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Cited by 49Stroke Rehabilitation and RecoveryNursing care and researchCancer survivorship and care

Self-management develops through doing of everyday activities—a longitudinal qualitative study of stroke survivors during two years post-stroke

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Satink, Ton, Josephsson, Staffan, Zajec, Jana, Cup, Edith H. C., de Swart, Bert J. M., Nijhuis-van der Sanden, Maria W. G.·2016·BMC Neurology
DOI 10.1186/s12883-016-0739-4PMC PMC5111179
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Abstract

BACKGROUND: A description of the complexity of the process of self-management and the way stroke survivors give meaning to their process of self-management post-stroke is lacking. This study explores how stroke survivors managed their lives, gave meaning to their self-management post-stroke and how this evolved over time. METHODS: Data was generated through participant observations and interviews of 10 stroke survivors at their homes at 3, 6, 9, 15 and 21 months post-discharge. A constant comparative method was chosen to analyse the data. RESULTS: 'Situated doing' was central in stroke survivors' simultaneous development of self-management and their sense of being in charge of everyday life post-stroke. Doing everyday activities provided the stroke survivors with an arena to explore, experience, evaluate, develop and adapt self-management and being in charge of everyday activities and daily life. The influence of stroke survivors' partners on this development was sometimes experienced as empowering and at other times as constraining. Over time, the meaning of self-management and being in charge changed from the opinion that self-management was doing everything yourself towards self-managing and being in charge, if necessary, with the help of others. Moreover, the sense of self-management and being in charge differed among participants: it ranged from managing only at the level of everyday activities to full role management and experiencing a meaningful and valuable life post-stroke. CONCLUSIONS: The findings of this study indicate the doing of activities as an important arena in which to develop self-management and being in charge post-stroke. Stroke self-management programs could best be delivered in stroke survivors' own environment and focus on not only stroke survivors but also their relatives. Furthermore, the focus of such interventions should be on not only the level of activities but also the existential level of self-management post-stroke.

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  • Qualitative work demonstrates how self-management needs change with time, particularly once clients return home and the focus on medical management diminishes.

    “Qualitative work by Satink et al [80], Audulv et al [81], Audulv [82], and others demonstrates how self-management needs change with time, particularly once clients return home and the focus on medical management diminishes.”

    From Features of Structured, One-to-One Videoconference Interventions That Actively Engage People in the Management of Their Chronic Conditions: Scoping Review (2025) · cites this paper as [80]

    The Results (‘Changing meaning and different levels of self-management’) report that the meaning of self-management changed over time and that participants felt a need for support after discharge. The Discussion recommends shifting longer-term support toward role management rather than medical management after survivors have spent months at home. It does not establish that the focus on medical management actually diminished. (LLM, conf=0.82)

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Research works printed but not linked: 1

  1. [23]Hammersley M Atkinson P Ethnography - principles in practice 2007 London Routledge - Taylor & Francis Group

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Authors
Satink, T., Josephsson, S., Zajec, J., Cup, E. H. C., de Swart, B. J. M., & Nijhuis-van der Sanden, M. W. G.
Affiliations
  • HAN University of Applied Sciences (NL)
  • Norwegian University of Science and Technology (NO)
  • Radboud University Medical Center (NL)
Corresponding author
Satink, Ton
ORCID
Venue
BMC Neurology
Publisher
Springer Science and Business Media LLC
Published
2016-11-15
Volume
16
Issue
1
Pages
221-221
ISSN
1471-2377 (ISSN-L)
DOI
10.1186/s12883-016-0739-4
PMC
PMC5111179
OpenAlex
W2554518931
Cited by
49
References
46
Citations by year
2026: 6 · 2025: 5 · 2024: 2 · 2023: 6 · 2022: 6 · 2021: 10 · 2020: 2 · 2019: 4 · 2018: 4 · 2017: 4
FWCI
4.28
Type
journal article
Language
en
Open access
Licence
cc-by
Locations
  • BMC Neurology (publishedVersion, cc-by)
  • PubMed Central (publishedVersion, cc-by)
  • PubMed (publishedVersion)
  • Data Archiving and Networked Services (DANS) (submittedVersion)
  • NORA - Norwegian Open Research Archives (submittedVersion, cc-by)
  • Radboud Repository (Radboud University) (submittedVersion)
  • Radboud Repository (Radboud University) (submittedVersion, other-oa)
Topics
  • Health Sciences › Medicine › Rehabilitation › Stroke Rehabilitation and Recovery
  • Health Sciences › Health Professions › Pharmacy › Nursing care and research
  • Health Sciences › Medicine › Oncology › Cancer survivorship and care
Keywords
stroke self-management, stroke survivors, everyday activities, role management, partner influence, stroke recovery, home-based intervention, existential meaning
MeSH terms
Adult, Aged, Female, Humans, Longitudinal Studies, Male, Self Care, Time Factors, Survivors, Stroke, Personal Autonomy, Qualitative Research

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