41 · see citing works
Tomar, S. K., Kedia, S., Upadhyay, A. D., Bopanna, S., Yadav, D. P., Goyal, S., Jain, S., Makharia, G. K., Ahuja, V., & Singh, N. (2017) · JGH Open · doi:10.1002/jgh3.12002 · Cited by 41 · see citing works
Transition of pediatric to adult care in inflammatory bowel disease: Is it as easy as 1, 2, 3?
Afzali, A., & Wahbeh, G. T. (2017) · World Journal of Gastroenterology · doi:10.3748/wjg.v23.i20.3624 · Cited by 40 · see citing works
Adolescent Health Care Transition in Transition
Cooley, W. C. (2013) · Archives of Pediatrics and Adolescent Medicine · doi:10.1001/jamapediatrics.2013.2578 · Cited by 37 · see citing works
Psychosocial Developmental Trajectory of Adolescents With Inflammatory Bowel Disease
Hummel, T., Tak, E., Maurice‐Stam, H., Benninga, M. A., Kindermann, A., & Grootenhuis, M. A. (2013) · Journal of Pediatric Gastroenterology and Nutrition · doi:10.1097/mpg.0b013e3182935474 · Cited by 36 · see citing works
Catalán‐Serra, I., Huguet-Malavés, J. M., Mínguez, M., et al. (2015) · Gastroenterología y Hepatología · doi:10.1016/j.gastrohep.2014.09.003 · Cited by 36 · see citing works
Trindade, I. A., Ferreira, C., & Pinto‐Gouveia, J. (2018) · British Journal of Health Psychology · doi:10.1111/bjhp.12280 · Cited by 35 · see citing works
Can Smartphones Help Deliver Smarter Care for Patients With Inflammatory Bowel Disease?
Kelso, M., & Feagins, L. A. (2018) · Inflammatory Bowel Diseases · doi:10.1093/ibd/izy162 · Cited by 34 · see citing works
López–Sanromán, A., Carpio, D., Calvet, X., Romero, C., Cea‐Calvo, L., Juliá, B., & Argüelles‐Arias, F. (2016) · Digestive Diseases and Sciences · doi:10.1007/s10620-016-4363-3 · Cited by 33 · see citing works
Kluthe, C., Isaac, D. M., Hiller, K., Carroll, M. W., Wine, E., van Manen, M., & Huynh, H. Q. (2017) · Journal of Pediatric Nursing · doi:10.1016/j.pedn.2017.11.011 · Cited by 33 · see citing works
Trindade, I. A., Ferreira, C., & Pinto‐Gouveia, J. (2016) · Quality of Life Research · doi:10.1007/s11136-016-1378-3 · Cited by 30 · see citing works
Mählmann, L., Gerber, M., Furlano, R. I., Légeret, C., Kalak, N., Holsboer‐Trachsler, E., & Brand, S. (2017) · BMC Gastroenterology · doi:10.1186/s12876-017-0721-7 · Cited by 30 · see citing works
Baker, D. M., Lee, M. J., Jones, G. L., Brown, S. R., & Lobo, A. (2017) · Inflammatory Bowel Diseases · doi:10.1093/ibd/izx026 · Cited by 30 · see citing works
Otto, C., Tárnok, A., Erős, A., Szakács, Z., Vincze, Á., Farkas, N., & Sarlós, P. (2019) · Journal of pediatric nursing · doi:10.1016/j.pedn.2019.02.003 · Cited by 30 · see citing works
Nutritional status as a predictor of hospitalization in inflammatory bowel disease: A review
Rocha, R., Sousa, U. H., Reis, T. L. M., et al. (2019) · World Journal of Gastrointestinal Pharmacology and Therapeutics · doi:10.4292/wjgpt.v10.i2.50 · Cited by 30 · see citing works
Mahlich, J., Matsuoka, K., & Sruamsiri, R. (2017) · Digestive Diseases · doi:10.1159/000471795 · Cited by 28 · see citing works
High Demand for Psychotherapy in Patients with Inflammatory Bowel Disease
Klag, T., Mazurak, N., Fantasia, L., Schwille‐Kiuntke, J., Kirschniak, A., Falch, C., Goetz, M., Malek, N. P., Enck, P., & Wehkamp, J. (2017) · Inflammatory Bowel Diseases · doi:10.1097/mib.0000000000001216 · Cited by 28 · see citing works
Calvet, X., Argüelles‐Arias, F., López–Sanromán, A., Cea‐Calvo, L., Juliá, B., de Santos, C. R., & Carpio, D. (2018) · Patient Preference and Adherence · doi:10.2147/ppa.s175026 · Cited by 28 · see citing works
Making a Medical Home for IBD Patients
Kosinski, L. R., Brill, J. V., & Regueiro, M. D. (2017) · Current Gastroenterology Reports · doi:10.1007/s11894-017-0561-1 · Cited by 27 · see citing works
Jordan, C., Ohlsen, R. I., Hayee, B., & Chalder, T. (2017) · Psychology and Health · doi:10.1080/08870446.2017.1381958 · Cited by 27 · see citing works
Chen, L., Chang, L., Hua, C., Hsieh, B.-J., Chen, S., & Chien, R. (2017) · BMC Gastroenterology · doi:10.1186/s12876-016-0563-8 · Cited by 26 · see citing works
