Dissemination and implementation research in dementia care: a systematic scoping review and evidence map
Open accessAbstract
BACKGROUND: The need to better understand implementing evidence-informed dementia care has been recognised in multiple priority-setting partnerships. The aim of this scoping review was to give an overview of the state of the evidence on implementation and dissemination of dementia care, and create a systematic evidence map. METHODS: We sought studies that addressed dissemination and implementation strategies or described barriers and facilitators to implementation across dementia stages and care settings. Twelve databases were searched from inception to October 2015 followed by forward citation and grey literature searches. Quantitative studies with a comparative research design and qualitative studies with recognised methods of data collection were included. Titles, abstracts and full texts were screened independently by two reviewers with discrepancies resolved by a third where necessary. Data extraction was performed by one reviewer and checked by a second. Strategies were mapped according to the ERIC compilation. RESULTS: Eighty-eight studies were included (30 quantitative, 34 qualitative and 24 mixed-methods studies). Approximately 60% of studies reported implementation strategies to improve practice: training and education of professionals (94%), promotion of stakeholder interrelationships (69%) and evaluative strategies (46%) were common; financial strategies were rare (15%). Nearly 70% of studies reported barriers or facilitators of care practices primarily within residential care settings. Organisational factors, including time constraints and increased workload, were recurrent barriers, whereas leadership and managerial support were often reported to promote implementation. Less is known about implementation activities in primary care and hospital settings, or the views and experiences of people with dementia and their family caregivers. CONCLUSION: This scoping review and mapping of the evidence reveals a paucity of robust evidence to inform the successful dissemination and implementation of evidence-based dementia care. Further exploration of the most appropriate methods to evaluate and report initiatives to bring about change and of the effectiveness of implementation strategies is necessary if we are to make changes in practice that improve dementia care.
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Integrity signals
Registry
Cites
Statistics
Claims the paper makes
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
The PRISMA-ScR was applied to a scoping review on a health-related topic to test the checklist.
“The PRISMA-ScR was applied to a scoping review on a health-related topic (26) by participants (e.g., researchers, scientists, policy makers, managers, and students) to test the checklist .”
From PRISMA Extension for Scoping Reviews (PRISMA-ScR): Checklist and Explanation (2018) · cites this paper as [26]
The Methods section identifies this as a scoping review of dissemination and implementation research in dementia care, so it supports identifying the health-related review. It says the review was guided by Arksey and O’Malley’s methods; our copy does not report that participants applied PRISMA-ScR to it to test the checklist (Methods; page unavailable). (LLM, conf=0.86)
Experimental — accuracy not yet measuredThe gap between evidence and practice is particularly acute with respect to dementia care, exacerbated by the challenges of delivering dementia services in rural settings.
“The gap between evidence and practice is particularly acute with respect to dementia care [3, 4], exacerbated by the challenges of delivering dementia services in rural settings [5–7].”
From Factors influencing sustainability and scale-up of rural primary healthcare memory clinics: perspectives of clinic team members (2022) · cites this paper as [4]
There is limited research on effective models for dementia care in rural primary healthcare, or evidence on sustaining and scaling them.
“Despite the key role of primary healthcare in rural settings there is limited research on effective models for dementia care, or evidence on sustaining and scaling them.”
From Factors influencing sustainability and scale-up of rural primary healthcare memory clinics: perspectives of clinic team members (2022) · cites this paper as [4]
Self-check
Percentages, sums and reported differences re-computed from the paper’s own numbers.
The self-check needs the paper’s full text.
Cites
Scoping studies: towards a methodological framework
Arksey, H., & O'Malley, L. (2005) · International Journal of Social Research Methodology · doi:10.1080/1364557032000119616 · Cited by 36,742 · see citing works
Scoping studies: advancing the methodology
Levac, D., Colquhoun, H., & O'Brien, K. K. (2010) · Implementation Science · doi:10.1186/1748-5908-5-69 · Cited by 15,268 · see citing works
Evaluating the public health impact of health promotion interventions: the RE-AIM framework.
