What we know about the purpose, theoretical foundation, scope and dimensionality of existing self-management measurement tools: A scoping review

Packer, Tanya L.; Fracini, America; Audulv, Åsa; Alizadeh, Neda; van Gaal, Betsie G.I.; Warner, Grace; Kephart, George

doi:10.1016/j.pec.2017.10.014

Cited by 54Chronic Disease Management StrategiesHealth Education and ValidationDiabetes Management and Education

What we know about the purpose, theoretical foundation, scope and dimensionality of existing self-management measurement tools: A scoping review

Packer, Tanya L., Fracini, America, Audulv, Åsa, Alizadeh, Neda, van Gaal, Betsie G.I., Warner, Grace, Kephart, George·2018·Patient Education and Counseling

DOI 10.1016/j.pec.2017.10.014

Open this paper in CoChat — free account

Abstract

Objectives To identify self-report, self-management measures for adults with chronic conditions, and describe their purpose, theoretical foundation, dimensionality (multi versus uni), and scope (generic versus condition specific).Methods A search of four databases (8479 articles) resulted in a scoping review of 28 self-management measures.Results Although authors identified tools as measures of self-management, wide variation in constructs measured, purpose, and theoretical foundations existed. Subscales on 13 multidimensional tools collectively measure domains of self-management relevant to clients, however no one tool's subscales cover all domains.Conclusions Viewing self-management as a complex, multidimensional whole, demonstrated that existing measures assess different, related aspects of self-management. Activities and social roles, though important to patients, are rarely measured. Measures with capacity to quantify and distinguish aspects of self-management may promote tailored patient care.Practice implications In selecting tools for research or assessment, the reason for development, definitions, and theories underpinning the measure should be scrutinized. Our ability to measure self-management must be rigorously mapped to provide comprehensive and system-wide care for clients with chronic conditions. Viewing self-management as a complex whole will help practitioners to understand the patient perspective and their contribution in supporting each individual patient.

Integrity signals

Registry

Crossref · 10.1016/j.pec.2017.10.014

Cites

94 of 94 references verified0 citation errors · 0 not checkable

Statistics

Recomputing p-values needs the paper’s full text.

Claims the paper makes

This paper’s full text isn’t openly available, so its claims and self-check weren’t run. The registry and citation checks still apply.

Claims other papers make about this one

Each is checked against this paper’s own text: does it say what the citing paper says it does?

The paucity of intervention programs addressing clients' role management has been highlighted in other reviews, as has the limited focus on finding and managing formal and informal resources.
“The paucity of intervention programs addressing clients’ role management has been highlighted in other reviews [11,75], as has the limited focus on finding and managing formal and informal resources [34].”
From Features of Structured, One-to-One Videoconference Interventions That Actively Engage People in the Management of Their Chronic Conditions: Scoping Review (2025) · cites this paper as [75]
Over 50% of programs had content aligned with the same 4 domains (disease control, healthy behaviors, internal, and process) of the TEDSS framework, findings that mimic those of others using the TEDSS framework.
“Over 50% of the programs (18/25, 72%; disease and control domain: 14/25, 56%; healthy behavior domain: 13/25, 52%; internal domain: 13/25, 52%) had content aligned with the same 4 domains (disease control, healthy behaviors, internal, and process) of the TEDSS framework, findings that mimic those of others using the TEDSS framework to analyze program content and program outcome measures [11,75].”
From Features of Structured, One-to-One Videoconference Interventions That Actively Engage People in the Management of Their Chronic Conditions: Scoping Review (2025) · cites this paper as [75]