Kamp, K., & Brittain, K. (2018) · Patient · doi:10.1007/s40271-017-0294-0 · Cited by 25 · see citing works
Gray, W. N., Reed, B., Morgan, P. J., Holbrook, E., Kugathasan, S., Saeed, S. A., Denson, L. A., & Hommel, K. A. (2018) · Journal of Pediatric Nursing · doi:10.1016/j.pedn.2018.01.008 · Cited by 25 · see citing works
Health Priorities in Adolescents With Inflammatory Bowel Disease
Cervesi, C., Battistutta, S., Martelossi, S., Ronfani, L., & Ventura, A. (2013) · Journal of Pediatric Gastroenterology and Nutrition · doi:10.1097/mpg.0b013e31828b5fd4 · Cited by 24 · see citing works
Dietary beliefs and behaviors among parents of children with inflammatory bowel disease
Pituch-Zdanowska, A., Kowalska-Duplaga, K., Jarocka-Cyrta, E., Stawicka, A., Dziekiewicz, M., & Banaszkiewicz, A. (2019) · Journal of Medicinal Food · doi:10.1089/jmf.2018.0206 · Cited by 23 · see citing works
Managing Pain and Psychosocial Care in IBD: a Primer for the Practicing Gastroenterologist
Weaver, E. K., & Szigethy, E. (2020) · Current Gastroenterology Reports · doi:10.1007/s11894-020-0757-7 · Cited by 23 · see citing works
van Deen, W. K., Nguyen, D., Duran, N. E., Kane, E., van Oijen, M. G. H., & Hommes, D. W. (2016) · Quality of Life Research · doi:10.1007/s11136-016-1398-z · Cited by 21 · see citing works
Predictors of Impaired Mental Health and Support Seeking in Adults With Inflammatory Bowel Disease
Knowles, S. R., Andrews, J. M., & Porter, A. (2018) · Gastroenterology Nursing · doi:10.1097/sga.0000000000000251 · Cited by 18 · see citing works
Haapamäki, J., Heikkinen, E., Sipponen, T. M., Roine, R. P., & Arkkila, P. E. T. (2018) · Scandinavian Journal of Gastroenterology · doi:10.1080/00365521.2018.1500639 · Cited by 18 · see citing works
Inflammatory bowel disease in transition: challenges and solutions in adolescent care
McCartney, S. A. (2011) · Frontline Gastroenterology · doi:10.1136/fg.2010.002741 · Cited by 17 · see citing works
The Perception of Physician Empathy by Patients with Inflammatory Bowel Disease
Chiapponi, C., Witt, M., Dlugosch, G. E., Gülberg, V., & Siebeck, M. (2016) · PLoS ONE · doi:10.1371/journal.pone.0167113 · Cited by 16 · see citing works
Life Experiences of People Affected by Crohn’s Disease and Their Support Networks
García‐Sanjuán, S., Lillo‐Crespo, M., Quiles, Á. S., Gil‐González, D., & Richart‐Martínez, M. (2014) · Clinical Nursing Research · doi:10.1177/1054773814543828 · Cited by 14 · see citing works
Adolescents' Lived Experiences While Hospitalized After Surgery for Ulcerative Colitis
Olsen, I. Ø., Jensen, S., Larsen, L., & Sørensen, E. E. (2015) · Gastroenterology Nursing · doi:10.1097/sga.0000000000000154 · Cited by 12 · see citing works
Healthcare Transition in Pediatrics and Young Adults With Inflammatory Bowel Disease
Rohatinsky, N., Risling, T., Kumaran, M., Hellsten, L.-A. M., & Thorp-Froslie, N. (2018) · Gastroenterology Nursing · doi:10.1097/sga.0000000000000345 · Cited by 12 · see citing works
When Your Pregnancy Echoes Your Illness: Transition to Motherhood With Inflammatory Bowel Disease
Ghorayeb, J., Branney, P., Selinger, C. P., & Madill, A. (2018) · Qualitative Health Research · doi:10.1177/1049732318763114 · Cited by 11 · see citing works
Disease-related information requirements in patients with Crohn’s disease
Wu, Q., & Zhong, J. (2018) · Patient Preference and Adherence · doi:10.2147/ppa.s169706 · Cited by 11 · see citing works
Clarke, T., & Lusher, J. (2015) · Frontline Gastroenterology · doi:10.1136/flgastro-2015-100575 · Cited by 10 · see citing works
Crohn’s Disease and the Young Couple: An Interpretative Phenomenological Analysis
Nutting, R., & Grafsky, E. L. (2017) · Contemporary Family Therapy · doi:10.1007/s10591-017-9451-9 · Cited by 10 · see citing works
Swedish Children's Lived Experience of Ulcerative Colitis
Vejzović, V., Bramhagen, A.-C., Idvall, E., & Wennick, A. (2017) · Gastroenterology Nursing · doi:10.1097/sga.0000000000000295 · Cited by 9 · see citing works
Partners of patients with inflammatory bowel disease: how important is their support?