Glasgow, R. E., Vogt, T. M., & Boles, S. M. (1999) · American Journal of Public Health · doi:10.2105/ajph.89.9.1322 · Cited by 7,217 · see citing works
Powell, B. J., Waltz, T. J., Chinman, M. J., Damschroder, L. J., Smith, J. L., Matthieu, M. M., Proctor, E. K., & Kirchner, J. E. (2015) · Implementation Science · doi:10.1186/s13012-015-0209-1 · Cited by 4,963 · see citing works
The global prevalence of dementia: a systematic review and metaanalysis.
Prince, M., Bryce, R., Albanese, E., Wimo, A., Ribeiro, W., & Ferri, C. P. (2013) · Alzheimer's & Dementia · doi:10.1016/j.jalz.2012.11.007 · Cited by 4,941 · see citing works
Hearing loss and cognitive decline in older adults
Lin, F. R., Yaffe, K., Xia, J., Xue, Q.-L., Harris, T. B., Purchase-Helzner, E., Satterfield, S., Ayonayon, H. N., Ferrucci, L., Simonsick, E. M., et al. (2013) · JAMA Internal Medicine · doi:10.1001/jamainternmed.2013.1868 · Cited by 4,017 · see citing works
Advancing a Conceptual Model of Evidence-Based Practice Implementation in Public Service Sectors
Aarons, G. A., Hurlburt, M., & Horwitz, S. M. (2011) · Administration and Policy in Mental Health and Mental Health Services Research · doi:10.1007/s10488-010-0327-7 · Cited by 3,240 · cited 1× · see citing works
“[29] there are four phases of implementation: Exploration, Preparation, Implementation, and Sustainment.”
BackgroundKnowledge translation of research findings
Grimshaw, J. M., Eccles, M. P., Lavis, J. N., Hill, S. J., & Squires, J. E. (2012) · Implementation Science · doi:10.1186/1748-5908-7-50 · Cited by 2,407 · see citing works
The American Psychiatric Association (APA)
Strentz, T. (2017) · CRC Press eBooks · doi:10.1201/9781315150581-3 · Cited by 1,855 · see citing works
Monetary Costs of Dementia in the United States
Hurd, M. D., Martorell, P., Delavande, A., Mullen, K. J., & Langa, K. M. (2013) · New England Journal of Medicine · doi:10.1056/nejmsa1204629 · Cited by 1,484 · see citing works
Bridging Research and Practice
Tabak, R. G., Khoong, E. C., Chambers, D. A., & Brownson, R. C. (2012) · American Journal of Preventive Medicine · doi:10.1016/j.amepre.2012.05.024 · Cited by 1,386 · see citing works
What drives change? Barriers to and incentives for achieving evidence‐based practice
Grol, R., & Wensing, M. (2004) · Medical Journal of Australia · doi:10.5694/j.1326-5377.2004.tb05948.x · Cited by 1,378 · see citing works
Francke, A. L., Smit, M. C., de Veer, A. J. E., & Mistiaen, P. (2008) · BMC Medical Informatics and Decision Making · doi:10.1186/1472-6947-8-38 · Cited by 1,131 · see citing works
Living Well with Dementia: A National Dementia Strategy
(2009) · PsycEXTRA Dataset · doi:10.1037/e608082011-001 · Cited by 1,118 · see citing works
Waltz, T. J., Powell, B. J., Matthieu, M. M., Damschroder, L. J., Chinman, M. J., Smith, J. L., Proctor, E. K., & Kirchner, J. E. (2015) · Implementation Science · doi:10.1186/s13012-015-0295-0 · Cited by 1,108 · see citing works
A compilation of strategies for implementing clinical innovations in health and mental health
Powell, B. J., McMillen, J. C., Proctor, E. K., Carpenter, C. R., Griffey, R. T., Bunger, A. C., Glass, J. E., & York, J. L. (2012) · Medical Care Research and Review · doi:10.1177/1077558711430690 · Cited by 1,069 · see citing works
Baker, R., Camosso-Stefinovic, J., Gillies, C., Shaw, E. J., Cheater, F., Flottorp, S., & Robertson, N. (2010) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd005470.pub2 · Cited by 1,003 · see citing works
Vollmar, H. C., Mayer, H., Ostermann, T., Butzlaff, M. E., Sandars, J. E., Wilm, S., & Rieger, M. A. (2010) · Implementation Science · doi:10.1186/1748-5908-5-1 · Cited by 693 · see citing works
Dementia in the acute hospital: prospective cohort study of prevalence and mortality
