From pillar to post – a study of younger people with dementia
Open accessAbstract
AIMS and Method: A health needs assessment was undertaken to evaluate current provision and to help inform the future development of services for people under the age of 65 years with dementia in Leeds. Results: The prevalence rate for early onset dementia in Leeds was found to be 42 per 100 000 aged 30–64 years, and 78 per 100 000 aged 45–64 years. Four main gateways for specialist investigation and care were identified and 38 referral pathways were identified in total. Carers had difficulties accessing information and services and they, along with the patients, valued, in particular, both the coordinated service provided by the specialist early onset dementia team and the dedicated day care facility available in Leeds. Clinical Implications: Younger people with dementia can have very different needs to older people. The prevalence rate and the experiences of carers and patients clearly justifies the existence and further development of a specialist early onset dementia service. Such a service should provide a single gateway to coordinated service provision and ensure continuity of care. It should provide sufferers and carers with information, advice and expertise.
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Spouse caregivers of younger people with dementia are usually in their 50s and still have children at home.
“The spouse caregivers of these young persons, whether male or female, are most often in their 50s 13 and still have children at home.”
From The Unique Experience of Spouses in Early-Onset Dementia (2013) · cites this paper as [13]
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Cites
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Epidemiology of early-onset dementia: a review of the literature
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The Unique Experience of Spouses in Early-Onset Dementia
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- Authors
- Williams, T., Dearden, A. M., & Cameron, I. H.
- ORCID
- Williams, Tim
- Venue
- Psychiatric Bulletin
- Publisher
- Royal College of Psychiatrists
- Published
- 2001-10
- Volume
- 25
- Issue
- 10
- Pages
- 384-387
- ISSN
- 0955-6036 (ISSN-L)
- 1472-1473
- OpenAlex
- W2014129099
- Cited by
- 101
- References
- 6
- Citations by year
- 2026: 2 · 2024: 2 · 2023: 2 · 2022: 2 · 2021: 4 · 2020: 34 · 2019: 2 · 2017: 2 · 2016: 8 · 2015: 5 · 2014: 8 · 2013: 11 · 2012: 4
- FWCI
- 0.21
- Type
- journal article
- Language
- en
- Open access
- hybrid
- doi.org
- Locations
- Psychiatric Bulletin (publishedVersion, cc-by)
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Social Sciences › Psychology › Clinical Psychology › Psychiatric care and mental health services
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Down syndrome and intellectual disability research
- Keywords
- early-onset dementia, young people with dementia, dementia prevalence, referral pathways, caregiver support, care coordination, health needs assessment, LEED
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