Scoping studies: towards a methodological framework
Arksey, H., & O'Malley, L. (2005) · International Journal of Social Research Methodology · doi:10.1080/1364557032000119616 · Cited by 36,742 · see citing works
Scoping studies: advancing the methodology
Levac, D., Colquhoun, H., & O'Brien, K. K. (2010) · Implementation Science · doi:10.1186/1748-5908-5-69 · Cited by 15,268 · see citing works
Untitled work
(1991) · Medical Entomology and Zoology · Cited by 4,438 · see citing works
Self-management education: History, definition, outcomes, and mechanisms
Lorig, K. R., & Holman, H. R. (2003) · Annals of Behavioral Medicine · doi:10.1207/s15324796abm2601_01 · Cited by 4,094 · see citing works
Transtheoretical therapy: Toward a more integrative model of change.
Prochaska, J. O., & DiClemente, C. C. (1982) · Psychotherapy: Theory, Research & Practice · doi:10.1037/h0088437 · Cited by 3,922 · see citing works
Improving chronic illness care: translating evidence into action
Wagner, E. H., Austin, B. T., Davis, C., Hindmarsh, M., Schaefer, J., & Bonomi, A. (2001) · Health Affairs · doi:10.1377/hlthaff.20.6.64 · Cited by 3,446 · see citing works
Development of the Patient Activation Measure (PAM): Conceptualizing and Measuring Activation in Patients and Consumers
Hibbard, J. H., Stockard, J., Mahoney, E. R., & Tusler, M. (2004) · Health Services Research · doi:10.1111/j.1475-6773.2004.00269.x · Cited by 2,748 · see citing works
Improving Primary Care for Patients With Chronic Illness: The Chronic Care Model, Part 2
Bodenheimer, T., Wagner, E. H., & Grumbach, K. (2002) · JAMA · doi:10.1001/jama.288.15.1909 · Cited by 2,413 · see citing works
Vulnerability: A new view of schizophrenia.
Zubin, J., & Spring, B. J. (1977) · Journal of Abnormal Psychology · doi:10.1037/0021-843x.86.2.103 · Cited by 1,999 · see citing works
Vulnerability: A new view of schizophrenia.
Zubin, J., & Spring, B. J. (1977) · Journal of Abnormal Psychology · doi:10.1037//0021-843x.86.2.103 · Cited by 1,941 · see citing works
Enhancing the scoping study methodology: A large, inter-professional team’s experience with Arksey and O’Malley’s framework
Daudt, H. M., van Mossel, C., & Scott, S. J. (2013) · BMC Medical Research Methodology · doi:10.1186/1471-2288-13-48 · Cited by 1,891 · see citing works
Development and evaluation of a scale to measure perceived self‐efficacy in people with arthritis
Lorig, K., Chastain, R. L., Ung, E., Shoor, S., & Holman, H. R. (1989) · Arthritis & Rheumatism · doi:10.1002/anr.1780320107 · Cited by 1,590 · see citing works
Outcome Measures for Health Education and Other Health Care Interventions
Lorig, K., Stewart, A., Ritter, P., González, V., Laurent>, D., & Lynch, J. (1996) · doi:10.4135/9781452232966 · Cited by 1,132 · see citing works
Prevalence, determinants and patterns of multimorbidity in primary care: a systematic review of observational studies
Violan, C., Foguet-Boreu, Q., Flores-Mateo, G., Salisbury, C., Blom, J., Freitag, M., Glynn, L., Muth, C., & Valderas, J. M. (2014) · PLoS ONE · doi:10.1371/journal.pone.0102149 · Cited by 1,125 · see citing works
A Heuristic Vulnerability/Stress Model of Schizophrenic Episodes
Nuechterlein, K. H., & Dawson, M. E. (1984) · Schizophrenia Bulletin · doi:10.1093/schbul/10.2.300 · Cited by 1,004 · see citing works
Self-management: Enabling and empowering patients living with cancer as a chronic illness
McCorkle, R., Ercolano, E., Lazenby, M., Schulman-Green, D., Schilling, L. S., Lorig, K., & Wagner, E. H. (2011) · CA: A Cancer Journal for Clinicians · doi:10.3322/caac.20093 · Cited by 950 · see citing works
Unending Work and Care: Managing Chronic Illness at Home
Kinney, J. M., Kahana, E., Corbin, J. M., & Strauss, A. (1989) · Contemporary Sociology · doi:10.2307/2074227 · Cited by 946 · see citing works
Taking stock of naturalistic decision making
Lipshitz, R., Klein, G. A., Orasanu, J. M., & Salas, E. (2001) · Journal of Behavioral Decision Making · doi:10.1002/bdm.381 · Cited by 768 · see citing works
Managing chronic illness at home: Three lines of work
Corbin, J., & Strauss, A. (1985) · Qualitative Sociology · doi:10.1007/bf00989485 · Cited by 710 · see citing works
Processes of Self‐Management in Chronic Illness
Schulman‐Green, D., Jaser, S., Martin, F., Alonzo, A., Grey, M., McCorkle, R., Redeker, N. S., Reynolds, N., & Whittemore, R. (2012) · Journal of Nursing Scholarship · doi:10.1111/j.1547-5069.2012.01444.x · Cited by 657 · see citing works
The Diabetes Self-Management Questionnaire (DSMQ): development and evaluation of an instrument to assess diabetes self-care activities associated with glycaemic control
Schmitt, A., Gahr, A., Hermanns, N., Kulzer, B., Huber, J., & Haak, T. (2013) · Health and Quality of Life Outcomes · doi:10.1186/1477-7525-11-138 · Cited by 587 · see citing works
The Health Education Impact Questionnaire (heiQ): An outcomes and evaluation measure for patient education and self-management interventions for people with chronic conditions
Osborne, R. H., Elsworth, G. R., & Whitfield, K. (2007) · Patient Education and Counseling · doi:10.1016/j.pec.2006.12.002 · Cited by 556 · see citing works
Motivational Interviewing: Preparing People to Change Addictive Behavior
Rotgers, F. (1993) · Journal of Studies on Alcohol · doi:10.15288/jsa.1993.54.507a · Cited by 398 · see citing works
Assessment of Chronic Illness Care (ACIC): A Practical Tool to Measure Quality Improvement
Bonomi, A. E., Wagner, E. H., Glasgow, R. E., & VonKorff, M. (2002) · Health Services Research · doi:10.1111/1475-6773.00049 · Cited by 392 · see citing works
Development and Testing of the European Heart Failure Self-Care Behaviour Scale
Jaarsma, T., Strömberg, A., Mårtensson, J., & Dracup, K. (2003) · European Journal of Heart Failure · doi:10.1016/s1388-9842(02)00253-2 · Cited by 389 · see citing works
Psychometric testing of the self-care of heart failure index
Riegel, B. J., Carlson, B., Moser, D. K., Sebern, M., Hicks, F. D., & Roland, V. (2004) · Journal of Cardiac Failure · doi:10.1016/j.cardfail.2003.12.001 · Cited by 388 · see citing works
The psychometric properties of the diabetes management self‐efficacy scale for patients with type 2 diabetes mellitus