Sampson, E. L., Blanchard, M. R., Jones, L., Tookman, A. J., & King, M. (2009) · The British Journal of Psychiatry · doi:10.1192/bjp.bp.108.055335 · Cited by 598 · see citing works
Prior, M., Guerin, M., & Grimmer, K. A. (2008) · Journal of Evaluation in Clinical Practice · doi:10.1111/j.1365-2753.2008.01014.x · Cited by 509 · see citing works
Comorbidity and dementia: a scoping review of the literature
Bunn, F., Burn, A.-M., Goodman, C., Rait, G., Norton, S., Robinson, L., Schoeman, J., & Brayne, C. (2014) · BMC Medicine · doi:10.1186/s12916-014-0192-4 · Cited by 451 · see citing works
Implementation of the CALM intervention for anxiety disorders: a qualitative study
Curran, G. M., Sullivan, G., Mendel, P. J., Craske, M. G., Sherbourne, C. D., Stein, M. B., McDaniel, A., & Roy‐Byrne, P. (2012) · Implementation Science · doi:10.1186/1748-5908-7-14 · Cited by 349 · see citing works
McKibbon, K. A., Lokker, C., Wilczynski, N. L., Ciliska, D., Dobbins, M., Davis, D. A., Haynes, R. B., & Straus, S. E. (2010) · Implementation Science · doi:10.1186/1748-5908-5-16 · Cited by 345 · see citing works
Eggenberger, E., Heimerl, K., & Bennett, M. (2012) · International Psychogeriatrics · doi:10.1017/s1041610212001664 · Cited by 339 · see citing works
Nursing home staff attitudes towards residents with dementia: strain and satisfaction with work
Brodaty, H., Draper, B., & Low, L. (2003) · Journal of Advanced Nursing · doi:10.1046/j.0309-2402.2003.02848.x · Cited by 316 · see citing works
Nagler, E. V., Vanmassenhove, J., van der Veer, S. N., Nistor, I., Biesen, W. V., Webster, A. C., & Vanholder, R. C. (2014) · BMC Medicine · doi:10.1186/s12916-014-0231-1 · Cited by 306 · see citing works
Including older people with dementia in research: Challenges and strategies
Hubbard, G., DOWNS, M. G., & Tester, S. (2003) · Aging & Mental Health · doi:10.1080/1360786031000150685 · Cited by 272 · see citing works
Tolson, D., Rolland, Y., Andrieu, S., Aquino, J., Beard, J., Bénétos, A., Berrut, G., Coll‐Planas, L., Dong, B., Forette, F., et al. (2011) · Journal of the American Medical Directors Association · doi:10.1016/j.jamda.2010.12.013 · Cited by 267 · see citing works
Transitions in Care for Older Adults with and without Dementia
Callahan, C. M., Arling, G., Tu, W., Rosenman, M. B., Counsell, S. R., Stump, T. E., & Hendrie, H. C. (2012) · Journal of the American Geriatrics Society · doi:10.1111/j.1532-5415.2012.03905.x · Cited by 253 · see citing works
Williams, B. A., Perillo, S., & Brown, T. (2014) · Nurse Education Today · doi:10.1016/j.nedt.2014.11.012 · Cited by 212 · see citing works
The economic impact of dementia in Europe in 2008—cost estimates from the Eurocode project
Wimo, A. B., Jönsson, L., Gustavsson, A., McDaid, D., Érsek, K., Georges, J., Gulàcsi, L., Kárpáti, K., Kenigsberg, P.-A., & Valtonen, H. (2010) · International Journal of Geriatric Psychiatry · doi:10.1002/gps.2610 · Cited by 210 · see citing works
Medves, J., Godfrey, C. M., Turner, C., Paterson, M., Harrison, M., MacKenzie, L. D., & Durando, P. (2010) · International Journal of Evidence-Based Healthcare · doi:10.1111/j.1744-1609.2010.00166.x · Cited by 150 · see citing works
Spector, A. E., Orrell, M. W., & Goyder, J. (2012) · Ageing Research Reviews · doi:10.1016/j.arr.2012.06.005 · Cited by 136 · see citing works
Barriers to evidence-based practice
Newman, M. J., Papadopoulos, I., & Sigsworth, J. (1998) · Intensive and Critical Care Nursing · doi:10.1016/s0964-3397(98)80634-4 · Cited by 115 · see citing works
Rokstad, A. M. M., Vatne, S., Engedal, K., & Selbæk, G. (2015) · Journal of Nursing Management · doi:10.1111/jonm.12072 · Cited by 115 · see citing works
What Do We Know About Knowledge Translation in the Care of Older Adults? A Scoping Review
Boström, A., Slaughter, S. E., Chojecki, D., & Estabrooks, C. A. (2011) · Journal of the American Medical Directors Association · doi:10.1016/j.jamda.2010.12.004 · Cited by 111 · see citing works
