The DOI matches its Crossref record; 9 of the 9 references it cites were found in a registry or an index.
Caregiver burden and patients’ perception of being a burden in ALS
Abstract
The determinants of ALS caregiver burden and the feeling of the patients as being a burden were assessed using the Caregiver Burden Inventory and the Self-Perceived Burden Scale in 60 caregiver-patient couples. Caregiver burden was correlated to their level of depression and quality of life and, differently from other chronic disorders, increased with the worsening of patients' disability. ALS patients have a good objective perception of their impact on caregivers.
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“Quality of life may be increased and perceived carer burden decreased in MND family carers who find positive meaning [13,14] and have a sense of hope [18].”
From Feasibility, acceptability and potential effectiveness of dignity therapy for family carers of people with motor neurone disease (2014) · cites this paper as [18]
Citations
Cites
Application of a multidimensional caregiver burden inventory
Novak, M., & Guest, C. (1989) · The Gerontologist · doi:10.1093/geront/29.6.798 · Cited by 1,205
Gender Differences in Caregiving: Fact or Artifact?
Miller, B. H., & Cafasso, L. L. (1992) · The Gerontologist · doi:10.1093/geront/32.4.498 · Cited by 438
Resilience and Distress Among Amyotrophic Lateral Sclerosis Patients and Caregivers
Rabkin, J. G., Wagner, G. J., & Del Bene, M. (2000) · Psychosomatic Medicine · doi:10.1097/00006842-200003000-00020 · Cited by 288
Measuring Chronic Patients’ Feelings of Being a Burden to their Caregivers
Cousineau, N., McDowell, I., Hotz, S., & Hébert, P. C. (2003) · Medical Care · doi:10.1097/00005650-200301000-00013 · Cited by 261
The psychosocial burden on spouses of the elderly with stroke, dementia and Parkinson's disease
Thommessen, B., Aarsland, D., Brækhus, A., Øksengaard, A. R., Engedal, K., & Laake, K. (2002) · International Journal of Geriatric Psychiatry · doi:10.1002/gps.524 · Cited by 224
A cross sectional study on determinants of quality of life in ALS
Chio, A. (2004) · Journal of Neurology, Neurosurgery & Psychiatry · doi:10.1136/jnnp.2003.033100 · Cited by 190
Trail, M., Nelson, N. D., Van, J. N., Appel, S. H., & Lai, E. C. (2003) · Journal of the Neurological Sciences · doi:10.1016/s0022-510x(03)00003-0 · Cited by 176
Burden of care in amyotrophic lateral sclerosis
Hecht, M. J., Graesel, E., Tigges, S., Hillemacher, T., Winterholler, M., Hilz, M. J., Heuß, D. F., & Neundörfer, B. (2003) · Palliative Medicine · doi:10.1191/0269216303pm754oa · Cited by 108
Disparities in perceptions of distress and burden in ALS patients and family caregivers
Adelman, E. E., Albert, S. M., Rabkin, J. G., Del Bene, M. L., Tider, T., & O’Sullivan, I. (2004) · Neurology · doi:10.1212/01.wnl.0000125180.04000.a4 · Cited by 75
Research works printed but not linked: 1
- Cohen SR, Mount BM, Strobel MG, Bui F. The McGill Quality of Life questionnaire: a measure of quality of life appropriate for people with advanced diseases. A preliminary study of validity and acceptability. Palliat Med 1995;9:207–219.
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A longitudinal study on quality of life and depression in ALS patient–caregiver couples
Gauthier, A., Vignola, A., Calvo, A., Cavallo, E., Moglia, C., Sellitti, L., Mutani, R., & Chiò, A. (2007) · Neurology · doi:10.1212/01.wnl.0000257093.53430.a8 · Cited by 256
Self-citationFeeling like a burden: Exploring the perspectives of patients at the end of life
McPherson, C. J., Wilson, K. G., & Murray, M. A. (2007) · Social Science & Medicine · doi:10.1016/j.socscimed.2006.09.013 · Cited by 244
Feeling like a burden to others: a systematic review focusing on the end of life
McPherson, C. J., Wilson, K. G., & Murray, M. A. (2007) · Palliative Medicine · doi:10.1177/0269216307076345 · Cited by 253
Amyotrophic lateral sclerosis: translating genetic discoveries into therapies
Akçimen, F., Lopez, E. R., Landers, J. E., Nath, A., Chiò, A., Chia, R., & Traynor, B. J. (2023) · Nature Reviews Genetics · doi:10.1038/s41576-023-00592-y · Cited by 234
Clinical care of patients with amyotrophic lateral sclerosis
Radunović, A., Mitsumoto, H., & Leigh, P. N. (2007) · The Lancet Neurology · doi:10.1016/s1474-4422(07)70244-2 · Cited by 168
Metadata
- Authors
- Chiò, A., Gauthier, A., Calvo, A., Ghiglione, P., & Mutani, R.
- Affiliations
- From the Department of Neuroscience (Drs. A. Chiò, A. Gauthier, A. Calvo, A. Ghiglione, and R. Mutani), University of Turin, and IRCCS Istituto Auxologico Italiano (Dr. R. Mutani), Piancavallo, Italy.
- IRCCS Istituto Auxologico Italiano (IT)
- ORCID
- Calvo, A.
- Venue
- Neurology
- Published
- 2005-05-24
- Volume
- 64
- Issue
- 10
- Pages
- 1780-1782
- ISSN
- 0028-3878 (ISSN-L)
- 1526-632X
- OpenAlex
- W2080752676
- Cited by
- 223
- References
- 9
- Citations by year
- 2026: 8 · 2025: 6 · 2024: 11 · 2023: 10 · 2022: 5 · 2021: 19 · 2020: 15 · 2019: 8 · 2018: 11 · 2017: 11 · 2016: 10 · 2015: 16 · 2014: 13 · 2013: 4 · 2012: 16
- FWCI
- 22.70
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Neurology (publishedVersion)
- PubMed (publishedVersion)
- Institutional Research Information System University of Turin (University of Turin) (submittedVersion)
- Topics
- Health Sciences › Nursing › Research and Theory › Nursing care and research
- Health Sciences › Medicine › Clinical Neurology › Amyotrophic Lateral Sclerosis Research
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Keywords
- amyotrophic lateral sclerosis, caregiver burden, perceived burden, depression, quality of life, disability progression, Caregiver Burden Inventory
- MeSH terms
- Activities of Daily Living, Adult, Age Factors, Aged, Amyotrophic Lateral Sclerosis, Chronic Disease, Depression, Female, Humans, Male, Middle Aged, Patients, Quality of Life, Surveys and Questionnaires, Sex Factors, Social Support, Caregivers, Disease Progression, Spouses
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