van der Bijl, J., van Poelgeest‐Eeltink, A., & Shortridge‐Baggett, L. M. (1999) · Journal of Advanced Nursing · doi:10.1046/j.1365-2648.1999.01077.x · Cited by 386 · see citing works
Prevalence and patterns of chronic disease multimorbidity and associated determinants in Canada
Roberts, K. C., Rao, D. P., Bennett, T.-L., Loukine, L., & Jayaraman, G. (2015) · Health Promotion and Chronic Disease Prevention in Canada · doi:10.24095/hpcdp.35.6.01 · Cited by 308 · see citing works
A metasynthesis of factors affecting self‐management of chronic illness
Schulman‐Green, D., Jaser, S. S., Park, C., & Whittemore, R. (2016) · Journal of Advanced Nursing · doi:10.1111/jan.12902 · Cited by 305 · see citing works
Exploring the theoretical basis of nursing using advanced techniques of concept analysis
Morse, J. M. (1995) · Advances in Nursing Science · doi:10.1097/00012272-199503000-00005 · Cited by 303 · see citing works
Training skills in the psychiatrically disabled: learning coping and competence.
Liberman, R., Mueser, K. T., Wallace, C., Jacobs, H., Eckman, T., & Massel, H. K. (1986) · Schizophrenia bulletin · doi:10.1093/schbul/12.4.631 · Cited by 285 · see citing works
The English and Spanish Self-Efficacy to Manage Chronic Disease Scale measures were validated using multiple studies
Ritter, P. L., & Lorig, K. R. (2014) · Journal of Clinical Epidemiology · doi:10.1016/j.jclinepi.2014.06.009 · Cited by 259 · see citing works
Psychometric Properties of the Perceived Diabetes Self-Management Scale (PDSMS)
Wallston, K. A., Rothman, R. L., & Cherrington, A. (2007) · Journal of Behavioral Medicine · doi:10.1007/s10865-007-9110-y · Cited by 248 · see citing works
A Social–Ecologic Approach to Assessing Support for Disease Self-Management: The Chronic Illness Resources Survey
Glasgow, R. E., Strycker, L. A., Toobert, D. J., & Eakin, E. (2000) · Journal of Behavioral Medicine · doi:10.1023/a:1005507603901 · Cited by 242 · see citing works
The Partners in Health scale: The development and psychometric properties of a generic assessment scale for chronic condition self-management
Battersby, M., Ask, A., Reece, M. M., Markwick, M. J., & Collins, J. P. (2003) · Australian Journal of Primary Health · doi:10.1071/py03022 · Cited by 235 · see citing works
Patient and Disease Characteristics Associated with Activation for Self-Management in Patients with Diabetes, Chronic Obstructive Pulmonary Disease, Chronic Heart Failure and Chronic Renal Disease: A Cross-Sectional Survey Study
Bos-Touwen, I. D., Schuurmans, M. J., Monninkhof, E. M., Korpershoek, Y., Spruit-Bentvelzen, L., der Graaf, I. E.-V., de Wit, N. J., & Trappenburg, J. C. A. (2015) · PLoS ONE · doi:10.1371/journal.pone.0126400 · Cited by 232 · see citing works
Concept Analysis in Nursing Research: A Critical Appraisal
Morse, J. M., Hupcey, J. E., Mitcham, C., & Lenz, E. R. (1996) · Research and theory for nursing practice · doi:10.1891/0889-7182.10.3.253 · Cited by 200 · see citing works
Unending Work and Care: Managing Chronic Illness at Home
Omdahl, D. J. (1989) · Patient Education and Counseling · doi:10.1016/0738-3991(89)90061-x · Cited by 183 · see citing works
The Confidence in Diabetes Self-Care Scale
van der Ven, N. C. W., Weinger, K., Yi, J., Pouwer, F., Adèr, H., van der Ploeg, H. M., & Snoek, F. J. (2003) · Diabetes Care · doi:10.2337/diacare.26.3.713 · Cited by 180 · see citing works
Patient engagement as a risk factor in personalized health care: a systematic review of the literature on chronic disease
Simmons, L. A., Wolever, R. Q., Bechard, E. M., & D, R. S. M. (2014) · Genome Medicine · doi:10.1186/gm533 · Cited by 177 · see citing works
Development and Validation of the Hypertension Self-care Profile
Han, H., Lee, H., Commodore-Mensah, Y. Y., & Kim, M. T. (2013) · The Journal of Cardiovascular Nursing · doi:10.1097/jcn.0b013e3182a3fd46 · Cited by 165 · see citing works
Self-management priority setting and decision-making in adults with multimorbidity: A narrative review of literature
Bratzke, L. C., Muehrer, R. J., Kehl, K. A., Lee, K. S., Ward, E. C., & Kwekkeboom, K. L. (2014) · International Journal of Nursing Studies · doi:10.1016/j.ijnurstu.2014.10.010 · Cited by 158 · see citing works
Self-Management Support Interventions for Stroke Survivors: A Systematic Meta-Review
Parke, H. L., Epiphaniou, E., Pearce, G., Taylor, S. J., Sheikh, A., Griffiths, C. J., Greenhalgh, T., & Pinnock, H. (2015) · PLoS ONE · doi:10.1371/journal.pone.0131448 · Cited by 153 · see citing works
How to Measure Self-management Abilities in Older People by Self-report. The Development of the SMAS-30
Schuurmans, H., Steverink, N., Frieswijk, N., Buunk, B. P., Slaets, J. P. J., & Lindenberg, S. M. (2005) · Quality of Life Research · doi:10.1007/s11136-005-8166-9 · Cited by 143 · see citing works
A patient-centred approach to health service delivery: improving health outcomes for people with chronic illness
Mirzaei, M., Aspin, C., Essue, B. M., Jeon, Y., Dugdale, P., Usherwood, T. P., & Leeder, S. (2013) · BMC Health Services Research · doi:10.1186/1472-6963-13-251 · Cited by 136 · see citing works
Pilot randomized trial of education to improve self-management skills of men with symptomatic HIV/AIDS
Gifford, A. L., Laurent, D. D., Gonzales, V. M., Chesney, M. A., & Lorig, K. R. (1998) · Journal of Acquired Immune Deficiency Syndromes and Human Retrovirology · doi:10.1097/00042560-199806010-00005 · Cited by 132 · see citing works
Asthmatics with exacerbation during acute respiratory illness exhibit unique transcriptional signatures within the nasal mucosa
McErlean, P. K., Berdnikovs, S., Favoreto, S., Shen, J., Biyasheva, A., Barbeau, R., Eisley, C. J., Barczak, A. J., Ward, T. A., Schleimer, R. P., et al. (2014) · Genome Medicine · doi:10.1186/gm520 · Cited by 130 · see citing works
Measuring Illness Management Outcomes: A Psychometric Study of Clinician and Consumer Rating Scales for Illness Self Management and Recovery
Salyers, M. P., Godfrey, J. L., Mueser, K. T., & Labriola, S. (2007) · Community Mental Health Journal · doi:10.1007/s10597-007-9087-6 · Cited by 125 · see citing works
The over time development of chronic illness self-management patterns: a longitudinal qualitative study