Effects of educational interventions on primary dementia care: A systematic review
Perry, M., Drašković, I., Lucassen, P. L., Vernooij-Dassen, M. J. F. J., van Achterberg, T., & Rikkert, M. O. (2010) · International Journal of Geriatric Psychiatry · doi:10.1002/gps.2479 · Cited by 111 · see citing works
Murphy, K., O’Connor, D. A., Browning, C. J., French, S. D., Michie, S., Francis, J., Russell, G. M., Workman, B., Flicker, L. A., Eccles, M., et al. (2014) · Implementation Science · doi:10.1186/1748-5908-9-31 · Cited by 94 · see citing works
Integration of tools for binding archetypes to SNOMED CT
Sundvall, E., Qamar, R., Nyström, M., et al. (2008) · BMC Medical Informatics and Decision Making · doi:10.1186/1472-6947-8-s1-s7 · Cited by 75 · see citing works
Elliott, K.-E., Scott, J. L., Stirling, C., Martin, A. J., & Robinson, A. (2012) · International Psychogeriatrics · doi:10.1017/s1041610211002651 · Cited by 73 · see citing works
Waltz, T. J., Powell, B. J., Matthieu, M. M., Chinman, M., Smith, J. L., Proctor, E. K., Damschroder, L. J., & Kirchner, J. E. (2015) · Implementation Science · doi:10.1186/1748-5908-10-s1-a44 · Cited by 67 · see citing works
van Mierlo, L. D., Meiland, F. J., van Hout, H. P. J., & Dröes, R. (2014) · BMC Geriatrics · doi:10.1186/1471-2318-14-84 · Cited by 52 · see citing works
Lawrence, V. C., Fossey, J., Ballard, C. G., et al. (2015) · International Journal of Geriatric Psychiatry · doi:10.1002/gps.4322 · Cited by 47 · see citing works
Meiland, F. J. M., Dröes, R., de Lange, J., & Vernooij-Dassen, M. J. F. J. (2004) · Health Policy · doi:10.1016/j.healthpol.2004.08.011 · Cited by 46 · see citing works
Fallon, T., Buikstra, E., Cameron, M., Hegney, D. G., Mackenzie, D., March, J., Moloney, C., & Pitt, J. (2006) · International Journal of Evidence-Based Healthcare · doi:10.1111/j.1479-6988.2006.00040.x · Cited by 40 · see citing works
Ensuring the Success of Interprofessional Teams: Key Lessons Learned in Memory Clinics
Lee, L., Hillier, L. M., & Weston, W. W. (2014) · Canadian Journal on Aging / La Revue canadienne du vieillissement · doi:10.1017/s0714980813000652 · Cited by 27 · see citing works
van Dijk, A. M., Meiland, F. J. M., van Mierlo, L. D., & Dröes, R. (2015) · International Journal of Nursing Studies · doi:10.1016/j.ijnurstu.2015.04.009 · Cited by 24 · see citing works
Kümpers, S., Mur-Veeman, I. M., Hardy, B., Maarse, H., & van Raak, A. (2006) · The International Journal of Health Planning and Management · doi:10.1002/hpm.837 · Cited by 20 · see citing works
Simpson, M., Stevens, P. E., & Kovach, C. R. (2007) · Journal of Clinical Nursing · doi:10.1111/j.1365-2702.2007.01697.x · Cited by 17 · see citing works
Clarke, C. L., Keyes, S., Wilkinson, H. A., Alexjuk, J., Wilcockson, J., Robinson, L. A., Corner, L., & Cattan, M. (2014) · Health & Social Care in the Community · doi:10.1111/hsc.12134 · Cited by 16 · see citing works
Morgan, D., Stewart, N. J., D’Arcy, C., & Cammer, A. L. (2005) · Nursing leadership · doi:10.12927/cjnl.2005.17185 · Cited by 13 · see citing works
Reis, R. C., Dalpai, D., & Camozzato, A. L. (2013) · Dementia & Neuropsychologia · doi:10.1590/s1980-57642013dn70300010 · Cited by 6 · see citing works
Conroy, T. (2005) · PACEsetterS · doi:10.1097/01.jbi.0000393698.46985.78 · Cited by 5 · see citing works
Flagged first, then by citations
Research works printed but not linked: 1
- [24]Vasse E. A stepwise process for developing and implementing quality indicators to improve psychosocial dementia care in European countries. In Chapter 5: Barriers and facilitators in implementing quality indicators for psychosocial dementia care in European countries. Doctoral thesis, Radboud University, Nijmegen, 2012. Online repository: http://repository.ubn.ru.nl/handle/2066/99149.