Lahat, A., Neuman, S., Eliakim, R., & Ben‐Horin, S. (2014) · Clinical and Experimental Gastroenterology · doi:10.2147/ceg.s62173 · Cited by 8 · see citing works
Unmet psychosocial needs in adolescents with inflammatory bowel disease.
Zmeškalová, D., Praško, J. P., Holubová, M., et al. (2016) · PubMed · Cited by 3 · see citing works
Otto‐Sobotka, F., Peplies, J., & Timmer, A. (2019) · Clinical Epidemiology · doi:10.2147/clep.s191458 · Cited by 1 · see citing works
Flagged first, then by citations
Research works printed but not linked: 1
- [57]Whitfield EP Fredericks EM Eder SJ Shpeen BH Adler J Transition readiness in pediatric patients with inflammatory bowel disease J Pediatr Gastroenterol Nutr 2015 60 36 41 10.1097/MPG.0000000000000555 25199036 PMC4624208 · DOI
Cited by
Sorted by citations
Wilkin, K., Evans, S., Van Niekerk, L., Romano, D., Fuller-Tyszkiewicz, M., Knowles, S., Chesterman, S., Raven, L., & Mikocka-Walus, A. (2024) · Journal of Clinical Psychology in Medical Settings · doi:10.1007/s10880-023-09999-5 · Cited by 5 · see citing works
“The use of personal values as a navigational tool aims to empower individuals to confront avoidant behavior, a common coping strategy in IBD given the nature of symptoms, which often leads to worsened outcomes in all aspects of an individual’s everyday life (Volpato et al., 2021).”
Background
- Authors
- Volpato, E., Bosio, C., Previtali, E., Leone, S., Armuzzi, A., Pagnini, F., & Graffigna, G.
- Affiliations
- Università Cattolica del Sacro Cuore (IT)
- Corresponding author
- Volpato, E.
- Venue
- BMC Gastroenterology
- Published
- 2021-07-14
- Volume
- 21
- Issue
- 1
- Pages
- 293-293
- ISSN
- 1471-230X (ISSN-L)
- PMC
- PMC8278693
- OpenAlex
- W3178375929
- Cited by
- 34
- References
- 102
- Citations by year
- 2026: 7 · 2025: 9 · 2024: 10 · 2023: 4 · 2022: 1 · 2021: 3
- FWCI
- 1.02
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Locations
- BMC Gastroenterology (publishedVersion, cc-by)
- Research Square (acceptedVersion, cc-by)
- PubMed Central (publishedVersion, cc-by)
- PubMed (publishedVersion)
- Lirias (submittedVersion, other-oa)
- DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
- PubliCatt (Università Cattolica del Sacro Cuore) (submittedVersion, other-oa)
- Topics
- Health Sciences › Health Professions › Speech and Hearing › Adolescent and Pediatric Healthcare
- Life Sciences › Biochemistry, Genetics and Molecular Biology › Genetics › Inflammatory Bowel Disease
- Social Sciences › Sociology and Political Science › Family Support in Illness
- Keywords
- inflammatory bowel disease, life cycle, care needs, patient engagement, psychological needs, social needs, children, adolescents, adults, quality of life, care transitions, personalized healthcare, continuity of care
- MeSH terms
- Adolescent, Adult, Animals, Child, Humans, Life Cycle Stages, Parents, Quality of Life, Social Support, Inflammatory Bowel Diseases
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review
