Understanding the ups and downs of living well: the voices of people experiencing early mental health recovery
Open accessAbstract
BACKGROUND: The aim of this study was to better understand early-stage mental health recovery experiences of people living with severe and persistent mental illness and complex needs. METHODS: Semi-structured, in-depth interviews were conducted with 13 people engaged in an Australian program specifically designed for people facing complex barriers to their recovery. Interview data were analysed thematically using constant comparative methods. RESULTS: Participants described engaging with seven interconnecting aspects of early recovery: (1) engaging with the challenge of recovery; (2) struggling for a secure and stable footing; (3) grieving for what was and what could have been; (4) seeking and finding hope; (5) navigating complex relationships; (6) connecting with formal and informal support, and finally, (7) juggling a complexity of health issues. CONCLUSIONS: This study illuminated the complexity of earlier-stage recovery which was characterised both by challenging personal circumstances and a hope for the future. It illustrated that even at an early point in their recovery journey, and amidst these challenging circumstances, people still actively engage with support, draw on inner strengths, source resources and find accomplishments. Stability and security was foundational to the ability of participants to draw on their own strengths and move forward. Stability came when material needs, including housing, were addressed, and an individual was able to connect with a supportive network of workers, carers, friends and family.
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Recovery within this theme is described as an internal fight, coming to the realization that "It needs to be me" (48).
“Recovery within this theme is described as an internal fight, coming to the realization that “It needs to be me” (48).”
From Recovery from Severe Mental Health Problems: A Systematic Review of Service User and Informal Caregiver Perspectives (2021) · cites this paper as [48]
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Cites
Diagnostic and Statistical Manual of Mental Disorders
Williams, J. B. W., & First, M. B. (2013) · Oxford University Press eBooks · doi:10.1093/acrefore/9780199975839.013.104 · Cited by 109,841 · see citing works
Tong, A., Sainsbury, P., & Craig, J. (2007) · International Journal for Quality in Health Care · doi:10.1093/intqhc/mzm042 · Cited by 42,509 · see citing works
(2014) · Cited by 15,747 · see citing works
Leamy, M., Bird, V., Boutillier, C. L., Williams, J., & Slade, M. (2011) · British Journal of Psychiatry · doi:10.1192/bjp.bp.110.083733 · Cited by 3,038 · see citing works
Qualitative Data Analysis: Practical Strategies
Bazeley, P. (2020) · Medical Entomology and Zoology · Cited by 1,388 · see citing works
Presenting and evaluating qualitative research
Anderson, C. (2010) · American Journal of Pharmaceutical Education · doi:10.5688/aj7408141 · Cited by 1,188 · see citing works
Uses and abuses of recovery: implementing recovery-oriented practices in mental health systems
Slade, M., Amering, M., Farkas, M., Hamilton, B., O'Hagan, M., Panther, G., Perkins, R., Shepherd, G., Tse, S., & Whitley, R. (2014) · World Psychiatry · doi:10.1002/wps.20084 · Cited by 949 · see citing works
Comprehensive mental health action plan 2013–2020
Saxena, S., Funk, M. K., & Chisholm, D. (2015) · Eastern Mediterranean Health Journal · doi:10.26719/2015.21.7.461 · Cited by 831 · see citing works
Recovery as A Journey of the Heart
Deegan, P. (1996) · Psychiatric Rehabilitation Journal · doi:10.1037/h0101301 · Cited by 796 · see citing works
An analysis of the definitions and elements of recovery: A review of the literature.
Onken, S. J., Craig, C. M., Ridgway, P., Ralph, R. O., & Cook, J. Α. (2007) · Psychiatric Rehabilitation Journal · doi:10.2975/31.1.2007.9.22 · Cited by 483 · see citing works
What Recovery Means to Us: Consumers' Perspectives
Mead, S., & Copeland, M. E. (2000) · Community Mental Health Journal · doi:10.1023/a:1001917516869 · Cited by 365 · see citing works
Stages of Recovery Instrument: Development of a Measure of Recovery from Serious Mental Illness
Andresen, R., Caputi, P., & Oades, L. G. (2006) · Australian & New Zealand Journal of Psychiatry · doi:10.1080/j.1440-1614.2006.01921.x · Cited by 346 · see citing works
Relational recovery: beyond individualism in the recovery approach
Price-Robertson, R., Obradovic, A., & Morgan, B. (2017) · Advances in Mental Health · doi:10.1080/18387357.2016.1243014 · Cited by 344 · cited 1× · see citing works
“The predominance of participant focus upon relationships with others, and the positive and negative impacts of these speak directly to the ‘relational’ approach to recovery recently promoted [32, 33] and calls for extension to the CHIME component of connectedness.”