Audulv, Å. (2013) · BMC Public Health · doi:10.1186/1471-2458-13-452 · Cited by 119 · see citing works
Self-citation
Meta-analysis of the effects of psychoeducational care in adults with asthma
Devine, E. C. (1996) · Research in Nursing & Health · doi:10.1002/(sici)1098-240x(199610)19:5 · Cited by 118 · see citing works
Epilepsy Self-Management: A Test of a Theoretical Model
DiIorio, C. K., Hennessy, M. H., & Manteuffel, B. A. (1996) · Nursing Research · doi:10.1097/00006199-199607000-00004 · Cited by 102 · see citing works
The Integration of Chronic Illness Self-Management
Audulv, Å., Asplund, K., & Norbergh, K.-G. (2012) · Qualitative Health Research · doi:10.1177/1049732311430497 · Cited by 98 · see citing works
Self-citation
A realist review: what do nurse‐led self‐management interventions achieve for outpatients with a chronic condition?
van Hooft, S. M., Been-Dahmen, J., Ista, E., van Staa, A., & Boeije, H. (2016) · Journal of Advanced Nursing · doi:10.1111/jan.13189 · Cited by 89 · see citing works
Same description, different values. How service users and providers define patient and public involvement in health care
Rise, M. B., Solbjør, M., Lara‐Cabrera, M. L., Westerlund, H., Grimstad, H., & Steinsbekk, A. (2011) · Health Expectations · doi:10.1111/j.1369-7625.2011.00713.x · Cited by 86 · see citing works
Stability and determinants of psychosocial well-being in multiple sclerosis.
Devins, G. M., Seland, T. P., Klein, G., Edworthy, S. M., & Saary, M. J. (1993) · Rehabilitation Psychology · doi:10.1037/h0080288 · Cited by 80 · see citing works
Patient Self-Management Support Programs: An Evaluation
Pearson, M. L., Mattke, S., Shaw, R., Ridgely, M. S., & Wiseman, S. H. (2007) · Cited by 80 · see citing works
Systematic review of the psychometric properties and theoretical grounding of instruments evaluating self‐care in people with type 2 Diabetes Mellitus
Caro, J., Martín‐Santos, F. J., & Morales‐Asencio, J. M. (2013) · Journal of Advanced Nursing · doi:10.1111/jan.12298 · Cited by 74 · see citing works
Development and validation of a self-efficacy scale for use in British patients with rheumatoid arthritis (RASE)
Hewlett, S. (2001) · British journal of rheumatology · doi:10.1093/rheumatology/40.11.1221 · Cited by 74 · see citing works
Coping, adapting or self‐managing – what is the difference? A concept review based on the neurological literature
Audulv, Å., Packer, T., Hutchinson, S., Roger, K. S., & Kephart, G. (2016) · Journal of Advanced Nursing · doi:10.1111/jan.13037 · Cited by 70 · see citing works
Self-citation
Development and validation of The Personal Diabetes Questionnaire (PDQ): A measure of diabetes self-care behaviors, perceptions and barriers
Stetson, B. A., Schlundt, D. G., Rothschild, C., Floyd, J. E., Rogers, W., & Mokshagundam, S. P. (2011) · Diabetes Research and Clinical Practice · doi:10.1016/j.diabres.2010.12.002 · Cited by 69 · see citing works
The Perceived Medical Condition Self-Management Scale Applied to Persons with HIV/AIDS
Wallston, K. A., Osborn, C. Y., Wagner, L. J., & Hilker, K. A. (2010) · Journal of Health Psychology · doi:10.1177/1359105310367832 · Cited by 68 · see citing works
Evaluating Self-Efficacy for HIV Disease Management Skills
Shively, M., Smith, T. L., Bormann, J. E., & Gifford, A. L. (2002) · AIDS and Behavior · doi:10.1023/a:1021156914683 · Cited by 64 · see citing works
Measurement Tools for Adherence to Non-Pharmacologic Self-Management Treatment for Chronic Musculoskeletal Conditions: A Systematic Review
Hall, A. M., Kamper, S. J., Hernon, M., Hughes, K., Kelly, G. A., Lonsdale, C., Hurley, D. A., & Ostelo, R. (2014) · Archives of Physical Medicine and Rehabilitation · doi:10.1016/j.apmr.2014.07.405 · Cited by 63 · see citing works
Self-Management Interventions in Stages 1 to 4 Chronic Kidney Disease
Welch, J. L., Johnson, M. L., Zimmerman, L. M., Russell, C. L., Perkins, S. M., & Decker, B. S. (2014) · Western Journal of Nursing Research · doi:10.1177/0193945914551007 · Cited by 60 · see citing works
Development of the effective musculoskeletal consumer scale.
Kristjansson, E., Tugwell, P., Wilson, A. J., Brooks, P., Driedger, S. M., Gallois, C., O'Connor, A. M. C., Qualman, A., Santesso, N. A., Wale, J. L., et al. (2007) · PubMed · Cited by 56 · see citing works
Characterizing patient-oriented tools that could be packaged with guidelines to promote self-management and guideline adoption: a meta-review
the members of the Guidelines International Network Implementation Working Group, Vernooij, R. W. M., Willson, M. L., & Gagliardi, A. R. (2015) · Implementation Science · doi:10.1186/s13012-016-0419-1 · Cited by 56 · see citing works
How is self-management perceived by community living people after a stroke? A focus group study
Satink, T., Cup, E. H. C., Swart, B. J. M. D., & der Sanden, M. W. G. N. (2014) · Disability and Rehabilitation · doi:10.3109/09638288.2014.918187 · Cited by 55 · see citing works
Self-management develops through doing of everyday activities—a longitudinal qualitative study of stroke survivors during two years post-stroke
Satink, T., Josephsson, S., Zajec, J., Cup, E. H. C., de Swart, B. J. M., & Nijhuis-van der Sanden, M. W. G. (2016) · BMC Neurology · doi:10.1186/s12883-016-0739-4 · Cited by 49 · see citing works
Systematic review of measurement properties of self‐reported instruments for evaluating self‐care in adults
Matarese, M., Lommi, M., & Marinis, M. G. D. (2016) · Journal of Advanced Nursing · doi:10.1111/jan.13204 · Cited by 46 · see citing works
Learned helplessness and health psychology.
Peterson, C. (1982) · Health Psychology · doi:10.1037/0278-6133.1.2.153 · Cited by 44 · see citing works
A patient perspective on shared decision making in stage I non-small cell lung cancer: a mixed methods study
Hopmans, W., Damman, O. C., Senan, S., Hartemink, K. J., Smit, E. F., & Timmermans, D. R. M. (2015) · BMC Cancer · doi:10.1186/s12885-015-1974-6 · Cited by 44 · see citing works
A qualitative study of patients’ perspectives on collaboration to support self-management in routine rheumatology consultations