Cited by
Sorted by citations
PRISMA Extension for Scoping Reviews (PRISMA-ScR): Checklist and Explanation
Tricco, A. C., Lillie, E., Zarin, W., O'Brien, K. K., Colquhoun, H., Levac, D., Moher, D., Peters, M. D. J., Horsley, T., Weeks, L., et al. (2018) · Annals of Internal Medicine · doi:10.7326/m18-0850 · Cited by 43,565 · see citing works
Livingston, G., Barber, J., Marston, L., Stringer, A., Panca, M., Hunter, R., Cooper, C., Laybourne, A., La Frenais, F., Reeves, S., et al. (2019) · The Lancet Psychiatry · doi:10.1016/s2215-0366(19)30045-8 · Cited by 62 · see citing works
Morgan, D., Kosteniuk, J., O’Connell, M. E., Seitz, D., Elliot, V., Bayly, M., Chow, A. F., & Cameron, C. (2022) · BMC Health Services Research · doi:10.1186/s12913-022-07550-0 · Cited by 20 · see citing works
McGilton, K. S., Cumal, A., Corsi, D., Gingrich, S., Zheng, N., & Escrig-Pinol, A. (2021) · BMC Health Services Research · doi:10.1186/s12913-021-06206-9 · Cited by 3 · see citing works
- Authors
- Lourida, I., Abbott, R. A., Rogers, M., Lang, I. A., Stein, K., Kent, B., & Thompson Coon, J.
- Affiliations
- University of Exeter (GB)
- University of Plymouth (GB)
- Corresponding author
- Lourida, Ilianna
- Venue
- BMC Geriatrics
- Published
- 2017-07-14
- Volume
- 17
- Issue
- 1
- Pages
- 147-147
- ISSN
- 1471-2318 (ISSN-L)
- PMC
- PMC5513053
- OpenAlex
- W2734874570
- Cited by
- 100
- References
- 53
- Citations by year
- 2026: 10 · 2025: 13 · 2024: 10 · 2023: 12 · 2022: 14 · 2021: 13 · 2020: 13 · 2019: 14 · 2018: 1
- FWCI
- 12.29
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Licence
- cc-by
- Locations
- BMC Geriatrics (publishedVersion, cc-by)
- PubMed Central (publishedVersion, cc-by)
- PubMed (publishedVersion)
- DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
- Figshare (submittedVersion, cc-by)
- Figshare (submittedVersion)
- Open Research Exeter (University of Exeter) (submittedVersion, cc-by)
- PEARL (University of Plymouth) (submittedVersion)
- Newcastle University ePrints (Newcastle Univesity) (cc-by)
- Funders
- Alzheimer's Society (GB) (AS-PG-14-016)
- Topics
- Health Sciences › Health Professions › General Health Professions › Health Policy Implementation Science
- Health Sciences › Health Professions › General Health Professions › Health Sciences Research and Education
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Keywords
- dementia care, implementation research, dissemination strategy, barriers and facilitators, evidence-informed practice, professional education and training, stakeholder engagement, residential care, organizational factors, primary care, hospital care, family caregivers
- MeSH terms
- Dementia, Humans, Databases, Factual, Caregivers, Evidence-Based Medicine, Qualitative Research
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review