BackgroundA scientific agenda for the concept of recovery as it applies to schizophrenia
Silverstein, S. M., & Bellack, A. S. (2008) · Clinical Psychology Review · doi:10.1016/j.cpr.2008.03.004 · Cited by 329 · see citing works
Permanent Supportive Housing: Assessing the Evidence
Rog, D. J., Marshall, T., Dougherty, R. H., George, P., Daniels, A. S., Ghose, S. S., & Delphin-Rittmon, M. E. (2013) · Psychiatric Services · doi:10.1176/appi.ps.201300261 · Cited by 296 · see citing works
Recovery from schizophrenia and the recovery model
Warner, R. (2009) · Current Opinion in Psychiatry · doi:10.1097/yco.0b013e32832c920b · Cited by 263 · see citing works
Stuart, S. R., Tansey, L., & Quayle, E. (2016) · Journal of Mental Health · doi:10.1080/09638237.2016.1222056 · Cited by 207 · see citing works
Clinical Psychiatry: A Textbook for Students and Physicians
Kraepelin, E. (2007) · Medical Entomology and Zoology · Cited by 207 · see citing works
Foster, K., O’Brien, L., & Korhonen, T. (2011) · International Journal of Mental Health Nursing · doi:10.1111/j.1447-0349.2011.00754.x · Cited by 152 · see citing works
Housing affordability: re-imagining the Australian dream
Daley, J., Coates, B., & Wiltshire, T. (2018) · Cited by 82 · see citing works
Qualitative Studies of Recovery: What Can We Learn From the Person?
Davidson, L., Sells, D., Songster, S., & O’Connell, M. J. (2005) · American Psychological Association eBooks · doi:10.1037/10848-007 · Cited by 75 · see citing works
Mental Ill Health, Recovery and the Family Assemblage
Price-Robertson, R., Manderson, L. H., & Duff, C. (2017) · Culture Medicine and Psychiatry · doi:10.1007/s11013-017-9522-2 · Cited by 42 · see citing works
Measuring the Later Stages of the Recovery Journey: Insights Gained from Clubhouse Members
Hancock, N., Bundy, A. C., Honey, A., Helich, S., & Tamsett, S. (2012) · Community Mental Health Journal · doi:10.1007/s10597-012-9533-y · Cited by 37 · see citing works
Self-citationDoing mental health care integration: a qualitative study of a new work role
Smith‐Merry, J., Gillespie, J., Hancock, N., & Yen, I. (2015) · International Journal of Mental Health Systems · doi:10.1186/s13033-015-0025-7 · Cited by 31 · see citing works
Self-citationPartners in Recovery program evaluation: changes in unmet needs and recovery
Hancock, N., Scanlan, J. N., Gillespie, J. A., Smith-Merry, J., & Yen, I. (2018) · Australian Health Review · doi:10.1071/ah17004 · Cited by 23 · see citing works
Self-citationSutton, K., Isaacs, A. N., Dalziel, K., & Maybery, D. J. (2016) · Australian Health Review · doi:10.1071/ah15183 · Cited by 20 · see citing works
Hancock, N., Smith‐Merry, J., Gillespie, J., & Yen, I. (2016) · Australian Health Review · doi:10.1071/ah15248 · Cited by 19 · see citing works
Self-citationSmith‐Merry, J., & Sturdy, S. (2013) · Society and Mental Health · doi:10.1177/2156869313481225 · Cited by 14 · see citing works
Self-citationEmbodying policy-making in mental health: the implementation of Partners in Recovery
Smith‐Merry, J., & Gillespie, J. (2016) · Health Sociology Review · doi:10.1080/14461242.2016.1171120 · Cited by 10 · see citing works
Self-citationOverstating the Case About Recovery?