Dures, E. K., Hewlett, S., Ambler, N., Jenkins, R., Clarke, J. A., & Gooberman‐Hill, R. (2016) · BMC Musculoskeletal Disorders · doi:10.1186/s12891-016-0984-0 · Cited by 43 · see citing works
Childhood chronic-kidney-disease: A longitudinal-qualitative study of families learning to share management early in the trajectory
Swallow, V. M., Lambert, H. J., Clarke, C., Campbell, S., & Jacoby, A. (2008) · Patient Education and Counseling · doi:10.1016/j.pec.2008.07.052 · Cited by 40 · see citing works
‘Managing patient involvement’: provider perspectives on diabetes decision‐making
Shortus, T., Kemp, L., McKenzie, S. H., & Harris, M. (2011) · Health Expectations · doi:10.1111/j.1369-7625.2011.00700.x · Cited by 39 · see citing works
Miller, W. R. and Rollnick, S. (1991) Motivational interviewing: Preparing people to change addictive behavior. New York: Guilford Press, 1991. Pp. xvii + 348. £24.95 hardback, £11.50 paper. ISBN 0–89862–566–1
Bennett, G. A. (1992) · Journal of Community & Applied Social Psychology · doi:10.1002/casp.2450020410 · Cited by 39 · see citing works
Development and Initial Analysis of Multiple Sclerosis Self-Management Scale
Bishop, M. L., & Frain, M. P. (2007) · International Journal of MS Care · doi:10.7224/1537-2073-9.2.35 · Cited by 36 · see citing works
Systematic review of self‐management in patients with schizophrenia: psychometric assessment of tools, levels of self‐management and associated factors
van Schie, D., Castelein, S., van der Bijl, J., Meijburg, R., Stringer, B., & van Meijel, B. (2016) · Journal of Advanced Nursing · doi:10.1111/jan.13023 · Cited by 35 · see citing works
Amplitude Manipulation Evokes Upper Limb Freezing during Handwriting in Patients with Parkinson’s Disease with Freezing of Gait
Heremans, E., Nackaerts, E., Vervoort, G., Vercruysse, S., Broeder, S., Strouwen, C., Swinnen, S. P., & Nieuwboer, A. (2015) · PLoS ONE · doi:10.1371/journal.pone.0142874 · Cited by 32 · see citing works
Development and psychometric evaluation of a new patient -reported outcome measure for stroke self -management: The Southampton Stroke Self - Management Questionnaire (SSSMQ)
Boger, E. J., Hankins, M. C., Demain, S. H., & Latter, S. M. (2015) · Health and Quality of Life Outcomes · doi:10.1186/s12955-015-0349-7 · Cited by 31 · see citing works
Development of the Adult Epilepsy Self-Management Measurement Instrument (AESMMI)
Escoffery, C., Bamps, Y. A., LaFrance, W. C., Jr., STOLL, S. C., Shegog, R., Buelow, J. M., Shafer, P. O., Thompson, N. J., McGee, R. E., & Hatfield, K. (2015) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2015.07.025 · Cited by 31 · see citing works
Responsiveness of the Effective Consumer Scale (EC-17)
Santesso, N. A., Rader, T., Wells, G. A., O'Connor, A. M. C., Brooks, P., Driedger, S. M., Gallois, C., Kristjansson, E., Lyddiatt, A., O'Leary, G., et al. (2009) · The Journal of Rheumatology · doi:10.3899/jrheum.090363 · Cited by 31 · see citing works
The COPD Helplessness Index
Omachi, T. A., Katz, P., Yelin, E. H., Iribarren, C., Knight, S. J., Blanc, P. D., & Eisner, M. D. (2009) · CHEST Journal · doi:10.1378/chest.09-0764 · Cited by 29 · see citing works
Factor analyses of an Adult Epilepsy Self-Management Measurement Instrument (AESMMI)
Escoffery, C., Bamps, Y. A., LaFrance, W. C., Jr., STOLL, S. C., Shegog, R., Buelow, J. M., Shafer, P. O., Thompson, N. J., McGee, R. E., & Hatfield, K. (2015) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2015.07.026 · Cited by 27 · see citing works
Evaluation of the Diabetes Self-Care Scale.
Lee, N. P., & Fisher, W. P. (2005) · PubMed · Cited by 23 · see citing works
Negotiating role management through everyday activities: narratives in action of two stroke survivors and their spouses
Satink, T., Josephsson, S., Zajec, J., Cup, E. H. C., Swart, B. J. M. D., & der Sanden, M. W. G. N. (2016) · Disability and Rehabilitation · doi:10.3109/09638288.2015.1129442 · Cited by 22 · see citing works
Processes of patient-centred care in Family Health Teams: a qualitative study
Brown, J. B., Ryan, B. L., & Thorpe, C. (2016) · CMAJ Open · doi:10.9778/cmajo.20150128 · Cited by 21 · see citing works
Orem's Self-Care Deficit Theory: Research with Pregnant Women
Hart, M. A. (1995) · Nursing Science Quarterly · doi:10.1177/089431849500800307 · Cited by 17 · see citing works
Instruments assessing attitudes toward or capability regarding self-management of osteoarthritis: a systematic review of measurement properties
Eyles, J. P., Hunter, D. J., de Meneses, S. R. F., Collins, N. J., Dobson, F., Lucas, B. R., & Mills, K. A. G. (2017) · Osteoarthritis and Cartilage · doi:10.1016/j.joca.2017.02.802 · Cited by 15 · see citing works
Development of an HIV educational needs assessment tool
Nokes, K. M., Kendrew, J., Rappaport, A., Jordan, D., & Rivera, L. (1997) · Journal of the Association of Nurses in AIDS Care · doi:10.1016/s1055-3290(97)80058-1 · Cited by 14 · see citing works
A Patient-Centred Redesign Framework to Support System-Level Process Changes for Multimorbidities and Chronic Conditions
Sampalli, T., Edwards, L., Christian, E. K., Kohler, G., Bedford, L. G., Demmons, J., Verma, J. Y., Gibson, R., & Carson, S. R. (2015) · Healthcare Quarterly · doi:10.12927/hcq.2015.24433 · Cited by 7 · see citing works
Measurement Properties of the Sedentary Behavior Strategy Self-management Instrument in African-American Breast Cancer Survivors
Paxton, R. J., Gao, Y., Herrmann, S. D., & Norman, G. J. (2014) · American Journal of Health Behavior · doi:10.5993/ajhb.39.2.3 · Cited by 6 · see citing works
The COPD Helplessness Index: A New Tool to Measure Factors Affecting Patient Self-Management
MAURER, J. R. (2011) · Yearbook of Pulmonary Disease · doi:10.1016/j.ypdi.2010.11.034 · Cited by 5 · see citing works
How to understand and improve successful self-management of aging
Steverink, N., Lindenberg, S. M., Slaets, J. P. J., Frieswijk, N., Schuurmans, H., & Buunk, B. P. (2004) · PsycEXTRA Dataset · doi:10.1037/e524332011-029 · Cited by 2 · see citing works
The Asthma Self‐Care Scale: preliminary development and psychometric testing
Chen, Y., & Hsin, H.-C. (2008) · Journal of Clinical Nursing · doi:10.1111/j.1365-2702.2008.02589.x · Cited by 1 · see citing works