Remington, G. J., & Shammi, C. (2005) · Psychiatric Services · doi:10.1176/appi.ps.56.8.1022 · Cited by 8 · see citing works
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Vera San Juan, N., Gronholm, P. C., Heslin, M., Lawrence, V., Bain, M., Okuma, A., & Evans-Lacko, S. (2021) · Frontiers in Psychiatry · doi:10.3389/fpsyt.2021.712026 · Cited by 78 · see citing works
Jaiswal, A., Carmichael, K., Gupta, S., Siemens, T., Crowley, P., Carlsson, A., Unsworth, G., Landry, T., & Brown, N. D. (2020) · Frontiers in Psychiatry · doi:10.3389/fpsyt.2020.586230 · Cited by 61 · see citing works
Evidence-based policy, knowledge from experience and validity
Smith‐Merry, J. (2019) · Evidence & Policy · doi:10.1332/174426419x15700265131524 · Cited by 39 · see citing works
Self-citationPeck, C. E., Lim, M. H., Purkiss, M., Foley, F., Hopkins, L., & Thomas, N. (2020) · Frontiers in Psychiatry · doi:10.3389/fpsyt.2020.00635 · Cited by 22 · see citing works
Spirituality and Recovery From Severe Mental Disorders: A Systematic Review
Sawab, S., Yusuf, A., Fitryasari, R., & Arifin, H. (2024) · Journal of Psychosocial Nursing and Mental Health Services · doi:10.3928/02793695-20240227-01 · Cited by 19 · see citing works
Piat, M., & Seida, K. (2018) · International Journal of Social Psychiatry · doi:10.1177/0020764018806928 · Cited by 11 · see citing works
Juan, N. V. S., Gronholm, P. C., Heslin, M., Lawrence, V. C., Bain, M., Okuma, A., & Evans-Lacko, S. E. (2021) · medRxiv · doi:10.1101/2021.05.13.21257172 · Cited by 10 · see citing works
The Indonesian Survivors’ Perspective about Recovery from Schizophrenia: An Exploratory Study
Suryani, S., Hidayah, N., Sutini, T., & Al-Kofahy, L. (2022) · Jurnal Keperawatan Padjadjaran · doi:10.24198/jkp.v10i2.1990 · Cited by 9 · see citing works
Hegde, S., Quadros, S., Appaji, R., & Acharya, V. (2024) · Community Mental Health Journal · doi:10.1007/s10597-024-01312-4 · Cited by 7 · see citing works
Pessoas com sofrimento mental em recovery: trajetórias de vida
Marques, F. C., Lacerda, M. K. S., Alves, J. P., Silveira, A. R., & Sampaio, C. A. (2022) · Interface - Comunicação Saúde Educação · doi:10.1590/interface.200456 · Cited by 6 · see citing works
Exploring individuals' experiences of hope in mental health recovery: Having a sense of possibility
Murphy, J., Mulcahy, H., O’Mahony, J., Bradley, S. K., & Ryan, D. (2024) · Journal of Psychiatric and Mental Health Nursing · doi:10.1111/jpm.13013 · Cited by 6 · see citing works
Davies, E., Hooper, K. J., Pelentsov, L. J., Gordon, A. L., & Esterman, A. J. (2020) · International Journal of Mental Health Nursing · doi:10.1111/inm.12697 · Cited by 5 · see citing works
An Exploration of the Use and Usefulness of the Questionnaire about the Process of Recovery (QPR)
Lanyon, A., & Petrakis, M. (2022) · Journal of Evidence-Based Social Work · doi:10.1080/26408066.2022.2155498 · Cited by 4 · see citing works
Robertson, C., Brainard, J. S., Smith, G. E., Harcourt, S., Hoang, U., Elliot, A. J., de Lusignan, S., Colón‐González, F. J., & LAKE, I. R. (2026) · BMC Health Services Research · doi:10.1186/s12913-026-14362-z · Cited by 3 · see citing works
Stages of recovery in psychosis: Converging qualitative research and psychoanalysis
Pěč, O. (2020) · Perspectives In Psychiatric Care · doi:10.1111/ppc.12490 · Cited by 3 · see citing works