Flagged first, then by citations

3 of the 97 references couldn’t be matched to a known paper.

Sorted by citations

The Taxonomy of Everyday Self-management Strategies (TEDSS): A framework derived from the literature and refined using empirical data
Audulv, Å., Ghahari, S., Kephart, G., Warner, G., & Packer, T. L. (2019) · Patient Education and Counseling · doi:10.1016/j.pec.2018.08.034 · Cited by 66 · see citing works
Self-citation
Effects of an mHealth Intervention for Pulmonary Tuberculosis Self-management Based on the Integrated Theory of Health Behavior Change: Randomized Controlled Trial
Bao, Y., Wang, C., Xu, H., Lai, Y., Yan, Y., Ma, Y., Yu, T., & Wu, Y. (2022) · JMIR Public Health and Surveillance · doi:10.2196/34277 · Cited by 61 · see citing works
A systematic review and meta-analysis of patient activation in people living with chronic conditions
Cuevas, H. E., Heitkemper, E., Huang, Y., Jang, D. E., García, A. A., & Zuniga, J. A. (2021) · Patient Education and Counseling · doi:10.1016/j.pec.2021.02.016 · Cited by 53 · see citing works
Managing everyday life: Self-management strategies people use to live well with neurological conditions
Audulv, Å., Hutchinson, S., Warner, G., Kephart, G., Versnel, J., & Packer, T. L. (2021) · Patient Education and Counseling · doi:10.1016/j.pec.2020.07.025 · Cited by 41 · see citing works
Self-citation
Peer-led Self-management Interventions and Adherence to Antiretroviral Therapy Among People Living with HIV: A Systematic Review
Boucher, L. M., Liddy, C. E., Mihan, A., & Kendall, C. (2019) · AIDS and Behavior · doi:10.1007/s10461-019-02690-7 · Cited by 45 · see citing works
A systematic review examining whether community-based self-management programs for older adults with chronic conditions actively engage participants and teach them patient-oriented self-management strategies
Warner, G., Packer, T. L., Kervin, E., Sibbald, K., & Audulv, Å. (2019) · Patient Education and Counseling · doi:10.1016/j.pec.2019.07.002 · Cited by 38 · see citing works
Self-citation
The Effect of Health Literacy Interventions on Self-management in Chronic Diseases: A Systematic Review
Cabezas, M.-F., Nazar, G., Ranchor, A. V., & Annema, C. (2025) · Annals of Behavioral Medicine · doi:10.1093/abm/kaaf073 · Cited by 49 · see citing works
Instruments Measuring Self-Care and Self-Management of Chronic Conditions by Community-Dwelling Older Adults: A Scoping Review
Lawless, M., Tieu, M., Chan, R. J., Hendriks, J., & Kitson, A. A. (2023) · Journal of Applied Gerontology · doi:10.1177/07334648231161929 · Cited by 33 · see citing works
“Like previous studies (e.g., Hudon et al., 2021; Packer et al., 2018), the definitions and theoretical foundations used to develop the instruments included in this review were varied, indicating that the concepts of self-care and self-management require further clarification and refinement.”
BackgroundMethodResultInfluential
Generic Self-Reported Questionnaires Measuring Self-Management: A Scoping Review
Hudon, É., Hudon, C., Lambert, M., Bisson, M., & Chouinard, M. (2020) · Clinical Nursing Research · doi:10.1177/1054773820974149 · Cited by 30 · see citing works
“Other reviews on selfmanagement highlighted four to six generic questionnaires addressing self-management for adults in various settings but not specific to people with CCs (Matarese et al., 2017; Packer et al., 2017; Sidani, 2011).”
Background
Effects of a HAPA-based multicomponent intervention to improve self-management precursors of older adults with tuberculosis: A community-based randomised controlled trial
Chen, Y., Tan, D., Xu, Y., Wang, B., Li, X., Cai, X., Li, M., Tang, C., Wu, Y., Shu, W., et al. (2019) · Patient Education and Counseling · doi:10.1016/j.pec.2019.09.007 · Cited by 30 · see citing works
Coping with diabetes: Provider attributes that influence type 2 diabetes adherence
Freeman-Hildreth, Y., Aron, D. C., Cola, P. A., & Wang, Y. (2019) · PLoS ONE · doi:10.1371/journal.pone.0214713 · Cited by 27 · see citing works
The content and effectiveness of self-management support interventions for people at risk of pressure ulcers: A systematic review
Engelen, M. M., van Dulmen, S., Vermeulen, H., de Laat, E., & van Gaal, B. G. I. (2021) · International Journal of Nursing Studies · doi:10.1016/j.ijnurstu.2021.104014 · Cited by 25 · see citing works
Strategies for Patient, Family, and Caregiver Engagement
Bennett, W. L., Pitts, S. I., Aboumatar, H. J., Sharma, R., Smith, B. M., Das, A., Day, J., Holzhauer, K., & Bass, E. B. (2020) · doi:10.23970/ahrqepctb36 · Cited by 19 · see citing works
Healthy aging with HIV: The role of self-management support
Boucher, L. M., O’Brien, K. K., Baxter, L. N., Fitzgerald, M. L., Liddy, C. E., & Kendall, C. (2019) · Patient Education and Counseling · doi:10.1016/j.pec.2019.02.019 · Cited by 18 · see citing works
The structural and convergent validity of three commonly used measures of self-management in persons with neurological conditions
Kephart, G. C., Packer, T. L., Audulv, Å., & Warner, G. (2018) · Quality of Life Research · doi:10.1007/s11136-018-2036-8 · Cited by 16 · see citing works
Self-citation
Lessons learned from patients with spinal cord injury in managing pressure ulcers: A qualitative study
van Gaal, B. G. I., Engelen, M. M., Adriaansen, M. J. M., Vermeulen, H., de Laat, E., & van Dulmen, S. (2022) · Journal of Tissue Viability · doi:10.1016/j.jtv.2022.07.002 · Cited by 14 · see citing works
Self-management of geriatric syndromes - an observational study
Prell, T., Wientzek, R., & Schönenberg, A. (2023) · BMC Geriatrics · doi:10.1186/s12877-023-04442-8 · Cited by 12 · see citing works
“As stated in the Background section, there is no universally accepted definition of self-management [16, 19].”
BackgroundInfluential
Generic and disease‐specific self‐care instruments in older patients affected by multiple chronic conditions: A descriptive study
Maria, M. D., Saurini, M., Erba, I., Vellone, E., Riegel, B. J., Ausili, D., & Matarese, M. (2024) · Journal of Clinical Nursing · doi:10.1111/jocn.17397 · Cited by 13 · see citing works
“They’re all struggling as well”: social and economic barriers and facilitators to self-managing chronic illness among marginalized people who use drugs
Boucher, L. M., Shoemaker, E. S., Liddy, C. E., Leonard, L. E., MacPherson, P. A., Presseau, J., Martin, A., Pineau, D., Lalonde, C., Diliso, N., et al. (2022) · International Journal of Qualitative Studies on Health and Well-Being · doi:10.1080/17482631.2022.2082111 · Cited by 12 · see citing works
“ing in social activities and roles has been a neglected outcome in self-management research (Packer et al., 2018).”
BackgroundInfluential
Multidisciplinary aortopathy clinics: A systematic scoping review of the literature and evaluation of patient experiences from a newly started clinic in Norway
Bathen, T., Krohg‐Sørensen, K., & Lidal, I. B. (2020) · American Journal of Medical Genetics Part A · doi:10.1002/ajmg.a.61827 · Cited by 12 · see citing works
“Selfmanagement of a disease include having the confidence to deal with medical-, role- and emotional management of a condition (Packer et al., 2018).”
Background
Item selection, scaling and construct validation of the Patient-Reported Inventory of Self-Management of Chronic Conditions (PRISM-CC) measurement tool in adults
Kephart, G. C., Packer, T. L., Audulv, Å., Chen, Y.-T., Robinson, A., Olsson, I., & Warner, G. (2022) · Quality of Life Research · doi:10.1007/s11136-022-03165-4 · Cited by 9 · see citing works
“Two scoping reviews of 35 existing self-management measures have identified major deficiencies in existing measures [15, 16].”
BackgroundInfluentialSelf-citation
Validation and Psychometric Analysis of the German Translation of the Appraisal of Self-Care Agency Scale-Revised
Schönenberg, A., Teschner, U., Prell, T., & Mühlhammer, H. M. (2022) · Healthcare · doi:10.3390/healthcare10091785 · Cited by 9 · see citing works
“Due to this close relation, many questionnaires designed to measure self-management are often based on self-care agency [4].”
BackgroundMethodInfluential
Counselling for patients with a temporomandibular disorder: A scoping review and concept analysis
van der Meer, H. A., van der Wal, A., van Hinte, G., & Speksnijder, C. M. (2024) · Journal of Oral Rehabilitation · doi:10.1111/joor.13827 · Cited by 9 · see citing works
Protocol for development, calibration and validation of the Patient-Reported Inventory of Self-Management of Chronic Conditions (PRISM-CC)
Packer, T. L., Kephart, G. C., Audulv, Å., Keddy, A. C., Warner, G., Peacock, K., & Sampalli, T. (2020) · BMJ Open · doi:10.1136/bmjopen-2020-036776 · Cited by 9 · see citing works
Self-citation
The Development of Self-Management in Young People with Chronic Conditions: A Transitional Process
Sattoe, J. N. T., & van Staa, A. (2021) · Springer eBooks · doi:10.1007/978-3-030-64293-8_3 · Cited by 8 · see citing works
The Profound Implications of the Meaning of Health for Health Care and Health Equity
Fiscella, K. A., & Epstein, R. M. (2023) · Milbank Quarterly · doi:10.1111/1468-0009.12660 · Cited by 9 · see citing works
What we know about fatigue self-management programs for people living with chronic conditions: A scoping review
Alizadeh, N., Packer, T., Chen, Y.-T., & Alnasery, Y. (2023) · Patient Education and Counseling · doi:10.1016/j.pec.2023.107866 · Cited by 8 · see citing works
Self-citation
The Team Assessment of Self-Management Support (TASMS): A new approach to uncovering how teams support people with chronic conditions
Keddy, A. C., Packer, T. L., Audulv, Å., Sutherland, L., Sampalli, T., Edwards, L., & Kephart, G. C. (2020) · Healthcare Management Forum · doi:10.1177/0840470420942262 · Cited by 7 · see citing works
Self-citation
Does the Partners in Health scale allow meaningful comparisons of chronic condition self‐management between men and women? Testing measurement invariance
Smith, D., Fairweather‐Schmidt, A. K., Harvey, P. W., Bowden, J. A., Lawn, S., & Battersby, M. (2019) · Journal of Advanced Nursing · doi:10.1111/jan.14124 · Cited by 6 · see citing works
A process and impact evaluation of a peer-led HIV self-management program
Feldman, M. B., Tran, T. T., Boucher, L. M., Abdelqader, F., Raker, A. R., & Hile, S. J. (2022) · Evaluation and Program Planning · doi:10.1016/j.evalprogplan.2022.102175 · Cited by 6 · see citing works
Use of the Hypertension Self-Care Profile: A Scoping Review
Han, H., Benjasirisan, C., Metlock, F., Tesfai, Y., & Commodore-Mensah, Y. Y. (2025) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph22081244 · Cited by 4 · see citing works
“Of the 55 full-text articles, three were review papers [14–16], two were study protocols without data [17,18], and two studies used some of the items on the HBP SCP to create a new instrument measuring different concepts such as dietary regulation [19] or knowledge [20].”
Instruments for measuring self-management and self-care in geriatric patients – a scoping review
Wientzek, R., Brückner, R. M., Schönenberg, A., & Prell, T. (2023) · Frontiers in Public Health · doi:10.3389/fpubh.2023.1284350 · Cited by 4 · see citing works
Validation of the Patient Activation Measure (PAM-13) among individuals with chronic spinal cord injury in mainland China
Xie, H., Wu, A.-R., Xu, Z., Zhang, Q., Wang, X., Yu, H., Li, N., Wei, Y., Li, X., Zhai, H., et al. (2024) · Journal of Spinal Cord Medicine · doi:10.1080/10790268.2024.2391594 · Cited by 4 · see citing works
“A recent scoping review discovered 28 diverse self-management measures, of which 20 were disease-* specific, and 8 were generic (2).”
A self-management measurement: Validity of the Partners in Health Scale (PHS) instrument in Peruvian elderly population
de Córdova, M. I. P., Albornoz-Jiménez, C. F., Gómez, T. G., Hernández, R. C. L., Malibrán-Luque, D. J., & Díaz, R. (2020) · Journal of Hospital Administration · doi:10.5430/jha.v9n4p20 · Cited by 4 · see citing works
“[16] Also, the complexity of this self-management is a complex, multi-dimensional and changing process.[6, 12] According to these results, the instrument comprises three dimensions: management of the medical condition (items 1, 2, 3, 6, 7, 8), participation dimension within the health system (items 4, 5) and managemen…”
Background
Generic instruments for assessing self-management abilities and behaviors in patients with chronic diseases: a COnsensus-based standards for the selection of health measurement INstruments (COSMIN)-based systematic review
Liu, K., Meng, G., Li, C., Wang, S., Fan, X., & Chen, Q. (2026) · Quality of Life Research · doi:10.1007/s11136-026-04163-6 · Cited by 3 · see citing works
“In a scoping review by Packer et al., only 8 of the 28 included instruments were generic measures for chronic diseases, with many relevant instruments overlooked [24].”
Influential
Validade do Índice de Katz para avaliar a dependência em pacientes em tratamento oncológico
Gallasch, C. H., Vieira, H. W. D., Lucchesi, P. A. D. O., Balbinotti, M. A. A., Rebustini, F., & Ferretti‐Rebustini, R. E. D. L. (2022) · Acta Paulista de Enfermagem · doi:10.37689/acta-ape/2022ao015266 · Cited by 3 · see citing works
“(39) A unidimensionalidade tem se mos-trado como uma boa qualidade do IK, pois ele é de fácil utilização e possui boas evidências de validade, confiabilidade e replicabilidade, como também ob-servado pelos resultados de AFE, AFC e índice G-H neste estudo.”
Structural validity and test-retest reliability of the Patient Reported Inventory of Self-Management of Chronic Conditions (PRISM-CC) in a Swedish population of seventy-year-olds with long-term health conditions
Olsson, I., Kephart, G. C., Packer, T. L., Björk, S., Isaksson, U., Chen, Y.-T., Nordström, A., & Audulv, Å. (2025) · Journal of Patient-Reported Outcomes · doi:10.1186/s41687-025-00892-3 · Cited by 3 · see citing works
“Furthermore, many self-management measures are disease specific; yet self-management interventions are often used across different diagnostic groups, and many people need to manage multi-morbidity [20, 21].”
Self-citation
Features of Structured, One-to-One Videoconference Interventions That Actively Engage People in the Management of Their Chronic Conditions: Scoping Review
Chen, Y.-T., Lehman, M., Van Denend, T., Kish, J., Wu, Y., Preissner, K., Plow, M., & Packer, T. L. (2025) · Journal of Medical Internet Research · doi:10.2196/58543 · Cited by 3 · see citing works
“The paucity of intervention programs addressing clients’ role management has been highlighted in other reviews [11,75], as has the limited focus on finding and managing formal and informal resources [34].”
Self-citation
Outcomes of a Self and Family Management Support Program in Balinese Older People with Uncontrolled Hypertension: A Quasi-Experimental Study
Kamaryati, N. P., Malathum, P., Monkong, S., & Satitvipawee, P. (2025) · Pacific Rim International Journal of Nursing Research · doi:10.60099/prijnr.2025.274034 · Cited by 2 · see citing works
Applying the Caring Life-Course Theory to Explore Prostate Cancer Survivors’ Care Needs, Care Trajectories, And Self-Care Behaviors: A Qualitative Study
Lawless, M., de Plaza, M. A. P., Thamm, C., Kitson, A. A., & Paterson, C. C. (2025) · Seminars in Oncology Nursing · doi:10.1016/j.soncn.2025.152017 · Cited by 2 · see citing works
The Pain Self-Management Paradox: Why Do We Focus on the Individual When Life Context Plays Such a Major Role?
Rodham, K. (2021) · Pain Management · doi:10.2217/pmt-2020-0022 · Cited by 2 · see citing works
Self-care practice and associated factors in epileptic patients: cross-sectional study, Ethiopia
Ahmed, I., Abera, A., Demeke, T., Terefa, G., Seid, S. S., & Awol, A. (2023) · Pan African Medical Journal · doi:10.11604/pamj.2023.44.36.31554 · Cited by 1 · see citing works
“Good epilepsy self-care encompasses a set of skills including good medication adherence, being able to accurately describe and document one's seizures, practicing safety precautions, having adequate rest, and managing one's stress levels [5,6].”
Background
Exploring How Healthcare Professionals in Burn Aftercare Provide Self-Management Support to Burn Survivors: A Qualitative, Grounded Theory StudyPreprint
Geelen, S. J. G., Niemeijer, A. S., Scholten-Jaegers, S. M. H. J., van Uden, D., Verwilligen, R. A. F., Bosma, E., & Nieuwenhuis, M. K. (2025) · SSRN Electronic Journal · doi:10.2139/ssrn.5244075 · Cited by 1 · see citing works
Re-imagining Self-Management
Rodham, K. (2020) · Springer eBooks · doi:10.1007/978-3-030-48969-4_5
Self-Management: The Panacea for Coping with Persistent Pain?
Rodham, K. (2020) · Springer eBooks · doi:10.1007/978-3-030-48969-4_1
新しい医師-患者関係モデルとその可能性--R.M.ビ-チのDeep-Value-Pairingモデルを中心に
小松, 楠., & 山崎, 喜. (1997) · 保健医療社会学論集
Self-Management of Young People with Chronic Conditions: An Overview and Introduction
van Staa, A., Hilberink, S. R., & Sattoe, J. N. T. (2021) · Springer eBooks · doi:10.1007/978-3-030-64293-8_1
A MULTİDİMENSİONAL APPROACH TO CHRONİC DİSEASE MANAGEMENT: PATİENT HEALTH ENGAGEMENT MODEL
Usta, D., & Korkmaz, F. (2021) · Cyprus Journal of Medical Sciences · doi:10.5152/cjms.2021.2162
Psychometric testing of the 20-item Self-Management Assessment Scale in people with chronic obstructive pulmonary disease
Lundell, S., Hajdarević, S., Coe, A., & Isaksson, U. (2025) · Scientific Reports · doi:10.1038/s41598-025-31228-2
“Previous self-management instruments mainly focused on self-management behaviors, strategies and self-efficacy 9 .”
The Patient Reported Inventory of Self-Management of Chronic Conditions (PRISM-CC): testing for bias across patient characteristics and languages
Olsson, I., Kephart, G. C., Packer, T. L., Björk, S., Isaksson, U., Nordström, A., & Audulv, Å. (2026) · Quality of Life Research · doi:10.1007/s11136-025-04124-5
“In the research context, comprehensive self-management assessment measures are needed to describe, facilitate, and evaluate self-management interventions [ 17 – 20].”
Self-citation
An Occupation-Focused Intervention to Promote Functioning Among Adults Aging With Diabetes and Heart Disease
Mirza, M. P., Fischer, H., & Arias, D. L. (2026) · OTJR Occupational Therapy Journal of Research · doi:10.1177/15394492261446563
Self-management interventions for burn survivors: A literature review among patients with burns and other comparable chronic conditions
Blok, S. L., Geelen, S. J. G., Hulleman, D. N., Scholten-Jaegers, S. M., van Baar, M. E., Pijpe, A., Nieuwenhuis, M. K., Bosma, E., van der Sluis, C. K., Baran, K. C., et al. (2026) · Burns · doi:10.1016/j.burns.2026.108080
Transitional care interventions and patient empowerment in adolescents and young adults with chronic conditions: A scoping review for medication management
Jamari, J., Hatah, E., & Shah, N. M. (2026) · Research in Social and Administrative Pharmacy · doi:10.1016/j.sapharm.2026.08.003
Self-Management Assessment Instruments for Adults with Colorectal Cancer-Related Intestinal Stomas: A Scoping Review
ZHANG, J., Liao, Y., Zhang, S., 韦小梅, Peng, H., He, Q., Li, D., & Wang, H. (2026) · Healthcare · doi:10.3390/healthcare14172762