Families and Recovery: Beyond clinical and social inclusion perspectives
Bland, R., & Wyder, M. (2024) · Social Work and Social Sciences Review · doi:10.1921/swssr.v25i1.2303 · Cited by 2 · see citing works
Montgomery, P., Mossey, S., & McCauley, K. (2019) · Canadian Journal of Nursing Research · doi:10.1177/0844562119835730 · Cited by 2 · see citing works
Wayland, S., Smith‐Merry, J., Rakidzic, S., O’Shea, A., Schweizer, R., Gill, K., Hutton, V., & Sisko, S. (2020) · Springer eBooks · doi:10.1007/978-3-030-55427-9_8 · Cited by 2 · see citing works
Self-citationSmith‐Merry, J., Hollier, J., Hancock, N., Gye, B., Salvador‐Carulla, L., Halloran, K., Campos, W., & Rosenberg, S. P. (2026) · International Journal of Integrated Care · doi:10.5334/ijic.9129 · Cited by 1 · see citing works
Self-citationTreloar, A. E., & Bleus, K. (2021) · Journal of Problem-Based Learning · doi:10.24313/jpbl.2021.00080 · Cited by 1 · see citing works
What ‘evidence' do people really want and need for their recovery?
Glover, H., & Tran, P. (2022) · RIVISTA SPERIMENTALE DI FRENIATRIA · doi:10.3280/rsf2022-001008
Robertson, C., Brainard, J. S., Smith, G., Harcourt, S., Hoang, U., Elliot, A. J., de Lusignan, S., Colón‐González, F. J., & LAKE, I. R. (2025) · doi:10.2196/preprints.71281
Inner Strength—A Systematic Review of Qualitative Empirical Studies
Norberg, A., & Strandberg, G. (2025) · Scandinavian Journal of Caring Sciences · doi:10.1111/scs.70102
da Silva, T. R., Russinova, Z. L., Farkas, M. D., Gadelha, A., Andrade, M. C. R., & Bressan, R. A. (2026) · International Journal of Social Psychiatry · doi:10.1177/00207640251415510
Isaacs, A. N., & Baker, A. (2026) · Community Mental Health Journal · doi:10.1007/s10597-026-01600-1
- Authors
- Hancock, N., Smith-Merry, J., Jessup, G., Wayland, S., & Kokany, A.
- Affiliations
- The University of Sydney (AU)
- University of Technology Sydney (AU)
- Corresponding author
- Hancock, Nicola
- Venue
- BMC Psychiatry
- Published
- 2018-05-04
- Volume
- 18
- Issue
- 1
- Pages
- 121-121
- ISSN
- 1471-244X (ISSN-L)
- PMC
- PMC5935906
- OpenAlex
- W2806570501
- Cited by
- 25
- References
- 30
- Citations by year
- 2026: 4 · 2025: 2 · 2024: 4 · 2022: 4 · 2021: 3 · 2020: 5 · 2019: 2 · 2018: 1
- FWCI
- 4.20
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Licence
- Locations
- BMC Psychiatry (publishedVersion, cc-by)
- Europe PMC (PubMed Central) (publishedVersion, other-oa)
- PubMed Central (publishedVersion, cc-by)
- PubMed (publishedVersion)
- RUNE (Research UNE) (submittedVersion, cc-by)
- DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
- UTS ePRESS (University of Technology Sydney) (submittedVersion)
- Topics
- Health Sciences › Health Professions › General Health Professions › Mental Health and Patient Involvement
- Social Sciences › Psychology › Clinical Psychology › Psychiatric care and mental health services
- Health Sciences › Medicine › Psychiatry and Mental health › Schizophrenia research and treatment
- Keywords
- severe and persistent mental illness, complex needs, lived experience, hope, grief, interpersonal relationships, social support networks, housing stability, material needs, inner strength
- MeSH terms
- Mental Health Recovery, Adolescent, Adult, Aged, Australia, Mental Disorders, Female, Humans, Interviews as Topic, Male, Middle Aged, Social Support, Young Adult
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