8085 ORAL An exploration of perceived control, self efficacy and involvement in self care during treatment for cancer
Kidd, L., & Kearney, N. (2007) · European Journal of Cancer Supplements · doi:10.1016/s1359-6349(07)71587-2 · Cited by 1 · see citing works
Instruments Measuring Self-Care and Self-Management of Chronic Conditions by Community-Dwelling Older Adults: A Scoping Review
Lawless, M., Tieu, M., Chan, R. J., Hendriks, J., & Kitson, A. A. (2023) · Journal of Applied Gerontology · doi:10.1177/07334648231161929 · Cited by 33 · see citing works
A Review of General Self-Management Assessment Tools in Chronic Diseases
Saghebi, H., Mirzakhani, N., & Haddadiniya, A. (2022) · Scientific Journal of Rehabilitation Medicine · doi:10.32598/sjrm.11.2.11
Generic Self-Reported Questionnaires Measuring Self-Management: A Scoping Review
Hudon, É., Hudon, C., Lambert, M., Bisson, M., & Chouinard, M. (2020) · Clinical Nursing Research · doi:10.1177/1054773820974149 · Cited by 30 · see citing works
Editorial: Chronic disease self‐management: what do we measure?
Dunning, T. L. (2010) · Journal of Nursing and Healthcare of Chronic Illness · doi:10.1111/j.1752-9824.2010.01073.x

Authors: Packer, T. L., Fracini, A., Audulv, Å., Alizadeh, N., van Gaal, B. G. I., Warner, G., & Kephart, G.
Affiliations: HAN University of Applied Sciences (NL)
Dalhousie University (CA)
Mid Sweden University (SE)
Corresponding author: Packer, Tanya L.
ORCID: Packer, Tanya L.
Audulv, Åsa
Alizadeh, Neda
Warner, Grace
Kephart, George
Venue: Patient Education and Counseling
Publisher: Elsevier BV
Published: 2018-04
Volume: 101
Issue: 4
Pages: 579-595
ISSN: 0738-3991 (ISSN-L)
DOI: 10.1016/j.pec.2017.10.014
OpenAlex: W2766372559
Cited by: 54
References: 97
Citations by year: 2026: 6 · 2025: 8 · 2024: 3 · 2023: 6 · 2022: 7 · 2021: 6 · 2020: 9 · 2019: 6 · 2018: 2
FWCI: 0.62
Type: journal article
Language: en
Open access: closed
Licence: www.elsevier.com/tdm/userlicense/1.0/ (tdm)
Locations: Patient Education and Counseling (publishedVersion)
PubMed (publishedVersion)
Data Archiving and Networked Services (DANS) (submittedVersion)
Radboud Repository (Radboud University) (submittedVersion)
Funders: Dalhousie University
Topics: Health Sciences › Medicine › Epidemiology › Chronic Disease Management Strategies
Social Sciences › Education › Health Education and Validation
Health Sciences › Medicine › Endocrinology, Diabetes and Metabolism › Diabetes Management and Education
Keywords: self-management, chronic disease, patient-reported outcomes, patient perspectives
MeSH terms: Self-Management, Chronic Disease, Health Status Indicators, Humans, Self-Assessment, Self Care, Outcome Assessment, Health Care

About these checks

Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.

Statistics and arithmetic are recomputed, not judged.

Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.

What counts as a claim ›How we measure confidence ›How we check this ›

Are you an author, or do you see a problem with this page? Request a review

What we know about the purpose, theoretical foundation, scope and dimensionality of existing self-management measurement tools: A scoping review

Abstract

Integrity signals

Claims the paper makes

Claims other papers make about this one

Cites

Cited by

Related

Record

About these checks